Nous lançons donc un appel à dons. Chaque don compte et servira à assurer le meilleur accueil possible du public, des bénévoles, des intervenant·es et des artistes, et à renforcer l’accessibilité de l’événement. 👉 La cagnotte est ici : www.helloasso.com/as... 3/4

Notre association, avec l’ARRA & le Mask Block Paris, organise son 1er festival d’autodéfense sanitaire en France : 509 PPM - Prévention, Politique, Musique. ❤️‍🔥 Rendez-vous les 5-6 septembre à la Parole Errante (Montreuil) pour un événement à la fois militant et festif 1/4

« Ces associations se fédèrent désormais à l'échelle internationale. Winslow SP fait par exemple partie de Long Covid Rise Up » @longcovidriseup.bsky.social

🗞️ Merci à Marie Jamet pour cet article pour dans des membres de notre association ont été interviewé•es : « Il m’a fallu un an pour qu’on me diagnostique un #Covidlong. Les médecins reconnaissaient que j’en souffrais, mais

🚨 Some time ago, we have written to the authors of the “Clinical Care Guide” (Bateman Center) to express our deep concern about its portrayal of #LongCOVID. While it addresses PEM, POTS & MCAS, it largely ignores the broader reality of this disease: 🔗 longcovidriseup.eu/bateman-letter/

Long Covid is not "baffling" at all. There are thousands of publications which show multi-system pathology across all body systems, including extensive evidence of organ damage. The scientific and clinical evidence is undeniable and should be reported about accurately #LongCovid

On this day, I want to express my gratitude and solidarity to all patients, advocates, patient-researchers and allies who have been fighting for years. But I also want to remember the lives lost, the pain, the suffering, the lack of care, the fight. Thinking about all of you. Thanks. #LongCovid

Six years ago today the term #LongCovid was first used as a Twitter hashtag. A single tweet by a patient linked together a growing grassroots movement of people, who weren't recovering from covid. Across the world, we're still fighting for research and treatment of our disease

🚨📗 Encore un article à lire absolument, sur AOC, d'A. Monnin : "Sur « le vivre avec », du Covid à l’#hantavirus", qui analyse les réactions écologiques à l'alerte 🦠 récente et les prises de paroles telles que celle d'A. Desbiolles (Reporterre). aoc.media/opinion/20...#hantavirus",1/10

Just like in the heyday of Act Up, the activists, wearing FFP2 masks, stormed the stage. » "At the center of the controversy are French researchers (a psychiatrist and an internist) involved in a study at Hôtel-Dieu that highlights cognitive-behavioral therapies and mindfulness meditation,

🗞️ Press article « No, yoga is not the solution to long COVID » on the Long Covid EU project symposium, « quickly interrupted by people living with long COVID, who protested against the arguments put forward by some of the speakers that tended to 'psychologize' their condition.

🔥🔥🔥 we don’t need yoga or meditation 🔥🔥🔥 #StopTheDiseaseProcess #BlockTheSpread

@elisaperego78.bsky.social and myself, have written a response to Charlton et al. recent paper : "Reframing long covid around an overarching vision of PEM oversimplifies a complex landscape characterized by significant cardiovascular abnormalities and risks. Lire ici 🔗 bjsm.bmj.com/content/60/8...

This by @solenntango.bsky.social and myself is a response to a discussion by Charlton et al, who broadly suggested reframing cardiovascular Long Covid through PEM, to be managed with an app based monitoring bjsm.bmj.com/content/60/8...

@solenntango.bsky.social and I write about the risks of centering syndromic/PEM-based models and app-based management in addressing cardiovascular #LongCovid "In a population already struggling to access specialized cardiology care, this may translate into missed opportunities for diagnosis"

👇👇👇

🙌 A must-read on #LongCovid, mechanisms and multisystemic consequences. Thank you @elisaperego78.bsky.social 👇👇👇

Inform about #LongCovid, and #BlockTheSpread in workplaces.

Welcome @lcawarenessint.bsky.social to @longcovidriseup.bsky.social. We will keep fighting for the recognition of #LongCovid, treatments and prevention 🙏🔥 #LongCovidAwarenessDay #longcovidawarness

🗣️Setmana de conscienciació de la Covid Persistent. 🩵#DiaInternacionaldelaCovid #15Març2026 💊Una malaltia crònica i complexa provocada per una o múltiples infeccions pel SARS-Cov2. 🗓️ #6anys I encara hem reclamem el mateix. 🩺Atenció 🪩Reconeixement 🥽🥽 Visualització

🚨 The federation grows ! On this 15th march, we are proud and energized to announce that the pioneering group 🔥International Long COVID Awareness🔥 is joining forces with Long Covid Rise Up. Their voice makes us stronger. We are done with unchecked spread and no treatment.

Each #LongCovid death is a scandal. Covid is avoidable with collective prevention measures. Mass infection policies kills. The words of Leslie Lee III still resonates

🖤🐘 March 14, we remember. #LongCovidAwareness Elephants never forget the ones they lose. Neither do we. Each black elephant marks a life lost to Long Covid. We are thinking of you. For the dead -and for the living, The fight continues. #LongCovidKills

📢 French article on #LongCovidAwareness, thanks to Covid Long solidarité. #LongCovidHeartbeats are discussed, the @winslowsp.bsky.social Paris protest, and more. 2026. We need action now!

#StopTheDiseaseProcess #BlockTheSpread #LongCovidAwareness

💡Catalonia lights up!💡 Thanks to the efforts of @covid19_persistent, on March 15th, the Government of Catalonia and 20 + city councils in major cities will light up their city hall, or an iconic city building. #LongCovidAwareness makes #LongCovidHeartbeats visible ! 🩵🩶🖤

🎬 🗣️ Launch of #LongCOVIDAwarenessMonth and its theme of the cardiovascular effects of Covid and #LongCovid, with this video to share! #LongCovidHeartbeats 👉 Every patient counts, every heartbeat counts. (Youtube channel with several languages : www.youtube.com/playlist?lis...)

