📣 @nihrarcs.bsky.social #PPI webinar: Evaluating #PublicInvolvement with children & young people 🌟17/2/26 Presenters incl me, @helenabnett.bsky.social & @hertsypag.bsky.social + hosted by @skourkos.bsky.social & @elspethma.bsky.social Info & booking: www.eventbrite.co.uk/e/involving-...

We’re still recruiting to our #Dystonia study! We really want to hear from more families with children with #genetic & #idiopathic diagnoses. Register your interest: tinyurl.com/DystoniaIMPACT or [email protected] @dystoniauk.bsky.social @geneticallianceuk.bsky.social @cdauke.bsky.social

I had an absolutely wonderful day today graduating with my PhD in Palliative Care from @kingscollegelondon.bsky.social Thank you so much to my supervisors and all my collegues and friends at the Cicley Saunders Insitute and wider @kingsnmpc.bsky.social for their support throughout the journey!

The Dystonia IMPACT team are recruiting children & young people with dystonia & their parents to take part in interviews to find out what matters most to them. Register your interest: tinyurl.com/DystoniaIMPACT Or contact the team at [email protected]

📢 Calling all healthcare #hcp #ahp, #SocialCare, & #education-based professionals working with #children & #YoungPeople with hyperkinetic movement disorders #HMD including #Dystonia & dyskinetic/mixed #CerebralPalsy to take part in our Dystonia IMPACT survey: ➡️ tinyurl.com/532rxb9c

Excited to be presenting our poster from our work as part of the Dystonia IMPACT study on “Enabling people from underrepresented groups to take #PPI roles in #paediatric #dystonia research” today at #EACD2025 #IAACD2025 at 9:40am CEST at poster screen 7

I’m excited to share the third and final paper from my #PhD: Developing a Theory of Change and Implementation Plan to implement a novel child- and family-centred outcome measure in paediatric palliative care. #pedpc Published in @palliativemedj.bsky.social journals.sagepub.com/doi/10.1177/... 1/8🧵

Have you taken part in a Digesting Science event as a family? 🧠🫶⚡️ We are looking for families who have come along to a Digesting Science event so we can talk to you to find out the lasting impact of coming along! For more info, get in touch by sending us a DM or email [email protected] 🥳

Excited to be with @digestingscience.bsky.social at the @mstrustuk.bsky.social conference and looking forward to presenting my poster on families experiences of attending a Digesting Science event to learn about #MultipleSclerosis later in the speed dating session #MS

If you didn’t get chance to join the webinar today but want to find out more about the development of the implementation plan for C-POS:UK, my systematic review and qualitative data analysis papers are published open access: Review: doi.org/10.1186/s129... Qual paper: doi.org/10.1177/0269...

Really excited to be presenting at today’s @pcrscommittee.bsky.social webinar on the work from my @arc-southlondon.bsky.social funded PhD!

As my result has now been officially ratified I’m excited to share that last month I successfully defended my thesis and passed my viva with no corrections! #PhDSky @kingsnmpc.bsky.social

Really excited to be presenting the work from my PhD in the next @pcrscommittee.bsky.social webinar!

Invitation: If you are a UK-based researcher, or clinician conducting palliative care research, please complete our brief survey to help funders understand what is needed to sustain and grow palliative care research in the UK. Now open until 12.1.25: app.onlinesurveys.jisc.ac.uk/s/edinburgh/...