📰 Are you subscribed to the Penn FTD Center newsletter? Use the link in our bio to stay up to date on our latest updates, educational events, and research advancements!

Emma Rhodes, PhD, Penn FTD Center’s Neuropsychologist & Assistant Professor has been inducted to the International Neuropsychological Society (INS) their inaugural class of fellows (FINS). Congratulations, Emma! 🎉

The Penn FTD Center is here for another FTD Fact Friday! And we are here to help! 📍 Check out our Support & Resources 📃 Read our monthly blog 🔎 Learn more about Observational Research or Clinical Trials Click the website link for more!

Last chance to apply for the FTD CRLI! Applications close tomorrow! The Penn FTDC and @theaftd.bsky.social co-host this virtual program that empowers individuals diagnosed with FTD, their caregivers and loved ones to be strong advocates in the field of FTD research. Click the link in bio!

Penn FTD Center Staff Highlight 🌟 Marianthi Harerasis a Clinical Research Coordinator at the Penn FTD Center. Marianthi works on the core UNICORN protocol and is the coordinator for the ancillary PET studies. 📍Read more details on Marianthi in our blog post! Link in bio!

Register now for the sixth annual virtual familial conference, Uncovering the Genetics of Familial FTD/ALS, on Wednesday, February 25, 2026, from 1:00PM-4:00PM EST. Click the link in our bio for registration and more details!

FTD Fact Friday: FTD impacts approximately 60,000 patients in the United States.   The Penn FTD Center is here to help! 📍 Check out our Support & Resources 📰 Read our monthly blog 🔎 Learn more about Observational Research or Clinical Trials Click the website link for more!

Penn FTD Center Genetic Counselor Laynie Dratch, ScM, CGC presented at the 2026 @theaftd.bsky.social Holloway Summit discussing "Evolution of ALS/FTD genetic testing practice." Thank you for your work, Laynie!

We understand that care management can be tough. For American Heart Month, we are providing tips on healthy hearts and healthy brains! 📍Check out our website for more information on Support & Resources

FTD Fact Friday: FTD is one of the most common causes of early onset dementia worldwide. The Penn FTD Center is here to help! 📍 Check out our Support & Resources 📰 Read our monthly blog 🔎 Learn more about Observational Research or Clinical Trials Click the website link!

The Penn FTD Center is featured in an article from AARP discussing FTD, symptoms, and support. Read the article now at the link in our bio or below 👇 www.aarp.org/health/condi...

Penn FTDC and @theaftd.bsky.social are hosting the FTD CRLI! This virtual program empowers individuals diagnosed with FTD, their caregivers and loved ones to be strong advocates in the field of FTD research by educating them on the clinical research process. Click the link in our bio!

FTD Fact Friday: Although age of onset ranges from 21 to 80, most FTD cases occur between 45 and 64. 📍 Check out our Support & Resources 📰 Read our monthly blog 🔎 Learn more about Observational Research or Clinical Trials Click the website link for more!

In our January blog post, Former Clinical Research Coordinator Chigozie Ibe reviews what takes place in a Research MRI and how to prepare. Read now at the link in our bio!

The Penn FTD Center is here for another FTD Fact Friday! And we are here to help! 📍 Check out our Support & Resources 📃 Read our monthly blog 🔎 Learn more about Observational Research or Clinical Trials Click the website link in bio for more!

📢Looking for the latest news from the Penn FTD Center? Want to stay up-to-date on research and trials? Make sure you are following the Penn FTD Center on all your social platforms. 📍All of our social media accounts can be found at the link in our bio!

Apply today to become an FTD CRLI Research Ambassador! The FTD Clinical Research Learning Institute is a virtual program that empowers individuals diagnosed with FTD, their caregivers and loved ones. Applications close February 13th, 2026. Link in bio to for the application!

Penn FTD Center Staff Highlight 🌟 Ashlyn O’Halloran is a Clinical Research Coordinator at the Penn FTD Center. Ashlyn works on the center’s observational repository study UNICORN. 📍Read more details on Ashlyn and wish her a happy birthday in the blog post! Link in our bio!

The Penn FTD Center is here for another FTD Fact Friday! And we are here to help! 📍 Check out our Support & Resources 📃 Read our monthly blog 🔎 Learn more about Observational Research or Clinical Trials Click the website link for more!

Interested in becoming an FTD Research Ambassador? The Penn FTD Center and Association for Frontotemporal Degeneration will host the 2026 FTD Clinical Research Learning Institute! Applications for the program will open Jan 12th. For more info, click on the link in our bio!

Registration is open for the sixth annual virtual familial conference, Uncovering the Genetics of Familial FTD/ALS, on Wednesday, February 25, 2026, from 1:00PM-4:00PM EST. Register now by clicking the link in our bio!

Recap the highlights of 2025 with the Penn FTD Center! 🌟 We are wishing you and your loved ones a wonderful holiday season and can't wait to see what 2026 brings!

📰 Are you subscribed to the Penn FTD Center newsletter? Use the link in our bio to stay up to date on our latest updates, educational events, and research advancements!

Penn FTD Center Staff Highlight 🌟 Emily Xie is the Penn FTD Center Clinical Research Project Manager. Emily’s focus lies in coordinating research operations to support both participants and research team. 📍Read more details on Emily in the blog post at the link in our bio!

In our December blog, Penn FTD Center Clinical Research Program and Operations Lead and Assistant Director Dahlia Kamel, MS provides some helpful tips for navigating the holiday season when a loved one is living with FTD. Our latest blog post can be found at the link in our bio!

