🤝 On #RareDiseaseDay, RealiseD stood with millions affected by rare conditions. The project launched an article to rethink patient-centric clinical trials—making research more inclusive, practical, and truly responsive to real needs. 👉 Read the full text: https://loom.ly/-MqhiT0

💫 #RareDiseaseDay reminds us that real progress depends on partnering with patients. Their lived experience shapes better designs, endpoints, and feasibility. At #RealiseD, we co‑create rare disease trials so research is truly practical, and patient‑centred 🤝 Learn more: https://loom.ly/6HpREX0#RareDiseaseDay

🌍 Most rare conditions still lack treatments, and everything starts with the lack of adapted clinical trials. RealiseD webinars, featured on the Springer Nature Community, call for smarter, patient-centred trial designs #rarediseaseday 👉 Read the full article: https://loom.ly/PAv77oY#rarediseaseday

✨ #RareDiseaseDay highlights the need to redesign trials for small, dispersed populations. Smarter recruitment, digital tools, and decentralised models can cut burden and boost access. Learn how: https://loom.ly/6HpREX0#RareDiseaseDay

✨“Clinical trials must serve people with rare diseases. This Rare Disease Month, patient advocate Inês Alves reminds us that research should adapt to patients. Her voice reflects a Europe‑wide call for more inclusive, responsive, patient‑centred trials.” Full interview: https://loom.ly/pLxADGo

🌟 #RareDiseaseDay highlights the need for innovation in rare research. AI, data science, and digital health can make trials more inclusive, efficient, and empowering. At RealiseD, we’re driving technology‑led progress for the rare community💡 Discover more: https://loom.ly/6HpREX0#RareDiseaseDay

🌍 On the #RareDiseaseDay we stand with people living with rare and conditions. With therapies for only ~5% of rare diseases, patient‑centred trials are vital. #RealiseD is committed to advancing innovative, equitable research for the rare community 💜 Learn more: https://loom.ly/6HpREX0#RareDiseaseDay

Today we thank Heidrun Hildebrand as she steps into retirement. Her dedication, insight, and collaborative approach have played an important role in #RealiseD.🤝 We wish you all the best in this next chapter!

🚨 Last call! Share your insights to improve #RareDisease #ClinicalTrial enrolment. The RealiseD survey closes 15 Feb 2026. All responses are anonymous—help make trials more inclusive and effective. 👉 Take the survey: https://loom.ly/kbbWwBk

🌍 Read the key takeaways from RealiseD General Assembly Meeting, held on January 28–29, featuring insights from the RealiseD coordinator, patient advocate representative, and more🔗 https://loom.ly/hNPsTj8 #RealiseD #RareDiseases #ClinicalTrials

🔜Last call to register! Join us on 10 Feb at 17:00 CET for the RealiseD webinar on enhancing patient‑centricity in rare disease trials. Rudradev Sengupta will share methods to embed patient voices and align benefit–risk with what matters most. Register here: https://loom.ly/x7nX9qI

Highlights from last week’s #RealiseD General Assembly Meeting 🎬💫 Two days of collaboration and shared ambition to advance innovative tools for (ultra) #RareDiseases in Europe and beyond. 🔬 Watch the reel to hear key insights and 🔗 read more: https://loom.ly/hNPsTj8#RealiseD#RareDiseases#ClinicalTrials

🌟Last call to register! Join us on 3 Feb at 17:00 CET for the RealiseD webinar on enriching clinical trial design in rare diseases. We’ll explore SATs, innovative methods, and real‑world evidence with leading experts! Register here: https://loom.ly/PCwqY8A

Kicking off the #RealiseD General Assembly Meeting 🚀 One year on from the launch of this public–private partnership, nearly 40 partners have come together to reflect on progress in advancing the design and delivery of clinical trials for rare and ultra-rare diseases. Stay tuned for key insights 🤝

Help to improve patient enrolment in rare & ultra‑rare disease trials! RealiseD’ s launching a quick, anonymous survey that welcomes clinicians, researchers, industry, regulators, sponsors & patient advocates! It takes 2 minutes! 🤝 🔗 https://loom.ly/kbbWwBk #RareDisease #ClinicalTrials #Survey

💥Last call to register! Join us on 20 Jan at 17:00 CET for the RealiseD webinar on evidence assessment in rare diseases. François Meyer will discuss why current frameworks fall short and the mindset shift needed across stakeholders. Register here: https://loom.ly/PCwqY8A

Be part of the change in rare disease research! 🧬✨ Subscribe to the #RealiseD newsletter for the latest updates on how we’re rethinking clinical trials for rare and ultra-rare diseases across Europe. 👉 https://loom.ly/98ISTm8 Find out more: https://loom.ly/AxssNo0#RealiseD #RareDiseases

📣 Last call to register! Join us on 13 Jan at 17:00 CET for the RealiseD webinar on advancing clinical trials in ultra‑rare diseases. Professor Dieter Hilgers will share insights and solutions shaping future research! Register: https://loom.ly/XCZkF2w

