AFTD created Diagnostic Checklists, to help identify red flags for bvFTD, PPA, FTD-ALS, and PSP. These tools allow you to note symptoms you or your loved one are experiencing and enable you to share clear, structured information with a physician. Download today: https://bit.ly/4jqu45j

We extend our deepest thanks to Dr. Walter Koroshetz for nearly two decades of leadership at NINDS and his profound impact on FTD research. His commitment helped accelerate progress toward earlier diagnosis and future treatments for FTD. Learn more: https://bit.ly/3Z14IBq

Neurodegenerative diseases like FTD and ALS often share more than symptoms — they share biology and care challenges. Join us on Jan. 28 at 3 p.m. EST to learn how collaboration across advocacy orgs can drive real progress. 🔗 Register now: https://bit.ly/3Yt4naA

AFTD, alongside leading research partners, has awarded $2.1 million to advance diagnostic biomarker research for FTD, funding three research projects focused on identifying biomarkers in blood and spinal fluid. ➡️ Learn more: https://bit.ly/3YlcgPk

“Educate, educate, educate.” ❤️ Kevin Rhodes, Co-Chair of AFTD’s Persons with FTD Advisory Council, shares a powerful call to action: shorten the time to diagnosis. Today, it takes an average of 3.6 years for someone to receive an accurate FTD diagnosis. Learn more about FTD: https://bit.ly/4s8ItH4

📚 Looking for an Introduction to FTD? Whether you're a healthcare professional, caregiver, or just starting to learn about FTD, these books offer powerful insights into the challenges of living with and caring for someone with FTD. 👉 Learn more about these books: https://bit.ly/4pLZCVG

As an AFTD volunteer, K.C. honors his wife’s life by raising awareness & helping more people understand this disease. Volunteers like him are the heart of our work, bringing compassion, lived experience, & purpose into communities across the country. Become an AFTD volunteer: https://bit.ly/48YaAjv

AFTD’s new recommendation is that all people diagnosed with FTD be offered genetic counseling and testing, regardless of family history. It outlines the process and provides information on how families can access counseling, testing options, and trusted support. Read now: https://bit.ly/44Jo3KP

2026 begins with community at the center. ❤️ These faces represent strength, advocacy, and the many ways people show up for the FTD community. As the new year unfolds, AFTD remains committed to paving the path forward to #endFTD.

We are grateful for everyone who supported AFTD’s mission this year. You helped families find guidance, connected people to community, and advanced vital research toward earlier diagnosis and future treatments. ❤️ As the year comes to a close, make a year-end gift today: https://bit.ly/3JFdxwK

We’re proud to congratulate our newest AFTD research grant awardees, who are exploring innovative approaches to treat FTD, from novel biologics to targeted therapies. These projects reflect the creativity and collaboration driving FTD science forward. 🔬 Learn more: https://bit.ly/3L1er7G

🏃‍♀️ Save the Date: The AFTD-Team Race Season 2026 🏃‍♂️ Join The AFTD-Team as we take on races across the country to raise awareness and support for people and families affected by frontotemporal degeneration. Every step, every race, every city, we run to #endFTD. Sign up today: https://bit.ly/48W6IPW

AFTD compiled some of the most-read Help & Hope articles of the year, covering topics like the benefits of pets, looking for support options, Comstock Grants, and more. These stories offer practical insights and support for every step of the way. Explore the top articles now: https://bit.ly/4sd6q01

David G. describes finding AFTD as a turning point in his journey with PPA. From joining AFTD’s Drop-In Group to staying active in daily life, he continues to show that meaningful connections are possible after diagnosis. ❤️ If you’re living with FTD, support is here: https://bit.ly/48PIzvM

After her husband died from FTD at 33, Katie Brandt turned grief into action—now leading America's largest FTD caregiver support group and reshaping dementia policy. 👉 Learn more: https://bit.ly/4qqlFB7

Wishing you peace, connection, and moments of comfort this holiday season. ❤️ Today, we honor everyone in the FTD community, those living with a diagnosis, care partners, families, professionals, and supporters. Thank you for all you do! Happy Holidays from the AFTD staff 🎄

Our holiday lunch was an opportunity for AFTD staff to pause, connect, and appreciate the shared commitment that unites us. ❤️ As Christmas approaches, we carry that sense of connection into the days ahead--holding space for all the emotions this season may bring.

