Congratulations to our UCAN Ireland members @miriamstaunton.bsky.social & @cynthiacravo.bsky.social on becoming EUPATI Fellows 🎉 A wonderful achievement and testament of your dedication to patient advocacy👏👏👏 #ExpertPatientVoices #CancerTherapeutics #Innovation #EUPATI

We are thrilled to be shortlisted for the Irish Healthcare 'Patient Advocacy Project Of The Year' Award 2025 🎉 This is testament to the power of the patient voice and teamwork. Thank you to everyone who supports us. #UnitedCancerVoiceIE #TogetherWeCanDoMore

Please help us to ensure that cancer patients across the Ireland have a voice at this important symposium 🙏 Thank you. #NothingAboutUsWithoutUs #UCANIreland #UnitedPatientVoice #NCPE #AccessMatters #StakeholdersNotSpectators

With NCPE Symposium fast approaching we ask that the most important stakeholders are treated as such... Patients should never be excluded or prohibited by costs to have a rightful seat at the table, one that decides what our lives are worth no less! #UnitedCancerVoicesIE

"Patients are stakeholders. So why are we being sidelined? Every year, the NCPE Symposium brings together stakeholders to discuss issues surrounding how Ireland decides on access to new medicines. These are the medicines.." Read full article here 👇 www.ucanireland.ie/nothing-abou...

Care delayed is care denied. Cancer patients simply cannot afford to wait. Timely access to scans for both diagnosis & disease and treatment monitoring is detrimental to outcomes. Action is desperately needed. #UnitedCancerVoicesIE #CancerCareCrisis

Listen back to Dr Michael McCarthy on Midwest Radio this morning discussing the national issue of serious delays in patients starting treatment within recommend time frame, why these issues exist and the types of investment needed 🗣️👂 midwestradio.ie/news/oncology-…

UCAN sent this letter to Minister for Health Jennifer Carroll MacNeill TD this morning in response to a PQ submitted on our behalf by Pádraig Rice TD, Chair of the @oireachtasnews.bsky.social Health Committee, on the issue of Irelands drug reimbursement process www.ucanireland.ie/programme-fo...

On behalf of every person diagnosed with cancer in Ireland, we are calling on the government to make good their commitments made in the Programme for Government. Cancer patients demand action now. They simply don't have time to wait. #UnitedCancerVoicesIE #AccessMatters

Cancer survivors should not be punished by insurers. It's unjust. Protections against this discriminatory practice exist in many other EU countries, but not in Ireland ⚠️ We join cancer centers' calls for immediate action to enshrine the #RightToBeForgotten into Irish law ✊ #UnitedCancerVoicesIE

📢 Local cancer centers across Ireland are calling on government to stand up and protect cancer survivors from discrimination when accessing financial products. Read their press release 📜 #RightToBeForgotton #UnitedCancerVoicesIE

."Laura Magan is speaking out along with 13 cancer centres, including in Cork and Tipperary, who together warned that a voluntary agreement to have diagnoses disregarded by insurers is “toothless” #RightToBeForgotten #UnitedCancerVoicesIE www.irishexaminer.com/news/arid-41...

Our Website is Now Live!! 🎉 Visit to learn more about us, our motivations & goals, and see how you can support our mission to ensure timely & equitable access to the best cancer treatments for all public patients in Ireland #UnitedCancerVoicesIE #PatientAdvocacy ucanireland.ie/about-us/

Every person facing a cancer diagnosis deserves timely access to the best standards of care and novel treatments. Ireland is failing here, we are almost bottom of the table in comparison to our European counterparts. Change MUST happen. Patients simply don't have time to wait #UnitedCancerVoicesIE

Please take a moment to read UCAN response to comments attributed to Prof Michael Barry NCPE. We as patients & advocates are deeply concerned about this discrediting of oncologist who are calling for drug reimbursement in a system that's badly failing patients. www.ucanireland.ie/the-art-of-d...

