Finding out you have kidney disease via an NHS app alert isn't ok & Lucy's story shows why 👉 https://www.independent.co.uk/news/health/kidney-disease-nhs-digital-diagnosis-text-app-gp-b2848495.html Diagnosis should come with support. That's one of the reasons we launched #BloodyAmazingKidneys

Sonsare dreamt of growing old, then those dreams were put on hold, but on the eve of Organ Donation Week, Sonsare shares how thanks to an incredible family gifting Sonsare with precious lungs, he dreams again of getting old surrounded by his family: shorturl.at/4G5as

🫀 It's Organ Donation Week, a chance to celebrate the lives changed by donation & to register your own organ donation decision 👉 organdonation.nhs.uk/register-you... Want to get involved? Share this post or download our facts to post on your own profile ➡️ kidneycareuk.org/news-from-ki...

📣 New episode! Organ Donation Week: Why your choice matters is the latest episode from #DiaryOfAKidneyWarriorPodcast. Listen here 👉 https://kidneycareuk.org/get-support/podcast/organ-donation-week-why-your-choice-matters/ For all of our Podcast episodes, tap here ➡️ https://kidneycareuk.org/podcast

This afternoon @cgrahamemsp.bsky.social will lead a debate marking organ donation week in Parliament. Organ and Tissue Donation week runs from the 23rd-30th of September. 📺: www.scottishparliament.tv

This week is national organ donor week. An academic encourages others to join organ donation register after his twin’s transplant saves his life northwestbylines.co.uk/news/health/...

Chef and dialysis patient Tony has spoken to BBC news about his experience of applying for PIP. We believe that the welfare system is too complex, stigmatising & does not reflect the needs of people with kidney disease. Read Tony's story here: https://www.bbc.co.uk/news/articles/c4gzz0l7726o

In patients with CKD with and without type 2 diabetes, treatment with dapagliflozin slows the decline in health-related quality of life. Read more in #ASNJASN: kidney.pub/JASN0776#ASNJASN:

🖊️ Do you feel #KidneyDisease is overlooked? It’s time to act. Sign our open letter to the Prime Minister calling for a national #CKDstrategy & a better future for kidney patients 👉 www.ukkidney.org/prime-minist... @Kidney_Research @kidneycareuk @NKF_UK @PKDCharity @UKKidney

📣 Our latest report 'Left to get on with it' focuses on the social and emotional needs and experiences of adults living with kidney disease. High quality psychosocial support should be available to EVERYONE with kidney disease. Click here 👉 kidneycareuk.org/news-from-ki...

🖋️ On Wednesday we launched our latest report, 'Left to get on with it', focusing on the real impact of inadequate psychosocial support in kidney care. Read the full report here 👉 kidneycareuk.org/get-involved...

🏆 Feeling incredibly proud of our #BloodyAmazingKidneys campaign winning the Global Innovation Partnership Award from @boehringerglobal.bsky.social‬ last night at the Global Patient Partnership Summit. It's wonderful recognition of the impact of the campaign.

And we are all so pleased that the kidney health resolution was passed. Thank you!

❗We welcome the announcement today that the @who.int has formally adopted a resolution to reduce the burden of #KidneyDisease. You can read more about this milestone here 👇 kidneycareuk.org/news-from-ki... @kidneyresearchuk.org, Kidney Wales, @nkf-uk.bsky.social, PKD Charity, Popham, @ukkidney.org

1/3🤝This week @fionacloud.bsky.social, our Policy Director, has been in Geneva for the 78th World Health Assembly (#WHA78), talking about why #KidneyHealth needs to be seen as a #GlobalPriority. @who.int @theisn.org Yesterday she met with Guatemalan ambassador (José Francisco Calí Tzay), ...

Historic decision at #WHA78: Member States of WHO today formally adopted by consensus the world's first #PandemicAgreement to make the world more equitable and safer from future pandemics. 🔗 bit.ly/43p0DsH

One of the key themes from our parliamentary roundtable event last week was how we can learn from what other countries are doing to increase the number of people with CKD identified and diagnosed sooner. Read more here: kidneycareuk.org/about-us/pol...

Our Policy Director Fiona Loud will be joining the #WHA78 #CKMForum on 22 May. She will be sharing why early diagnosis & better, more coordinated, care for Cardiovascular-Kidney-Metabolic (CKM) conditions needs to be part of the global #NCD conversation 👉🏼 bit.ly/ckmforum

📣 Join ISN & @devex.com at #WHA78 side event: Kidney Health Matters: A Policy Imperative for Economic Resilience 🗓️ May 21 | 🕣 8:30 CEST 👉 Attend or join the live stream: pages.devex.com/kidney-healt... With support from: @astrazeneca.bsky.social, @boehringerglobal.bsky.social, @novartis.bsky.social

UN Member States must support this resolution and vote in favor at the #WHA78 to drive meaningful action on kidney health. 🔗 theisn.org/in-action/ad...

The 78th World Health Assembly #WHA78 takes place May 19–27 in Geneva. A proposed resolution, led by Guatemala and cosponsored by 19 countries, calls for global action on kidney disease, which affects 850M people and is projected to become the 5th leading cause of death by 2050

Be part of the conversation with people with #transplant in the @esottransplant.bsky.social webinar. How to cope with infection risk? @fionacloud.bsky.social

Kidney disease is a worldwide killer. Treat it that way www.nature.com/articles/d41...

😲 It's been 6 months since our #BloodyAmazingKidneys awareness campaign went live, with our posters & adverts featuring QR codes linked to the Checker being scanned more than 2,200 times so far! To download & display a poster somewhere, click here: kidneycareuk.org/kidney-disea...

