A Soho Sessions benefit concert for AFTD, held on November 5, honored Bruce Willis, currently living with an FTD diagnosis. In attendance were music legends, dear friends, and FTD advocates who all share a commitment to advancing progress toward an FTD-free future. Learn more: https://bit.ly/4oySRFV

What a race! ❤️🏃‍♀️🏃‍♂️ We’re filled with gratitude for everyone who joined The AFTD-Team at this year’s TCS NYC Marathon on November 2nd. Together, our runners raised an incredible $79,432 to advance AFTD’s mission. Thank you to all the runners!

Civil rights icon Rev. Jesse Jackson has been diagnosed with progressive supranuclear palsy (PSP), a rare form of FTD he's been managing for over a decade. 🔴 Learn about his journey and this condition: https://bit.ly/4hZJqwW

Vesper Bio recently announced positive topline results from its phase Ib/IIa clinical trial for VES001, a potential drug for FTD-GRN. Progranulin levels are up by over 95% in participants, a significant improvement from baseline. ➡️ Learn more: https://bit.ly/4oS1j2N

Join AFTD’s Healthcare Professional Webinar on Nov. 18 at 12 p.m. ET, featuring Stephanie Muskat, MSW, RSW, to learn how individual therapy can offer meaningful support for FTD care partners. 🎓 Earn CEC credit. 🔗 Register now: https://bit.ly/42Tbiwk

Caring for someone living with FTD can bring moments of connection and moments of exhaustion. It’s okay to ask for help. This week’s Help & Hope highlights resources, respite options, and support networks designed to help care partners and caregivers find balance. Learn more: https://bit.ly/3XjpVFO

Dawn K.'s daughter, Kara, was diagnosed with FTD at age 29. In a recent podcast, she shared her experience as a mother fighting for her daughter, her evolution as an FTD advocate, & her work with AFTD, & the importance of community support, perspective, & education. Read more: https://bit.ly/4hS51qX

Join AFTD’s next Healthcare Professional Webinar on Nov. 18 to learn how individual therapy can help care partners navigate the unique emotional challenges of FTD caregiving. Led by Stephanie M., MSW, RSW, this session offers strategies, insights, & CEC credit. Register now: https://bit.ly/42Tbiwk

🧠 FTD is a progressive disease. Over time, symptoms of FTD become more pronounced, affecting behavior, language, movement, and daily life. 🔴 Learn more about what FTD is, its early signs, and how it progresses: https://bit.ly/4oGZzte

Helen-Ann Comstock’s courage and determination in caring for her husband, Craig, led her to start AFTD 23 years ago, creating vital support for caregivers and families facing FTD. Helen-Ann passed away in July. ❤️ Honor her legacy today with a gift of $23: https://bit.ly/3JFdxwK

Caregiving is a journey of countless brave steps, and every single one matters. ❤️ If you ever need support, information, or simply someone who understands, AFTD’s HelpLine is here to help. 📩 [email protected] 📞 1-866-507-7222 #NationalFamilyCaregiversMonth

We're kicking off November with #NationalFamilyCaregiversMonth by sharing 'Life After an FTD Diagnosis: What You Need to Know' — our updated booklet to help families navigate the journey with clarity and support. 📘 Download now: https://bit.ly/3WYTBbg

AFTD now supports the recommendation that all people diagnosed with FTD be offered genetic counseling and testing, aligning with guidance from the National Society of Genetic Counselors (NSGC) FTD/ALS Working Group. ⚪ Learn more: https://bit.ly/3X60tUg

After her FTD diagnosis, AFTD Persons with FTD Advisory Council co-chair Deb Jobe discovered an unexpected gift: art. What began with an adult coloring book grew into vivid, intricate pieces that fill her home with color. 🎨 Learn more: https://bit.ly/3WuPl33

Results from Alector Therapeutics’ Phase 3 trial for Latozinemab (AL001), designed for people with FTD caused by GRN variants, have raised important questions for many. Join us on Nov. 6 for a live discussion about what these results mean and what’s next for FTD research: https://bit.ly/3Lw3Sco

If you’re a U.S. federal employee, you can support AFTD’s mission through the Combined Federal Campaign (CFC). 🔴 Visit givecfc.org today and use our CFC number: 20444 to make a donation or pledge and help realize our shared vision of a future free of FTD.