So proud of our @ucanireland.bsky.social Chair @miriamstaunton.bsky.social speaking to @fergalbowers.bsky.social @news.rte.ie keeping the spotlight on the key issue of disparities in accessing new EMA approved cancer medicines experienced by cancer patients in Ireland 👏 #UnitedCancerVoices

UCAN Chair @miriamstaunton.bsky.social speaks to @fergalbowers.bsky.social @news.rte.ie about the impact of Irelands far below par reimbursement of EMA approved cancer drugs & complete lack of early access schemes on patients. #UnitedCancerVoicesIE www.rte.ie/news/health/...

“What is medical Bluesky—and is it worth engaging with?” @bmj.com #MedSky www.bmj.com/content/388/...

Just some of the media coverage from our launch week #proud #unitedcancervoicesIE

Listen back to chair @miriamstaunton.bsky.social on the @mattcooperlastword.bsky.social show this week. #unitedcancervoicesIE www.todayfm.com/podcasts/the...

So proud of this team #powerhouses #unitedcancervoicesIE

Thanks to @mattcooperlastword.bsky.social for covering this important issue. Listen back here

Thank you @irishtimes.com for your support covering our launch and mission today! 🙏 #UnitedCancerVoicesIE www.irishtimes.com/ireland/soci...

What a fantastic day it was today #unitedcancervoicesIE

I’ll be on the Last word with @mattcooperlastword.bsky.social on @todayfm.bsky.social at 5:45pm. Tune in to hear about our new organisation

@daraobriain.bsky.social cracker of a show tonight. Really enjoyed 🤣 and 🥹

One of many educational talks @lsireland.bsky.social @svuh.bsky.social Patient Symposium. Dr Nicola Cochrane on impact of #SurgicalMenopause on women's health & safety profile of Oestrogen HRT use. Great to know it's not only safe but beneficial for lowering #CRC risk!

It's #LynchSyndromeAwarenessDay! Excited to be on route to @svuh.bsky.social for the LS Patient Symposium 😃 Bringing together the patient & professional community for an afternoon of shared learning. We march forward together ❤️ #TeamLynch #knowledgeispower #PatientSupport #HereditaryCancer

More morning information at Lynch Syndrome Conference

The TESLA (a/k/a "TESLER") TAKEDOWN is working... WORLDWIDE! Turns out people really resent an unelected weirdo running our Government & creating economic chaos. Hit Elmo where it really hurts: in his big, fat wallet. If we #TankTesla, It's Ex-X! (a/k/a Twitter) #WinWin Visit www.takedowntesla.com

Sunny spin to blesso and we found a new coffee spot. #100kyourway @annmcbrien.bsky.social

Stand Up for Science Burlington, Vermont

Passionate and committed member of our Patient Consultants Committee, @miriamstaunton.bsky.social , gives a patient perspective on the important roles played by women in #CancerClinicalTrials on International Women's Day 2025. #IWD2025 #AccelerateAction

BREAKING NEWS: Canadian Premier Wab Kinew of Manitoba MOCKS Trump by signing a “beautiful” order that officially removes ALL American liquor from Canadian stores in his province. Donald Trump just caused massive economic damage to our country. How sad and embarrassing.

Sign of the times… #DoSomething

Have you done my survey yet? I really need as many Irish cancer patients as possible to answer it. It’s fast. It’s anonymous. And we plan to use the output to help deliver a better digital patient record. #spéirgorm #patientvoice Click here 👇🏻 www.surveymonkey.com/r/LTZHRYK

Thanks to the @irishtimes.com for another fantastic write up. This time covering Bernard Mahon’s story laying bare the difference in who can pay to access treatment and who cannot’ #speirgorm #canceradvocacy www.irishtimes.com/business/202...

Thanks to the Irish times and Dominic Coyle for this incredible write up

Have you had a diagnosis of cancer and been treated in Ireland? I’ve created this survey on accessing your medical information & would love to get your views. The link is here: bit.ly/3X6KXbc #speirgorm #patientvoices #yourhealthdata @cancertrialsie.bsky.social

📢 PhD Publication Our survey & choice experiment showed that people in Ireland with chronic conditions are experiencing significant financial issues: 🔎Over a third said they avoided healthcare appointments or buying medicine in previous year due to cost bmcprimcare.biomedcentral.com/articles/10....

This is brilliant. Rest in power indeed