Some behaviors related to FTD can lead to unexpected interactions with the criminal justice system. This month’s Quick Question asks whether you or your loved one have experienced this. Share your voice: ftdregistry.org/quick-questi... #endFTD

Professor Eneida Mioshi and her team at @uniofeastanglia.bsky.social (UK) are developing a free, online intervention designed to support family carers of people living with #frontotemporaldementia (FTD). To participate or learn more about the program, visit ftdtoolkit.org #endFTD

📣 The ABI Communication Lab is excited to invite you to our next Sydney Aphasia Social Group event! 💬 🗓 Tuesday, 24 February 2026 ⏰ 11:00 AM – 1:00 PM 📍 Level 4, Susan Wakil Health Building, The University of Sydney 👉 Register here: events.humanitix.com/sydney-aphas...

Congratulations to Jane Dean on being named the 2026 Snowy Valleys Citizen Achievement Award! Jane, Stephen, and their family have made an extraordinary contribution to raising awareness and funds for #FTD research within the Tumut community. #endFTD www.snowyvalleys.nsw.gov.au/News-Media/S...

New paper by @samuelwarren.bsky.social and colleagues, Modeling contributions of cognition and apathy to functional impairment in younger-onset dementia doi.org/10.1002/dad2... @alzdemjournals.bsky.social @muireannirish.bsky.social @brainandmindcentre.bsky.social @sydney.edu.au #endFTD

New paper by @lauradewitte.bsky.social & Candy Cheung Understanding the multifaceted nature of quality of life in dementia using a transdiagnostic network analysis approach doi.org/10.1080/1360... @muireannirish.bsky.social @tandfresearch.bsky.social @brainandmindcentre.bsky.social @sydney.edu.au

GemVax & KAEL report positive safety and tolerability data for its Phase 2 trial for GV1001 in people with #PSP. The trial also showed some potential efficacy for the drug to slow disease progression. ➡️ Click here to learn more: https://bit.ly/44qUxcM

Our 2025 group photo. Big smiles, big plans for the year ahead. #frontotemporaldementia #primaryprogressiveaphasia #ftd #ftld #ppa #endFTD @brainandmindcentre.bsky.social @sydney.edu.au

The #UniversityofSydney SPEECH Clinic is now taking on clients interested in the 10-week convers-ABI-lity program! The SPEECH Clinic will be taking on new adult clients and will be offering assessment and treatment sessions. If interested, please reach out to [email protected]

The Nature Partner Journals Dementia are looking for essays from clinicians and researchers who have experience with all forms of Dementia. The essays will be collated together to create "The Human Connection". Learn more here: ow.ly/9yrK50XAyH1 #researchers #journal #essays #personalexperiences

We’re deeply grateful to #DementiaSupportAustralia and #AFTDA for creating Carer Conversations, a lifeline for people across Australia who are supporting someone living with #frontotemporaldementia. www.dementia.com.au/resource-hub... #endFTD

Join us for an inside look at the progress shaping FTD research. On 12/10 at 3 pm, AFTD experts Dr. Penny D. and Dr. Chiadi O. will discuss advancements from 2025 & the momentum driving us toward effective treatments in the years ahead. Sponsored by Passage Bio Register now: https://bit.ly/4rfNmOq

Another successful FRONTIER Charity Golf Day in Tumut! We’re deeply grateful to the Tumut community and the Dean family for their incredible support. Your support makes it possible for us to advance our understanding and treatment of #FTD. #endFTD #PPA @brainandmindcentre.bsky.social

Results from Alector Therapeutics’ Phase 3 trial for Latozinemab (AL001), designed for people with FTD caused by GRN variants, have raised important questions for many. Join us on Nov. 6 for a live discussion about what these results mean and what’s next for FTD research: https://bit.ly/3Lw3Sco

Join ISFTD's Webinar on AI in FTD: From Neuropathology to MRI to Clinic Wednesday, 29th October, 2025 at 11:00 AM EST. www.isftd.org/events/webin... #endFTD #ISFTD

Just over two weeks until our Better Conversations course in Sydney & three weeks until Perth. Shouting out to all Speech Pathologists in NSW and WA- we’d love to see you. And there are places still available!!! Sign up: www.ucl.ac.uk/brain-scienc...