Join AFTD’s upcoming Healthcare Professional Webinar on Nov. 18 at 12 p.m. ET, led by Stephanie Muskat, MSW, RSW, to explore how individual therapy can best support FTD care partners. 🎓 CEC credit available. 🔗 Register now: https://bit.ly/47qHXL7

Dr. Steven Boeynaems, a #researcher at Baylor College of Medicine and Texas Children’s Hospital, describes his commitment to studying #FTD long-term, applying skill sets gained throughout his career.

Here’s a huge shout-out to our incredible fundraisers who took it to the next level by raising funds and awareness! Our fundraising volunteers, like Carrie, Sherlin, and Dawn, help drive research, raise awareness, and support families facing FTD, and you can too! Learn more: https://bit.ly/4oq0AX3

From chili contests to cookbook clubs, bake sales to beer tastings, all of our Food for Thought hosts served hope. Thank you for making our 13th Food for Thought so incredible with your creativity and passion. Together, we've raised more than $148,000 and counting to advance AFTD's mission.

This National Estate Planning Awareness Week (Oct. 20–26), learn how to navigate the legal, financial, and insurance steps that support quality of life and peace of mind. Learn more: https://bit.ly/4n0RHkR

A study finds that epilepsy symptoms are more common in people with #FTD than those with #Alzheimer’s, and that epilepsy can start up to 10 years before FTD is diagnosed. Click here to learn more: https://bit.ly/3Wvktj7

Carrie’s words embody one of the key priorities in AFTD’s 2025–2028 Strategic Plan: advancing awareness and advocacy to build a more understanding and supportive world for those impacted by FTD. Learn more about our new strategic plan: https://bit.ly/42VR7ht

Amanda Gleixner, PhD, attended the Amyotrophic Lateral Sclerosis (ALS) Nexus, held in Dallas, TX, in August. Learn more: https://bit.ly/46O8W4o

“Listening to other people go through feelings of loneliness, disbelief, and the horror of this disease, and comparing it to my own, has helped me. – Kathleen Support groups offer connection, understanding, and the chance to both receive and give support. 👉 Learn more: https://bit.ly/4mlitEz

AFTD's Esther Kane helped raise awareness in a recent appearance on the Dr. Laura podcast, alongside AFTD volunteer Sue Freund, an AFTD volunteer, whose husband, Billy, had FTD and passed away earlier this year at age 58. 👉 Learn more: https://bit.ly/3VWco6L

How do you talk to family about the genetic risks of FTD? On 10/20 at 3 pm, AFTD will host a webinar featuring community members Wanda Smith and Ansel Dow, who will share their experiences. Angela Lunde, from Mayo Clinic, will provide practical tools and strategies. Sign up: https://bit.ly/46TyMUh

In honor of #WorldMentalHealthDay, AFTD Ambassador Jackie S. shares what she’s learned about caring for her mom with FTD, & how finding support made all the difference. ⚪ If you need guidance or someone to talk to, AFTD's HelpLine is here to support you at [email protected] or 1-866-507-7222.

To support families & healthcare professionals, AFTD has developed a PSP Diagnostic Checklist. This tool helps individuals track symptoms & bring clear information to their healthcare providers while also offering clinicians diagnostic guidance. 📥Download the checklist today: https://bit.ly/4mLRL8b

AFTD offers national support groups designed to meet the unique needs of our community. Whether you’re a young adult care partner, part of the LGBTQIA+ community, or a Spanish-speaking caregiver, these groups provide a safe space for connection and understanding. Email [email protected] to sign up!

AFTD is hiring a HelpLine Advisor! In this role, you’ll provide compassionate, accurate support and connect families facing FTD with resources through AFTD’s HelpLine. You’ll also collaborate with our Programs team to expand resources for families. 👉 Apply now: https://bit.ly/4o5Y6fC

📢 Upcoming AFTD Webinar: Talking to Family About Genetic FTD Risk on 10/20 When FTD is genetic, it’s critical to help relatives understand their potential risk and the hope that research progress brings. Featuring personal stories plus guidance from Mayo Clinic. Sign up: https://bit.ly/46TyMUh

Mother-daughter duo Kathy and Sara LaFone hosted their 8th annual TIMFEST in memory of their husband and father, Tim, who passed away from FTD in 2015. They celebrated with music he loved, and shared food they remembered. 🍝 Donate to Food for Thought today: https://bit.ly/4gLzTJi