📣 Next month in Geneva, the World Health Assembly, the decision making body for the World Health Organisation @who.int will be debating whether to make #KidneyHealth a priority. We're calling in the UK govt to support this, find out more here 👉👇 kidneycareuk.org/about-us/pol...

At yesterday's Liaison Committee, I asked the Prime Minister about the Pathways to Work Green Paper. There is real concern about the quality of the impact assessment. The @jrf-uk.bsky.social estimates the changes will push 400,000 people into poverty, not the 250,000 the government predicted.

Good morning all! And some great news to kick off the day! After much effort from a coalition of patient groups including @nationalvoices.bsky.social @healthwatchengland.bsky.social and @patientsassoc.bsky.social NHS letters are due to get special status! www.independent.co.uk/news/uk/home...

Despite gd intentions navigating England’s “complex” health and care system is “extremely difficult” and carers and patients are experiencing burnout, distress and harm as a result. www.theguardian.com/society/2025...

Our friend and colleague Nick Palmer absolutely smashed his run on Sunday raising over £3k for the charity! Thank you Nick 😍 💪

➡️ Stay updated! Our website now includes all you need to know about the Spring Booster #Covid19 vaccination. Find out who's eligible and how to book your appointment, depending on where you are based in the UK. Get informed 👉 kidneycareuk.org/kidney-disea...

🤝 Thank you to the North West Kidney Network for having us at your CKD/AKI day this week. We loved sharing our #BloodyAmazingKidneys campaign & the chance to work with you towards better care for people with #KidneyDisease. More info on our awareness campaign here: kidneycareuk.org/news-from-ki...

We're concerned to hear about potential cuts to the disability benefits which provide a lifeline to many people with #KidneyDisease who face additional costs of disability. We want a welfare system that treats people with dignity. More info: kidneycareuk.org/news-from-ki...

What a day for #WorldKidneyDay yesterday! It was amazing to see how popular our patient information was at the @btstransplant.bsky.social congress. Find our free booklets here: kidneycareuk.org/get-support/... You can download all our booklets as PDF files, email to others, or print - for free!

❗This week is NHS Blood + Transplant's first-ever #LivingDonationWeek. Find out more info on living #Kidney donation including details about the Living Kidney Sharing Scheme here: t.co/0wp9zN5cdF To join the NHS #OrganDonor Register call 0300 123 23 23 or visit organdonation.nhs.uk

🎶 Join us for an unforgettable afternoon of music & inspiration! The Black Living Donor Choir's Harmony for Hope Concert celebrates #WorldKidneyDay with powerful performances & the opportunity to learn about #LivingKidneyDonation. Reserve your spot now: www.eventbrite.co.uk/e/world-kidn...

Keen to support #WorldKidneyDay? Download our virtual background pack for video calls and start a conversation with your team about kidneys. You’ll get an info sheet to share in chat too. Look here> worldkidneyday.co.uk/get-involved/ #WorldKidneyDay

THE OBSERVER: Britons among hardest hit by Covid fallout five years on #TomorrowsPapersToday

Our friends at #KidneyWales are holding a Home Dialysis Webinar next week! This is perfect if you’re considering home dialysis for yourself or a loved one. Secure your spot now 👉 buff.ly/3Ew4n2Y #HomeDialysis #KidneyHealth #DialysisAtHome

A great story of how you can give a kidney and your loved one can receive one through the sharing scheme #Living #Kidney #Donation www.telegraph.co.uk/news/2025/02...

UHS are hosting a World Kidney day event on Thursday 13th March free to attend. www.eventbrite.co.uk/e/detect-ear...

Our hospital is holding an event to mark World Kidney Day on Thursday 13 March in the East Atrium from 10am to 2pm. The event will feature stalls from kidney charities and our Chronic Kidney Disease Specialist Nurses, Renal Dietitians and Diabetes Specialist Nurses.

❗ The countdown is on! Just 3 weeks until #WorldKidneyDay! Will you join us in spreading awareness? Stay tuned to find out how you can make a difference💛 Brought to you by: UKKA @kidneyresearchuk.org @ukkidney.org @nkf-uk.bsky.social Popham Kidney Support Kidney Wales PKD Charity #KidneysMatter

Calling Zelensky a “Dictator” must be where the line is drawn. It is my sincere hope that the whole political spectrum in the United Kingdom will speak with one voice in opposition to Trump’s lies.

Good on @kidney.org NKF on putting out a clear statement on this issue www.kidney.org/press-room/n... #NephSky

Evidence is what powerful people say it is. Brace for a very rough ride over the next few years.

Surgeons in Boston successfully transplanted the kidney of a genetically modified pig into a 66-year-old man with kidney failure last month, Massachusetts General Hospital announced. It's the fourth transplant of its kind in the U.S., and is part of a new clinical trial sanctioned by the FDA.

Why Europe needs to prioritise #KidneyDisease www.politico.eu/sponsored-co...

❗DEADLINE Tues 11 Feb. Thank you so much to everyone who has completed our survey so far. However, it's not too late to take part! If you’re over 18, a UK resident and have been diagnosed with chronic kidney disease, we need your input. Link here: surveymonkey.com/r/HCHZYQM

The Food and Drug Administration has given two biotechnology companies approval for clinical trials that will transplant organs from genetically modified pigs into patients with kidney failure, an experimental but potentially groundbreaking innovation.

💛 #LivingKidneyDonation takes place when a living person donates to another person, with around 30 out of 100 #Kidney transplants coming from living donors. To find out more about living kidney donation and what happens during the process, click here: kidneycareuk.org/kidney-disea...