The thing about science is that sometimes you get it wrong the first time, but the scientific process is unending, so there is still time to get it right. The fact that our understanding of science isn't perfect is not reason to abandon it. www.nytimes.com/2025/10/20/w...

I love the fact that a Nobel prizewinner was the last to learn of his award because he was hiking...https://www.nytimes.com/2025/10/07/health/nobel-prize-medicine-fred-ramsdell.html

It is not enough for a trial to exists somewhere in the U.S., it also needs to be close enough for patients to access, and for many Americans there is little easy access to research participation.

Unprecedented that six former surgeon generals appointed by presidents of both parties unite to denounce RFK Jr. and call out the danger he poses to public health. www.washingtonpost.com/opinions/202...

The NCI "bypass" budget is an unfiltered view of what could really move the needle in cancer research. The latest requests more money to get trial infrastructure into communities and rural areas, and seeks to offset lost grants due to forward-funding policies. www.cancer.gov/research/lea...

Giving everyone in the US with cancer a chance to take part in research can be made difficult by distance. We analyzed who does and doesn't have access to NCI funded sites and found nearly 38% would have to drive over 50 miles, and almost 17% over 100 miles. resolve.cambridge.org/core/journal...

I would have never guessed that NIH would get the money spent, but apparently they will. While a small victory, remember this was done by forward funding lots of grants meaning fewer grants and less research being done. To some degree this is a short-term accounting trick.

Thrilled to see the House Energy and Commerce Committee unanimously advance the #GiveKidsAChanceAct. Thank you for your leadership on behalf of children with cancer. We urge the full House to pass this bill without delay. #ChildhoodCancerAwarenessMonth www.fightcancer.org/policy-resou...

A step forward today for H.R. 1262 Give Kids A Chance Act. Approved unanimously by the House Energy and Commerce Committee. www.fightcancer.org/policy-resou...

Medicaid work verification programs are costly and kick off lots of people who shouldn't be kicked off. That is a feature not a bug... kffhealthnews.org/news/article...

Voters should pick their representatives rather than representatives picking their voters.

Nice companion piece to ours, this one surveying providers about PGx: www.gimjournal.org/article/S109...

Patients want and deserve to know about testing that may make their treatment safer and more effective. A survey of cancer patients show low awareness of #pharmacogenomic (PGx) testing, but a strong desire to have it once they understand it. jamanetwork.com/journals/jam...

I predicted whiplash but I wouldn't have predicted this... www.politico.com/news/2025/08...

GAO saying out loud what has been obvious. This administration is impounding funds meant for research. www.statnews.com/2025/08/05/g...

Ouster of Vinay Prasad at FDA underscores the clear tension in this FDA administration between traditional conservative desires for FDA to be more relaxed about letting drugs on the market and RFK's mantra that drugs are the problem and we need fewer of them. www.washingtonpost.com/health/2025/...

Spend the money! Sen. Britt leads a letter of 14 republican senators asking the administration to get NIH money granted per the budget. Thank you for your attention to this matter! www.britt.senate.gov/news/press-r...

Have you been impacted by #cancer? Please take ACS CAN's latest Survivor Views survey, which explores issues like cancer treatments and how they come to market, drug shortages, new therapies, and what role AI should play. ➡️ Sign up today: americancancersociety.allegiancetech.com/cgi-bin/qweb...

After bashing FDA as a "sock puppet" of industry and firing entire advisory boards because of supposed industry influence. Who does RFK Jr. hire as top drug regulator? A pharma industry CEO. Reality very different than rhetoric. www.statnews.com/2025/07/21/g...

Here’s the story of a man who said he had to break Medicaid rules, putting him at odds with Republicans who added hurdles to qualify for the health insurance program they say is rife with waste, fraud, and abuse. kffhealthnews.org/news/article...

CBO estimates that a 10% reduction in NIH funding would start a slow decay in drug development that two decades from now would mean 10 fewer drugs developed to treat diseases. This administration is proposing a 40% cut. www.cbo.gov/system/files...

This morning’s @cbssundaymorning.bsky.social story is a reminder of what’s at stake when cancer research funding is at risk. Top researchers are speaking out. “This is the first time I’ve felt an existential crisis in our ability to make progress.” - Dr. George Weiner www.cbsnews.com/news/when-is...

Thrilled to see ACS CAN volunteers on #CapitolHill today! Our cancer advocates attended the Senate Appropriations LHHS Subcommittee hearing to support the critical need for #CancerResearch funding for the National Institutes of Health. This is key to ending cancer as we know it, for everyone. (1/2)

Patients want--and deserve--to know about risks of their treatments and how they can be mitigated. Anything other than informed consent is paternalistic and unethical. kffhealthnews.org/news/article...

