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@theresep.bsky.social
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My podcast experiences as a
#Sjogren's
patient advocate sharing my personal journey w/Sjogren's on Table Talk on Health
#Sjogrensdisease
#chronicillness
#autoimmunedisease
#Sjogies
#spoonies
@smartpatients.bsky.social
research.smartpatients.com/resources/th...
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The Making of a Podcast — Smart Patients
Ever wonder what it’s really like to record your first podcast? Hear from three Smart Patients community members who did just that—and shared every surprise, tech hiccup, and empowering moment behind...
https://research.smartpatients.com/resources/the-making-of-a-podcast-behind-the-mic-with-the-first-timers
3 months ago
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#SavvyCoop
is looking for people to share their experiences with AI & healthcare. Apply with this link.
apply.savvy.coop/ai-patient-a...
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We’re looking for people who are interested in sharing their experiences with AI and healthcare.
Your experiences are so valuable and important to creating better products and services, that companies and researchers will pay you just for sharing your experience and opinions!
https://apply.savvy.coop/ai-patient-and-healthcare-experience?ref=tmpop7b866548
5 months ago
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Beware
#Sjogrens
&
#autoimmunedisease
patients! Are You a Victim of the Wellness Industry?” Excellent article by
#DrBexiLobo
about grifter influencers who peddle harmful misinformation, false cures & preach unqualified wellness advice, including
#Sjogrenspatients
bexiphd.com/blogs/news/a...
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Are You a Victim of the Wellness Industry?
Wellness, as used today, was first defined by the biostatistician, Halbert L. Dunn, in the Canadian Journal of Public Health in 1959 as, “an integrated method of functioning which is oriented toward m...
https://bexiphd.com/blogs/news/are-you-a-victim-of-the-wellness-industry
6 months ago
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Great paid opportunity for
#lupuspatients
to share their personal experiences.
#SavvyCoop
is looking for patients who have been diagnosed with
#Lupus
for a paid online survey, 18+ Apply with this link
apply.savvy.coop/patients-wit...
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We’re looking for people who have been diagnosed with lupus.
Your experiences are so valuable and important to creating better products and services, that companies and researchers will pay you just for sharing your experience and opinions!
https://apply.savvy.coop/patients-with-lupus?ref=tmpop7b866548
6 months ago
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Paid patient interviews**#SavvyCoop is looking for diagnosed patients (or caregivers to someone with) one of the following autoimmune diseases:
#RheumatoidArthritis
(RA)
#SystemicScleroderma
(SSc)
#Sjögrens
#Lupus
#Sarcoidosis
#Myositis
18+ worldwide
apply.savvy.coop/awareness-on...
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We’re looking for people who have been diagnosed with a variety of conditions and their caregivers
Your experiences are so valuable and important to creating better products and services, that companies and researchers will pay you just for sharing your experience and opinions!
https://apply.savvy.coop/awareness-on-a-variety-of-conditions?ref=tmpop7b866548
6 months ago
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#SavvyCoop
is looking for
#Sjogrens
&
#rheumatoidarthitis
etc patients to participate in a paid interview survey. Qualified caregivers can also apply.
apply.savvy.coop/awareness-on...
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We’re looking for people who have been diagnosed with a variety of conditions and their caregivers
Your experiences are so valuable and important to creating better products and services, that companies and researchers will pay you just for sharing your experience and opinions!
https://apply.savvy.coop/awareness-on-a-variety-of-conditions?ref=tmpop7b866548
6 months ago
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I was honored to be interviewed for The Table Talk on Health podcast w/Caroline Pardo (last episode on bottom) and shared my journey & patient experience with
#sjogrensdisease
#sjogrens
#tabletalkonhealth
Pls share w/other patients & physicians who would benefit!
www.tabletalkonhealth.com/tabletalks
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Classes — Table Talk on Health
https://www.tabletalkonhealth.com/tabletalks
7 months ago
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As a
#SjD
patient this is huge news! International consensus shifts
#Sjögren’s
from ‘syndrome’ to distinct ‘disease’
www.healio.com/news/rheumat...
