Join us in celebrating World Hemophilia Day! The 2026 theme reflects the ongoing challenges to accessing a diagnosis all over the world. At home we are working to improve access to women and girls with inherited bleeding disorders.

Join us for the CHS-MC AGM this Saturday! We will be in the Fireside room at the RA Steen Community Centre. Come and make new friends and visit with old friends! Follow the link to the registration. tinyurl.com/mte8rens

Thank you to the members who made volunteer award nominations. We are very lucky to have so many amazing people working on behalf of the bleeding disorders community in Manitoba. Join us at the AGM to celebrate these amazing volunteers! Register: tinyurl.com/mte8rens

#ThankYouThursday to our golf tournament Silver Sponsor, Central Hydronics! We are grateful to Grant and Heather for their long-time support of the Chapter. Central Hydronics will receive the Chapter's Corporate Recognition Award at the July 30th tournament! tinyurl.com/yem9rsnz

CHS-MC is accepting resumes for the position of Office Coordinator & Executive Facilitator. Full job posting and details are found on our website: tinyurl.com/5c227hfv

#ThankYouThursday to our golf tournament Gold Sponsor, PlayNow Manitoba! We are so pleased to have you back for the 2026 tournament. For all the tournament information please visit tinyurl.com/yem9rsnz

Wondering what a CHS-MC Board member will be working on for the next four years? These are exciting times and this is the perfect time for new voices on our Board of Directors. Read the 2026-2030 strategic plan: tinyurl.com/2dxauu7x

CHS-MC Board nominations close at the end of day on Saturday April 4th. Information about Board elections and the nomination form is in the link. tinyurl.com/4p3tam4f Please call the office if you'd like to talk about it! 204.775.8625

CHS-MC Board nominations close at the end of day on Saturday April 4th. Information about Board elections and the nomination form is in the link. tinyurl.com/4p3tam4f Please call the office if you'd like to talk about it! 204.775.8625

Tomorrow, the 31st, is your last chance to show a volunteer some love! Volunteers are essential to providing programs and services to Manitobans with inherited bleeding disorders. tinyurl.com/mv3pnhda

The March Women and Girls with Bleeding Disorders newsletter is now in the NEWS section of the Chapter website. tinyurl.com/m74rw2u4

Summer will come and we are busy getting ready for the 2026 Golf Tournament in support of Manitobans managing inherited bleeding disorders. This year will be bigger and better! Don't miss out and register early! tinyurl.com/yem9rsnz

Nomination Deadline is March 31st! Everything CHS-MC does is fueled by member volunteers, our friends and family. Acknowledge the important work of Chapter volunteers! Please consider making an award nomination. tinyurl.com/mv3pnhda

The 2026 CHS-MC AGM will be in the Fireside room at the RA Steen Community Centre at 10 am on April 18th. Registration and all the info at: tinyurl.com/mte8rens

The 2026 CHS-MC AGM is April 18th! Follow the link to the registration, description of the Board elections and nomination forms as well as the form for volunteer award nominations. This is an important meeting. Don't miss out! tinyurl.com/mte8rens

Bleeding disorders are commonly diagnosed in patients presenting with heavy menses at menarche. Check out this month's PAGWebEd Case to review the appropriate work up in the adolescent presenting with heavy menstrual bleeding. #naspag #residenteducation #heavymenses #bleedingdisorder

Shouting into the bluesky void to see who else has #hemophilia or #vonwillebrandsdisease or another #bleedingdisorder hi! I have type 3 vWD! I self inject blood products and deal with the usual joint bleeds and soft tissue bleeds. Reach out if you wanna be pals :)

The February Chapter Update e-newsletter was published last Friday. Lots of good information! tinyurl.com/4ahzykap

The membership is lucky to have so many dedicated people who work to help the community. Please consider making an award nomination. Deadline for nominations is Tuesday, March 31st. tinyurl.com/mv3pnhda

Men’s health matters—and for too long, stigma has kept too many men and boys from getting the support they need. When men’s physical and mental health challenges go unspoken, families, workplaces, and communities feel the impact.

PSA: if you have chronic fatigue and have never had your ferritin checked, please do so. And look at the actual value because the reference range is likely trash. It should be at minimum 30 and ideally 50+ Thank you for your attention.

CHS-MC is looking for volunteers with an interest in golf and/or fundraising to help us with the Chapter's 2026 golf tournament, our most significant fundraiser. To continue growing the event, we need more help! Would you join us? Contact the office at [email protected].

So we now have two "rebalancing" agents, both anti-TFPI products approved for #hemophilia treatment. Both did well in the phase 3 trials. We will need to monitor them closely to see if their safety is maintained in patients undergoing surgery, those with malignancy and those with severe sepsis.

After a single infusion of fidanacogene elaparvovec, a majority of patients with #hemophiliaB reported that their impression of life with #hemophilia was “greatly improved” and demonstrated gains in health-related QoL measures. From @jthjournal.bsky.social.#hemophiliaB#hemophilia https://bit.ly/49kPq0D

📢 The EHC Public Policy Review (PPR) is out! Covering #EUHealthPolicy developments from Jan 2025 to Jan 2026, it breaks down what matters most for the #BleedingDisorders community — pharma reform, #EHDS, #HTA, #CriticalMedicinesAct, EU Biotech Act & social care. 📖 buff.ly/vIIDSak

The CHS-MC January Chapter Update is now available! tinyurl.com/z2amz82a

Please note that while we will have access to email and will do our best to help from afar, expect delays.

