Penn FTD Center
@pennftdc.bsky.social
π€ 90
π₯ 15
π 178
The University of Pennsylvania Frontotemporal Degeneration Center linktr.ee/pennftdcenter
π° Are you subscribed to the Penn FTD Center newsletter? Use the link in our bio to stay up to date on our latest updates, educational events, and research advancements!
about 7 hours ago
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In our June blog, Penn FTD Center Senior Clinical Research Coordinator Ashlyn OβHalloran interviews Mary Lou Falcone to discuss caregiving, perseverance, and love. Our latest blog post can be found at our website or by clicking the link in our bio!
1 day ago
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The Penn FTD Center is here for another FTD Fact Friday! And we are here to help! π Check out our Support & Resources π Read our monthly blog π Learn more about Observational Research or Clinical Trials Click the website link for more!
4 days ago
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Penn FTD Center Staff Highlight π Gillian Bradley, MSN, CRNP is a nurse practitioner and has been in this current role since the beginning of 2025, but first joined the FTD Center in 2018 as a clinical research coordinator. πRead more details on Gillian at the link in bio!
6 days ago
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We understand that care management can be tough. This June, we are sharing tips for taking vacations. πCheck out our website for more information on Support & Resources π Check out the AFTD for Awareness Cards at the link in our bio to print and take on any trips!
8 days ago
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The Penn FTD Center is here for another FTD Fact Friday! And we are here to help! π Check out our Support & Resources π Read our monthly blog π Learn more about Observational Research or Clinical Trials Click the website link for more!
11 days ago
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The Penn FTD Center is here for another FTD Fact Friday! And we are here to help! π Check out our Support & Resources π Read our monthly blog π Learn more about Observational Research or Clinical Trials Click the website link for more!
18 days ago
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π’Looking for the latest news from the Penn FTD Center? Want to stay up-to-date on research and trials? Make sure you are following the Penn FTD Center on all your social platforms. πAll of our social media accounts can be found at the link in our bio!
22 days ago
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The Penn FTD Center is here for another FTD Fact Friday! And we are here to help! π Check out our Support & Resources π Read our monthly blog π Learn more about Observational Research or Clinical Trials Click the website link for more!
25 days ago
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What are Nurse Practitioners (NPs) and how can they best support you? Read in our blog post available now at the link in our bio!
27 days ago
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We understand that care management can be tough. In May, we are providing details on available support groups & resources. πCheck out our website for more information on Support & Resources
29 days ago
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Penn FTD Center Staff Highlight π Allison Snyder, MD is an Assistant Professor at the Penn FTD Center. Dr. Snyder sees clinic patients, clinical research participants, and studies the biology of TDP-C in her lab. πRead more details on Dr. Snyder in our blog post! Link in bio!
about 1 month ago
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The Penn FTD Center wants to extend a happy National Nurses Week to all of our wonderful nurses! Thank you for your incredible hard work and dedication!
#NationalNursesWeek
#ThePowerOfNurses
about 1 month ago
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Congrats to Penn FTDC's Emily, Alex, and Cara who were all nominated for the 2026 CREATE Awards for Clinical Research Expertise & Advancement Through Excellence. These annual awards are presented by The Society for Penn Clinical Research Professionals (SPCRP). Congrats all! π
about 1 month ago
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Thanks to Penn FTD Center Co-Director David Irwin, MD and Assistant Professor Allison Snyder, MD on their participation and presentation on FTD at the American Academy of Neurology 2026 Annual Meeting!
#AANAM
about 1 month ago
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Penn FTD Center Staff Highlight π Jordana Woodford, MA, Ed.S is a Senior Clinical Research Coordinator at the Penn FTD Center. Jordana has worked on several studies and currently works on the UNICORN study, P01 study, and the ALLFTD team. πRead more details on Jordana in our blog post in bio!
about 2 months ago
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π° Are you subscribed to the Penn FTD Center newsletter? Use the link in our bio to stay up to date on our latest updates, educational events, and research advancements!
about 2 months ago
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The Penn FTD Center is here for another FTD Fact Friday! And we are here to help! π Check out our Support & Resources π Read our monthly blog π Learn more about Observational Research or Clinical Trials Click the website link for more!
