🗣 Join me on Thursday at YOU GOT THIS!—an intimate gathering for women creating success on our own terms. Come and connect, recharge & be celebrated!🥳 📅 Date: Thur 25th Sept 2025 ⏰️ Time: 10am - 3pm 📍Location: 65-69 East Road, London, N1 6AH 🔗 tinyurl.com/3n28j9p2

🗣️ Join me as I'm hosting an EDI Table Talk at the South East London Cancer Research Panel (SELCRP) Patient Involvement Event! A space for open, honest conversations about Equity, Diversity, and Inclusion (EDI) in healthcare and research.

Although it's the last day of Sarcoma Awareness Month I continue to advocate for myself, those still fighting, for those we’ve lost, and for those who might not know what signs to look for. Early detection can save lives. Advocacy can change outcomes and awareness matters. 🧡

I'm so proud to have been featured in this Patient Advocacy Special Issue for E-Cancer on addressing health disparities and equitable representation in cancer research. Read the article here: 👇🏾 ecancer.org/en/journal/a...

👋 Meet The People’s Review Steering Group! Our steering group is made up of people like you and me from around the world. 🌍 They’ve been part of this journey since the very beginning - way back in November 2022. Time flies when you're having fun 😉

#JuneReset #MidYearReset #JuneRenewal #ReflectAndReset #JuneGoals #PersonalGrowth #GoalSettingCoach #IAmCharlene

✨ Declutter - Clear out your space, delete old files. ✨ Reconnect - With friends, family, or even to yourself. ✨ Set New Intentions - List your top three priorities for the next few months. How will you reset this month❓️

🌿 June Reset: A Mid-Year Fresh Start 🌿 June marks the halfway point of the year — a perfect time to pause, reflect, and realign your goals. Here’s how you can reset: ✨ Reflect - Take a look back at the past six months.

⭐️Thank You for the Feedback⭐️ I’m incredibly thankful for the amazing feedback shared and knowing that the workshop made a real impact is the best reward of all..😇 📆 If you're interested in bringing this workshop to your Organisation or Patient Involvement Event, I’d love to hear from you!

The NIHR guidance payment rates for involvement activities often comes up at @Diverse_PPI and other meetings. Discussions around 'the rates not matching up' to the level of involvement, sharing lived experiences/re-living trauma after these meetings have taken place... The list goes on...

It's been two years and I'm still honoured to receive this award...🏆 #TBT #ThrowBackThursday #InspirationalMother #BionicWarrior #IAmCharlene

📣Calling all Chinese Family Carers in the UK and Ireland📣 Share your experiences to help shape better support services 👥 📧: Contact Wenji Tang - [email protected] ‼️Please share to your networks‼️

Living with multiple long-term conditions isn't the easiest when nagivating a NHS system that has no co-ordinated clinical care, plus more... I shared my lived experience with The Kings Fund 🗣 🔗Read here to find out how patient care can be improved 👉🏾 www.kingsfund.org.uk/insight-and-...

💡 Health isn’t just about medicine — it’s community, connection, and confidence. youtu.be/Iyr5FRdiKv8 #SocialPrescribing #CommunityHealth #Wellbeing #PrimaryCare #SocialPrescriber #HolisticHealth #NHS #PublicHealth #PatientAdvocacy #IAmCharlene

✅️ Personalised Plan: A plan will be created to support your needs. This includes activities, groups and services.   ✅️ Ongoing Support: You will receive continued support to work towards your goals.

How to access your local social prescriber❓️ ✅️ Talk to your GP: Discuss your situation and how they are impacting your health or wellbeing. ✅️ Referral: Ask to be referred to a social prescribing link worker. ✅️ Initial Meeting: You meet with a link worker to discuss your needs and goals

🌿 Who Are Social Prescribers? 🌿 Social prescribers are connectors, listeners, and supporters 💬💙 They help people find non-medical support to improve their health and well-being, from community groups and exercise classes to housing advice and mental health support.

The list of 21 questions that made it through to this stage are... 🔗 Cast your vote here: buff.ly/E87QLDx

Yesterday, we were honoured to view the Children with Cancer Garden at the Chelsea Flower Show 🌺 The space is a beautiful tribute to children and families affected by cancer, and we were proud to stand alongside our friends at @skcuk.bsky.social and Alice's Arc. #UntilTheresACure

📢Stage 2 is now open...💃🏾💃🏾 It's not too late to get involved...🏃🏾‍♀️ #ThePeoplesReview

This year, let’s all commit to raising our efforts for equity in research.. 👥 Inclusive trials for all...🫱🏻‍🫲🏾 📷: Me visiting the lab at Glasgow University #ClinicalTrialsDay #InclusiveResearch #DiversityInTrials #EDI #HealthEquity #MedicalResearch #PatientAdvocacy #IAmCharlene

💡Questions for clinicians to consider: ❓️How are you recruiting under-represented groups? ❓️Is your recruitment strategy sensitively tailored for under-represented groups? ❓️How are you evaluating these practices and how often? ❓️Are you actively consulting with patients for all of the above?

🔬 Today is International Clinical Trials Day! We celebrate the incredible progress made through clinical research and recognise the patients, researchers, and healthcare teams who make it possible. This year's theme is 'Rethinking Clinical Trials: Inclusivity in Practice'.