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International consensus shifts Sjögren’s from ‘syndrome’ to distinct ‘disease’
The preferred nomenclature for the condition formerly known as “Sjögren’s syndrome” has been changed to Sjögren’s disease, according to an international consensus statement pub...
https://www.healio.com/news/rheumatology/20250828/international-consensus-shifts-sjgrens-from-syndrome-to-distinct-disease
6 months ago
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I was honored to be interviewed for The Table Talk on Health podcast w/Caroline Pardo (last episode on bottom) and shared my journey & patient experience with
#sjogrensdisease
#sjogrens
#tabletalkonhealth
Pls share w/other patients & physicians who would benefit!
www.tabletalkonhealth.com/tabletalks
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Classes — Table Talk on Health
https://www.tabletalkonhealth.com/tabletalks
7 months ago
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The break up begins
9 months ago
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Savvy Coop is looking for women of childbearing age and postmenopausal to better understand women dealing w/rare diseases. This is a paid study
apply.savvy.coop/women-childb...
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We’re looking for women of childbearing age or who are postmenopausal.
Your experiences are so valuable and important to creating better products and services, that companies and researchers will pay you just for sharing your experience and opinions!
https://apply.savvy.coop/women-childbearing-or-postmenopausal?ref=tmpop7b866548
10 months ago
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Excellent
#Sjogrens
interview by fellow
#Sjogrens
patient advocate by Cristina Montoya
@arthritisdietitian.bsky.social
@creakyjoints.bsky.social
youtu.be/DpJg62rRkI4?...
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S8, Ep 13- What Sjögren’s Really Looks Like: Cristina Montoya on Living, Advocating, and Educating
YouTube video by CreakyJoints
https://youtu.be/DpJg62rRkI4?si=Pky65WqfaNy9qT72
10 months ago
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Excellent guest blog post by
@sarahschafermd.bsky.social
about the ties to
#dysautonomia
&
#Sjogrens
dysautonomiainternational.org/blog/wordpre...
#sjogrensawareness
#aprilsjogrensawareness
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The Dysautonomia Dispatch | The blog of Dysautonomia International
https://dysautonomiainternational.org/blog/wordpress/
11 months ago
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Savvy Cooperative is looking for people who have experience with a variety of health conditions and are willing to speak about their experiences via public or virtual platforms
apply.savvy.coop/speakers-bur...
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We’re looking for people who have experience with a variety of health conditions and are willing to speak about their experiences
Your experiences are so valuable and important to creating better products and services, that companies and researchers will pay you just for sharing your experience and opinions!
https://apply.savvy.coop/speakers-bureau?ref=tmpop7b866548
11 months ago
0
1
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Excellent article by Dr. Bexi Lobo PhD about
#Sjogrens
misinformation & myths.
#sjogrensawareness
#sjogrensawareness
#rheumatologists
Do better ACR!
#americancollegeofrheumatology
bexiphd.com/blogs/news/t...
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The American College of Rheumatology, Sjogren’s Disease Experts, and
April is Sjogren’s Disease Awareness Month. People with Sjogren's live with a high burden of disease; on average their quality of life and function are worse than that of people with rheumatoid arthri...
https://bexiphd.com/blogs/news/the-american-college-of-rheumatology-sjogren-s-disease-experts-and-medical-educators-need-to-step-up
11 months ago
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April is
#Sjogrens
Awareness Month. Sjogren’s is a serious, systemic disease that can impact any part of the body. The incorrect portrayal of Sjogren's leads to missed diagnoses, delayed diagnoses & inadequate care.
www.sjogrensadvocate.com/simple?utm_c...
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Sjogren's...Simplified | sjogrensadvocate
https://www.sjogrensadvocate.com/simple?utm_campaign=af3e8365-04cb-478f-a548-1a58dd2c068e&utm_source=so&utm_medium=mail&cid=571fd5d8-c354-4fd8-abfd-47866882089d
11 months ago
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Jon Cooper
12 months ago
Cartoon by
@billbramhall.bsky.social
.
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Nancy Levine Stearns
12 months ago
🚨 Article history detailing Jackie Robinson’s military career has been removed from the Department of Defense website. Purge of articles related to Black people, attack on diversity, equity and inclusion ,DEI continues. I've reached out to
@mlb.com
for comment
www.theguardian.com/sport/2025/m...