In a recent episode of the Tamron Hall Show, AFTD Ambassador Carrie Edwards shared the story behind her decision to donate her entire $150,000 lottery windfall to three charities, including AFTD. ➡️ Learn more: https://bit.ly/4qujjRT

🌺 Mahalo, AFTD-Team Honolulu! 🌺 Thank you to every runner who joined The AFTD-Team at the Honolulu Marathon on December 12–13. Because of you, $37,032 was raised to help connect families to resources, support care partners, and advance FTD research.

In this week’s Help & Hope article, members of AFTD’s Persons with FTD Advisory Council share practical “holiday hacks” drawn from lived experience. From managing sensory overload to navigating conversations, these tips help make the season more manageable. ❤️ Learn more: https://bit.ly/4p5B6h3

Holiday travel can bring added stress, especially when navigating public spaces with FTD. AFTD’s Awareness Cards are a simple tool to help. Designed for persons diagnosed with FTD and their care partners, these cards provide an explanation of FTD. Download now: https://bit.ly/4aTJGfd

GemVax & KAEL report positive safety and tolerability data for its Phase 2 trial for GV1001 in people with #PSP. The trial also showed some potential efficacy for the drug to slow disease progression. ➡️ Click here to learn more: https://bit.ly/44qUxcM

FTD can be confusing, especially when someone who's been diagnosed is a parent, grandparent, or close friend. That’s why explaining FTD to kids & teens matters. Slide through to see a simple way to explain FTD and help them understand what it is. 👉 Explore more: https://bit.ly/4q1iD61

Save the date for The 2026 AFTD Education Conference! 📅 April 30 – May 1 📍 Seattle, WA + Virtual via Zoom Connect, learn, and engage with the latest in FTD care, research, and advocacy. 👉 Sign up to be notified when registration opens in February: https://bit.ly/3N1FiRo

AFTD’s Shana Dodge presented on AFTD’s Multi-Sponsor Industry Advisory Panel Pilot at the 2025 NORD Breakthrough Summit. The pilot brought together industry sponsors and people with lived experience to address barriers to research participation. ➡️ Learn more: https://bit.ly/3MB3dqV

AFTD's Kim Jenny explains how a de novo variant, a genetic change that occurs for the first time in an individual, can be passed to future generations. Speaking with a genetic counselor can offer clarity, guidance, and help you explore research opportunities. 🧬 Learn more: https://bit.ly/3XX7I1u

Small moments can mean everything when navigating FTD. Through AFTD’s Comstock Grants, families like Jennifer and Jim have been able to reconnect with meaningful activities, create lasting memories, and access vital respite support. ❤️ Make a year-end gift today: https://bit.ly/3JFdxwK

Communication may change with PPA, but connections can remain strong. Whether you’re in the early days of shifting conversations or navigating the later stages, small, intentional approaches can help preserve dignity and closeness. For more tips, join an AFTD support group: https://bit.ly/3XRVWoX

Sometimes the most meaningful holiday moments are the quiet ones: a gentle pause, a shared smile, a memory that brings comfort. ❤️ Wherever you are in your FTD journey, please remember: you don't have to navigate it alone. Support, guidance, & understanding are just an email away at [email protected]

Meet our newest AFTD Ambassadors, Carin Hawkins (MD) and Randee Steffen (MO). Their passion, advocacy, and personal connection to FTD help bring vital resources and awareness to communities nationwide. 👉 Click here to learn more about their stories: https://bit.ly/4rWfnec

These are photos of AFTD advocates who secured proclamations and resolutions recognizing FTD in their communities this year. Their dedication helps bring earlier diagnosis and better support to families. You can be part of this change, too. ✍️ Sign up for AFTD’s Action Center: https://bit.ly/4rRzjia

AFTD CEO Susan L-J Dickinson recently joined hosts Heather Mulder and Janice Greenough on the Dementia Untangled podcast to discuss FTD, sharing insights about diagnosis challenges, the impact on families, and the vital role of community support. 👉 Learn more: https://bit.ly/4a5Y7wy

AFTD has come a long way since 2002, from launching our HelpLine and Comstock Grants to building research partnerships and national advocacy efforts. ❤️ Swipe through to see how far we’ve come, and where we’re heading next with our 2025–2028 Strategic Plan: https://bit.ly/48OjZua

In this clip from our 2025 Education Conference, AFTD’s Shana Dodge shares how global research efforts, new gene discoveries, and emerging biomarkers are shaping the future of FTD research and driving hope forward. Click the link to watch the full FTD 101 session: https://bit.ly/4nvvAn9

