We are speaking at the next GP Community of Practice webinar on the 21st January, 1-2pm, in collaboration with Macmillan Cancer and Cancer Research UK Dr Meena Rafiq and Silvia Kraft are representing the primary bone cancer community 🧡 If you're a GP, sign up here: https://ow.ly/AmGb50XXj06

A new £1 million cancer research project, led by Professor Wenhui Song UCL and funded by Children with Cancer UK in collaboration with Bone Cancer Research Trust, will drive the development of next-generation immunotherapy for Ewing sarcoma. Read more: https://ow.ly/SCkP50XWEgW #Research

We’re excited to share that the Bone Cancer Research Trust has received £19,450 of funding from The National Lottery Community Fund towards our Support and Information service 🧡 Read more about the funding: https://ow.ly/fvIh50XAJwK #NationalLottery #BoneCancer #Support #UntilTheresACure

We are proud to announce the appointment of our first-ever Youth Ambassador, Annabel Kiki! Annabel will support us in advocating for the needs of young people living with or facing bone cancer, alongside helping to amplify their voices and strengthen engagement. https://ow.ly/TAvG50XLxvz

As we step into the New Year, we want to say a heartfelt thank you from us all here at the Bone Cancer Research Trust! Thanks to your incredible support, we’re able to fund life-saving research and ensure that no one faces bone cancer alone. None of this would be possible without you🧡

We are committed to producing information that is high quality, evidence-based, up-to-date and accurate. That's why we were awarded PIF TICK certification, the UK’s only assessed quality mark for health information 🧡 Read our information resources: https://ow.ly/oIQX50UK298

We would like to wish all our supporters, wherever you are, a Merry Christmas from all of us at #TeamBones HQ 🎄🧡

In December 2024, Abbi was diagnosed with chondrosarcoma in her spine. Her 11-hour operation not only saved her life but changed it completely. Please help patients like Abbi cope with the after effects of treatment so they can live life as normally as possible. https://ow.ly/3XHY50XKjeE

In December 2024, Abbi was diagnosed with chondrosarcoma in her spine exactly three weeks before Christmas Day. Her whole world was turned upside down. Please watch, share and donate this Christmas to help people like Abbi have hope for the future: https://ow.ly/3XHY50XKjeE #UntilTheresACure

Watch a special message from one of our research team, Professor Sibylle Mittnacht at UCL to learn how your donation this Christmas will help our dedicated researchers find kinder and more effective treatments for primary bone cancer. Please donate today at: https://ow.ly/4CoK50XKeMz

Christine was diagnosed with bone cancer in 2022. Her cancer returned in 2023 and she had her leg amputated so she could focus on watching her daughters grow up. The cancer is terminal and she now creates special memories for her girls to hold onto. Please donate today: https://ow.ly/2UQn50XJM6U

My name is Christine and in January 2022, I was diagnosed with bone cancer, in my heel. I had surgery, which was successful, but in 2023, my cancer returned, and I had my leg amputated. Devastatingly, the cancer is terminal. Please donate and give the gift of hope: https://ow.ly/76aK50XJK5x

Your support is making research progress possible! 🧡 Watch this thank you from our researcher, Dr Martin Pule, whose research involves developing CAR T therapy as a potential treatment for osteosarcoma patients. Please drive more progress by donating: https://ow.ly/4A1n50XHppZ #UntilTheresACure

My name is Abbie and when I was 17, I was diagnosed with bone cancer in my leg which led to an amputation. If treatments were kinder or the diagnosis came earlier, things might've worked out differently for me. Your support matters so much 🧡 Please donate today: https://ow.ly/HNSu50XzWXC

Our newest blog highlights the great work at @bcrt-uk.bsky.social and the multiple awards they received at the SPAGN Annual Conference this year. Read more & Share: www.sarcoma-patients.org/blog/bcrt_aw... #SarcomaAwareness

New research funded by BCRT will investigate two established chemotherapy drugs for the treatment of Ewing sarcoma. The grant has been awarded to Dr Nikolas Herold at the Karolinska Institutet, with researchers from The University of Manchester and Universität Heidelberg. https://ow.ly/NZrS50XGKys

My name is Abbie. When I was just 17, I was diagnosed with bone cancer in my knee. It changed my life forever — including a full leg amputation. No one should have to face that reality. But many people with bone cancer are. Give the gift of hope today: https://ow.ly/FcWw50XzW6R Thank you 🧡

Scientists from the @UniversityofLeeds, together with teams in the UK and internationally have found a promising new immunotherapy for Ewing sarcoma. From testing a modified virus, they hope it will recognise and destroy tumour cells more effectively. Read more at: https://ow.ly/AIsH50XBRXo

We were honoured to represent the primary bone cancer community at this year’s (CTOS) Annual Meeting. The event brought together more than 1,260 participants from 55 countries and we were able to continue driving progress and collaborate internationally. Read more: https://ow.ly/A3tS50XBm4w