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Article on Jackie Robinson’s military career removed from defense department website
An article history detailing Jackie Robinson’s military career has seemingly been taken down on the Department of Defense’s website
https://www.theguardian.com/sport/2025/mar/19/jackie-robinson-article-removed-department-defense
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Stephanie Kennedy
12 months ago
UPDATE: An unvaccinated New Mexico man infected with measles has died. The man died without seeking medical care, and the official cause of death is under investigation. The deceased man was a resident of Lea County, New Mexico, where all 10 of the state’s confirmed measles cases have been…
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Noelle
about 1 year ago
Tesla just wrapped up its second-worst month ever. Keep protesting at his dealerships and service centers. It’s working!!!
finance.yahoo.com/news/tesla-j...
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Tesla just wrapped up its second-worst month ever
Tesla stock rose on the last day of February, but it wasn’t enough to stem losses of nearly 30% for the month.
https://finance.yahoo.com/news/tesla-just-wrapped-up-its-second-worst-month-ever-210850281.html
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Dr. Robert Karl
about 1 year ago
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Congresswoman Jasmine Crockett
about 1 year ago
This news truly breaks my heart. We are calling on HHS to take immediate action. Secretary Kennedy needs to bring back weekly measles tracking from the CDC, rehire the health experts, and roll out a serious vaccine campaign. Our kids' safety is on the line!
abcnews.go.com/Health/1st-m...
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Measles death of unvaccinated child in Texas outbreak is 1st fatality in US in a decade
An unvaccinated school-aged child in Texas has died of measles, the first associated with an outbreak that has infected more than 100 people.
https://abcnews.go.com/Health/1st-measles-death-linked-outbreak-texas-confirmed-child/story?id=119208967
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Randi Weingarten 🖇️📚✊🇺🇸
about 1 year ago
Labor For Higher Education is holding a large rally outside the Department of Health and Human Services on 2/25. Register below to join us in-person (or online for a viewing party and national phone bank)!
www.labor4highered.org/home#register
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Liz (or Lizzie) Kim 김혜성 💫
about 1 year ago
What if your mom was diagnosed with breast cancer & Medicaid could have saved her life, but Republicans cut it? This isn't just a budget cut, it's a death sentence for thousands of mom's...
#DontCutMyMedicaid
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Liz (or Lizzie) Kim 김혜성 💫
about 1 year ago
Medicaid is NOT just a program, it's a LIFELINE for 80 MILLION Americans! Republicans want to CUT IT TO SHREDS to fund tax cuts for billionaires? NOT ON OUR WATCH!
#DontCutMyMedicaid
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about 1 year ago
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As a
#Sjogrens
#autoimmunedisease
patient, the impact on the NIH affects me directly based on the unpredictable future of clinical drug trials
www.medscape.com/viewarticle/...
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What Happens When Science Stops
Funding freezes, legal fights, chaos — no one in medical research knows what will come, except that as of January 22, 2025, science itself may never be the same.
https://www.medscape.com/viewarticle/what-happens-when-science-stops-2025a10003yl
about 1 year ago
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Kodiak149
about 1 year ago
It’s sad on the eve of Presidents Day it’s appropriate to have to post this.
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Alt National Park Service
about 1 year ago
Letters went out to federal workers this morning stating they were fired due to poor performance. However, all employees had been rated as “exceptional” performers by their supervisors. Please keep these records and pursue wrongful termination claims. Let the lawsuits begin.
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The New York Times
about 1 year ago
A worsening measles outbreak has taken root in Texas, sickening two dozen and hospitalizing nine on the western edge of the state, where childhood vaccination rates have dwindled in recent years.
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Measles Outbreak Hits Town in Texas
As of Tuesday, 22 children and two adults had been infected, all of whom were unvaccinated, local officials said.
https://www.nytimes.com/2025/02/12/science/measles-vaccination-texas.html?smtyp=cur&smid=bsky-nytimes
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KSlatteryResist
about 1 year ago
If you want to make sure you’re spending your hard-earned money with ethical companies, save this Goods Unite Us link to your phone or desktop. You can quickly run a political background check on a company to find out. Let’s grab them by the wallet
#Voices4Victory
www.goodsuniteus.com
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Home - Goods Unite Us
At Goods Unite Us, we run political background checks on thousands of brands and companies so you can put your money where your vote is.
https://www.goodsuniteus.com/
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KSlatteryResist
about 1 year ago
American Medical Association is providing regular updates on bird flu and other infectious diseases on YouTube. I highly recommend subscribing to their page, especially since CDC has been axed by FOTUS
#Voices4Victory
m.youtube.com/user/AmerMed...