2 months ago
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ISFTD EMCR (Early to Mid Career Research) will be hosting a symposium April 14-16 with a variety of researchers including former Penn FTD Center postdoctoral researcher, Ting Shen. For full schedule, registration, and further details, use the link below!
www.isftd.org/emcr-symposi...
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EMCR Symposium - ISFTD
The symposium will take place April 14 β 16, 2026.
https://www.isftd.org/emcr-symposium/
2 months ago
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This spring, we are encouraging healthy and engaging habits. April is the perfect time to enjoy the beautiful weather with outdoor hobbies, such as bird watching! πCheck out our website for more information on Support & Resources
2 months ago
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The Penn FTD Center is here for another FTD Fact Friday! And we are here to help! π Check out our Support & Resources π Read our monthly blog π Learn more about Observational Research or Clinical Trials Click the website link for more!
2 months ago
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Join the Philly NeuroArts Network for a day of connection, healing, and self-expression! π Sat May 2 β² 10am-2pm πJordan Center for Medical Education 5th floor of the Perelman Center 3400 Civic Center Blvd, Philadelphia, PA 19104 Reg link in bio!
2 months ago
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The Penn FTD Center is here for another FTD Fact Friday! And we are here to help! π Check out our Support & Resources π Read our monthly blog π Learn more about Observational Research or Clinical Trials Click the website link for more!
2 months ago
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π’Looking for the latest news from the Penn FTD Center? Want to stay up-to-date on research and trials? Make sure you are following the Penn FTD Center on all your social platforms. πAll of our social media accounts can be found at the link in our bio!
3 months ago
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The Penn FTD Center is here for another FTD Fact Friday! And we are here to help! π Check out our Support & Resources π Read our monthly blog π Learn more about Observational Research or Clinical Trials Click the website link for more!
3 months ago
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We understand that care management can be tough. In National Nutrition Month we wanted to highlight information on the link between healthy diets and healthy brains. πCheck out our website for more information on Support & Resources
3 months ago
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The Penn FTD Center is here for another FTD Fact Friday! And we are here to help! π Check out our Support & Resources π Read our monthly blog π Learn more about Observational Research or Clinical Trials Click the website link for more!
4 months ago
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In our blog post, Clinical Research Coordinator Ashlyn O'Halloran outlines the UNICORN study experience and activities. Read now at the link in our bio!
4 months ago
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π° Are you subscribed to the Penn FTD Center newsletter? Use the link in our bio to stay up to date on our latest updates, educational events, and research advancements!
4 months ago
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Emma Rhodes, PhD, Penn FTD Centerβs Neuropsychologist & Assistant Professor has been inducted to the International Neuropsychological Society (INS) their inaugural class of fellows (FINS). Congratulations, Emma! π
4 months ago
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The Penn FTD Center is here for another FTD Fact Friday! And we are here to help! π Check out our Support & Resources π Read our monthly blog π Learn more about Observational Research or Clinical Trials Click the website link for more!
4 months ago
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Last chance to apply for the FTD CRLI! Applications close tomorrow! The Penn FTDC and
@theaftd.bsky.social
co-host this virtual program that empowers individuals diagnosed with FTD, their caregivers and loved ones to be strong advocates in the field of FTD research. Click the link in bio!
4 months ago
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Penn FTD Center Staff Highlight π Marianthi Harerasis a Clinical Research Coordinator at the Penn FTD Center. Marianthi works on the core UNICORN protocol and is the coordinator for the ancillary PET studies. πRead more details on Marianthi in our blog post! Link in bio!
4 months ago
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Register now for the sixth annual virtual familial conference, Uncovering the Genetics of Familial FTD/ALS, on Wednesday, February 25, 2026, from 1:00PM-4:00PM EST. Click the link in our bio for registration and more details!
