🌍 Today on #WorldOstomyDay, we’re raising awareness of the diverse realities of living with a #stoma. For some in our #IBD community, it’s life-saving, liberating, and brings relief. For others, it can feel overwhelming, isolating, or a reminder of what’s been lost. 💜

📣 NEW from #IBDSuperHeroes 💫 We’ve launched movement classes designed for people with #Crohns, #Colitis & #ChronicIllness. These free videos are made to meet you where you are — no pressure, no expectations. 🎥 Available now on YouTube: tinyurl.com/IBDSHMove #YogaForIBD #OstomyYoga #IBD

4 months ago, I received a message alerting me that one of my old images had been "lifted" to create a meme... and then posted in "sick f*cks" Facebook group. Don't even get me started on why a group like that would exist 🙈 Anyway, h...https://www.instagram.com/p/DNdMIvdMieU/?igsh=YjJhOWxxNjEzcTJx

I realise I've been AWOL for a while. It's just life. It's been busy (by my standards). To most people, my life probably doesn't look busy, but #ChronicIllness means not having the same in the stores as "normal, healthy people." Every day, I weigh up... instagram.com/p/DNaxTihMSqQ/

Always learning 📖 Just last week, I learnt that cous cous is not a grain ❌️ It's actually durum wheat 🙈 I've been making some dietary changes. I mentioned my mission to increase my fibre intake in a previous post, due to the multitude of health benefits.

Happy #GuruPurnima to my friends and community who are always teaching me about resilience, strength, dignity, and survival. Forever grateful for the wisdom we share 💜🙏 #IBD #IBDjourney #Crohns #Colitis

📸 It’s #GutSelfie time again with @gutscharityuk.bsky.social – and this year’s theme really hits home: #MakingTheInvisibleVisible. So many of us live with invisible conditions that shape many different areas of our lives; how we eat, move, plan our days (or can’t plan them at all),

A quickie of my latest #BotanicalSleeve 🌸💮🏵🌺🌻🌼🌷🪻 Not a rose or Lily in sight 😂 #Tattoo #TattooGirl #InkedLife #SleeveTattoo #TattooSleeve

Final call to take part in my Instagram giveaway! Ends at midnight on June 30th! Head to my Insta profile & the pinned post to take part www.instagram.com/sahara88uk_ Includes: 🧖‍♂️ 3 collagen face masks 🛌 Hyaluronic acid night cream/mask 📒 1 adult activity book 📖 1 things to do while you poo book

Went to aquacise this morning and came away thinking about the fact that when you live with health challenges, everything seems to take that bit more time and effort. There’s no quick rinse after the pool for me.

Saturday morning chores 💊 The joy, and reality, of #ChronicIllness life. #PatientAdvocate #IBDSuperHeroes #Crohns #Colitis #IBD #CrohnsDisease #UlcerativeColitis #IBDawareness #IBDVisible #InflammatoryBowelDisease #ItTakesGuts #NoColonStillRollin #Ostomate #Stoma #Ileostomy #Ostomy

#Grounding, also called #earthing, might look simple – just me with my bare feet on the earth – but there’s real science behind it 🌿⚡ Modern life tends to leave us positively charged – thanks to things like electronics and synthetic materials. Grounding helps rebalance that.

Totally see you too Sahara, it's hard not to think worse case scenario at the first twinge. I've had many blockages over the years, I drink lots to try to make things easier to pass (if only it was that simple). I've added new foods to my 'avoid' list lately too that have not been an issue before 😕

🎁 GIVEAWAY REMINDER 🎁 In case you missed it, I’m running a #giveaway until 30 June to help rebuild my account after it was hacked.💜 📌 Check the pinned post on my profile to enter! It takes 30 seconds and would really help spread the word as I try to rebuild this space 💬

I’ve had more bowel obstructions than I can count. They’re scary, painful, exhausting, and they’ve shaped how I eat, move, rest, and live 👎 I chew more thoroughly. I avoid certain foods. I’m constantly thinking about hydration, fibre, medication, and movement.

I followed up on my gastro referral this morning and was told there’s an 11-month wait. I’ve been referred back because my bowel obstructions have been getting more frequent and more severe. The frustrating part? I didn’t even want to be discharged last year...

I used to think recovery was a straight line. You had the surgery, got through the flare, healed the wound — done. ✅️ But I’ve learned (the long way) that recovery is something I keep doing over and over again. Every new complication. Every flare.

When I first got diagnosed with #fibromyalgia, I thought I knew what pain was. What I didn’t know was how much fear, stress, and past trauma can ramp everything up. Learning about the #biopsychosocial model of pain changed everything. I stopped blaming my body.

We're looking for ppl with a #stoma due to #IBD, aged 16-35, from Black, Asian, African or Caribbean backgrounds to help with our @nihrspcr.bsky.social Stoma Support Study 2 Please get in touch if interested, or pass this on 👇👇👇 @colostomyuk.bsky.social @sahara88uk.bsky.social

I'm running an instagram GIVEAWAY to say thank you for all your love and support while I rebuild my account after being hacked last year! 💜 Head over to enter www.instagram.com/sahara88uk_

I don't think I ever got around to sharing my new insta after the hacking drama last year! If you haven't followed my new account yet, please do www.instagram.com/sahara88uk_ 🙏🏻 @sahara88uk_ ✨️ See you soon 💜 #PatientAdvocate #IBDSuperHeroes #Crohns #Colitis #IBD #CrohnsDisease #UlcerativeColitis

The Stoma Support Study is looking to increase diversity! Your opinions will help create resources for young people with an #ostomy. If you're from the UK and have a #stoma due to #IBD, please reach out to Ben at [email protected] 🙏 #Crohns #Colitis #IBDSuperHeroes

And one thing we often forget, as patients, is that our conditions impact those around us, too 💜 #WorldIBDDay ✨️

On today's #WorldIBDDay, people might know that endo/colonoscopies are pretty common procedures for IBD folks, but mine comes with a fun little "balloon dilation" add-on each year to try to stave off a more substantial surgery.

