MassME is proud to sign on to this letter encouraging subgroup tracking and analysis in the NIH RECOVER TLC clinical trials for Long COVID. massmecfs.org/advocacy/nat... #massmecfs #MEAction #SolveMe #openmedicinefoundation #batemanhornecenter #renegaderesearch #redefiningmecfs #corecommunity

This is the first strong evidence of a genetic contribution to #PEM in #MECFS. Full publication: translational-medicine.biomedcentral.com/articles/10....

OMF Collaboration Investigates Molecular Basis of Post-Exertional Malaise (PEM) 👉 Read more from Dr. Moreau: www.omf.ngo/haptoglobin-.... Key findings: ➡️ After a mild stress challenge, #pwME showed a sharp drop in haptoglobin (Hp) levels, while healthy controls did not. (1/2)

OMF has now received approval from the NIH to access plasma samples collected via the Chronic Fatigue Initiative, bringing the total number of samples for our large-scale ME/CFS biomarker project (BioQuest) to 1,000. 👉 Read the latest BioQuest update: www.omf.ngo/bioquest-upd....

Latest news, MassME events, research studies and more... massmecfs.org/resources/ne... #massmecfs #MyalgicEncephalomyelitis #MECFS #fibromyalgia #longcovid #chronicfatigue #chronicillness #invisibledisablity

MassME: A Home Base for People Affected By ME/CFS Explore our August Newsletter massmecfs.org/resources/ne... #massmecfs #MyalgicEncephalomyelitis #chronicfatigue #longcovid #fibromylagia

Today is Severe ME Awareness Day We see you. We know your suffering. We are here for you. massmecfs.org #massmecfs #MyalgicEncephalomyelitis #mecfsawareness #SevereME #SevereMECFS #severemeday #severemecfs

The Boston Waterfront 5K fundraiser was a huge success! Enormous thanks to all participants: team members, those who came out to cheer, those who got the word out and cheered from home, and of course, all 200 generous donors. THANK YOU! Watch our video recap: www.youtube.com/watch?v=jHhT...

It's hot but we're not gonna stop! Check out the latest news: massme.monkeypod.io/mailcoach/we... #massmecfs #MECFS #fibromyalgia #longcovid #invisibleillness

Our Spring Fundraiser culminates this Sunday at the Waterfront 5K Run/Walk/Roll. We need your help to reach our goal! If you haven't yet donated, please do so today. Thank you! donate.hakuapp.com/donations/ne... #massmecfs #mccourtfoundation #bostonwaterfront5k #chronicfatigue #mecfsawareness

Newsletter time! Check it out! 📰👀 massmecfs.org/resources/ne... #massmecfs #chronicfatigue #MyalgicEncephalomyelitis #fibromyalgia #longcovid #chronicillness

And even more, I hope everyone will check out the Selin Lab website (link here: www.umassmed.edu/selinlab/) so they can learn more about our work, and then… yes, then DONATE! Your donations allow this dedicated team of researchers to continue with their important work. Let’s find some answers!

I hope everyone also watches the SolveME webinar of April 29, 2025, to hear more from Liisa Selin MD, PhD, Anna Gil PhD & Roshan Kumar PhD. You also hear from both me & Megan Fitzgerald, the 2 Patient Reps on this exciting research project. The webinar is here: www.youtube.com/watch?v=2DQZ...

Thx, @cortjohnson.bsky.social, for writing about the groundbreaking researchers Liisa Selin MD, PhD, Anna Gil PhD & Roshan Kumar PhD. I am lucky to get to work w/ them. “Finding the Key? Could Unraveling T-cell Exhaustion Solve ME/CFS and Long COVID” www.healthrising.org/blog/2025/05...

ER visits can be tough with #MECFS and #LongCOVID. This popular MERC's guide helps providers manage OI, MCAS, sensory concerns & more. 💙 Download & share this resource: ow.ly/NPLa50VS14e @batemanhornecenter.bsky.social #MERC #MedEdMatters #pwME #pwLC #UrgentCare

🧬Science Wednesdays Clinical trials are critical for identifying and implementing effective treatments for diseases like #MECFS and #LongCOVID. Learn about different types of clinical trial design and explore the LIFT protocol paper👉 www.omf.ngo/types-of-cli....