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American Medical Association (AMA)
The American Medical Association (AMA) is the largest and only national association that convenes 190+ state and specialty medical societies and other critical stakeholders. Our mission is to promote ...
https://m.youtube.com/user/AmerMedicalAssn
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Congresswoman Jasmine Crockett
about 1 year ago
Join us for a “Know Your Rights” Virtual Town Hall, where we’re breaking down the law, answering your questions, and making sure you have the tools to protect yourself and your community. 📅 Thursday, February 20, 2025 ⏰ 6:00 PM 💻 Live Stream – Sign up now :
tx30.us/townhall
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Not sure how to help & get involved? This is a really helpful website with helpful resources in one place. Join the
#resistance2025
resistance2025.info
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Resistance 2025 | Together we will make a difference!
https://resistance2025.info/
about 1 year ago
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0
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Pat Fuller
about 1 year ago
Black History Month Langston Hughes!
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Jill W0409 💙✡️🐙
about 1 year ago
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Kara Swisher
about 1 year ago
Don’t mess with
@ellenlweintraub.bsky.social
add a skeleton here at some point
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Congresswoman Jasmine Crockett
about 1 year ago
Last week, Elon Musk's staff illegally breached the U.S. Treasury payment system and gained access to millions of Americans' personal data. We're calling out Elon Musk to put on his big boy pants and answer some questions from the Oversight Committee.
www.youtube.com/watch?v=gvv-...
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Crockett Calls Out COWARD Musk
YouTube video by Rep. Jasmine Crockett
https://www.youtube.com/watch?v=gvv-l1jF-xU&feature=youtu.be
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Mrs. Betty Bowers
about 1 year ago
Jasmine Crockett, after accusing colleagues of castrating their Constitutional duty, said, “My job is to make sure we don’t have any kings or queens in this country, but it seems like you all have decided it’s going to be Mr. King and his queen. And y’all can pick which one is which.”
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insect girl
about 1 year ago
Austin
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Way to go California State Capitol!!!
#50501Protest
add a skeleton here at some point
about 1 year ago
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Blue | 50501 Newsletter
about 1 year ago
#Michigan
#Protest
#50501protest
#Musk
#Trump
#TruePatriots
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Albert Capati
about 1 year ago
Reposting with proper hashtags I drove by the
#50501protest
in
#SpringfieldIL
.
#50501protests
#USprotests
#Trump
#ElonMusk
#project2025
#jointheresistance
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KindLivesMatter
about 1 year ago
Oregon Resists!
#50501Protest
Hundreds gathered Wednesday at the Oregon State Capitol State Park as part of a nationwide series of protests against actions by President Donald Trump and Project 2025.
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Blue | 50501 Newsletter
about 1 year ago
#Albany
#NewYork
#Protest
#50501Protest
#50states
#democracy
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Blue | 50501 Newsletter
about 1 year ago
#Boston
#Protest
#50501Protest
#Democracy
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Sassy0210
about 1 year ago
Proud to see my fellow North Carolinians at the state capital In Raleigh today!
#USprotests
#Musk
#protests
#50501Protest
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about 1 year ago
@independentaus.bsky.social
@meidastouch.com
@thebulwark.bsky.social
@mmpadellan.bsky.social
@aoc.bsky.social
@georgetakei.bsky.social
@theguardian.com
Tl;Dr direct evidence from an ex employee that proves Felon Rusk interfered with the election and is manipulating elections globally.
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The Concerned Bird - X Whistle Blower
about 1 year ago
As a concerned bird I feel like its my duty to inform the world about what we have done.
#ElectionInterference
#Election2024
#ElonMusk
#Politics
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Elon Musk's and X's Role in 2024 Election Interference
The confessions of a concerned bird.
https://substack.com/home/post/p-154577954
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