Make sure to sign-up for the CHS Town Hall! We have a lot of news to share with you! Join us in a virtual Town Hall on January 22 to hear all about the new initiatives coming up for the CANADIAN HEMOPHILIA SOCIETY. To register: Scan the QR code or: surveymonkey.com/r/CHS-SCH-TownHall

Wishing you all a happy, healthy and peaceful new year! The CHS-MC Board is excited to move forward with a new strategic plan to meet the needs of the bleeding disorders community in 2026 and beyond.

Please consider a year-end gift to the Chapter. We have a lot of great plans for 2026 and we need your help! To make a donation, please visit: tinyurl.com/5x696c8f

The winners of the three CHS-MC Grey Cup Pools are listed in the news section of the Chapter website. Congratulations to our winners, thank you to all the amazing volunteers who sold tickets and thank you to everyone who supported the Chapter by buying a ticket! tinyurl.com/4wkhsrp8

The September issue of the Chapter newsletter is now available. tinyurl.com/nu4599jn #bleedingdisorders #manitoba #winnipeg #vonwillebranddisease #hemophilia #raredisorder #community #education

We have our winners. Congratulations! I am certain your friends will be looking for an invitation to dinner! Thank you to everyone who supported by purchasing tickets and thank you to the Chapter members who sold them!

Last day for Summer Sizzle raffle tickets! 1 for $20 or 3 for $50. Order online at tinyurl.com/8av9x7j4 Draw is Monday at 10 am. Proceeds to support Manitobans managing inherited bleeding disorders. LGCA-334RF-48145

The Chapter office is closed but we are still taking Summer Sizzle raffle ticket orders! Get yours now!! tinyurl.com/8av9x7j4

The CHS-MC June E-Newsletter is now available! tinyurl.com/4hmj7b4s

Summer Sizzle raffle tickets on sale! 1 for $20 or 3 for $50. For details and to order online visit EVENTS at websoite in profile. Please share with family and friends. Proceeds to support Manitobans managing inherited bleeding disorders. LGCA-334RF-48145

We have a great Summer Sizzle raffle! Two amazing summer cooking prizes could be yours. Order tickets online in EVENTS on website in profile or contact the Chapter at [email protected] or call 204.775.8625. #BBQ #raffle #manitoba #winnipeg #charityevents #biggreenegg #pizzaoven

Iron deficiency also has a major impact on exam scores! Finding the cause of heavy periods early could change someone’s academic future. Heavy periods affect school attendance and exam scores, study in England finds www.theguardian.com/society/2025... @theguardian.com

We have such a great group of people who come out every year. Don't worry if you don't have a team of four! We'll find you some new friends!! tinyurl.com/3hs85up2 #golftournament #charityevent #fundraiser #winnipeg #manitoba #bleedingdisorders #fun

When women's health loses, we all lose policyoptions.irpp.org/magazines/ma... @hollymathias.bsky.social @irpp.org 𝗠𝗼𝗿𝗲 𝗵𝗲𝗮𝗹𝘁𝗵 𝗻𝗲𝘄𝘀 ⇢ CanadaHealthwatch.ca 🍁

The latest Chapter newsletter is available! tinyurl.com/ss2mhnyf

Welcome to Winnipeg! Professional meetings have started for the Canadian healthcare providers in bleeding disorders care and community members are arriving. We can't wait to see everyone!

Fixing healthcare needs big picture planning, not jumping from crisis to crisis, says #MCHPResearch's Dr. Alan Katz' @winnipegfreepress.com op-ed, suggesting a comprehensive, milestone-based funding plan between federal & provincial governments could help. www.winnipegfreepress.com/opinion/anal...

Carney urges Canadian doctors in the U.S. to come home nowtoronto.com/news/carney-... @nowtoronto.bsky.social 𝗦𝗲𝗲 𝗺𝗼𝗿𝗲 𝗻𝗲𝘄𝘀: CanadaHealthwatch.ca 🍁

CHS-MC's AGM is this Thursday! Have you registered yet? This AGM package went out today to the initial registrants. It's not too late to join us this Thursday night. Register at: tinyurl.com/tuvnw94v

Today is #WorldHemophiliaDay. #WHD2025 is a day for everyone to learn more about women and girls with #BleedingDisorders. Join the movement and learn more about #hemophilia on the WFH eLearning center: wfh.org/education-and-elearning

🩸Is haemophilia (fe)male? Many women—especially carriers—face bleeding risks & low factor levels, yet remain underdiagnosed. Haemophilia doesn’t discriminate & neither should care. Stay tuned for new resources today! 🔗 www.ehc.eu/awareness/eh... #WHD2025 #WeBleedToo #WorldHemophiliaDay

This #WorldHemophiliaDay, we’re spotlighting the overlooked history of women and hemophilia. Experts Paula James and Megan Chaigneau join the ISTH Pulse Podcast to share insights from their powerful narrative review in @jthjournal.bsky.social 🎧Listen: bit.ly/3Ept29w #WHD2025

🌍 It’s World Hemophilia Day! Today we’re celebrating the leaders & advocates making a difference in the bleeding disorders community, like Dr. Munira Borhany. ✨ Read more about her journey to leadership in the ISTH and hematology: bit.ly/44syyTh #WHD2025 #ISTH2025 #WeBleedToo