🚀 RealiseD is launching a survey to identify what drives enrolment in #ClinicalTrials across rare & ultra‑rare conditions. Open to HCPs, academia, industry, regulators, sponsors & patient advocates! 🔒 Strictly anonymous 🗓️ Open till 28 January 2026 👉 All the info: https://loom.ly/rJ5A7Ik

🚀 Start 2026 with fresh insights! Join #RealiseD’s webinar series (13 Jan–10 Feb) on innovative clinical trials in rare diseases. Learn key design principles, regulatory strategies, and patient-centric approaches from leading experts. Register now👇 https://loom.ly/E2cmGmM#RealiseD#RareDiseases

🚀 Start 2026 with fresh insights! We are launching a new webinar series on innovative clinical trials in #RareDiseases! Starting on the 13 Jan, join expert-led sessions on ultra-rare trial design, regulatory & HTA pathways, and patient-centred methods. Read more & sign up 👉 loom.ly/E2cmGmM

🌟 Happy New Year from Realised Project! In 2026, we continue advancing our goal of reimagining how clinical trials for (ultra) rare diseases are designed and conducted! #NewYear #RareDiseases #Innovation

Europe’s rare disease community met in Brussels to reimagine clinical trials. At the High-Level Meeting 2025, RealiseD highlighted patient-centred, feasible and trustworthy trials as key to EU leadership! Read the full article 👉https://loom.ly/rDFM6bM

🚀 Start 2026 with fresh insights! We are launching a new webinar series on innovative clinical trials in #RareDiseases! Starting on the 13 Jan, join expert-led sessions on ultra-rare trial design, regulatory & HTA pathways, and patient-centred methods. Read more & sign up 👉 loom.ly/E2cmGmM

🚀 RealiseD is launching a survey to identify what drives enrolment in #ClinicalTrials across rare & ultra‑rare conditions. Open to HCPs, academia, industry, regulators, sponsors & patient advocates! 🔒 Strictly anonymous 🗓️ Open till 28 January 2026 👉 All the info: https://loom.ly/rJ5A7Ik

🚀 Start 2026 with fresh insights! We are launching a new webinar series on innovative clinical trials in #RareDiseases! Starting on the 13 Jan, join expert-led sessions on ultra-rare trial design, regulatory & HTA pathways, and patient-centred methods. Read more & sign up 👉 https://loom.ly/E2cmGmM

👉 Last week RealiseD participated in the #WODC 2025, showcasing how the project is redefining clinical trials for rare and ultra-rare diseases through patient integration, multistakeholder collaboration, and innovative trial designs. 🔗 Read the full summary: https://loom.ly/qdPHrtY#WODC

At #WODC, Ralf-Dieter Hilgers, RealiseD Coordinator from Sigmund Freud Private University, presented the paradigm shift RealiseD is leading in #UltraRareDisease research. 💡This will take shape in Playbooks—practical guides for better, fairer clinical trials. #RareDisease #RealiseD #OrphanDrugs

🎉 Hello #WODC2025! RealiseD, ERDERA & Inventis kicked things off with the congress’s largest workshop on accelerating rare disease drug development. 📢 Workshop insights coming soon on our website—stay tuned! #RareDiseases #OrphanDrugs #RealiseD

Be part of the change in rare disease research! 🧬✨ Subscribe to the #RealiseD newsletter for the latest updates on how we’re rethinking clinical trials for rare and ultra-rare diseases across Europe. 👉 https://loom.ly/98ISTm8 Find out more: https://loom.ly/AxssNo0#RealiseD #RareDiseases

Partners from RealiseD will join the EFGCP “Better Medicines for Children” Conference 2025, contributing insights on advancing and optimising orphan medicine development. 👧🧬 📅 21–22 Oct | Amsterdam & online 🔗 Read more: https://loom.ly/KwLN6lw #RealiseD

🎤 Vinciane Pirard (Scientific Advocacy & Insights, Global Medical Affairs – Rare Diseases, #Sanofi) presented the #RealiseD IHI project at the #IRDiRC Consortium Assembly this week! Proud to see our partners advancing innovation in #RareDiseases and orphan medicine development 🚀

RealiseD is joining #WODC2025! 🚀 We are contributing with workshops on 27 Oct: 🧬 10:00 – Innovative methodological approaches accelerating rare disease drug development (with #ERDERA & #INVENTS) 🤝 14:00 – Public Private Partnerships in Rare Disease (with #Sanofi) 🔗 https://loom.ly/6CbdWIA#WODC2025

Two weeks ago, the RealiseD project held a workshop in Amsterdam on playbooks to accelerate rare disease clinical trials. Collaborating across Europe, we’re building practical, patient-centred tools to strengthen trial readiness. Read more: 🔗 loom.ly/EXa9SHQ 🌟 #RareDiseases #RealiseD #clinicaltrials