1/2 We are excited to launch our new website today, marking International ME Awareness Day. You will find us in the same place — massmecfs.org — with a fresh new look and easier navigation to the information, resources, events, and services you need. Let us know what you think!

MassMe has again arranged for several bridges in MA to be illuminated in blue on May 12. Boston, Cambridge-> the Zakim & Longfellow Bridges. Worcester->the Burns Bridge, Quincy->the Fore River Bridge Be sure to tag us @massmecfs if you post a photograph! #WorldMEDay #MEcfs

Happy to share BHC's incredible work! @bateman_horne_center has launched the Clinical Care Guide for ME/CFS, Long COVID, and IACCs—a practical, evidence-based resource for healthcare providers.

Watch Now! "Twisted Connections: The Dynamic Relationship of ME/CFS and Hypermobile Ehlers-Danlos Syndrome" Sunday, April 27, 2025, 4 p.m. Eastern Time www.youtube.com/watch?v=GtkV...

Register Now for Sunday Conversations: "Twisted Connections: The Dynamic Relationship of ME/CFS & Hypermobile Ehlers-Danlos Syndrome" 4/27 @ 4pm EST. Program is free and open to all. www.massmecfs.org/news-events/... #massmecfs #MECFS #chronicfatigue #ehlersdanlos #ehlersdanlossyndromeawareness

It’s newsletter time and we have it all: Events, Advocacy, News, and more! massme.monkeypod.io/mailcoach/we... #massmecfs #MECFS #chronicfatigue #fibromyalgia #longcovid #chronicillness

We are here for you. massmecfs.org

Today is International Long COVID Awareness Day. Please take a moment to watch this video from the Long COVID Physio group. www.youtube.com/watch?v=dmxp... Long COVID and ME/CFS share many of the same symptoms. To all the patients and caregivers, we see you. #mecfs #longcovid #longcovidawareness

Long COVID and ME/CFS have so much in common. We see you! #massmecfs #MECFS #chronicfatigue #longcovid #longcovidawareness #longcovidawarenessday

Catch up on all the news: Events, advocacy Long COVID awareness & more Copy and paste or click the link in our profile: massme.monkeypod.io/mailcoach/we... #massmecfs #LongCovid

*Important: Schedule Change for our Gen Z/Millennial Wellness Workshop* The group will now meet on Saturday 3/15 and 4/12 at 10:30am ET. This is a free program open to MA residents. www.massmecfs.org/news-events/... #massmecfs #MECFS #fibromyalgia #chronicillness #longcovid #chroniclyme

New England Meetup for those with ME and chronic illness. Registration is ongoing, Join us! www.massmecfs.org/news-events/... #massmecfs #MyalgicEncephalomyelitis #chronicfatiguesyndome #invisibleillness #pots #longcovid #fibromyalgia

We are busy this month! 2 new groups for Millennials and Gen Z, new social media, and more! Read all about it in our Feb newsletter: massme.monkeypod.io/mailcoach/we... #massmecfs #MECFS #fibromyalgia #chronicillness #longcovid #pots #invisibleillness

We are excited to share that we have 2 new groups for our Millennials & Gen Zers. Register for one or both, the only restriction is where you live. www.massmecfs.org/news-events/... #massmecfs #MyalgicEncephalomyelitis #chronicfatigue #longcovid #chronicillness #pots #chroniclyme #fibromyalgia

Time to sit by the fire and check out our January Newsletter! massme.monkeypod.io/mailcoach/we... #massmecfs #MECFS #chronicfatigue #longcovid #invisibleillness

This Sunday! Join in conversation with people who understand. All are welcome and the program is free. Sunday Conversations: “Going into the new year, what are your hopes and dreams?” A community conversation focusing on positive visions for the coming year. Jan 19, 2025, 4pm ET