In a new animated video created with ALLFTD, AFTD explains how collecting cerebrospinal fluid helps researchers better understand FTD — from identifying biomarkers like tau and TDP-43 to advancing diagnostic tools and potential treatments. Watch the video: https://bit.ly/3OPXXk9

Two requests for proposals are now OPEN from AFTD and the Alzheimer's Drug Discovery Foundation 🔴 Treat FTD Fund - LOI due March 30 🔴 Accelerating Drug Discovery for FTD - LOI due May 11 Learn more and apply today: https://bit.ly/47iV95k

How are biomarkers helping diagnose FTD sooner and more accurately? Find out in AFTD’s next webinar on March 10 at 10 am ET featuring Dr. Charlotte Teunissen and the FTD Disorders Registry. 🔴 Sponsored by AviadoBio 👉 Register now: https://bit.ly/45RGKg5

For Rare Disease Day, we’re flipping the page back to the basics of FTD. FTD doesn’t always look the way people expect. It can change personality, language, or movement. It’s often mistaken for Alzheimer’s disease, depression, or a psychiatric condition. Learn more: https://bit.ly/4aOwCpM

Since 2010, AFTD’s Education Conference has been a trusted space for education and connection — and it remains free for all attendees because of donor support. ❤️ Help us keep the 2026 Education Conference accessible to all. Give today: https://bit.ly/4aB8x6X

About 20% of FTD cases are caused by single-gene variants — and roughly half of those involve GRN. Scientists are now exploring multiple approaches to raise progranulin levels, a key protein linked to this form of FTD. Hope is on the horizon. Learn more: https://bit.ly/4qXeGiO

🧠 Biomarkers are changing how we understand FTD. Learn what biomarkers are and how they’re advancing diagnosis and care. Join AFTD and the FTD Disorders Registry for a webinar on March 10 at 10 am ET with Dr. Charlotte Teunissen. 🔴 Sponsored by AviadoBio 👉 Register now: https://bit.ly/45RGKg5

Philosophy professor & public speaker John Corvino found he had Primary Progressive Apraxia of Speech, a rare FTD variant that’s particularly devastating for someone who makes his living through thoughtful, eloquent speaking. ➡️ Read his inspiring story: https://bit.ly/4tJ9cuI

AFTD's support group in Indiana celebrated its 1st anniversary, meeting every month since January '25. As members shared, even when “things are not perfect,” there is strength in having each other. Support groups offer understanding, shared experiences, and support. Join now: https://bit.ly/3ZC3L33

A study explores the impact of neuropsychiatric symptoms on the quality of life of people diagnosed with #PSP. Drs. Carmen Tartaglia and Indira Garcia-Cordero are among the co-authors. ➡️ Learn more: https://bit.ly/4tNdAZw

What makes the AFTD Education Conference so meaningful? For Libba Adams, attending her first AFTD Education Conference meant connection, honesty, and feeling deeply understood alongside others who have experienced FTD. Join us April 30–May 1 in Seattle or online: https://bit.ly/4tHoWOP

On February 15, The AFTD-Team laced up for the Austin Marathon and raised $17,243 in support of AFTD’s mission. ❤️ Every mile represented a commitment to the individuals and families facing FTD. We are deeply grateful to each runner, donor, and supporter who made this effort possible.

Learn how biomarkers help improve diagnosis, guide treatment, and advance research in FTD. Join AFTD, the FTD Disorders Registry, and Dr. Charlotte Teunissen for a free webinar on March 10 at 10 am ET that breaks it all down. 🔴 Sponsored by AviadoBio 👉 Register now: https://bit.ly/45RGKg5

These powerful suggestions come directly from AFTD’s Persons with FTD Advisory Council ❤️ These tips offer insight into what it means to live with FTD and how we can all support one another with compassion. 👉 Learn more: https://bit.ly/4ktUKTe

This Valentine’s Day, we’re grateful to Kay Webb for sharing what love can look like in the face of FTD. ❤️ Through our 2026 With Love campaign, volunteers are helping ensure families have access to trusted information, resources, and community. 💌 Make a gift today: https://bit.ly/3NSLqMs

Did you know? 🧠 FTD is the most common form of young-onset dementia, often affecting people under 60. Because symptoms can impact behavior, language, or movement, FTD is frequently misunderstood, and receiving an accurate diagnosis can take years. ➡️ Learn more: https://bit.ly/4bUNqxP

