Rare Disease Clinical Trial Network (@rarediseasectn.bsky.social)

Pleased to announce the launch of our data coordination service, a joint initiative supported by RDCTN and RDCat! Designed for rare disease researchers and investigators, there's a collection of useful resources, and guidance on handling research data:

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Rare Disease Data Coordination Service The RDCTN works to increase activity in rare disease clinical trials in Ireland. Through collaboration with patients, researchers and industry, we support development of rare disease clinical trials, trial methodology and researcher training, while keeping the patient voice at the centre of everything we do. This data inquiry service established by RDCTN and Rare Disease Research Catalyst Consortium aims to provide available resources to support rare disease researchers. This service provides guidance in relation to resources on how to handle your research data rather than streamlining access to datasets or processing your personal data. https://forms.gle/zkwc6AJJbiLyc5U59