We're representing the bone cancer community at the Connective Tissue Oncology Society (CTOS) annual meeting 🌴 Over the next three days, world-leading clinicians, researchers and advocates will come together to advance bone cancer and sarcoma research 🔬 #CTOS2025 #Research #UntilTheresACure

Last week, we welcomed eight incredible experts to our Independent Scientific Advisory Panel (ISAP) 🔬 We asked our new members: what does being part of ISAP mean to you? Learn more about the panel: ow.ly/OBTO50XiWbj #Research #UntilTheresACure less

Congratulations to Georgie, who was crowned @goodmorningbritain.bsky.social's Young Fundraiser of the Year at the Pride of Britain Awards ⭐ After being diagnosed with Ewing sarcoma aged 15, Georgie was determined to make a difference and even met with PM Sir Keir Starmer. Visit: ow.ly/O2ve50XnC6y

This week, we were proud to join patients, policymakers and the @cancer52org.bsky.social community in Westminster 💼 The event provided an opportunity to highlight cancer charities in the UK - enabling us to learn from each other and strengthen our efforts to improve outcomes 🧡 #UntilTheresACure

We’re thrilled to welcome new experts to our Independent Scientific Advisory Panel (ISAP)! A special welcome to Professor Steven Clifford @newcastleuni.bsky.social, who will lead the panel in shaping our research 🔬 Visit: ow.ly/OBTO50XiWbj Photo credit: Newcastle University, UK

Too often, your postcode decides your care 📍 The Sarcoma Data Partnership Programme will explore @england.nhs.uk data to expose gaps in care - and end delays & the postcode lottery for people like Sally 🧡 Visit: ow.ly/lFej50XfBcL @sarcoma.org.uk #Research #UntilTheresACure

What can we do better for people with sarcoma? Professor Sandra Strauss explains how the new Sarcoma Data Partnership Programme will use NHS data to make care faster, fairer and better. 🎥 Watch the film: sarcoma.org.uk/ASPIRE #SarcomaUK #BCRT #SarcomaResearch

NEW research to bridge the data gap in patient care 📉 We're teaming up with @sarcoma.org.uk to launch the Sarcoma Data Partnership Programme and tackle one of the biggest barriers to better care. Learn more: ow.ly/mWOr50XfB1U #Research #UntilTheresACure

We're leading a roundtable discussion at the @bmj.com Future Health Conference! Our session is on delayed diagnosis, ensuring that bone cancer patients are represented in healthcare discussions 🩺 If you’re a clinician or researcher, use INSPIRE20 for discount on registration: ow.ly/QM0250Xfx5B

Are you in treatment or follow-up care for primary bone cancer? This October, grab a coffee and start a conversation ☕ Phoebe, who was diagnosed with osteosarcoma, did with the help of our Costa Coffee voucher 🧡 Apply for yours and access our Support Service: ow.ly/sEuu50X6Uvx #UntilTheresACure

We're proud to stand with our ambassador, @matt-forde.bsky.social, on his two-year anniversary of being cancer-free 🧡 After major surgery and life-changing recovery for chordoma, Matt continues to bravely share his story. Read more in @express.co.uk: ow.ly/79on50Xg5H4 #UntilTheresACure

🔬 CHORAL Autumn Gathering brought together researchers & clinicians to advance childhood cancer care from bench to bedside. Read more: tinyurl.com/3e5hpvjb 🙏 Thank you to all who joined @bcrt-uk.bsky.social @candlelighters.bsky.social @nihrinsightyh.bsky.social @wearelcrc.bsky.social VIVO Biobank

Thank you bone cancer community 🧡 Awareness doesn't end here, but this week, you have made a lasting impact. To help us continue this vital work all year-round, please consider making a donation: ow.ly/4sKv50Xa8lB #BoneCancerAwarenessWeek #CouldItBeBoneCancer #UntilTheresACure

"You could save somebody's limb, but most importantly you could save their life." Georgia was diagnosed with osteosarcoma at just 15 years old. Today, she’s a doctor sharing her story where it matters most: amongst her peers 🩺 #BoneCancerAwarenessWeek #CouldItBeBoneCancer

Lewis was diagnosed with adamantinoma in his shinbone at just 8 years old. For #BoneCancerAwarenessWeek, he shares his powerful story to raise life-changing awareness of the signs & symptoms 🎗️ Visit: ow.ly/4wEJ50X5J4N @letsbewheel.bsky.social #CouldItBeBoneCancer #Awareness #UntilTheresACure

Adamantinoma research update 🧬 Thanks to donated tumour samples, scientists at @unileiden.bsky.social have: - Identified a new subtype - Found clues in immune cells - Moved towards better diagnosis Visit: ow.ly/TUel50X5It2 @letsbewheel.bsky.social #BoneCancerAwarenessWeek #UntilTheresACure

As we close out #BoneCancerAwarenessWeek, #SPAGN is proud to stand alongside @bcrt-uk.bsky.social to shine a light on bone cancer. We're raising awareness of the signs and symptoms through this year’s #CouldItBeBoneCancer campaign. Learn more and get involved at: www.bcrt.org.uk/awareness/bo...

