Must, must-read. Just drop everything, take an hour and read this, as I have. I wish these two parents would know that strangers like me who read their writings about their Martha will think long and hard about what happened, not forget and not be the same.

New writing, a short piece this time emilytammam.substack.com/p/this-daugh...

Maternal Grief-Writing as Transformative Practice open.substack.com/pub/emilytam...

I am thrilled to share a new piece of writing. Sabina Dosani and I wrote about maternal grief-writing as a transformative practice. The whole experience has been incredible. Needless to say, I learnt a lot! www.tandfonline.com/doi/metrics/...

Maternal Grief-Writing as Transformative Practice Sabina Dosani & Emily Tammam doi.org/10.1080/1448... #RecurrentMiscarriage #ChildLoss

New writing and new painting emilytammam.substack.com/p/freckles

New post emilytammam.substack.com/p/a-hot-july...

This Wednesday, 30th July, the NCMD will launch a thematic report, about children with life-limiting conditions and palliative and end of life care needs. I was involved in the whole process, as a parent contributor and co-author. Including having my painting on the cover! See you on Wednesday!

'Data for the head, Stories for the heart.' The @ncmd.bsky.social is collecting stories from families whose child died. They will be used to illustrate what children & families found challenging & what was helpful, in a report recommending service improvements. More info ⬇️ @emilytammam.bsky.social

Please share this widely. We are inviting families to share their stories with us. See more details here.

Join us!

We are so lucky that @emilytammam.bsky.social is one of our parent PPI members. I was never fortunate enough to meet Neve but am very grateful to Emily for her generous sharing of her writing and painting. Please read. #pedpc

Two years Reflections on a toddler Neve and a list of writing, speaking, events and more, in Neve's honour, to mark two years since her death emilytammam.substack.com/p/two-years-... emilytammam.substack.com/p/a-list-to-...

Sneak preview for Tuesday 15/4 when Sabina Dosani joins me to talk about Ilse Pedlar’s poem “Visit to the Vets”

Bluebells And a radiant little Neve "I could feel traces of Neve all around me - on the grass and up the trees, in the warmth of the sunshine, echoed in the screams and the squawks of the peacocks." Continue reading emilytammam.substack.com/p/bluebells

As elements of the brain fog of grief and my numbness start to dissipate, it is changing how I write. Wisdom from one of Neve's doctors helped me through the early months and years. Now I feel a pull towards a bit more structure and focus, in my writing.

I talk a fair bit about the expectation that archaeologists will work for free. Even when we do get paid for appearing at events the reality can be grim. In this thread, I'm going to outline financial issues at play in giving a public lecture using a real world example...

Bravo @libbysallnow.bsky.social Libby Sallnow: the gentle disruptor - The Lancet www.thelancet.com/journals/lan...

Painting Neve reading Musings on reading and painting, on World Book Day emilytammam.substack.com/p/painting-n...

Here's Mark Draisey’s oil portrait ‘Kitty, the Teenage Baker’, a prize-winner in the BP Portrait Award 2020 markdraisey.com/portraits

A new piece of writing from me today emilytammam.substack.com/p/spring-flo...

Grief without tears A funeral New piece of writing on substack. To read... emilytammam.substack.com/p/grief-with...

New paintings of Neve, to accompany emilytammam.substack.com/p/frozen-in-...

“Neve would love this, wouldn’t she?” My thoughts exactly, spoken aloud by my sister. We could both envisage her, bursting with joy and vitality, her cheeks rosy and warm. emilytammam.substack.com/p/frozen-in-...

palliative care training has revolutionized how I communicate with families, how I deliver difficult news, how I assess family’s goals of care to guide/align management, how I doctor don’t need fellowship level training to practice primary pall care; lots of options to enhance skill set

New paintings to share. All painted using watercolours from stonegroundpaint.com

Before I faced my child’s possibly imminent death, I could not have imagined the nuances of hope in once unimaginable moments. To continue reading... emilytammam.substack.com/p/hope-at-th... (An updated and republished piece of writing with new paintings)

Joy of joys! @drkathrynmannix.bsky.social and @bedsidereading.bsky.social ♥️♥️ And a THIRD book!! ♥️

Our culture most definitely has a profound lack of “death literacy” This beautiful & heartbreaking article highlights vital issues in how we communicate with patients and provide care. #palliativesky #medsky #oncsky www.nytimes.com/2024/11/25/o...

