PaPaCarl (@papaherz.bsky.social)

Story about my autistic grandson, Paxton Purdy, who has a terminal genetic mutation called CLCN6. Now he’s at real risk of losing grants for his life saving gene therapy and for what? So billionaires can have more yachts! I just want to hang my head and cry! www.cbsnews.com/losangeles/n...

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Family raises money for son's gene therapy and clinical trial to treat rare genetic mutation Paxton Purdy's parents said he has an ultra-rare neurodegenerative genetic mutation. They hope they can raise enough money to cure it and help children in similar situations. https://www.cbsnews.com/losangeles/news/family-raises-money-for-sons-gene-therapy-and-clinical-trial-to-treat-rare-genetic-mutation/