Big Congratulations to Mary E. Brunkow, Fred Ramsdell and Shimon Sakaguchi who were awarded the Nobel Prize in Physiology or Medicine for research showing how the body regulates its immune responses and keeps the immune system from attacking itself.

Help Me Warn the Public @zementhead.bsky.social @meeheeheehaha.bsky.social @leahathome.bsky.social @geomatt19.bsky.social @literalkaren.bsky.social @armzz.bsky.social @lundinadvocates.bsky.social @bilbydan.bsky.social @lirettet.bsky.social @raeki.bsky.social @radpackclub.bsky.social

Front page of Rolling Stone #medsky #longcovid

Trump and his American oligarchs are now openly aligning themselves with Putin and his Russian oligarchs. This Putin-Trump alliance means abandoning our allies, supporting authoritarianism and undermining our democratic traditions.

“After we’ve discriminated against, deported, or disparaged all the immigrants, the gay and lesbian and transgender people, the developmentally disabled, the women, and minorities. Once we’ve ostracized our neighbors and betrayed our friends… what comes next?” - Gov. JB Pritzker

Here is what the censoring of data.cdc.gov looks like over time

#NEWS - Federal judge halts Trump administration cuts to NIH research payments in 22 states www.statnews.com/2025/02/10/n...

#medlibs www.nytimes.com/2025/02/10/u...

this new administration is going to be waging war on the health agencies, And it's going to have a tremendously detrimental effect on the health sciences. All these are terrible signs that we need to be confronting vigorously #medlibs www.npr.org/sections/sho...

The entire archive of CDC datasets can be found here. HUGE shoutout to data archivists- this work is important 👏🙌🏻 archive.org/details/2025...

By the way, there’s a tuberculosis outbreak in Kansas. apnews.com/article/tube...

Today's update: 1. Trump Admin walks back federal grant freeze. For now. Rollercoaster redux, w/ input from @steve_vladeck 2. Trump focuses funding attack on DEI, CDC programs . 3. USAID experts take to social media looking for jobs. 4. RFK Jr., hearings analysis. open.substack.com/pub/insideme...

The CDC’s MMWR (Morbidity and Mortality Weekly Report) did not come out last week. The first time in generations. Hasn’t come out today and I can almost assure you it will not. Why? Trump wants it reviewed *by a political appointee* Regardless of your view of that journal, that is censorship.

Via Quasim Rashid: BREAKING: The Attorneys General of CA, NY, AZ, CO, CT, DE, HI, IL, ME, MD, MA, MI, MN, NV, NC, NJ, NM, OR, RI, VT, WA, WI, and D.C. have all filed suit against Trump for his budget freeze on vital health services.

Biomedical scientist who works in cancer & infectious disease life sciences biotech here: Banning US scientists from communicating with the WHO threatens humanity. Banning communication about emerging health risks like disease outbreaks & food recalls threatens humanity. 1/

For those curious about the impact of #NIH funding when it comes to #research and the economic impact, this site may be one of interest. www.unitedformedicalresearch.org/nih-in-your-... #MEDLIBS

It’s no surprise, then, that choroid plexus volume is enlarged in long COVID patients. This shows the severity of the neuroinflammation.2/3

Here we are, back to neuroimmunology. The choroid plexus, as a key component of the glymphatic system, acts as the “starting point” by generating the cerebrospinal fluid necessary for waste clearance.1/3

Long COVID is a serious public health problem, and the approach to addressing it should be bipartisan. My observations so far align with this perspective. Hoping for the best, always. 🙏🏻 (6/6)

2. I gave a six-page interview to the NIH as someone with lived experience and as a Neurological Agents Working Group member, discussing the progress of the work. I will share it with you when it is published on the NIH’s page. (5/6)

Update on my Interactions with the NIH 1. My Long COVID friends, the NIH RECOVER-TLC meetings on the Neurological Agent Prioritization Working Group have been scheduled. As a committee member, I received the agents I need to review today, which I’m not allowed to share.(1/6)

FYI -https://www.cnbc.com/2025/01/28/trump-funding-freeze-medicaid-state-portals-omb.html #medsky #medicaidportal

Disabled and senior people constitute the highest number of deaths in climate disasters like wildfires and flooding due to poor planning and lack of investment by the govt. Something I wrote about wildfires in Northern CA: sf.curbed.com/2018/11/13/1... #LAFires #LAFirestorm2025

Bluesky - We need chat spaces for the new year! It’s all 🧟zombies in X dungeon and Elon is an insecure 🐸. #medsky #spaces

1/3 Appreciate attempt to categorize subtypes but they miss full extent of dysautonomia in some long haulers. I’d have categorized “Postural tachycardia” or POTS as neurologic NOT cardio. Not doing so creates a problem where respondents must choose one symptom over another to fit a category.

Mayo Clinic Autoimmune Neurology Course Florida - May 2025 x.com/mayo_aing/st... #medsky #autoimmuneneurology

Yes, I have positive things to say about it. It may be life changing for how much (nerve) function a person can regain say for example if they are diagnosed with autoimmune autonomic small fiber neuropathy (often seen with POTS and often coming on after viral infection).

Important study from Vanderbilt - POTS patients demonstrate absolute blood volume deficit compared with normal individuals. x.com/arturfedorow... #medsky #POTS

Space currently going on on X re: RFK Health Management Outlook? Seems to be more of a finanically minded space? I’ve already heard some ridiculous comments… x.com/unusual_whal...

If you are missing Twitter (X) spaces here is a third party tool to help you with that. 🎙 #Bluecast is a real-time audio streaming service built for #BlueSky. www.bluecast.app

I think bluesky is eating twitter for lunch.

Now that @seekingboston.bsky.social is here, things will be improving quickly, certainly the mood! Welcome!