👉 Last week RealiseD participated in the #WODC 2025, showcasing how the project is redefining clinical trials for rare and ultra-rare diseases through patient integration, multistakeholder collaboration, and innovative trial designs. 🔗 Read the full summary: https://loom.ly/qdPHrtY#WODC

At #WODC, Ralf-Dieter Hilgers, RealiseD Coordinator from Sigmund Freud Private University, presented the paradigm shift RealiseD is leading in #UltraRareDisease research. 💡This will take shape in Playbooks—practical guides for better, fairer clinical trials. #RareDisease #RealiseD #OrphanDrugs

🎉 Hello #WODC2025! RealiseD, ERDERA & Inventis kicked things off with the congress’s largest workshop on accelerating rare disease drug development. 📢 Workshop insights coming soon on our website—stay tuned! #RareDiseases #OrphanDrugs #RealiseD

Be part of the change in rare disease research! 🧬✨ Subscribe to the #RealiseD newsletter for the latest updates on how we’re rethinking clinical trials for rare and ultra-rare diseases across Europe. 👉 https://loom.ly/98ISTm8 Find out more: https://loom.ly/AxssNo0#RealiseD #RareDiseases

Partners from RealiseD will join the EFGCP “Better Medicines for Children” Conference 2025, contributing insights on advancing and optimising orphan medicine development. 👧🧬 📅 21–22 Oct | Amsterdam & online 🔗 Read more: https://loom.ly/KwLN6lw #RealiseD

🎤 Vinciane Pirard (Scientific Advocacy & Insights, Global Medical Affairs – Rare Diseases, #Sanofi) presented the #RealiseD IHI project at the #IRDiRC Consortium Assembly this week! Proud to see our partners advancing innovation in #RareDiseases and orphan medicine development 🚀

RealiseD is joining #WODC2025! 🚀 We are contributing with workshops on 27 Oct: 🧬 10:00 – Innovative methodological approaches accelerating rare disease drug development (with #ERDERA & #INVENTS) 🤝 14:00 – Public Private Partnerships in Rare Disease (with #Sanofi) 🔗 https://loom.ly/6CbdWIA#WODC2025

Two weeks ago, the RealiseD project held a workshop in Amsterdam on playbooks to accelerate rare disease clinical trials. Collaborating across Europe, we’re building practical, patient-centred tools to strengthen trial readiness. Read more: 🔗 loom.ly/EXa9SHQ 🌟 #RareDiseases #RealiseD #clinicaltrials

🎙️ Many voices, one #RealiseD goal: improve #ClinicalTrials for #RareDiseases 👉On 16 June, we launched our first #PatientEngagement webinar—bringing patients, researchers, regulators & industry to co-create better trial designs.🔗 More: loom.ly/wwrM7pM | @ihieurope.bsky.social @eurordis.bsky.social

Last week we marked #ClinicalTrialsDay with voices from patients, researchers, regulators & industry—reflecting on how trials in rare diseases are evolving. 💡 Missed it? Catch the wrap-up with key insights & a unifying message👉 loom.ly/UNis4XE #RareDiseases #ClinicalResearch

📣 This #ClinicalTrialsDay week, we've shared key voices in research — from patients to industry. ✨ Today, we close with insights from Kristina AN HAACK, #Sanofi Global Project Head & RealiseD partner. 👇See her perspective in the video below! #RealiseDproject #RareDiseases #PatientVoices

🤔 What is the perspective of regulators on clinical trials? What role do they play? 🔬 To mark #ClinicalTrialsDay, we’re spotlighting four key voices—today it’s the regulators’ turn. 👇 Hear from Andrew Thomson @ema.europa.eu on how regulation shapes clinical research. #RealiseDproject #RareDiseases

Today is International #ClinicalTrialsDay 2025! 🔬 We celebrate the dedication of researchers & patients who drive medical breakthroughs. ✨ This week, discover insights from patients, researchers, regulators & industry. 👇 Today: #Researcher Ralf Dieter’s perspective. #RealiseD @sfu.ac.at

📣 Tomorrow is #ClinicalTrialsDay! Let’s celebrate the impact of clinical trials and those who make them possible. This week, we’ll share voices from patients, researchers, regulators & industry. ✨ Starting with Maria Kortekaas, #patient & trial participant.👇 #RealiseDproject

🙌 One week to go until International Clinical Trials Day 2025! 🔬 On 20 May, we honour the vital role of clinical trials and the people behind them. Stay tuned as we explore their impact from all angles! 💡 #ClinicalTrialsDay #HealthInnovation #MedicalResearch #RealiseD

The #RealiseD project has been cited in @frontiersin.bsky.social ! 🎉 The study highlights our work in advancing clinical trial design for rare diseases, reinforcing our commitment to patient-centric innovation. 📢 Learn more at loom.ly/FP2SRtI ! #RareDiseases #ClinicalTrials

🌍💜 Today is Rare Disease Day, a moment to shine a light on the millions affected by rare and ultra-rare diseases. At RealiseD, we’re transforming clinical trials for ultra-rare conditions to accelerate treatment development and improve lives. 💡 Let’s make rare count! #RareDiseaseDay #RealiseD

😔 Conducting clinical trials in #RareDiseases is challenging 💡 New project @realised-ihi.bsky.social plans to change this - they're targeting a paradigm shift in #ClinicalTrials for #RareDiseases 👉 europa.eu/!fQNgR8 #IHITransformingHealth #HorizonEU #RareDiseaseDay

What are the biggest challenges in ultra-rare diseases? 👨‍🔬 Ralf Dieter, Scientific Coordinator of #RealiseD, shares how the initiative is tackling these challenges. 🚀 Join us on this journey to transform the lives of millions of people living with rare and #UltraRareDiseases!

🔸This Friday is #RareDiseaseDay🔸 💬 We asked Emer Cooke, Executive Director of the @ema.europa.eu, a key partner in the RealiseD project, to share her insights on this special date. 🔬 👀 Read her message below! 👇 #RealiseD #RareDiseases #Innovation

🌟 Spotlight on the RealiseD Project 🌟 @ihieurope.bsky.social recently published a fact sheet highlighting the RealiseD Project’s groundbreaking approach to clinical trials for ultra-rare diseases. Thank you, #IHI, for highlighting our work! 🌐 See more at: loom.ly/c5JnJBw

🚀 A new era for clinical trials in rare diseases begins now! 🚀💫 Last week, we launched the IHI #RealiseD Project in Vienna with 40+ partners. 💙 Thanks to all who joined and made this kick-off a success! 📢 Join us on this transformative journey 🔗 loom.ly/Kp7fkk8 #RareDiseases @ihieurope.bsky.social

🚀 The #RealiseD project launched with a keynote speech by Emer Cooke, Executive Director of #EMA🎙️ Her call for multistakeholder collaboration & focus on patient experience in rare diseases was truly inspiring. Thank you, Emer! 💫 Read more 👉 shorturl.at/IIVQe #HealthcareInnovation #RareDiseases

🚀 Launching the IHI RealiseD Project: A New Era for Rare & Ultra-Rare Disease Research! 🌍 👩🏽‍🔬 With 40+ partners and a €17M budget, #RealiseD aims to accelerate treatments for over 30M people in Europe living with a #RareDisease, ensuring no patient is left behind! 🤝 🔗 Stay tuned! #IHI loom.ly/Kp7fkk8