Sharing an FTD diagnosis with family can feel overwhelming, especially during the holidays. This week’s Help & Hope article offers guidance, practical steps, and resources to support meaningful conversations with loved ones, including children and teens. 📌 Learn more: https://bit.ly/48DD8i2

FTD is a progressive disease, and every FTD journey looks different. For most, life expectancy ranges from 7 to 13 years, but it can vary from 2 to 20 years after symptoms begin. 👉 Learn more: https://bit.ly/3KawwzP

Curious about the latest in FTD research? Join our December 10 webinar with Dr. Penny Dacks and Dr. Chiadi Onyike to hear updates from 2025 and learn where the science is headed next. 🔴 Sponsored by Passage Bio 🔗 Register now: https://bit.ly/4rfNmOq

The legendary voice behind Toto's "Africa" and "Rosanna" is now living with FTD. Bobby Kimball's inspiring journey continues. ⚪ Read his story: https://bit.ly/4pdAjLD

From all of us at AFTD, thank you for your generosity and for supporting our mission on #GivingTuesday. You help families navigate a diagnosis today and advance progress toward tomorrow’s breakthroughs. 💝 Didn’t get a chance to give? There’s still time to make an impact: https://bit.ly/4o5NZqM

As #GivingTuesday comes to a close, add your reason and your gift to the movement. There is still time to have your gift matched, thanks to our Board Alumni network (up to $25,000). ❤️ Give for Families. Give for Hope. #GiveForFTD: https://bit.ly/4o5NZqM

You make a difference for people affected by FTD, across our support programs, research and education initiatives, and awareness and advocacy efforts. ❤️ Every #GivingTuesday donation will be matched up to $25,000, doubling your impact. #GiveForFTD: https://bit.ly/4o5NZqM

AFTD Persons with FTD Advisory Council member Sandy Howe and her husband, Dirk, share their perspective on what it means to find community, how AFTD helped them gain understanding and connection, and why they support others facing FTD. ❤️ Give today: https://bit.ly/4o5NZqM

AFTD Persons with FTD Advisory Council member Sandy Howe supports AFTD so that people recently diagnosed —and their caregivers — know they are not alone. ❤️ Join us tomorrow on #GivingTuesday to support AFTD’s mission. Every gift will be matched up to $25,000. #GiveForFTD: https://bit.ly/4o5NZqM

"Love will end FTD" ❤️ When her husband was 29, Katie Brandt faced an unimaginable diagnosis. Her journey from "caregiver detective" to advocate shows how love transforms grief into hope. ➡️ Learn more: https://bit.ly/3XR2yDX

“Without AFTD, we would still be alone.” Dirk Howe supports AFTD to ensure other families don’t face FTD alone. Every dollar you give this #GivingTuesday will be matched up to $25,000, doubling your impact on our mission. Give for Families. Give for Hope. #GiveForFTD: https://bit.ly/4o5NZqM

Join AFTD on December 10 at 3 p.m. ET for a discussion with Dr. Penny Dacks and Dr. Chiadi Onyike as we celebrate 2025 progress and explore how you can help drive FTD research forward in 2026. 🔴 Sponsored by Passage Bio 🔗 Register now: https://bit.ly/4rfNmOq

From our AFTD staff to you, Happy Thanksgiving 🦃🧡 Last week, our staff gathered for a potluck in the office, sharing food, connection, and gratitude for this community. Today, we extend that gratitude to you. Thank you! 👉 AFTD's office will be closed today and tomorrow for the holiday.

This #NationalFamilyCaregiversMonth, members of the FTD community shared what they’ve learned along the way. From finding flexibility to accepting help, these insights remind us that caregiving is not about perfection. It’s about compassion, resilience, & support. Learn more: https://bit.ly/43qrxRZ

Each year, our community comes together on #GivingTuesday to make a difference for families facing FTD. Join us next week on 12/2, and every gift will be matched up to $25,000, thanks to AFTD’s Board Alumni network. ❤️ Give for Families. Give for Hope. #GiveForFTD: https://bit.ly/4o5NZqM

The Fall 2025 issue of AFTD Insights is here! In this issue, you'll find updates on critical FTD research, stories from families and volunteers, the latest on federal funding efforts, event highlights, and news. 📬 Read now: https://bit.ly/3XKfYS0