Ilene Ruhoy MD PhD
@ruhoy.bsky.social
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Neurologist and more.
https://www.atria.org/doctors/dr-ilene-ruhoy/
www.mdpi.com/books/reprin...
8 days ago
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Ilene Ruhoy MD PhD
David Kaufman
3 months ago
Just a reminder that our Unraveled episode discussing Rapamycin, Long Covid, ME/CFS is now online:
www.youtube.com/watch?v=W_aw...
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ME/CFS, Long Covid, and Rapamycin
YouTube video by Unraveled: Understanding Complex Illness
https://www.youtube.com/watch?v=W_aw-DsQiQM
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reposted by
Ilene Ruhoy MD PhD
Jane Camino
5 months ago
@ruhoy.bsky.social
just found you from the Bendy Bodies podcast! Wow, mind blown, I learned so much!! Thank you, ordering your book now!!
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reposted by
Ilene Ruhoy MD PhD
sibylle dahrendorf
5 months ago
Talk with
@ruhoy.bsky.social
Do Not miss that! Misunderstood and Misdiagnosed: A new Look at ME/CFS
#Septad
#MCAS
#Dysautonomia
#POTS
#OI
#ConnectiveTissue
#EDS
#hEDS
#CCI
#SmallFiberNeuropathy
#Autoimmunity
#Infections
#Sibo
#LongCovid
#LongLyme
#LongSomething
youtu.be/kmrUpXZel9A?...
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Misunderstood and Misdiagnosed: A New Look at ME/CFS
YouTube video by National Headache Foundation
https://youtu.be/kmrUpXZel9A?si=fX3qBBM15I572FR8
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And a forever neurodegenerative problem
add a skeleton here at some point
5 months ago
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reposted by
Ilene Ruhoy MD PhD
sibylle dahrendorf
5 months ago
Maybe you could share this, I would appreciate it:
#documentary
#ChronicallyIgnored
@kaufmanmd.bsky.social
@ruhoy.bsky.social
@cortjohnson.bsky.social
@davetuller1.bsky.social
@owasow.bsky.social
@ahandvanish.bsky.social
@irishmecfsassoc.bsky.social
@meactnet.bsky.social
@remissionbiome.bsky.social
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youtube.com/post/UgkxSZf...
Our next Ask Us Anything! May 10th.
@kaufmanmd.bsky.social
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Post from Unraveled: Understanding Complex Illness - YouTube
NEXT LIVE (Ask Us Anything) DATE: MAY 10th, 11 am PDT Link: https://us06web.zoom.us/j/88560709706?pwd=QPz5YjGQTHI9hXmyzmZ49rZjp9HlIG.1 Bring your questions, ...
http://youtube.com/post/UgkxSZf5ISVjn31ziupPTv7c7Nlj-duMYQsl?si=-JZYpP68Sc33TKYX
6 months ago
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reposted by
Ilene Ruhoy MD PhD
David Kaufman
7 months ago
Kiss research goodbye for CFS, Covid, other emerging infections and the rapidly expanding (and devastating) world of Infection Associated Fatiguing Illnesses. More murder. RFK and Trump have blood on their hands, not that they give a shit.
insidemedicine.substack.com/p/new-a-64-p...
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New: A 64-page HHS restructuring proposal outlines sweeping cuts to US public health.
Here it is, in its entirety.
https://insidemedicine.substack.com/p/new-a-64-page-hhs-restructuring-proposal
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Long Covid is a connective tissue disease.
open.substack.com/pub/wmcresea...
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The Spike Protein, the Extracellular Matrix (ECM) and the Gut Barrier: Recruiting an Army of Pathogens
The Spike/ECM interaction disrupts the intestinal barrier allowing in an army of pathogens: Further evidence that COVID may, ultimately, be a connective tissue disease.
https://open.substack.com/pub/wmcresearch/p/the-spike-protein-the-extracellular?r=24r9fs
7 months ago
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I have so much fun chatting with David about every topic under the sun related to complex disease. We laugh, we cry, we pontificate. Subscribe today!!
add a skeleton here at some point
7 months ago
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youtube.com/post/UgkxlGf...
@kaufmanmd.bsky.social
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Post from Unraveled: Understanding Complex Illness - YouTube
RESCHEDULED!!!!!! We are sorry about having to cancel the last LIVE. But we have rescheduled for Sunday, March 23rd at 11 am PACIFIC (PST). Here is the link:...
http://youtube.com/post/UgkxlGf5Sa976NXgscBqRYPCKJAtP-ssNkIt?si=I2DDGNycPj2wRo7u
8 months ago
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@kaufmanmd.bsky.social
and I scheduled our next live Q&A session.
youtube.com/post/UgkxplE...