In a recent podcast interview, comedian Kelsey Cook opened up about her caregiving journey with her mom, who was diagnosed with FTD in 2020. She discusses the challenges of her mom's diagnosis, the long road to answers, and how humor has helped her cope. 🔴 Learn more: https://bit.ly/3KQgniD

AFTD’s updated guide, Life After an FTD Diagnosis, offers clear, compassionate information for navigating this journey today, from clinical trials and genetics to planning, caregiving, and finding meaning in daily life. 👉 Learn more: https://bit.ly/46OGq1i

Kim Stasa brought Food for Thought to the court in memory of her husband, Jeff. The different sports teams at the Nazareth Area High School participated in the Hot Shot Challenge, raising funds and awareness among the next generation. 🌶️ Support Kim by donating today: https://bit.ly/4gLzTJi

For Food for Thought this year, Shelly Warner rose to the occasion by selling homemade sourdough starter kits in mason jars with recipes and instructions included. Every jar was crafted to raise awareness and spread FTD education. 🥖 Support Shelly by donating today: https://bit.ly/4gLzTJi

A study co-authored by an AFTD grantee examines the opinions of people at risk or potentially at risk of #FTD on predictive biomarker testing and the impact of the results on their lives. ➡️ Learn more: https://bit.ly/4gSvZyf

In honor of Bruce Willis and his iconic role as David Addison, Carolyn Merritt Gandy hosted a virtual cooking class based on her book, “Moonlighting Cookbook”. Guests cooked along in real time as Carolyn expertly crafted her recipes. 🔴 Donate to Food for Thought today: https://bit.ly/4gLzTJi

Fishtown Pickle Project is putting purpose in every jar. This Philly-based small business is once again supporting Food for Thought by donating a portion of sales in memory of co-founder Niki Toscani's father, who lived with FTD. 🥒 Donate today and join the fight against FTD: https://bit.ly/4gLzTJi

Stephen Boyajian hosted a Die Hard themed event at his business, Trouvaille Brewing. In addition to the four new themed drinks, they hosted contests, music, and trivia. 🍺 There's still time to support Food for Thought! Donate today: https://bit.ly/4gLzTJi

Join AFTD on October 20, at 3 pm ET, for a webinar on practical ways to share genetic FTD risk information with family. Hear from community members Wanda Smith and Ansel Dow, and learn strategies from Mayo Clinic’s Angela Lunde. 👉 Register today: https://bit.ly/46TyMUh

Karine Finken hosted another year of her virtual cooking class, Cuisine with Karine. She cooked a delicious brain-healthy meal on Zoom with her friends and family so they could cook, eat, and chat about FTD together. 🍞 Support the last few days of Food for Thought: https://bit.ly/4gLzTJi

Joellen, Darryl, and Jenna served more than slices at their Italian Restaurant, A Little Pizza Heaven, in Scranton, PA. They hosted their Food for Thought fundraiser, and every slice supported AFTD’s mission. 🍕 Donate to a Food for Thought event today: https://bit.ly/4gLzTJi

Thank you for being part of World FTD Awareness Week 2025! 🌎 While the week may be ending, our mission continues. Let’s keep raising awareness, supporting families, and connecting the global FTD community all year long.

Did you know FTD is genetic in around 20% of cases? What lies ahead for these families? Luckily, current clinical trials offer hope. 🌎 Learn more: https://bit.ly/4p3xVHI ⬇️ Comment below if genetic FTD has affected your family.

Did you know that FTD can place a large financial burden on a family, often more than later-onset forms of dementia? Poor judgment, poor financial decisions, loss of employment, delayed diagnosis - all can increase the huge financial impact of FTD. 🌎 Learn more: https://bit.ly/4g7eRV6

Did you know FTD carers experience some of the highest stress levels? No roadmap, limited support, no recognition. The person with FTD may believe, “nothing is wrong”. Others may even blame the carer. 🌎 Learn more: https://bit.ly/3JIO6u0

AFTD Ambassador Carrie Edwards recently made headlines by donating her $150,000 Virginia lottery winnings to causes close to her heart, including AFTD. Her gift, shared during World FTD Awareness Month, reflects her deep commitment to creating a future free of FTD. Learn more: https://bit.ly/4nDPI6S

Did you know FTD can steal away your words? When conversations stop making sense — it’s not forgetfulness, it could be FTD. 🌎 Learn more: https://bit.ly/4p5c5DT ⬇️ Comment below how FTD first affected your loved one's ability to communicate.