Thank you for sharing 🙏🏼

Please complete if you've tried HBOT & have ME or Long Covid. It's a straightforward survey & doesn't take long to complete...max 15 mins.

Savannah Victora-May has been in hospital for 11 months with severe ME; a dearth of specialist treatment has contributed to her situation. The Govt’s Final Delivery Plan committed to exploring a specialised service for very severe ME. *What* is happening to prevent more cases such as Savannah’s?

After decades of medical neglect, poor service provision & appropriate care for #ME sufferers this event run by a NI all pt & volunteer led charity is going to be incredible. Amazing lineup of speakers. Book your space today ⬇️ #LongCovid #advocacy www.eventbrite.co.uk/e/shaping-th...

Unbelievable that this is still the case 30+ years later!! #MECFS #LongCovid

1) Peter Novak's dysautonomia clinic in Boston reports that ME/CFS and Long Covid patients have increased rates of: - reduced cerebral blood flow (ca 90%) - small fiber neuropathy (ca 50%) - postural tachycardia (ca 20%) and hypotension (ca 15%) - preload failure (ca 90%)

“More than 15,000 long COVID patients in the Netherlands declared disabled” nltimes.nl/2026/01/29/150…

Thanks very much to Jethren Barr for sharing his story in this in-depth article about how Myalgic Encephalomyelitis forced him to retire from his professional football career 👍 www.belfasttelegraph.co.uk/sport/footba... Archive: archive.is/wu7ZP #MEcfs #MyalgicEncephalomyelitis #CFS #PwME

TW: Medical neglect, severe ME/CFS An NHS hospital has withdrawn vital medication from a severe ME patient that enables her to tolerate food and fluids. She is now showing signs of dehydration following the removal of her IV fluids. www.thecanary.co/uk/analysis/...

www.thereforme.uk/p/too-ill-to... A bit about me & my journey living with Long Covid ME in Northern Ireland. @thereforme.bsky.social

🚨 One week left to contribute to ME research and fill in our 2025/26 Big Survey! If you've got ME or ME-like symptoms as part of long Covid, we want to hear from you 🙏 🔗 Take part, and find out more: www.actionforme.org.uk/research-cam... Thank you!

Our Digivan has started its journey! First stop Department of Work and Pensions! It’s carrying 1,000 #LongCovid leaflets on board so please come along and take some! 😃 Full route in photo attached.

We were trending on Twitter/X earlier! Thanks everyone for supporting the #WhereIsIt campaign! Some pics of the van below! #LongCovid

Please watch & share to raise awareness on the similarities between Long Covid & ME & how history has repeated itself in how we are treated. youtu.be/A2CEg2PaB6A?...

www.thereforme.uk/p/too-ill-to... A bit about me & my journey living with Long Covid ME in Northern Ireland. @thereforme.bsky.social