New biomarkers are changing the way we understand dementia. Join AFTD’s Healthcare Professional Webinar tomorrow at 12 p.m. ET, and three leading experts will unpack what these tools mean for earlier, more accurate FTD diagnoses. 🔴 Earn CME credit. 🔗 Register now: https://bit.ly/45v8N4C

Coya Therapeutics announced that the US FDA accepted its investigational new drug (IND) application for its COYA 302 experimental therapy for FTD. The acceptance of the application will enable them to initiate clinical trials for the therapy in the U.S. Learn more: https://bit.ly/4anR0y3

The collaborative 2026 FTD Diagnostic Biomarkers Initiative funding opportunity is open now! 🏆 Awards are for up to two years and range from $250k-$700k. 📅 Letters of intent are due March 6. 🔴 For more information: https://bit.ly/4bWRJsb

Join the AFTD-Team Race Season and help bring awareness to families affected by FTD. Whether it’s a marathon, a 5K, or a bike tour, there’s a spot for you on our team in cities across the U.S. 🌍 📅 Races happening now through December 2026 ➡️ Sign up and learn more: https://bit.ly/4qdVltz

AFTD's Esther Kane and Ambassador Liz Zadnik share expert guidance and personal experience on navigating FTD with hope and support on Friends Life Care. 🎙️ Listen to their powerful podcast conversation: https://bit.ly/3ZPraOk

Melissa F. honored her dad through With Love by transforming her grief into purpose by raising awareness and funds for FTD. Her story is a powerful reminder of why this campaign matters and how you can help make a difference for families facing FTD. ❤️ Support With Love today: https://bit.ly/3NSLqMs

For FTD caregivers: It's changes in behavior & speech, not memory, that often come first. Learn what families need to know from AFTD experts, including AFTD Board chair Rita Choula. 👉 Read more: https://bit.ly/4kc8CkG

As dementia diagnostics evolve, more people are being diagnosed earlier. But what if it’s not Alzheimer’s? Join AFTD’s Healthcare Professional Webinar on Feb. 13 to explore what emerging biomarker tools reveal about FTD and what they don’t. 🔴 Earn CME credit. 🔗 Register now: https://bit.ly/45v8N4C

Thank you to the scientists, clinicians, and advocates who joined us for a vibrant, pragmatic discussion on how to improve diagnosis for FTD. Families deserve better! Thank you to Kristin Holloway and the Holloway Family Fund for sharing your story and making the #HollowaySummit series possible!

AFTD Ambassador Deb Scharper contributes to the vibrant discussions on FTD diagnostics by adding perspective from an individual with lived experience of FTD.

These early-career researchers were recently selected as AFTD’s Holloway Scholars and invited to attend the #2026HollowaySummit due to their impactful work in FTD diagnostics. Their travel was generously supported by the Holloway Family Fund – we are thankful for their continued commitment to FTD!

Recognizing that learning from related fields is crucial to progress, meeting attendees heard about the development and implementation of clinical guidelines from other neurological disorders. Dr. Dams-O'Connor spoke about clinical guidelines for brain injury and CTE.

Dr. Sterre de Boer speaks about the current state of FTD diagnostics, challenges faced, and provides a framework for the solution-based conversations that will arise over the next two meeting days.

Kristin Holloway kicked off the #2026HollowaySummit by sharing her inspirational story and explaining why progress in FTD diagnostics is so important.

AFTD is hiring a Social Media Coordinator to help grow awareness, build community, and share resources for all impacted by FTD. You’ll collaborate across teams, create content, and help drive the conversation forward. 💼 Portfolio required. 🔗 Apply today: https://bit.ly/4k16Frr

When FTD enters a family, creativity can emerge in unexpected ways—both in those diagnosed and their loved ones. 🎨 Meet the artists transforming grief into beauty, finding solace in color, and proving that personhood endures through it all: https://bit.ly/4q2w6dp

Caring for someone with FTD can feel isolating, but AFTD’s support groups create a space to connect, share, and feel seen. Whether you’re new to the journey or have been on it for years, you deserve support from people who understand. ❤️ Learn more and find a group near you: https://bit.ly/4qxDTBb

A 24-year-old's brain donation could unlock FTD mysteries. Andre Yarham's family chose to turn tragedy into hope—learn how brain donation advances critical dementia research: https://bit.ly/4k325c8

Penn FTDC and @theaftd.bsky.social are hosting the FTD CRLI! This virtual program empowers individuals diagnosed with FTD, their caregivers and loved ones to be strong advocates in the field of FTD research by educating them on the clinical research process. Click the link in our bio!