🎙️ Many voices, one #RealiseD goal: improve #ClinicalTrials for #RareDiseases 👉On 16 June, we launched our first #PatientEngagement webinar—bringing patients, researchers, regulators & industry to co-create better trial designs.🔗 More: loom.ly/wwrM7pM | @ihieurope.bsky.social @eurordis.bsky.social

Last week we marked #ClinicalTrialsDay with voices from patients, researchers, regulators & industry—reflecting on how trials in rare diseases are evolving. 💡 Missed it? Catch the wrap-up with key insights & a unifying message👉 loom.ly/UNis4XE #RareDiseases #ClinicalResearch

📣 This #ClinicalTrialsDay week, we've shared key voices in research — from patients to industry. ✨ Today, we close with insights from Kristina AN HAACK, #Sanofi Global Project Head & RealiseD partner. 👇See her perspective in the video below! #RealiseDproject #RareDiseases #PatientVoices

🤔 What is the perspective of regulators on clinical trials? What role do they play? 🔬 To mark #ClinicalTrialsDay, we’re spotlighting four key voices—today it’s the regulators’ turn. 👇 Hear from Andrew Thomson @ema.europa.eu on how regulation shapes clinical research. #RealiseDproject #RareDiseases

Today is International #ClinicalTrialsDay 2025! 🔬 We celebrate the dedication of researchers & patients who drive medical breakthroughs. ✨ This week, discover insights from patients, researchers, regulators & industry. 👇 Today: #Researcher Ralf Dieter’s perspective. #RealiseD @sfu.ac.at

📣 Tomorrow is #ClinicalTrialsDay! Let’s celebrate the impact of clinical trials and those who make them possible. This week, we’ll share voices from patients, researchers, regulators & industry. ✨ Starting with Maria Kortekaas, #patient & trial participant.👇 #RealiseDproject

🙌 One week to go until International Clinical Trials Day 2025! 🔬 On 20 May, we honour the vital role of clinical trials and the people behind them. Stay tuned as we explore their impact from all angles! 💡 #ClinicalTrialsDay #HealthInnovation #MedicalResearch #RealiseD

The #RealiseD project has been cited in @frontiersin.bsky.social ! 🎉 The study highlights our work in advancing clinical trial design for rare diseases, reinforcing our commitment to patient-centric innovation. 📢 Learn more at loom.ly/FP2SRtI ! #RareDiseases #ClinicalTrials

🌍💜 Today is Rare Disease Day, a moment to shine a light on the millions affected by rare and ultra-rare diseases. At RealiseD, we’re transforming clinical trials for ultra-rare conditions to accelerate treatment development and improve lives. 💡 Let’s make rare count! #RareDiseaseDay #RealiseD

😔 Conducting clinical trials in #RareDiseases is challenging 💡 New project @realised-ihi.bsky.social plans to change this - they're targeting a paradigm shift in #ClinicalTrials for #RareDiseases 👉 europa.eu/!fQNgR8 #IHITransformingHealth #HorizonEU #RareDiseaseDay

What are the biggest challenges in ultra-rare diseases? 👨‍🔬 Ralf Dieter, Scientific Coordinator of #RealiseD, shares how the initiative is tackling these challenges. 🚀 Join us on this journey to transform the lives of millions of people living with rare and #UltraRareDiseases!

🔸This Friday is #RareDiseaseDay🔸 💬 We asked Emer Cooke, Executive Director of the @ema.europa.eu, a key partner in the RealiseD project, to share her insights on this special date. 🔬 👀 Read her message below! 👇 #RealiseD #RareDiseases #Innovation

🌟 Spotlight on the RealiseD Project 🌟 @ihieurope.bsky.social recently published a fact sheet highlighting the RealiseD Project’s groundbreaking approach to clinical trials for ultra-rare diseases. Thank you, #IHI, for highlighting our work! 🌐 See more at: loom.ly/c5JnJBw

🚀 A new era for clinical trials in rare diseases begins now! 🚀💫 Last week, we launched the IHI #RealiseD Project in Vienna with 40+ partners. 💙 Thanks to all who joined and made this kick-off a success! 📢 Join us on this transformative journey 🔗 loom.ly/Kp7fkk8 #RareDiseases @ihieurope.bsky.social

🚀 The #RealiseD project launched with a keynote speech by Emer Cooke, Executive Director of #EMA🎙️ Her call for multistakeholder collaboration & focus on patient experience in rare diseases was truly inspiring. Thank you, Emer! 💫 Read more 👉 shorturl.at/IIVQe #HealthcareInnovation #RareDiseases

🚀 Launching the IHI RealiseD Project: A New Era for Rare & Ultra-Rare Disease Research! 🌍 👩🏽‍🔬 With 40+ partners and a €17M budget, #RealiseD aims to accelerate treatments for over 30M people in Europe living with a #RareDisease, ensuring no patient is left behind! 🤝 🔗 Stay tuned! #IHI loom.ly/Kp7fkk8