Today POTUS released his final proposed budget for FY26, which slices 25.2% from #HHS, including approx.: • 37.2% cut to #NCI • 40.4% cut to #NIH • 53.3% cut to #CDC This will not only stall scientific breakthroughs but impact our ability to combat the rising incidence of #cancer nationwide. (1/2)

Open letter from dozens of IRB professionals calling for more financial support for #clinicaltrial participants. "IRBs/RECs must be more cognizant of the negative effects of low compensation." www.tandfonline.com/doi/full/10....

Kennedy claims FDA too "cozy" with industry and HHS not transparent. So what does his FDA do? Offer closed-door meetings with industry execs who have drugs under review to discuss updates to regulatory framework. #hypocrisy insights.citeline.com/pink-sheet/a...

1/3 The House passed a bill cutting Medicaid funding by an est. $715 billion. If approved by the Senate, these cuts will raise health care costs, negatively impact state budgets & deny affordable, quality health care to at least 8.6 million people according to the Congressional Budget Office.

Financial burdens keep too many #cancerpatients out of #clinicaltrials. Thanks to @repraulruizmd.bsky.social for reintroducing the Clinical Trial Modernization Act, which would make it easier to support patients on trials. www.fightcancer.org/releases/new...

I asked Sec. Kennedy why he shut down the Firefighter Cancer Registry. He had no idea. 

Because we called them out, it was back online hours later.

This administration cuts blindly, ignoring the harm to working Americans. I’m going to keep calling it as we see it.

RFK Jr. seems unaware that tobacco control was gutted in HHS, and seems to be unaware of the extent of cuts to research. www.appropriations.senate.gov/hearings/a-r...

"This is a fun game." says RFK Jr. sarcastically, complaining he doesn't have time to answer questions, while at the same time not actually answering the asked questions when given time. www.appropriations.senate.gov/hearings/a-r...

HASSAN: What is habeas corpus? NOEM: Habeas corpus is a constitutional right that the president has to be able to remove people from this country HASSAN: That's incorrect

Cuts to Medicaid will harm cancer patients. That’s why our volunteers were on Capitol Hill today to deliver postcards to lawmakers asking that they vote NO on any cuts to Medicaid. Share this video & tag your lawmaker urging them to #ProtectMedicaid.

The real point of work requirements is to make it hard to get coverage and easy to lose. Its a way to say you're offering coverage without actually having to deliver. I think any lawmaker who votes for such a bill should have to follow the same procedures to keep their own insurance...

What happened to "draining the swamp?"

I strongly urge these lawmakers to listen to their constituents, including many cancer patients & reconsider their stance as this bill advances. We ask Congress to remove these life-threatening cuts before the bill moves forward. If cuts are not removed we urge Congress to oppose. #ProtectMedicaid

“There were some items in there that, it was the first time we were hearing of them,” Republican member of congress in response to tax/Medicaid megabill. And it wasn't a pleasant surprise... www.politico.com/news/2025/05...

Our annual #CancerNationalForum on the Future of Health Care kicks off today at 9:15am ET! Join us for a discussion on how we can break down barriers to #CancerScreening and early detection. ➡️ Follow the conversation via #CancerNationalForum and watch live: www.fightcancer.org/2025National...

Financial burdens of #clinicaltrial participation keep willing patients from saying 'yes.' I joined several coauthors to outline how to overcome this barrier. We know how--now it is time to act! ascopubs.org/doi/10.1200/...

Drug shortages are down this year in annual USP report, but the risk factors remain the same--low price and complex manufacturing. These are the hallmark of generic sterile injectable cancer drugs. go.usp.org/2025drugshor...

Add to the daily head-scratchers is the HHS Sec. Kennedy doesn't understand how FDA approves drugs, mistakenly thinks approvals are the purview of advisory committees! Less than 10% of approvals even convened an adcomm in 2021. Hard to oversee an agency you don't understand...

Kennedy wants to root out conflicts of interest at FDA and then fired the people who examine conflicts of interest. Par for the course unfortunately... insights.citeline.com/pink-sheet/p...

The CDC updated the numbers of measles cases in the country on Friday. Here's what they say and what it means for public health in the U.S.

This study in The Lancet found that cuts to US spending on PEPFAR, the program to deliver H.I.V. and AIDS relief abroad, could cost the lives of 500,000 children by 2030. Half a million kids. Kids. www.ox.ac.uk/news/2025-04...

As the administration is considering more tariffs on pharmaceuticals, ACS CAN warns that it may create shortages of key generic drugs. www.fightcancer.org/releases/ins...

"...Another NIH researcher cited reductions in force as the reason why two studies they run are now bringing in patients at half the usual rate."

NIH Clinical Center struggling. "In some cases, researchers are actively discouraging patients from coming in for check-ups...due to staff cuts" Not what you want to hear about your premier research institution. www.statnews.com/2025/05/06/t...

The TAPUR clinical trial seeks new uses for existing cancer drugs. Find out more here: players.brightcove.net/14498944001/...

Other countries are more than happy to pick up the research talent that is being pushed out of the U.S. www.forbes.com/sites/joshua...