What can biomarkers tell us about FTD? Healthcare professionals: Join us Friday, Feb. 13, for a live webinar exploring how new imaging and blood-based biomarker tools like P-Tau, NFL, and GFAP are shaping the future of dementia diagnosis. 🔴 Earn CME credit. 🔗 Register now: https://bit.ly/45v8N4C

Natasha Smith, an AFTD volunteer and advocate, shares how her journey with FTD inspired powerful self-portraits and a new purpose: raising awareness and connecting with legislators. ❤️ Hear her story and explore how your voice can make a difference: https://bit.ly/4bSdRE6

Emma Heming Willis shares how art gives voice to those with FTD and what Bruce's journey has taught her about love: "Your love shifts. It expands and is different but very meaningful." 👉 Read her inspiring story: https://bit.ly/4qaYdHG

With Love is more than a fundraiser — it’s a way to honor someone you love, raise awareness of FTD, and support families facing this disease. This February, join Scott and others as they turn love into action. Create a page, share your story, and help #endFTD: https://bit.ly/4pPEpJs

🔍 The FTD diagnostic journey currently averages 3.6 years. Being Patient Alzheimer's recently highlighted the complexities surrounding FTD diagnosis, shedding light on why so many families face years of uncertainty before receiving accurate answers. 👉 Learn more: https://bit.ly/4rcxcnX

FTD remains difficult to diagnose, with no clinically validated biomarkers and no approved treatments or interventions. AFTD’s 2025–2028 Strategic Plan outlines how we’re driving change: funding innovative research, empowering clinicians, and supporting families. Learn more: https://bit.ly/3LW7cy6

The three most common genes associated with FTD are C9orf72, MAPT, and GRN — but there are others, and new discoveries are still being made. Because symptoms can vary even within the same family, genetic FTD is often missed or misunderstood, even by health professionals: https://bit.ly/4pTIT1D

Living with FTD or caring for someone who is? You’re not alone. Join AFTD’s Jan. 28 webinar to see how we’re collaborating with other orgs focused on related neurodegenerative diseases, advocating for meaningful change — together. 🖊️ Save your spot: https://bit.ly/3Yt4naA

At 20, artist Alyssa Nash learned she carries the gene for FTD, the same disorder affecting her father. She abandoned art in despair—now she's creating stunning pet portraits for an FTD calendar. Creativity can transform tragedy into hope. 🎨 Read more: https://bit.ly/45tKpAz ‎

🏃‍♂️🏃‍♀️ AFTD-Team Race Season is here! In 2026, we're showing up across the country, from Philadelphia to Honolulu, to raise awareness and critical funds for families affected by FTD. Whether you run, walk, or ride, there's a place for you on our team. ❤️ Sign up or learn more: https://bit.ly/4qpSE8U

Spencer C. turned grief into action by biking 3,600 miles across the country in memory of his father. His words reflect what drives our entire community: the belief that families deserve better care, earlier diagnosis, and real hope for the future. Read now: https://bit.ly/3NGoy2r

Dignity in FTD caregiving lives in the small moments: the choice to wear slippers to the store, the written reminder instead of a verbal correction. How caregivers preserve identity matters. 👉 Read more: https://bit.ly/4jI8bi6

AFTD’s 2026 research priorities are focused on shortening the FTD diagnostic journey and improving clinical trial readiness. From new biomarker tools to empowering families in research, learn how AFTD is working to drive progress for all affected by FTD. 🔍 Read now: https://bit.ly/49rCXXH

The science behind neurodegenerative diseases is evolving, and so is our approach to advocacy. On Jan. 28, join AFTD and partner organizations to learn how working together can lead to more substantial support for our communities. 📍 Register now: https://bit.ly/3Yt4naA

When Sean Durbin struggled to find words, his wife asked one question: "What do we do now?" Their answer: live life in fast forward. Meet "Sean 2.0" and discover their inspiring FTD journey. ➡️ Read more: https://bit.ly/4stuY59