Happy #WorldIBDDay for fellow survivors! 💜 #PurpleForIBD #IBDAwareness

This #WorldIBDday let’s bring awareness to nutrition therapy and its pivotal role in IBD care. Diet matters and can help: -nutrition status -quality of life -manage disease & symptoms -improve outcomes & response to therapy -surgical outcomes …and more! Cheers!

World IBD day 💜💜💜 honouring the warriors fighting battles within 💪 Because we’re stronger than our illness, because crohn and ulcerative colitis can go fuck themselves, be proud of you, and be kind to yourself. #worldIBDday #crohn #ulcerativecolitis #UC #ibd #crohns #health #chronicillness

💜 This #WorldIBDDay, I want to share what changed the game for me - finally understanding that my mind & body aren’t separate. For a long time, I tried to “manage my health” by focusing purely on the physical side of #IBD –

Roger's #WorldIBDDay share really captures the day-to-day effort of living with #IBD. So relatable. 💜

💜 10M+ people live with IBD around the world. But behind every number is a real person facing daily challenges with strength and resilience. This #WorldIBDDay, we honor your journey. You are not alone. #IBD #Crohns #Colitis

Here's a thread of some of our recent #IBD articles for #WorldIBDDay! Starting with this Consensus statement on a global research agenda for better management and public health response FREE! www.nature.com/articles/s41... #IBDsky #Gastrosky #Medsky

Today, on #WorldIBDDay, we celebrate the strength, resilience, and dedication of people living with Inflammatory Bowel Disease (IBD). I want to take this opportunity to share my campaign to raise awareness of IBDs. www.idonate.ie/fundraiser/M...

Final call this #WorldIBDDay!💜 We’ll be creating a series of gentle, supportive movement classes for people with #IBD & we need to make sure we’re creating something that works for you. That’s where this survey comes in: 👉 www.tinyurl.com/IBDMovementSurvey We want to know: 🌀 W... buff.ly/uho3rZw

💜 #WorldIBDDay – What Stephen Wishes People Knew 💜 That #CrohnsDisease & #UlcerativeColitis are more than toilet diseases! 🚽 They are: Severe pain from ulcers Strictures Blood loss Weight loss Weight gain They make you more susceptible to bowel cancer Vitamin deficiency Iron d... buff.ly/zXXMy5y

Today's #WorldIBDDay which is a day created to shed light on #IBD ( #UlcerativeColiti, #CrohnsDisease) & the reality of those diseases & those dealing with them. ...

💜 100%! The unpredictability of #IBD in general is a real pain in the ass - pun intended 💜 #WorldIBDDay ✨

Good morning 💜 It’s #WorldIBDDay. Today, we’ll be sharing what we wish people knew about life with #IBD — the hard bits, the hidden struggles & the strength it takes. We’d love to hear from you! 💬 What do you wish people understood about #CrohnsDisease & #UlcerativeColitis? #IBDSuperHeroes

💜 It’s #WorldIBDDay! 💜 Today’s about raising awareness of #IBD – such as #CrohnsDisease & #UlcerativeColitis. They’re both lifelong, usually invisible conditions that affect the digestive system, but can also impact energy, joints, skin, #MentalHealth, and more. It’s not just ... buff.ly/l97uYif

I'm super proud to have gained these! I can't express enough how much #gardening, #nature, and #yoga have helped me heal from many of the things my health has put me through.

I'm planning to start thinking about creating a few sequences this week! It would be super helpful if you could share what YOU need from a movement practice! 🔗 tinyurl.com/IBDMovementS... I'm far more excited about this than I thought I would be! 🥰

So happy for your forward motion, and not a moment too soon. May it result in good things!

Have your say! We'll soon be launching our Movement Classes on YouTube - created for people with #IBD, by people with #IBD, who understand the challenges of living with #CrohnsDisease or #UlcerativeColitis. 💜 Let us know what you struggle with and what you want 🔗 tinyurl.com/IBDMovementS...

I only went and got my #TraumaInformedYoga certificate! 🥰 I've almost got my #SomaticHealing certificate, too! Trauma-informed #yoga isn't about perfect poses - it’s about creating space for choice and connection. It's about meeting ourselves exactly where we are, with tenderness and compassion. 🧘‍♀️

It's taken a few months, a team of three (my therapist, my mum, and me), and multiple phone calls to finally get to the appointment stage today. I needed the appointment to ask for a referral BACK to gastroenterology.

Now I'm officially a #YogaTeacher (soon to have gained certificates in both #SomaticMovement & #TraumaInformedYoga), I want to use my new skills & knowledge to serve my community.✨️

Please have your say! 🙏https://tinyurl.com/IBDMovementSurvey

Your support allows us to fund #IBDresearch that changes lives!🏥 Fundraise or donate to #IBDSuperHeroes & be part of a movement to conquer #IBD, improve treatment, disease management & quality of life for folks with #Crohns & #Colitis 🦸‍♂️ buff.ly/aEScX7f #CrohnsDisease #UlcerativeColitis

At times, this journey has been truly torturous. I’ve experienced sadness and anger beyond what I can put into words. My poor body has been through so much; not just surgeries. It has felt so much fear and uncertainty, and agonising pain during flares and blockages.