Anyone else from #palliativecare #publichealth #stillbirth #childloss coming to @NES_Education #NESBereavement2024 Conference tomorrow? We’re presenting new findings on the impacts/limits of *literary* patient accounts in healthcare training, full programme here: www.sad.scot.nhs.uk/conference/

Hospice nursing is the most interesting misunderstood field. Amazing things happen around here but NO one talks about it. Shoot me your hospice questions! At some point you will need to understand so you can possibly help someone through it. 🦋#hospicenurse #deathanddying

There used to be an assumption that research participation is burdensome to palliative care patients. This is changing now. Altruism, legacy, and being heard - these can all be meaningful, even at the very end of life (see quote!) Reflecting on lessons from hospice research nurses at #HospiceUKConf

Having had the honor of meeting Emily in person this year, and just reading her article, would recommend giving this a read #palliativecare

Reposting this, over here. Please share widely, particularly within the Palliative care and hospice world. @hospiceuk.bsky.social www.telegraph.co.uk/family/paren... (archive.ph/7L5HT)

If you care about #hospice and #palliative care #hapc then this is a must read re how we need to improve. So well written. Peds focused but truth for all. Still thinking. (i tried to gift This so you can see it ) www.nytimes.com/2024/11/25/o...

This Sarah Wildman essay is remarkable and important. I can't remember the last time something was physically painful to read. A weight on my chest all the way through. May Orli's memory be a blessing: www.nytimes.com/2024/11/25/o...

An amazing piece by Sarah Wildman about her daughter Orli’s terminal illness, how the medical team related to their family & how we can do better. I can’t recommend this enough. I realize how lucky I’ve been to learn from those doing this so well at CHOP, UMICH, & BCH www.nytimes.com/2024/11/25/o...

This wonderful girl is Flossie (Sunday name = Florence). She died by suicide in April last year, aged just 13. Very out of the blue. Completely devastating. Looking to connect with others in #grief #childloss #bereavement communities on here as I move from the bad place ❤️‍🩹

Dear followers, If you can help... LIKE and REPOST. Many thanks! #PalliativeCare #HAPM #HPM #HAPC #Hospice

Word of this morning is ‘procaffeinate’: to put everything on hold until you’ve had sufficient amounts of coffee.

Morning! Lots of new followers over the weekend - welcome!! I'm Ed Finch, ex-headteacher, book lover, lino printmaker, storyteller, strummer, Dartmoor walker. I post about all of these things and also stupid jokes and things I find interesting. I live in the UK on the edge of Dartmoor - lucky me!

Today is Neve's 12th birthday. I am marking it with two posts. The first contains a painting and some words. emilytammam.substack.com/p/marking-a-... The second is a list of links. Some are thought-provoking, some are resonant and others made me smile. emilytammam.substack.com/p/a-list ♥️

Yesterday was my PhD graduation at Oxford Brookes University. It’s been an utter privilege to study how friends & family support parents of children with cancer with decision-making, and a deeply transformational process. I am full of gratitude to so many people who’ve supported me along the way.

Wow, this is a stunning piece of writing. Thank you for writing it. I wish I had read this in grief 10 years ago, but it brings me comfort still now

Hello Emily. It’s so lovely to see you here. I don’t know if you saw my note on the other place to you, but look what I’ve got. Our wonderful mutual friend Francesca gave it to me a couple of weeks ago. Beautiful. x

Hello!

@emilytammam.bsky.social I read your beautiful story about keeping Neve at home for 40 hours after she died, Emily, and was so very moved. Esp loved your description of how her heart still felt warm while the rest of her body was already cold. Death holds many mysteries - and magic. 💜

Hello! I'm on here. If you feel so inclined do please repost this so I can find some of the people I follow/who follow me. Thank you!