Congrats on the nomination Saran...❤️🙌🏾🙌🏾🙌🏾

Bloom where you are planted...🌾 #MondayMotivation #Quote #SelfLove #Confidence #Flowers #IAmCharlene

📝Today I'm sharing my Weekly Mental Health Checklist routine, which has a balanced mix of emotional, physical and creative activities. Feel free to download and share. #MentalHealthAwarenessWeek #MentalHealthAwarenessWeek2025 #MentalHealthMatters #WellnessCoach #EndTheStigma #IAmCharlene

‼️REMINDER TO SELF: Be kind...❤️ #MentalHealthAwarenessWeek #MentalHealthAwarenessWeek2025 #MentalHealthMatters #WellnessCoach #EndTheStigma #IAmCharlene

There are many activities that can help reduce stress, depression and anxiety and to promote overall well-being. Some of my personal go-to activities are: ✅️ Meditation ✅️ Journalling ✅️ Spa days ✅️ Floating ✅️ Setting personal goals. #MentalHealthAwarenessWeek #MentalHealthAwarenessWeek2025

“Mental health is everything, everywhere, and everyone”. Watch this powerful video by Mind and support their campaign: youtu.be/xpBmiJOVitU #MentalHealthAwarenessWeek #MentalHealthAwarenessWeek2025 #MentalHealthMatters #EndTheStigma #IAmCharlene

Mental health is everything. Everywhere. Everyone. ✊🏾 #MentalHealthAwarenessWeek #MentalHealthAwarenessWeek2025 #MentalHealthMatters #EndTheStigma #IAmCharlene

🧠 It's Mental Health Awareness Week! This year's theme is all about "Community", so let's come together to start conversations and reduce the stigma around mental health. There is power in community...💪🏾 #MentalHealthAwarenessWeek #MentalHealthAwarenessWeek2025 #EndTheStigma #IAmCharlene

🤗 A massive thank you to everyone who has signed-up and engaged with #ThePeoplesReview so far! Stage 1️⃣ : Suggest a Question is now closed, but Stage 2️⃣ : Choose the Question will open very soon... where YOU the public decide what the People's favourite question will be!

Just over one year ago this happened... Charlene made it to The Houses of Parliament!😁 Making milestones with my favourite Charity...🧡 #TBT #ThrowBackThursday #Parliament #BCRT #UntilTheresACure #PatientAdvocacy #IAmCharlene

The People's Review Stage 1 closes today at 6pm GMT. If you haven't already, submit your question now: 👉🏾 www.thepeoplesreview.ie/join-now #ThePeoplesReview #HealthResearch #CitizenScience #SystematicReview #PatientEngagement

Submit your question here: 👉🏾 www.thepeoplesreview.ie/join-now #ThePeoplesReview #HealthResearch #CitizenScience #SystematicReview #PatientEngagement

🎙️ You’re not “too close to it.” You are the evidence. When advocacy gets personal, it gets powerful. That’s not bias. That’s credibility. #LivedExperience #AdvocacyMatters #ThirdSector

@iamcharleneyoung.bsky.social is a patient advocate helping shape #ThePeoplesReview 🌍 To join us on this adventure: ➡️ Fill out this short sign-up survey buff.ly/fUiZVyw ➡️ Then you'll be redirected to login or sign-up to Cochrane Crowd where you can submit your health question

Since 2022 I have been collaborating on this very special project called #ThePeoplesReview - and it's finally here!🎊

Grateful to be part of the conversation last week, being a Workshop Panellist and attending The Rare Disease Conference hosted by the Rare Disease Clinical Trials Network 🎉

⭐️The Poster That Caught My Eye!⭐️ Julieta B. Bonvin Sallago's poster highlights the importance of why Clinicians and Researchers should receive 'Cultural Awareness Training'. "One size DOES NOT fit all" Well done Julieta ...❤️ #RareResearch25

⭐️Best PPI Poster⭐️ Congratulations to Eva Woods and her team for winning best PPI poster...❤️ #RareResearch25 #RareDiseaseConference #PatientAdvocacy #RareDisease #RareGems #RareCancers #BionicWarrior #IAmCharlene

Ms Sarah Forde from the Rare Disease Clinical Trial Network discussing her Clinical Trial Identification Project Overview ❤️ #RareResearch25 #RareDiseaseConference #PatientAdvocacy #RareDisease #RareGems #RareCancers #BionicWarrior #IAmCharlene

The last Panel Discussion Chaired by: Dr Linda O’Neill and Professor Bruce Trapnell #RareResearch25 #RareDiseaseConference #PatientAdvocacy #RareDisease #RareGems #RareCancers #BionicWarrior #IAmCharlene

Study Within a Trial (SWAT) was delivered by Professor Valerie Smith. #RareResearch25 #RareDiseaseConference #PatientAdvocacy #RareDisease #RareGems #RareCancers #BionicWarrior #IAmCharlene

Dr Leanne Hays spoke about Platform Trials. #RareResearch25 #RareDiseaseConference #PatientAdvocacy #RareDisease #RareGems #RareCancers #BionicWarrior #IAmCharlene

Session Three started with Professor Marc Humbert explained Translating Basic Science into Meaningful Therapies - New therapeutic approaches in pulmonary arterial hypertension (Rare Lung Condition) His message was of 'hope'... #RareResearch25

Dr Declan O’Rourke led the Clinical Trial Spotlight on Duchenne Muscular Dystrophy – DYNE-DELIVER (A Paediatric Muscular Disorder). This trial study is the first of its kind in Ireland. #RareResearch25 #RareDiseaseConference #RareDisease #RareGems #RareCancers #BionicWarrior #IAmCharlene

The legendary Ms Mary Vasseghi shared her Public Patient Involvement (PPI) Perspective whilst sharing her daughter's story. She immediately captured the audience with a very unique way of highlighting what we as rare disease patients go through everyday.