📢 Curious about what’s worked — and what hasn’t — in medicine transparency initiatives? /1 Join us next week as we explore lessons from Europe and Africa on how to make medicine pricing systems more transparent and accountable: shorturl.at/mv8YD #GlobalHealth #WHA78 #IDsky 💊🌐

Last week, reports circulated of the risks of misuse of data by period tracking apps. In a new blog, @aliceebeck.bsky.social and @hvkolfschooten.bsky.social argue that the #EU must do more to protect consumers (and their private data) from harmful practices. Read it here: haiweb.org/period-track...

A big thank you to all who joined us and @wemos.org in The Hague last week for the Netherlands launch of our joint report "Pharmaceutical transparency: from resolution to reality" looking at the state of implementation of WHO transparency resolution WHA72.8. Read it here: haiweb.org/publication/...

www.bbc.com/news/article... The research team called for better governance of the "femtech" industry, improved data security of these apps and the introduction of "meaningful consent options".

"Gilead is employing evergreening tactics to extend its monopoly on lenacapavir. This involves staggering patent filings and securing additional patents on modifications, different forms or new uses of an existing compound to prolong rights beyond the primary patent." www.twn.my/title2/brief...

Just a few days left to provide input to EMA's survey on a key information section on medicine package leaflets, see here: ec.europa.eu/eusurvey/run...

There is no #equity in #access to basic #health care. The latest biennial report on #UHC reported that in 2021 4·5 billion people—about half the world's population—had no access to basic health services, and progress has stalled since 2019. @thelancet.com www.thelancet.com/journals/lan...

Discussions on transparency continuing today through an event organised by @keiwashdc.bsky.social - great to hear national experiences from South Africa. #WHA78

Insightful and interesting event from @gchalliance.bsky.social on how to break free from fossil fuel influence - important reflections to take forward on effective communication strategies. #ClimateAndHealth #WHA78

In the six years since its adoption, what is the state of implementation of @who.int transparency resolution WHA72.8? In a report launched today at #WHA78, HAI and @wemos.org take stock, assess progress and give recommendations for stakeholders. Read the report here: haiweb.org/publication/...

Join HAI and @wemos.org during #WHA78 for a side event to mark the launch of our joint report 'Pharmaceutical transparency: from resolution to reality', highlighting steps taken to implement WHA resolution 72.8. 📆21 May, 07.30-09.00, Warwick Hotel, Geneva. Register here: forms.gle/Vdg6gsr7PqVM...

In a @bmj.com Response, @nicolegross.bsky.social, @aliceebeck.bsky.social &I argue that important gaps remain in the EU AI Act when it comes to the protection of patients' rights. Such regulatory pitfalls risk undermining public trust, safety, and equity ➡️ Read lnkd.in/eedZMKZY @hai-org.bsky.social

Investors who opt for ‘ethical’ or ‘socially responsible’ plans may end up funding firms linked to Israeli human rights violations in the occupied Palestinian territories. Two advisory firms, under pressure from pro-Israel lobbying, no longer flag allegations of such violations in their assessments.

Out now in EYHR: 𝐀 𝐇𝐮𝐦𝐚𝐧 𝐑𝐢𝐠𝐡𝐭𝐬-𝐁𝐚𝐬𝐞𝐝 𝐀𝐩𝐩𝐫𝐨𝐚𝐜𝐡 𝐭𝐨 𝐀𝐫𝐭𝐢𝐟𝐢𝐜𝐢𝐚𝐥 𝐈𝐧𝐭𝐞𝐥𝐥𝐢𝐠𝐞𝐧𝐜𝐞 𝐢𝐧 𝐇𝐞𝐚𝐥𝐭𝐡𝐜𝐚𝐫𝐞: 𝐀 𝐏𝐫𝐨𝐩𝐨𝐬𝐚𝐥 𝐟𝐨𝐫 𝐚 𝐏𝐚𝐭𝐢𝐞𝐧𝐭𝐬’ 𝐑𝐢𝐠𝐡𝐭𝐬 𝐈𝐦𝐩𝐚𝐜𝐭 𝐀𝐬𝐬𝐞𝐬𝐬𝐦𝐞𝐧𝐭 𝐓𝐨𝐨𝐥. How can doctors & informal carers make informed decisions about AI tools in a way that respects patients’ rights? papers.ssrn.com/sol3/papers....

HAI welcomes the conclusion of negotiations on the #PandemicAgreement. However, this is not the end of the process and efforts from all parties will now be needed to ensure ratification, implementation and adaptation to local and regional realities. Read our statement: haiweb.org/media-resour...

It is good to be reminded that genetic data also forms part of health data under the European Health Data Space, hence it is of upmost importance that Member States take strong steps to ensure the privacy of such unique data. www.theguardian.com/science/2025...

