Just posting this starter pack for #PancSky again as I have added more people - let me know any other islet/pancreas scientists I've missed! go.bsky.app/3wdSpdi

Congratulations also to @agathacrispie.bsky.social on her award - very many congrats, Lisa! It was hard work, wasn’t it?!

Thank you University of Oxford for awarding me this prize - I hope both this prize and publication of my work will raise awareness of the knowledge and expertise of people living with type 1 diabetes and long-term health conditions @oxprimarycare.bsky.social www.phc.ox.ac.uk/news/nadia-s...

I think the term ‘knowledge broker’ is an interesting one - to me the ‘broker’ element always has tones of ‘closing the deal’ which might be a bit limiting - what do people think?

Thanks @drlindadykes.bsky.social for drawing attention to the ‘intertwined downward spiral’. Some days that spiral feels like a vortex, from a patient perspective. Spent today arbitraging primary, secondary care and pharmacy trying to get urgent ‘out of stock’ medication. Insulin vials. Failed.

Pleased to see @bmj.com taking a second look at our paper on patient safety - such an important topic

Hello Dan - nice to see you here!

Thanks for this article, Dana. Quite worrying when AI starts inventing its own medical consultation notes, isn’t it? It’s also so difficult to get mistakes on medical notes corrected, in my experience :/

I like the look of this starter pack, @charliepsych.bsky.social !

Hi Alyssa - thanks for posting this @pumptasticscot.bsky.social - a useful summary and a great chart from @dsnforumuk.bsky.social

I have just made a feed for the hashtag #T1D this will show all posts on Type 1 Diabetes. If people like it I can make a #GBDoc and #dedoc feeds. This might be useful for when #dedoc go to conferences so you can follow dedoc voices posts on Bluesky. bsky.app/profile/did:...

This is great for finding people!

You’re right, Tim, this is a huge development, making a recommendation for clinicians to support those using open-source closed-loop. Amazing, indeed!

I’m sure @jsmhoughton.bsky.social would agree!

Thanks for this list!

I love the ‘advanced technology is just like magic’ quotation - magical ✨ was the word I used at 3am the first night I watched a hybrid closed-loop system do my ‘keep my child alive at night’ job. Then the alarms started going off and it was more like the tech ‘giveth’ and ‘taketh away’ quotation!

Amazing job, Miles and great support from @jsmhoughton.bsky.social You must have had to eat a lot of jelly beans! I loved your video - and the great tech that supported you all the way #medtech

Enjoying this one, Tom, thanks!

Reposting for those who asked me for link

As per my earlier post - definitely worth a listen!

Utterly inspiring chat/podcast from @diabeteschat.bsky.social, @liameaglestone.bsky.social + @loopingntheloup.bsky.social last night (both #T1D + #T1Dkids)- from the ‘residual tiredness on your soul’ of shiftwork caring to tales of Trio - a self-built, open-source fully closed-loop system #medtech

Reposting @poemplaynovel.bsky.social request - SugarPixel glucose alarm clocks are REALLY loud - and I think there are bedmats you can rig up. We put vibrating phone on a metal box and it wakes me from next room #T1D and #hearingloss in this house, so really understand your concern!

Hello @susannahrfox.bsky.social - good to see you here - I loved your book Rebel Health! #patientled

Great starter pack from @downing.bsky.social #patientled go.bsky.app/GLsZaVm

Now with link - thanks @oohgpwales.bsky.social pubmed.ncbi.nlm.nih.gov/38050161/

For those who care - good section at the back for HCPs also

While safety incidents are extremely rare in remote primary care, deaths and serious harms have resulted. We offer suggestions for patient, staff and system-lev… Just reposting our recent paper on #patientsafety here

Thought this was an interesting article @uclpolicylab.bsky.social and thanks for the repost @drannemurphy.bsky.social. Young people living with #T1D often fall into the hole between teaching staff and SEND and it’s a constant battle for ‘reasonable adjustments’

Hey Chris - yes we are here on Bluesky #T1D and I am sure a few of us can help you out. The horror of hypos underwater is a big fear, isn’t it? And tech coming unstuck - in all senses of the word! Not really a holiday - more a change of location?

Good to find you here @jasmineschipp.bsky.social. ‘Psychic weight’ is a brilliant phrase. My brother-in-law died because he was not ‘good at math’ #T1D and I am up at 3am (again) fiddling with correction factors to make sure same does not happen to my son

Hello @nationalvoices.bsky.social - good to see you here!

Hi @sarariggare.bsky.social - good to see you here!

Thanks for this Melissa @sweetlyvoiced.bsky.social - I like the idea of #DSky 💙

Thanks @sabasalman.bsky.social and @profkrc.bsky.social for sharing this - these spinning plates speak to anyone in a caring role, I think. It’s relentless, but on that rare occasion they all spin at once, you can but wonder at their glorious bright colours

Amazing work, Kes and team!

Thanks for this, Sarah and welcome to Bluesky @breakthrought1d.bsky.social

Thanks Rob - useful for UK interested #medsky people

Interesting article from @ranaawdish.bsky.social on the impact of language in the clinical encounter - something that speaks to me in the context of chronic conditions such as #T1D, with its clinical focus on blood glucose ‘control’. Not keen on ‘chronic’ either!

Over a million a day - love that 🦋

We are here! By popular request, we've created an account here on Bluesky. Please follow us, and tell others we are here. Let's build a community on Bluesky, and create a safe space for all thing Diabetes 💙 #GBDoc #Diabetes #PeerSupport #T1 #T2 #LADA

Thanks for this starter pack, Laura @nadiaswann.bsky.social

Thanks for this starter pack, Marta

You are right, Sarah - this is a fantastic resource - Digibete are great! #T1D

Love this #PhilTech starter pack, Ashley!

Love this #patientsafety starter pack - thanks James!

I couldn’t agree more, Liam - what a trio!

youtube.com/watch?v=nJ09... Today is World Diabetes Day. Please watch the 2min film we made. It packs a punch.

Great starter pack!

Thanks, Trish, for posting this - a film very close to my heart