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Post from Unraveled: Understanding Complex Illness - YouTube
We've scheduled our next "Ask Us Anything" on March 15th for one hour at 11 am PST. We love to interact with subscribers and patients and loved ones of patie...
http://youtube.com/post/UgkxplEEssepKFQh_sWgJFAeNUTRseRtKE3h?si=ejLjsYjOlAQwIjAW
9 months ago
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My patients have a far greater chance of central causes of their sleep apnea than obstructive airways.
add a skeleton here at some point
9 months ago
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Also transforming mast cell reactivity in those with MCAS. Not yet clear if itās direct effect on mast cells or indirect from its effect on glucose regulation.
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9 months ago
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Had so much fun chatting with Dr. Bluestein on her podcast!! @hypermobilitymd @humancontentpods
drive.google.com/file/d/1nfGw...
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https://drive.google.com/file/d/1nfGwcPQB-jkf3TRWwcwnZEbs5zPoK4LZ/view?usp=drivesdk
9 months ago
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reposted by
Ilene Ruhoy MD PhD
Stace ģ“ģģ
9 months ago
#JugularVenousCongestion
#Neurology
#Neurosurgery
#LeadingExperts
#CTD
#EDS
#MCAS
I thank those who crowdsourced to make this happen. Thank you to these passionate souls for your research and dedication.
#Neurologists
needs to see this.
@ruhoy.bsky.social
@kaufmanmd.bsky.social
#Medical#Webinar
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Venous Congestion with EDS Webinar
YouTube video by Venous Congestion Committee
https://www.youtube.com/live/la3wS9OXhew?si=jdAXYyyJY8uB89ld
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Still time to register.
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10 months ago
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Spike persistence
pmc.ncbi.nlm.nih.gov/articles/PMC...
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Clinical Approach to Post-acute Sequelae After COVID-19 Infection and Vaccination
The spike protein of SARS-CoV-2 has been found to exhibit pathogenic characteristics and be a possible cause of post-acute sequelae after SARS-CoV-2 infection or COVID-19 vaccination. COVID-19 vaccine...
https://pmc.ncbi.nlm.nih.gov/articles/PMC10663976/
10 months ago
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āā¦spike protein is a highly persistent, potentially pathogenic substance that may incite inflammation and tissue damage in almost all organ systemsā¦ā
10 months ago
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www.nature.com/articles/d41...
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Air pollution and brain damage: what the science says
Epidemiological studies have linked dirty air to dementia and other brain disorders. Now researchers are trying to determine how pollutants do their damage, and how much harm they cause.
https://www.nature.com/articles/d41586-025-00053-y
10 months ago
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Podcast we recorded on SIBO just posted. Subscribe today.
youtu.be/x12FV7DdR7w?...
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Small Intestine Bacterial Overgrowth
YouTube video by Unraveled: Understanding Complex Illness
https://youtu.be/x12FV7DdR7w?si=WrXY5HygqJ1-KEcF
10 months ago
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reposted by
Ilene Ruhoy MD PhD
Isabel Ramirez-Burnett
10 months ago
Great episode. I love listening to
@kaufmanmd.bsky.social
& Dr Ruhoy, not always because they always have great info, but their style of communicating is so fun!
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New video on tick borne disease posted. Subscribe today to our YouTube channel
#Unraveled
www.youtube.com/@Unraveledpod
.
@kaufmanmd.bsky.social
youtu.be/kUdt4-jkBRM?...
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TICK BORNE DISEASE
YouTube video by Unraveled: Understanding Complex Illness
https://youtu.be/kUdt4-jkBRM?si=4kh41XLoO9gFV94-
10 months ago
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www.frontiersin.org/journals/neu...
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Frontiers | Comorbidities and neurosurgical interventions in a cohort with connective tissue disorders
https://www.frontiersin.org/journals/neurology/articles/10.3389/fneur.2024.1484504/full
10 months ago
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Venous congestion and
#EDS
webinar February 6th at 6 pm EST . Register here:
bit.ly/vcweds
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Welcome! You are invited to join a webinar: Venous Congestion with EDS Webinar. After registering, you will receive a confirmation email about joining the webinar.
Join us on February 2nd at 6 pm pm ET on Zoom for a webinar about venous congestion with a focus on EDS. This event will include a presentation from Dr. Ferdinand Hui, a panel discussion with some of ...
http://bit.ly/vcweds
10 months ago
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Great article. Need more research in to the causes and physiologic associations of chronic pain such as autonomic dysregulation which can lead to better understanding, insight, compassion, and treatment for patients.
add a skeleton here at some point
10 months ago
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By popular demand , our next live session announcement.
@kaufmanmd.bsky.social
youtube.com/post/UgkxWOg...
