Honored and grateful to receive transformative support from the 𝗟𝗲𝗱𝘂𝗰𝗾 𝗙𝗼𝘂𝗻𝗱𝗮𝘁𝗶𝗼𝗻 of our research on 𝗙𝗶𝗯𝗿𝗼𝗺𝘂𝘀𝗰𝘂𝗹𝗮𝗿 𝗗𝘆𝘀𝗽𝗹𝗮𝘀𝗶𝗮. Excited to begin work with our 𝗔𝗟𝗜𝗚𝗡-𝗙𝗠𝗗 Network and proud to partner with Jason Kovacic, Stéphanie Debette, Nabila Bouatia-Naji, Manuel Mayr, and Mark Lindsay. #FMD

Attending the #AAEM25 in Miami? stop by booth 305 and meet Kelly to learn the latest updates on #FMD #FibromuscularDysplasia #dissection #stroke #aneurysm #SCAD

Congrats to Case Western MS2 Karen Ji on her presentation at #ACC25 ~10% of patients with multifocal FMD seen at UH Harrington HVI with comprehensive vasc imaging had aortic involvement, most commonly thoracic aortic dilation (ectasia and aneurysm); supports head to pelvis imaging #cardiosky

#ACC25 @2scottish.bsky.social higher TMAO levels associated with more rapid infrarenal AAA growth…emerging marker for risk stratification #CarsioSky

Rare diseases can impact anyone, anywhere. Our disorders may differ from one another, but we share the experience of being on a rare journey. We understand one another. This #RareDiseaseDay, get to know us: rarediseases.org/rare-disease...

I signed the petition. Our lives matter! #FMD #rarediseases

Every parent knows this feeling: Please let my child be healthy. But 15 million kids in America face the challenges of life with a #RareDisease, a diagnosis that turns parents into fierce advocates. Read one family’s story: www.bostonglobe.com/2025/02/20/m... @bostonchildrens.bsky.social

Done. Will you get involved?

Rare patients and families cannot afford delays or obstacles to receiving quality #healthcare. Take action now and urge Congress to prioritize several pieces of lifesaving #RareDisease legislation this #RareDiseaseDay, February 28. All it takes to send your message is one minute: bit.ly/41ytHhR

Radiological insights into fibromuscular dysplasia unveiled by intracranial aneurysms and iliac vein hypoplasia in suspected DVT https://pubmed.ncbi.nlm.nih.gov/39845280

Karena is an amazing advocate. I wish she never had to experience the pain and loss of her sister. We need more research, awareness, and education of #FMD. With so many newly diagnosed patients we have to do better.

#RadSky #Radiology #PedsRad #Education Pediatric Imaging 7 y/o with hypertension. Angiography - Segmental renovascular stenosis (blue) with intervening aneurysms (red). Gold Standard - Catheter based angiography Fibromuscular dysplasia pmc.ncbi.nlm.nih.gov/articles/PMC...

Resistant Renovascular Hypertension in Youth: Fibromuscular Dysplasia or Takayasu Arteritis? https://pubmed.ncbi.nlm.nih.gov/39834060

This is a very well done video on Fibromuscular Dysplasia by @jasonkovacic.bsky.social

Recently Published: Integrative gene regulatory network analysis discloses key driver genes of fibromuscular dysplasia dlvr.it/TDDm4k

Radiological insights into fibromuscular dysplasia unveiled by intracranial aneurysms and iliac vein hypoplasia in suspected DVT

At least 24 million people in the U.S. have caught the #flu so far this season, and that number only continues to climb. time.com/7221325/why-...

How a heart medication—digoxin—might help prevent cancer spread by dissolving clusters of circulating tumor cells www.nature.com/articles/s41...

A total of $12 million in grant funding is available to fund 3 investigators/investigative teams proposing novel uses of Artificial Intelligence to revolutionize cardiovascular and cerebrovascular/brain health and health care delivery. Learn more: professional.heart.org/en/research-...

Painful, chronic peripheral neuropathy from cancer chemotherapy is common, especially from platinum-based drugs and taxanes, as reported today in a meta-analysis of 77 studies from 28 countries

JCI Insight - Map2k6 is a potent genetic modifier of arterial rupture in vascular Ehlers-Danlos syndrome mice insight.jci.org/articles/vie...

A randomized trial showed Factor XIa inhibitor (abelacimab) compared with the currently used Factor Xa blocking agents (rivoroxaban) for atrial fibrillation led to significantly less bleeding events, leading to early trial termination nejm.org/doi/full/10....

Agree 💯 that more work is needed to address gaps in women's health research in the recent National Academies report, including CVDs. www.science.org/content/arti... nap.nationalacademies.org/download/28586

www.ahajournals.org/doi/10.1161/... #FMD

www.sciencedirect.com/science/arti... #SCAD

#SGLT2 inhibitors are key in preventing adverse CV events & improving outcomes in patients w/ heart failure, diabetes & chronic kidney disease. Explore the updated #CardioSmart SGLT2 inhibitor package w/ an infographic, discussion guide, & more. bit.ly/3PssDFq #CardioSky #MedSky

Our Managing Blood Pressure for #AorticDissection Patients guide is now available. Packed with expert advice and practical tips, including a recording of our webinar featuring Dr Vikas Kapil & patients discussing key topics & answering questions. Register for free to access the guide. tadct.org/BP

We received so many text & emails this evening. Patients have so many questions and appreciate these informative meetings. Thank you!

I will speak about "Genetics and Genomics of FMD and SCAD: What Patients Should Know" at the FMD and Arterial Dissection Support Group Webinar Tuesday, November 19, 2024. Look forward to updating and answering questions. Registration link: www.fmdsa.org/fmd-and-arte....

Patient focused discussion on vascular disease in women. NOW 945 At Heart Theater 2 #AHA24 terrific to see patient advocates from FMDSA SCADAlliance here to share experiences with #FMD #SCAD #cardiosky

#FMD research and the North American Registry for FMD representing at #AHA24 #CardioSky

Dr Jason Kovacic on complex genetics of FMD and SCAD. Likely many common variants involved more than rare mutations. Current clinical genetic testing low yield in most cases but can be offered to some patients #AHA2024 #Cardiosky

Dr Ouzounian reviews sex based differences in aortic disease in women. Lower prevalence of an aneurysms disease but worse outcomes with aneurysm and dissection #AHA24 #Cardiosky

Dr LeLeiko reviews guidance on hormones/OCP post SCAD. Current consensus for post SCAD contraception is partner vasectomy, tubal ligation, progesterone IUD. Limited date to support recs on menopausal Rx; case by case risk benefit discussion #AHA24

Once again, the 🧬 predicted the trial results. PCSK9 inhibition to prevent abdominal aortic aneurysms #CardioSky #GWAS

Congratulations to the 2024 Distinguished Scientists, 6 individuals who have significantly advanced our understanding of cardiovascular, stroke or brain health. We’re grateful for their contributions#AHA2424

At #AHA24, Dr. Nanette Wenger reminds us we’re all ‘standing on the shoulders of giants’ in healthcare. As we celebrate 100 years of Scientific Sessions, we honor the pioneers who paved the way and look ahead to a new century of innovation.