As technology evolves, the use of chatbots for mental health support is gaining traction. But what do people really think? We took to the streets of Amsterdam to gather genuine opinions. Check out some of their thoughts and watch the full video from 16 April: lnkd.in/eKqn3dNU

"There are, though, concerns that these models could “hallucinate” and come up with responses that are misleading and inaccurate. And with both predictive and generative #AI, how well the models work depends on what data they were trained on". edition.cnn.com/2025/03/27/h...

" #AI systems designed to predict the likelihood of a hospitalized patient dying largely aren't detecting worsening health conditions, a new study found". www.axios.com/2025/03/12/a...

Devastating cuts to aid budgets by the US and others will lead to avoidable deaths, increase the risk of pandemics, sow unrest, instability and insecurity, and ultimately mean a less safe world for us all. The HAI team comments on recent seismic shifts in global health: haiweb.org/global-healt...

Mental health chatbots are just one example of growing investments and innovations in AI used in mental healthcare. This trend raises a number of concerns & risks, prompting important questions about what drives these developments. Find out more in our new page: healthai.haiweb.org/ai-in-mental...

Climate was high on the agenda at the WHO Executive Board earlier this month as Member States gear up towards agreeing the global action plan on climate change and health. Our new blog argues for putting equity and climate justice at the centre of the ongoing discussion: haiweb.org/upholding-eq...

Are you concerned about how #AI in healthcare affects fundamental rights, and how tech regulation in Europe could address the risks? Read all about our work to ensure trustworthy algorithms and their responsible use in healthcare: ➡️ www.healthai.haiweb.org/

📣 The #EU4HealthCSA is concerned about restrictions of activities under the #LIFE programme, and potential spillover effects this could have on CSOs from other sectors, including #health. 🔗Read more: eu4health.eu/letter-of-co... @vonderleyen.ec.europa.eu

Climate change is already having a huge impact on health. While #WHO's global action plan on climate and health is a step in the right direction, more specific action is needed to protect populations, especially those already enduring the brunt of climate breakdown. Our statement to #EB156.

Constituency statement of Knowledge Ecology International, Health Action International, World Council of Churches, World Blind, Union, and Oxfam: WHO’s work in health emergencies. (Photo taken by Pedro Villardi, Population Services International). @who.int #EB156

My latest blog on the Trump administration's assault on life-saving health programmes and Europe's silence. medicineslawandpolicy.org/2025/02/trum...

Also on the EU's focus on competitiveness, great blog by @elstorreele.bsky.social www.friendsofeurope.org/insights/cri... "Innovation and competitiveness in the health sector must be measured in terms of patient and public health benefits, [...] not in terms of economic competitiveness."

"While the newly unveiled EU Competitiveness Compass might spell good news for the pharma industry, health experts and unions warned it is pointing in the wrong direction for public health." www.euractiv.com/section/heal...

In Zambia, the #SHARP project works closely with adolescents, religious leaders and others in the community to improve the health and lives of young people. In this picture essay, we shine a spotlight on the tireless efforts of 3 of these Champions. See it here: haiweb.org/championing-...

Medicines shortages are increasingly common, causing widespread concern & need for intervention. Join us on Wednesday 11 December for a roundtable discussion on the issue, and how to ensure availability and access to medicines for everyone. Register here: us02web.zoom.us/meeting/regi...

The 🇨🇭 Parliament has been debatting for >2 years whether to legalise secret rebates on new pricey drugs - i.e. exclude them from the FOI law. @publiceye.ch is vehemently opposed as this is yet another gift to #BigPharma and will only lead to even higher drug prices 👉 www.publiceye.ch/en/topics/ph...

Transparency is an essential aspect in the quest for equitable access to medicines. Our policy brief - a precursor to a larger report to be launched in 2025 - is an overview of risks & opportunities emerging from the resolution: haiweb.org/publication/...

"The climate crisis makes more children vulnerable to disease. Rising average temperatures have led to an increase in mosquito populations and greater risks of the diseases they transmit, such as malaria, dengue, Zika and West Nile virus". www.theguardian.com/global-devel...

Mark your calendars! Our new film, which shines a spotlight on efforts to improve access to #diabetes care in Kyrgyzstan and Tanzania, will premiere on YouTube at 1200 CET on Friday 29 November. For more information, and how to watch the premiere live, follow this link: youtu.be/cwQ_Tf2awKk

What does #AntimicrobialResistance (AMR) mean to you and me? 💊 AMR happens when dangerous bacteria become resistant to life-saving medicines, making treatment difficult or even impossible 💊 AMR means the medicines we rely on may stop working bit.ly/4fy6yAo

Let’s see how this works and how useful it is: I’ve created a feed to compile content related to access to medicines. To have your posts featured in this feed, include #a2m or 💊🌐 (together) in your post. The emojis can also be reversed (🌐💊), and 💊💸 will work too. bsky.app/profile/did:...

HAI's Monitoring Access to Insulin (MAIn) tool online portal is now live! Working with country partners, we have collected data on prices, availability & expenditure on #insulin and related products at both facility and household level. Check it out here: accisstoolkit.haiweb.org/monitoring-a...