Alector has announced results from its Phase 3 trial of latozinemab (AL001) for FTD-GRN. While the study did not meet its goals, it offers insight that will guide future FTD research. Thank you to all who participated and continue to advance FTD research. Learn more: ftdregistry.org/press/alecto...

Recorded videos from our FRONTIER information day are now on our Youtube channel. In this video, David Foxe discusses how everyday function, cognition, and behaviour change over time in FTD and PPA. www.youtube.com/watch?v=hQWX... @brainandmindcentre.bsky.social #endFTD

In our latest Sydney Ideas public conversation, University of Sydney experts explored the science and ethics of ageing, new insights into dementia, and the facts vs fads behind anti-ageing promises. Missed it? You can now catch up on video and podcast: srkr.io/63321SJV

New paper by Tao Chen and colleagues which explores the direction of atrophy progression in the behavioural variant of frontotemporal dementia dx.doi.org/10.1002/hbm.... @muireannirish.bsky.social @brainandmindcentre.bsky.social @sydney.edu.au @wiley.com #endFTD

New study by @a-ambikairajah.bsky.social which investigates the time to diagnosis of the frontotemporal lobar degeneration syndromes relative to Alzheimer's disease. dx.doi.org/10.1002/dad2... @brainandmindcentre.bsky.social @uccarat.bsky.social @alzdemjournals.bsky.social #endFTD

A proud day for the FRONTIER Group as we hosted our 2025 Information Day. Huge thanks to our fantastic speakers, Olivier, David, Richard, Mirelle, and Manisha, for sharing their insights, and to Penny for her brilliant coordination in making the day such a success. #WorldFTDAwarenessWeek #endFTD

On #FTDAwarenessWeek, we’re asking the world to learn about frontotemporal dementia, the most common form of dementia for those under 60. #dementia #ftd #frontotemporaldegeneration

World FTD Awareness Week begins today! FTD often starts between ages 45–65, making it the most common dementia under 60. Let’s raise awareness and drive research toward treatments and a cure. #EndFTD #FTDAwareness #USA

🌟 Proud moment for our students! During placement, #students teamed up with people living with #dementia & #primaryprogressiveaphasia to co-design this resource for #DementiaAwarenessMonth: 🔗 lnkd.in/gCgq4nXU Share to spark conversation, raise #awareness, & amplify voices with #livedexperience! 💛

ABC Listen ✅ www.abc.net.au/listen/progr... in conversation with Prof Olivier Piguet. Experts want the diagnostic guidelines for FTD to be broadened, as they currently exclude patients with #MemoryLoss @frontier-usyd.bsky.social

📰 Researchers call for updates to diagnostic criteria for bvFTD, in study published in Alz & Dementia BvFTD is the most common form of FTD accounting for up to 70% of cases. Prof Olivier_Piguet Director @frontier-usyd.bsky.social ✅ bit.ly/RestrictiveC...

The Unexpected Journey by Emma Heming Willis is out now! Lauren Massimo, Co-Director of the Penn FTD Center, contributed to The Unexpected Journey! Emma provided an exclusive highlight for the Penn FTD Center. Read more at the link in our bio and on our website!