This #BoneCancerAwarenessWeek, we're in Wales for the Royal College of General Practitioners (RCGP) Conference. At the event, we're raising life-changing awareness of the signs & symptoms with GPs across the UK 🩺 Please visit us and say hello! #RCGPAC #GPCommunity #Awareness #UntilTheresACure

This #BoneCancerAwarenessWeek, meet Lewis, who was diagnosed with adamantinoma at 8 years old. His pain was documented for years before his diagnosis. Unfortunately, it was dismissed 📕 Visit: ow.ly/2PJO50X5FB9 @letsbewheel.bsky.social #CouldItBeBoneCancer #Awareness #UntilTheresACure

This autumn, we're hosting two @sheffielduni.bsky.social medical students! Their project will address a critical issue: primary bone cancer misdiagnosed as 'growing pains' in children. We look forward to sharing more soon 🩺 #BoneCancerAwarenessWeek #CouldItBeBoneCancer #UntilTheresACure

“If sharing my story means that bone cancer is spoken about more in healthcare, that’s the main thing.” In #BoneCancerAwarenessWeek, Sophie’s voice is driving real change 🧡 Read her story in @the-independent.com : ow.ly/zeH050X6Xrm #CouldItBeBoneCancer #Awareness #UntilTheresACure

“My tumour was found completely accidentally. Nobody was looking for it; no one even considered it." In #BoneCancerAwarenessWeek, we're sharing real experiences to raise awareness of missed symptoms & delayed diagnosis 🎥 Visit: ow.ly/Lm7A50X5CqN #CouldItBeBoneCancer #Awareness #UntilTheresACure

"Most patients will first see their GP with symptoms; we need to understand where delays happen." In collaboration with @sarcoma.org.uk, we're funding Dr Rafiq to study GP referral delays for sarcoma patients 🩺 Read our interview: ow.ly/4uM550X5Axl #BoneCancerAwarenessWeek #CouldItBeBoneCancer

Sophie, an intensive care nurse @england.nhs.uk, was 25 years old when her bone cancer symptoms were dismissed. Seven months later, she lost her leg. Learn more: ow.ly/Uvty50X5zFv #BoneCancerAwarenessWeek #CouldItBeBoneCancer #Awareness #UntilTheresACure

In #BoneCancerAwarenessWeek, we're asking: #CouldItBeBoneCancer? 🎗️ Know the signs, trust your instincts, and reach out to your GP if something doesn't feel right. Contact our team via Tel: 0800 111 4855 (Monday - Friday 9am to 5pm) or by emailing [email protected] 🧡 #Awareness #UntilTheresACure

Earlier this year we proudly invested £800,000 into vital #EwingSarcoma research in partnership with the @bcrt-uk.bsky.social and @greatormondst.bsky.social, collectively funding four groundbreaking new bone cancer research projects. Find out more at https://bit.ly/4kqXOxS#EwingSarcoma #BoneCancerAwarenessWeek

It’s Bone Cancer Awareness Week 🦴💙. Sarcoma UK’s Support Line offers free, expert, and confidential support for anyone affected by bone sarcoma. Call 0808 801 0401 (Mon–Fri 10–3), email [email protected], or text 07860 058830. Proud to stand with @bcrt-uk.bsky.social.

#BoneCancerAwarenessWeek is here! This October, we're calling for urgent change to help save lives. Please share this post to raise life-changing awareness 🧡 Learn more: ow.ly/SOiH50X5G58 #CouldItBeBoneCancer #Awareness #UntilTheresACure

It's #InternationalCoffeeDay ☕ This October, in honour of #BoneCancerAwarenessWeek, we're providing FREE Costa Coffee vouchers to primary bone cancer or tumour patients to enjoy a treat and connect 🧡 Apply: ow.ly/EYzp50X4eWF #Support #UntilTheresACure

For #BoneCancerAwarenessWeek, we're shining a light on misdiagnosis to help reduce life-threatening delays. From Monday 6th October, share your misdiagnosis on social media using #CouldItBeBoneCancer. Your story could change someone else's 🧡 Visit: ow.ly/QlGE50X4aLc #UntilTheresACure

Jess Brady saw her GP over 20 times before a diagnosis came too late. Yesterday, #JessRule was introduced — giving patients the right to an urgent referral after three visits for ongoing symptoms. This is a vital step to end delays & save lives. Visit: ow.ly/ys8A50X1kUX #UntilTheresACure