FTD Fact Friday: FTD that runs in a family is often related to variants (permanent changes) in certain genes. The Penn FTD Center is here to help! 📍 Check out our Support & Resources 📰 Read our monthly blog 🔎 Learn more about Observational Research or Clinical Trials Click the website link for more!

📢Looking for the latest news from the Penn FTD Center? Want to stay up-to-date on research and trials? Make sure you are following the Penn FTD Center on all your social platforms. 📍All of our social media accounts can be found at the link in our bio!

We understand that care management can be tough. This December Care Management Monday, we are sharing tips on managing the holidays. 📍Check out our website for more information on Support & Resources

The Penn FTD Center is here for another FTD Fact Friday! And we are here to help! 📍 Check out our Support & Resources 📃 Read our monthly blog 🔎 Learn more about Observational Research or Clinical Trials Click the website link for more!

Penn FTD Center's Emma Rhodes worked alongside collaborators to publish a paper in The American Journal of Geriatric Psychiatry regarding accelerated cognitive decline in late life depression. Read the paper using the link below 👇 www.sciencedirect.com/science/arti...

Laynie Dratch, ScM, CGC, Penn FTD Center Genetic Counselor, presented two posters at the National Society of Genetic Counselors (NSGC) Annual Conference in Seattle, WA. Thank you for sharing your research, Laynie!

Penn FTD Center researchers recently published an article featured in Alzheimer’s & Dementia: Behavior & Socioeconomics of Aging on neighborhood deprivation in bvFTD. Read the article below👇 alz-journals.onlinelibrary.wiley.com/doi/10.1002/...

Happy Genetic Counselor Appreciation Day!🧬 Today we celebrate Penn FTD Center Genetic Counselor, Laynie Dratch! Discover more about the role of Genetic Counselors and if genetic counseling may be right for you at the link in our bio! #geneticcounselorappreciationday

Penn FTD Center Staff Highlight 🌟 Cara Joyce, MPH is a Regulatory Project Manager at the Penn FTD Center for over 2 years. 📍Read more details on Cara in the blog post! Link in our bio!

The Penn FTD Center is thrilled to announce that we will be hosting our sixth annual virtual familial conference, Uncovering the Genetics of Familial FTD/ALS, on Wednesday, February 25, 2026, from 1:00PM-4:00PM EST. Stay tuned for the registration link and additional details!

Attending the GSA Annual Scientific Meeting this week? Co-Director Lauren Massimo is collaborating with other experts to discuss how to adapt interventions to meet the needs of FTD caregivers. 🗓️ Nov 12th ⏲️ 8:00-9:30AM 📍 Hynes - Room 104 Be sure to check out this symposium!

Thank you to all the attendees of the 2025 Penn FTD Center Caregiver Conference! We are grateful for the opportunity to provide information and resources to our community. Stay tuned for more information about the 2026 Penn FTD Center Familial Conference in the coming weeks!

We understand that care management can be tough. This November Care Management Monday, we are sharing tips on managing habits related to hiding, hoarding, and losing things. 📍Check out our website for more information on Support & Resources

The Penn FTD Center is here for another FTD Fact Friday! And we are here to help! 📍 Check out our Support & Resources 📃 Read our monthly blog 🔎 Learn more about Observational Research or Clinical Trials Click the website link for more!

Penn FTD Center Staff Highlight 🌟 Dahlia Kamel, MS is the Penn FTD Center Clinical Research Program and Operations Lead and Assistant Director who has worked at Penn for over 6 years. 📍Read more details on Dahlia in the blog post! Link in our bio!

The Penn FTD Center is here for another FTD Fact Friday! And we are here to help! 📍 Check out our Support & Resources 📃 Read our monthly blog 🔎 Learn more about Observational Research or Clinical Trials Click the website link for more!

💡In Penn FTD Center’s October Research Roundup, Postdoctoral Fellow Barbara Spencer, PhD, examines how C9orf72 expansions impact the risk for developing subsequent symptoms in ALS and FTD. Read now at the link in our bio or by visiting our website!

The Penn FTD Center is here for another FTD Fact Friday! And we are here to help! 📍 Check out our Support & Resources 📃 Read our monthly blog 🔎 Learn more about Observational Research or Clinical Trials Click the website link for more!

Register now for the 2025 Penn FTD Center’s Annual Caregiver Conference! 📆 Monday, November 3, 2025 ⏱ 8am-4:30pm 📍Smilow Center for Translational Research Click the link in our bio for the link to register for the conference! We hope to see you in November!

FTD CRLI Ambassador Julia spoke with the LA Times to detail the changes she experienced with her husband, Marc before, during, and after his diagnosis of FTD. Thank you, Julia, for sharing your story! www.yahoo.com/news/article...

📰 Are you subscribed to the Penn FTD Center newsletter? Use the link in our bio to stay up to date on our latest updates, educational events, and research advancements!

The Alzheimer's Disease-Related Dementias (ADRD) Summit informs priorities at the NIH. A report has been established based on the virtual meetings in April and June of 2025. The report, along with videos from the conference, can be reviewed by clicking on the link in our bio 📑

The Penn FTD Center is here for another FTD Fact Friday! And we are here to help! 📍 Check out our Support & Resources 📃 Read our monthly blog 🔎 Learn more about Observational Research or Clinical Trials Click the website link for more!

The Penn FTD Center spoke with the Caregiver Conference keynote speaker Linde Jacobs for a highlight to her background, Cure MAPT FTD, and her advocacy journey. Read the October blog post now at the link in our bio! Register now for the Penn FTD Center Caregiver Conference!

We understand that care management can be tough. This October Care Management Monday, we are sharing tips on managing compulsive behaviors. 📍Check out our website for more information on Support & Resources