Good news! The FTDToolkit is now open to international participants. Australians supporting someone living with FTD can now sign up and access this valuable resource. Visit their Facebook page for details on how to register. www.facebook.com/ftdtoolkit @uniofeastanglia.bsky.social

Blood clue for frontotemporal #dementia (FTD)? Lower blood levels of myelin-linked fats (hexosylceramides) in people with behavioural variant FTD mirrored white-matter damage on MRI and tracked with disease duration –pointing to a potential monitoring #biomarker. #FTD #DementiaResearch #Biomarkers

Join @sydney.edu.au experts to explore healthy ageing, new research into the ethics and science of dementia prevention. Featuring @brainandmindcentre.bsky.social researchers Eleanor Drummond & Olivier Piguet, sociologist Gilbert Knaggs from FASS, and host Elfy Scott. Register now: bit.ly/4pq3tYP

For Dementia Awareness Month, we’ve given the FRONTIER website a fresh new look! It’s now easier to access information and explore the research we’ve built over the years. A big thank you to our participants, without your support, our work would not be possible. www.frontierftd.org #endFTD

Emma Heming Willis was interviewed Tuesday night on “Emma and Bruce Willis: The Unexpected Journey – A Diane Sawyer Special,” sharing her family’s experience of living with FTD. 🔴 Learn more: https://bit.ly/47Ny0sS

It's nice to see our research receiving the media attention it deserves. #endFTD www.abc.net.au/news/health/... Here is the linked paper: alz-journals.onlinelibrary.wiley.com/doi/full/10.... @brainandmindcentre.bsky.social @sydney.edu.au @alzdemjournals.bsky.social @alzassociation.bsky.social

Are you living with or supporting someone with #primaryprogressiveaphasia? Join leading neuroscientists and speech pathologists on 25th September for a FREE webinar exploring the latest research on PPA and how speech pathology can make a difference. @ppaphasiaawareness.bsky.social

Position open for a neuroimaging focused postdoc to come work with us in Sydney Feel free to get in touch for a chat if you have any questions about it :) usyd.wd105.myworkdayjobs.com/en-GB/USYD_E...

And we’ve done it again! Congratulations to Olivier, Cristian, Kirrie, Jordan, and David for braving the weather yesterday to run the City2Surf. Once again, the team raised vital funds for the AFTDA. There’s still time to donate to this important cause! city2surf25.grassrootz.com/australian-f...

Celebrate National Science Week on Wed 13 August with @centenaryinstitute.bsky.social - an exhibition highlighting the beauty of science, life under the microscope, and more! Includes a live panel with journalist Sophie Scott + researchers. Register for free: srkr.io/63329guT

Better Conversations training is going down under! @jadecartwright.bsky.social @lissbee.bsky.social @aphasiacre.bsky.social Any Australian speech pathologists interested in attending our training: Sydney - Monday 10th Nov Perth - Monday 17th November Sign up here: ucl.ac.uk/brain-sciences…

FRONTIER's information day is on Wednesday 24th September. Scan the QR to learn more. #endFTD

Missing #AAIC25 or just too much to see? Take a look at the Dementia Researcher YouTube Channel where we have researchers taking the ‘Research in a Short’ Challenge presenting their work in 3 minutes or less youtube.com/@dementiares...

Amazing! Sooo good to see the band get back together!!

Calling young Aussies (18–40)! Researchers from UNSW, Curtin University, and the University of Surrey want to hear your thoughts on ageing—and your experiences if you're supporting someone with dementia. Your voice matters. Take the survey.

New paper! Johan and colleagues explore psychological wellbeing and burden in those caring for individuals living with #PPA. dx.doi.org/10.1111/1460... #endFTD

We understand that care management can be tough. For July Care Management Monday, we are sharing tips on FTD & Sundowning. 📍Check out our website for more information on Support & Resources

As the 7th Pacific Rim Conference comes to a close, it's been a valuable few days of learning and collaborating. Well done to Jess, Fiona, Ramon, and Sophie for their excellent talks—and to all from our team who presented.

Another successful day at the 7th Pacific Rim Conference in Brisbane. Frontierers and vintage Frontierers assemble!

Fantastic first day at the 7th Pacific Rim Conference in Brisbane—insightful talks and great energy throughout. Wonderful to see FRONTIER so well represented, with excellent presentations from Sau Chi, Natacha, and David.