After introducing this research project via our past publications, we now start an ongoing thread on a key concept in our work: lay expertise. In the weeks ahead, we’ll present classics and brand-new texts we consider central and relevant – and welcome your comments and suggestions! #layexpertise

“Most People with Long COVID Are Their Own Doctors” by @sazanajayadeva.bsky.social & @dalupton.bsky.social (2025) shows vividly how self-help and self-tracking turn patients into experts for themselves while problematising medical authority. journals.sagepub.com/doi/10.1177/... #layexpertise

This is a really interesting article. Well worth reading in full. It's such a shame that GPs are so resistant to the use of self-tracking technologies, as they could so easily be used to empower their patients to manage their conditions better. Let's hope things start changing soon on this.

As someone with ME/CFS who has to guard my cognitive exertion, I'm going to be reading the linked article in bits over time, but already want to share it just a little of the way in. So far, really appreciating the clarity, patient respect, and framing.

"We urge practitioners to treat patient-generated data as a valuable resource. Without this shift, patients with contested illnesses like long Covid risk remaining stuck in a system where they have to be their own doctors." Dr Jayadeva www.bbc.co.uk/news/article...? #LongCovid #PatientAdvocacy

BBC: “Long Covid patients gaslit by GPs, study finds” “Dr. Sazana Jayadeva, a research fellow at the university, said a "shift was needed in medical culture" following the findings” www.bbc.com/news/article...

"Dr Jayadeva, who co-authored the study, added: 'We found that people with #longCovid are often led to fend for themselves in a system that isn't adequately informed about their condition and doesn't offer them appropriate medical support.'"

#OutNow in #iCS Jayadeva and Lupton explore how individuals with Long COVID use self-tracking to understand and manage their illness. Such practices offer empowerment and validation to individuals while challenging power differentials. doi.org/10.1080/1369...

Study: ‘Most People with Long COVID Are Their Own Doctors’: Self-Tracking and Online Patient Groups as Pathways to Challenging Epistemic Injustice. Published: July 20, 2025 journals.sagepub.com/doi/10.1177/...

"Despite the increasing recognition of Long COVID as a condition, many patients still face dismissal by medical professionals, misattribution of their symptoms to psychological causes, or simply being left to fend for themselves." Source: www.surrey.ac.uk/news/patient...

News Release 19-Aug-2025 Patients with #LongCOVID forced to become their own doctors www.eurekalert.org/news-release... "participants ... are using data from smartwatches and symptom-tracking apps to evidence their symptoms to their medical practitioners and advocate for diagnostic tests" #PASC

'Self-tracking empowers Long COVID patients amid medical dismissal' 'Despite the increasing recognition of Long COVID as a condition, many patients still face dismissal by medical professionals...' www.news-medical.net/news/2025081...

University of Surrey: 'Denied support, long COVID patients turn to self-tracking and online groups for care' 'Despite the increasing recognition of long COVID as a condition, many patients still face dismissal by medical professionals...' medicalxpress.com/news/2025-08...

Someone said I'd probably like @dalupton.bsky.social's book Risk, and doing my due diligence, bumped into an interesting #longCovid piece: www.tandfonline.com/doi/full/10....

1/ "We found that people with Long COVID are often left to fend for themselves in a system that isn't adequately informed about their condition and doesn't offer them appropriate medical support": www.news-medical.net/news/2025081...

Many long COVID patients are using wearable devices and online communities to track symptoms, advocate for care, and navigate a healthcare system that often lacks adequate support for their condition. doi.org/g9xj8d

‘Most People with Long COVID Are Their Own Doctors’: Self-Tracking and Online Patient Groups as Pathways to Challenging Epistemic Injustice by @sazanajayadeva.bsky.social ‪& @dalupton.bsky.social journals.sagepub.com/doi/10.1177/... Screenshot from Science for ME weekly update #LongCovid #PASC

UN agency says staff fainting from hunger as starvation spreads in Gaza

‘Most People with Long COVID Are Their Own Doctors’: Self-Tracking and Online Patient Groups as Pathways to Challenging Epistemic Injustice journals.sagepub.com/doi/10.1177/... @dalupton.bsky.social

Brilliant new research paper by a friend of mine on the experiences of people with #LongCovid using self tracking devices and peer support in the absence of sufficient answers and help from medical professionals journals.sagepub.com/doi/10.1177/...

"Epistemic justice for people with Long COVID and other contested illnesses will never be fully achieved until the medical profession can develop greater epistemic humility and takes steps to redress testimonial and hermeneutical injustice": journals.sagepub.com/doi/10.1177/...

Pleased to share a new article, co-authored with @dalupton.bsky.social, just published in the journal Sociology: '"Most People with Long COVID Are Their Own Doctors": Self-Tracking and Online Patient Groups as Pathways to Challenging Epistemic Injustice'. journals.sagepub.com/doi/10.1177/... 1/2

Happy to share a new article, just published open access in @socresonline.bsky.social: 'Getting Back on Track: Student Migration From India to Germany as a Route to Desirable Employment'. journals.sagepub.com/doi/10.1177/...

📖📚 Have you registered for our upcoming ECR RIS reading group? 20 May 2025 3.00-4.30pm BST ✒️ register here: lnkd.in/edviAa_E @risnetwork.bsky.social @sazanajayadeva.bsky.social

‘A gift and a curse’: the benefits and limitations of self-tracking Long COVID Image is from latest Science for ME weekly update www.tandfonline.com/doi/abs/10.1... #LongCovid #PASC

Registration is now open for our @srhe.bsky.social webinar on international student mobility from and to India! There will be 3 panels, 9 papers, and lots of Q&A! When: 16 May, 10 am - 1.05 pm (UK time) For more details & registration: srhe.ac.uk/civicrm/?civ... Please repost!