Seis años después de la pandemia, 2,4 millones de personas viven en el Estado español con covid persistente ‼️ Long Covid Aragón denuncia falta de reconocimiento, investigación y atención sanitaria y convoca concentración el 15 de marzo en Zaragoza: https://arainfo.org/?p=322997

On #LongCOVIDAwarenessDay (March 15), NYC should recognize #LongCOVID as a historic struggle and light up its City Hall in teal! Sign petition to @mayor.nyc.gov! actionnetwork.org/petitions/pe... Join Us! 💚

When health communication remains outdated, the virus circulates freely and continues to cause damage. Millions of people are living with #LongCovid : they are a constant reminder of this. There is an urgent need to evolve. #Prevention #LongCovidAwareness

🔴 New poster diptych. COVID is transmitted through the air, and through ignorance. Ignorance of the data. Ignorance of blind spots. #PublicHealth Link : winslow.fr/ressource...

Affiche 2 Des millions de personnes vivent avec un #Covidlong . Urgence d’évoluer.

Affiche 1 Quand la communication sanitaire reste figée, le virus, lui, circule librement et continue de faire des dégâts.

🔴 Nouveau dyptique d'affiches. Le COVID se transmet par l’air, Et par l’ignorance. Ignorance des données. Ignorance des angles morts. Ignorance des retards. Le #CovidLong en est le rappel permanent. #LongCovidAwareness #SantePublique #Prévention winslow.fr/ressource...

Today International Long Covid Awareness Month starts #LongCovid

🎬 🗣️ Launch of #LongCOVIDAwarenessMonth and its theme of the cardiovascular effects of Covid and #LongCovid, with this video to share! #LongCovidHeartbeats 👉 Every patient counts, every heartbeat counts. (Youtube channel with several languages : www.youtube.com/playlist?lis...)

2026--Six years. Still sick. Still raising awareness for prevention & treatments! #LongCovidAwareness #LongCovid #LongCovidKids #LongCovidHeartbeats #LongCovidAwarenessDay #LongCovidAwarenessWeek #LongCovidAwarenessMonth #LitForLongCovid #OneInfectionAway #TakeActionAgainstLC

📣 En el marco del Día Internacional de la #COVIDPersistente #LongCovidAwarenessDay, convocamos una concentración: 📍 Plaza España, #Zaragoza 🕛 a las 12:00 horas 🩵 Os esperamos con familiares y amigos para que se nos visibilice 🫂 @lcawarenessint.bsky.social @longcovidriseup.bsky.social

🔴🐘 Nous appelons au rassemblement avec la participation d'@actioncovidlong.bsky.social, le 13 mars prochain devant l'Hotel Dieu à 14h, à l'occasion du #LongCOVIDAwareness. #EveryHeartbeatCounts Chaque personne compte, chaque battement de coeur compte. winslow.fr/long-covi...

Global #LongCovid community, doctors, & researchers: We are working together to better define Long Covid. ➡️Please review the proposed definition & share your thoughts ➡️Share definition w/ Long Covid folks who aren't on social media Form⬇️ www.longcovidawareness.life/community-long-covid-defintion

Honoured to join @longcovidriseup.bsky.social as a patient expert and researcher. We will continue to fight for more recognition of #LongCovid, for treatments, access to care, and prevention

⭐🎉 We are honored and proud to welcome Elisa Perego, researcher and expert patient (Italy), to our federation as a highly qualified member. @elisaperego78.bsky.social coined the term #LongCovid, giving a name and global visibility to a condition that millions were experiencing in silence.

🗞️Article reprenant l'interview radio de notre présidente, pour la fédération #LongCOVIDRiseUp L'audio est disponible à l'écoute en entier ici : winslow.fr/winslow-medi... "On est invisibilisés : le cri d'alarme de la nouvelle Fédération COVID Long" Extraits🧵

🗞️In this article, an interview with one of the co-presidents of our federation #LongCOVIDRiseUp Title : "We are been made invisible : the wake-up call from the new #LongCOVID Federation" Translated extracts🧵 maritima.fr/actualites/s...

🗞️In this article, an interview with one of the co-presidents of our federation. "#LongCOVID patients join forces in an international association: “Instead of progressing, we are being made invisible.”" Translated extracts 🧵 www.aragondigital.es/articulo/san...

👉 More coverage about the launch of our federation, this time in the French media. 🎙️ On Monday, February 9, the president of @winslowsp.bsky.social and co-president of Long COVID Rise Up, will speak on Radio Maritima at 12h00. Don't miss it! ✨ #StopTheDiseaseProcess #BlockTheSpread

"Four European associations, including the one in Aragon, are joining forces to combat #LongCovid." #StopTheDiseaseProcess #BlockTheSpread #LongCOVIDRiseUp www.heraldo.es/noticias/ara...

Nace Long COVID Rise Up, una nueva alianza internacional para combatir la covid persistente. Cuatro organizaciones europeas, entre ellas Long COVID Aragón, impulsan esta federación que denuncia la inacción política y exige investigación urgente: https://arainfo.org/?p=321111

Spanish article about the launch of Long Covid Rise Up, a federation of #LongCovid patients fighting against the pandemic. (Picture with a mask on!) #StopTheDiseaseProcess #BlockTheSpread www.aragondigital.es/articulo/san...

New alliance of organisations for #LongCovid @longcovidriseup.bsky.social