4 months ago
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FTD Fact Friday: FTD impacts approximately 60,000 patients in the United States.Β Β The Penn FTD Center is here to help! π Check out our Support & Resources π° Read our monthly blog π Learn more about Observational Research or Clinical Trials Click the website link for more!
4 months ago
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Penn FTD Center Genetic Counselor Laynie Dratch, ScM, CGC presented at the 2026
@theaftd.bsky.social
Holloway Summit discussing "Evolution of ALS/FTD genetic testing practice." Thank you for your work, Laynie!
4 months ago
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We understand that care management can be tough. For American Heart Month, we are providing tips on healthy hearts and healthy brains! πCheck out our website for more information on Support & Resources
4 months ago
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FTD Fact Friday: FTD is one of the most common causes of early onset dementia worldwide. The Penn FTD Center is here to help! π Check out our Support & Resources π° Read our monthly blog π Learn more about Observational Research or Clinical Trials Click the website link!
4 months ago
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The Penn FTD Center is featured in an article from AARP discussing FTD, symptoms, and support. Read the article now at the link in our bio or below π
www.aarp.org/health/condi...
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What Is Frontotemporal Dementia?
Its symptoms are very different from Alzheimerβs disease, and it is frequently misdiagnosed
https://www.aarp.org/health/conditions-treatments/what-is-frontotemporal-dementia/
4 months ago
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Penn FTDC and
@theaftd.bsky.social
are hosting the FTD CRLI! This virtual program empowers individuals diagnosed with FTD, their caregivers and loved ones to be strong advocates in the field of FTD research by educating them on the clinical research process. Click the link in our bio!
4 months ago
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FTD Fact Friday: Although age of onset ranges from 21 to 80, most FTD cases occur between 45 and 64. π Check out our Support & Resources π° Read our monthly blog π Learn more about Observational Research or Clinical Trials Click the website link for more!
5 months ago
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In our January blog post, Former Clinical Research Coordinator Chigozie Ibe reviews what takes place in a Research MRI and how to prepare. Read now at the link in our bio!
5 months ago
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The Penn FTD Center is here for another FTD Fact Friday! And we are here to help! π Check out our Support & Resources π Read our monthly blog π Learn more about Observational Research or Clinical Trials Click the website link in bio for more!
5 months ago
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π’Looking for the latest news from the Penn FTD Center? Want to stay up-to-date on research and trials? Make sure you are following the Penn FTD Center on all your social platforms. πAll of our social media accounts can be found at the link in our bio!
5 months ago
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Apply today to become an FTD CRLI Research Ambassador! The FTD Clinical Research Learning Institute is a virtual program that empowers individuals diagnosed with FTD, their caregivers and loved ones. Applications close February 13th, 2026. Link in bio to for the application!
5 months ago
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Penn FTD Center Staff Highlight π Ashlyn OβHalloran is a Clinical Research Coordinator at the Penn FTD Center. Ashlyn works on the centerβs observational repository study UNICORN. πRead more details on Ashlyn and wish her a happy birthday in the blog post! Link in our bio!
5 months ago
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The Penn FTD Center is here for another FTD Fact Friday! And we are here to help! π Check out our Support & Resources π Read our monthly blog π Learn more about Observational Research or Clinical Trials Click the website link for more!
5 months ago
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Interested in becoming an FTD Research Ambassador? The Penn FTD Center and Association for Frontotemporal Degeneration will host the 2026 FTD Clinical Research Learning Institute! Applications for the program will open Jan 12th. For more info, click on the link in our bio!
5 months ago
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Registration is open for the sixth annual virtual familial conference, Uncovering the Genetics of Familial FTD/ALS, on Wednesday, February 25, 2026, from 1:00PM-4:00PM EST. Register now by clicking the link in our bio!
5 months ago
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Recap the highlights of 2025 with the Penn FTD Center! π We are wishing you and your loved ones a wonderful holiday season and can't wait to see what 2026 brings!
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6 months ago
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