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Post from Unraveled: Understanding Complex Illness - YouTube
LIVE Q&A SESSION - 1/18/25. 11 am PST. Happy New Year!!!! @Unraveledpod We will do a live Q&A on January 18th at 11 am PST for one hour. Please leave questio...
http://youtube.com/post/UgkxWOgY0K_kO1XNoeR9kdObPbIHO2zhKytf?si=cfcN9SWl92yiSptI
10 months ago
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reposted by
Ilene Ruhoy MD PhD
David Kaufman
11 months ago
This is an outstanding and comprehensive review of all things (or most) ME/CFS. Also has excellent visuals to summarize things.
www.frontiersin.org/journals/imm...
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Frontiers | Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: the biology of a neglected disease
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a chronic, debilitating disease characterised by a wide range of symptoms that severely impact...
https://www.frontiersin.org/journals/immunology/articles/10.3389/fimmu.2024.1386607/full
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The galleys to my first book. Invisible No More out in June 2025. You are seen.
#chronicillness
#complexdisease
Preorder:
read.macmillan.com/lp/invisible...
11 months ago
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youtu.be/bxMu979kEz8?...
Our latest podcast. Subscribe today.
@kaufmanmd.bsky.social
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T CELL EXHAUSTION AND MORE
YouTube video by Unraveled: Understanding Complex Illness
https://youtu.be/bxMu979kEz8?si=S1I-PS3n-695HK47
11 months ago
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All the hubbub about the Beighton scale/score. Offers little insight into the true morbidity of the actual problem.
11 months ago
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reposted by
Ilene Ruhoy MD PhD
David Kaufman
11 months ago
More on MCAS in a YouTube interview I did with Dr. Funmi Okunola who runs the Long Covid-The Answers site out of Canada.
www.youtube.com/watch?v=aw-v...
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Mast Cell Activation Syndrome & Long COVID (E25) ft. Dr David Lyons Kaufman
YouTube video by Long Covid The Answers
https://www.youtube.com/watch?v=aw-vTAp5mr4
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EYE ROLLING SYMPTOMS
youtu.be/wrbPty-1aIM?...
via @YouTube
@kaufmanmd.bsky.social
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EYE ROLLING SYMPTOMS
YouTube video by Unraveled: Understanding Complex Illness
https://youtu.be/wrbPty-1aIM?si=p9pu0-dh78EMDPGy
11 months ago
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Having been part of tumor board panels as well as the subject (as a patient) of one, I canāt stress enough the importance of having doctors who care about the human being they are deciding a fate upon.
11 months ago
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medium.com/@ileneruhoy/...
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Welcome to Anthurium (anthurium.org),
Over the last 15 years of practicing neurology, and incorporating my expertise in environmental toxicology, connective tissue disordersā¦
https://medium.com/@ileneruhoy/welcome-to-anthurium-anthurium-org-7f86889ab729
11 months ago
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reposted by
Ilene Ruhoy MD PhD
Thank you! Itās an exciting project and so many great manuscripts submitted.
www.frontiersin.org/research-top...
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Neurology and Connective Tissue
Connective tissue compromise, as is seen in the heritable connective tissue disorders collectively called Ehlers-Danlos Syndrome, but also acquired connective tissue disorders as can be seen in autoim...
https://www.frontiersin.org/research-topics/58193/neurology-and-connective-tissue/articles
12 months ago
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reposted by
Ilene Ruhoy MD PhD
David Kaufman
12 months ago
Ok diving in, finally joining the world of social media. Ilene made me promise on our youtube so I cannot back out now.
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Unraveled podcast with
@kaufmanmd.bsky.social
on YouTube.
youtu.be/LRXHPmuDPnc?...
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Let's talk RAPAMYCIN
YouTube video by Unraveled: Understanding Complex Illness
https://youtu.be/LRXHPmuDPnc?si=n0yXtYyvGwSuFC0R
12 months ago
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Dr. Kaufman and I posted an Unraveled podcast episode on YouTube.
youtu.be/LRXHPmuDPnc?...
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Let's talk RAPAMYCIN
YouTube video by Unraveled: Understanding Complex Illness
https://youtu.be/LRXHPmuDPnc?si=n0yXtYyvGwSuFC0R
12 months ago
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Link to preorder my book
read.macmillan.com/lp/invisible...
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Invisible No More 9781250910912 - Macmillan
From a neurologist who diagnosed her own brain tumor,Ā Invisible No More empowers patients with chronic and complex illnesses to take their health into...
https://read.macmillan.com/lp/invisible-no-more-9781250910912/
12 months ago
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New book out:
fdslive.oup.com/www.oup.com/...
I co-wrote a chapter on MECFS.
12 months ago
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3 days without power. Cold and dark.
#seattlecyclone
Thatās my first post.
12 months ago
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