📢New article: 'Paradoxical Parenting Practices and Australian Higher Education', in @sociologyjnl.bsky.social, with @drdanwoodman.bsky.social & @juliacook.bsky.social #parenting #HE #intensiveparenting journals.sagepub.com/doi/epub/10.... 🧵

📚 RIS ECR Reading Group 🗓️ February 4th, 3:00-4:30pm (UK time) ☕ Please join us, and sign up here: forms.gle/YK935MfnaSgi... We'll be focusing on language and ISM, discussing Zhang, Lütge & Zou (2021): www.tandfonline.com/doi/full/10....

Coming (very) soon: 22nd of Jan, 12:30, online, Pascal Angerhausen from the Universität Hildesheim is talking about the inclusion and exclusion of students with disability in German HE as part of our @edreslancaster.bsky.social seminar series. Details/sign-up: www.lancaster.ac.uk/educational-...

Higher education researchers - want to write a book but don't know where to start? Come along to the SRHE webinar Sarah O'Shea and I are running on writing a book proposal Wednesday, 12 March from 9-10am UK time Details below srhe.ac.uk/civicrm/?civ...

Happy New Year! Our paper, reflecting on how the concept of Global Britain has been mobilised in UK education policy post-Brexit, is now out [as part of a SI on 'cosmopolitan nationalism']. Pls read & share. @rachelbrooks.bsky.social @uclgeography.bsky.social www.tandfonline.com/doi/full/10....

📣 Call for participants: online workshop to bring together people conducting research on international student mobility from and to India. - Organised by SRHE's International Research & Researchers Network. - To participate, pls fill out this short form by 1 Feb 2025: lnkd.in/eqkVXJPx 1/4

One week left to apply to work with @alinecourtois.bsky.social, @sazanajayadeva.bsky.social and me on a new project on virtual international student mobilities

Come work with @alinecourtois.bsky.social @rachelbrooks.bsky.social & myself on a new Open Research Area project, ‘Virtual Mobilities of International Students: towards a new model for the internationalisation of higher education?' www.bath.ac.uk/jobs/Vacancy... Deadline: 5 Jan 2025 Pls repost!

Another reminder that @alinecourtois.bsky.social @sazanajayadeva.bsky.social and I are recruiting a researcher to work on a new project on virtual student mobilities - to be based @uniofbath.bsky.social www.bath.ac.uk/jobs/Vacancy...

📣 Call for participants: online workshop to bring together people conducting research on international student mobility from and to India. - Organised by SRHE's International Research & Researchers Network. - To participate, pls fill out this short form by 1 Feb 2025: lnkd.in/eqkVXJPx 1/4

Institutional constraints to higher education #datafication: an English case study New #SRHE blog, drawing on @taso.org.uk -funded research with @jilltimms.bsky.social srheblog.com/2024/12/12/i...

Sociology in the Times of Genocide: call for expressions of interest for a forthcoming Special Section of The Sociological Review journal. More info buff.ly/4izyRjO Deadline 13 January Editors: @kirsteen-paton.bsky.social and Karis Campion #CfP #Gaza #Palestine Keffiyeh artwork buff.ly/41uSBir

Come work with @alinecourtois.bsky.social @rachelbrooks.bsky.social & myself on a new Open Research Area project, ‘Virtual Mobilities of International Students: towards a new model for the internationalisation of higher education?' www.bath.ac.uk/jobs/Vacancy... Deadline: 5 Jan 2025 Pls repost!

Vacancy for a researcher working with @alinecourtois.bsky.social @sazanajayadeva.bsky.social and me on a new project on the 'Virtual Mobilities of International Students'. Based at @uniofbath.bsky.social Deadline for applications: 5 Jan 2025 Please repost - thanks! www.bath.ac.uk/jobs/Vacancy...

Delighted that our special issue on 'International student mobility within Europe: responding to contemporary challenges' has just been published! Pleasure to guest-edit this w/ @sazanajayadeva.bsky.social Daniel Faas, Aline Courtois & Suzanne Beech Our editorial: link.springer.com/article/10.1...

Really interesting presentation by Sam Shields, Nazgul Mingisheva and Alina Schatner on Indian students' experiences of studying medicine in Kazakhstan! #SRHE2024 May be of interest to @sanamroohi.bsky.social and @arokkiaraj.bsky.social

📣📣 Research event reminder - THIS WEEK!📣📣 Online 💻 -Wednesday 20th of November: 12:30 UK time🕧 Dr @sallywelsh2003.bsky.social will talking about her fascinating project on mature students' unpaid work as a form of learning. Please register via the link, we look forward to seeing you there!

🌟Many congratulations to my PhD student, @ve-spa.bsky.social, for her article that's just been published in 'Compare': Doing research with international students: methodological considerations for participatory research designs www.tandfonline.com/eprint/5KC9B...

go.bsky.app/SY36J2i South Asian scholars and writers! Please reply if you’d like to be added. 🌸

Here’s a booklet I put together about creative methods I and collaborators have used in recent years - may be of interest for those researchers interested in creative methods simplysociology.wordpress.com/2024/09/25/n...

Have created Higher Education Studies starter pack. Recommendations for adding colleagues are very welcome:) go.bsky.app/MiQsaVM

Created a starter pack in Comparative and International Education go.bsky.app/QE2fRsn

📢 Job opportunity 📢 Lecturer in History of Medicine & Health University of Manchester #histmed

New special issue of Higher Education on 'International student mobility within Europe: responding to contemporary challenges' Delighted to have guest-edited this with @sazanajayadeva.bsky.social, Aline Courtois, Daniel Faas and Suzanne Beech link.springer.com/collections/...