Our evidence-based rebuttal to *that* BMJ opinion piece published last week. This has been authored by a coalition of 19 doctors, scientists and patient advocates from around the world, with now 80+ signatures of support from the scientific community. www.bmj.com/content/389/...

Today is #InternationalMEawarenessDay recognising the #MillionsMissing with #MECFS. One story from NZ documenting how families have to create their own health system. www.youtube.com/watch?v=DsOA...

"Both #LongCovid and #MECFS are under-recognised, not because they are rare, but because clinicians lack the tools and training to adequately detect the systemic dysfunction they reflect" @drannanz.bsky.social on how New Zealand’s Long Covid blind spot has now reached crisis levels #pwME 🇳🇿

Honoured to represent Aotearoa NZ 🇳🇿 on the 🌏 stage as part of the lead authorship team behind this global #LongCovid consensus 28 countries, 179 experts representing clinicians, researchers & lived experience. An important step toward better care, research & recognition doi.org/10.1186/s129...

📣 It’s finally out out - initial guidance to address the spectrum of LC as a disease & reinforces the need for translational research & large-scale treatment trials for treatment protocols. 🌍 🫶🏼 🙏 to the 179 exerts who collaborated from 28 countries ann-clinmicrob.biomedcentral.com/articles/10....

Really good interview with @drannanz.bsky.social this morning on #LongCovid Is NZ the worst country to have Long Covid? www.rnz.co.nz/national/pro...

2/ This week Dr Anna Brooks @drannanz.bsky.social and Rohan Botica from DysImmune Research Aotearoa followed up in response. www.rnz.co.nz/national/pro... #longcovid #MEcfs #PwME #CFS

My co-founders of dysimmune.nz on Radio NZ. "Rohan Botica and @drannanz.bsky.social are two of the founders of DysImmune Research Aotearoa focusing on immune dysfunction research to help understand, diagnose, treat post-acute infection syndromes." #LongCovid #MECFS www.rnz.co.nz/national/pro...

Co-founder of www.dysimmune.nz writing an opinion piece in The Spinoff — "almost five years into the pandemic, not only are there still no treatments for #LongCovid, there aren’t even any diagnostic tools – and we don’t seem overly interested in finding them." thespinoff.co.nz/science/30-1...

Long COVID manifests with T cell dysregulation, inflammation and an uncoordinated adaptive immune response to SARS-CoV-2 Cause and consequences. LC individuals exhibited systemic inflammation and immune dysregulation. @NatImmunol www.nature.com/artic... 1/8

Fantastic interview with @edyong209.bsky.social — more timely with today's publication of one of the first major #LongCovid papers for 2024. The psychosomatic model for #MECFS has caused immense harm to patients, families, medicine itself and society generally. www.nature.com/articles/s41...

Applications for this @salivadirect.bsky.social role are still possible by sending a CV, cover letter, and salary requirements to [email protected]. This is an exciting role to help guide future scientific activities and collaboration in the saliva space! docs.google.com/document/d/1...

Please share! Non-profit SalivaDirect, Inc. is seeking a Scientific Director to lead all things research, development, and collaboration. This remote role will work closely with and be supported by some truly incredible colleagues. www.linkedin.com/jobs/view/37...

#LongCovid & #MECFS biomed research 🇳🇿 🚨Reminder for those in Ao/NZ. We are still recruiting for our biomarker discovery study 🚨We have exciting intl collaborations to explore immunometobolic dysfunction, but just lack 💰 support to operate at pace 🚨To sign up or find more info: www.pvra.nz/donate

#LongCovid & #MECFS biomed research 🇳🇿 🚨Reminder for those in Ao/NZ. We are still recruiting for our biomarker discovery study 🚨We have exciting intl collaborations to explore immunometobolic dysfunction, but just lack 💰 support to operate at pace 🚨To sign up or find more info: www.pvra.nz/donate

Long Covid research: "We call for a moonshot for long COVID, a commitment — from the US govt - to invest at least US$1 billion annually over the next 10 years to address the problem..." NZ govts investment in #LongCovid biomed research to date? Approx $0 www.nature.com/articles/d41...

Just getting started over here! Hi bluesky peeps! 👋🏼

A new study suggests people with long covid are experiencing a serotonin reduction triggered by remnants of the virus lingering in the gut, which could explain memory problems and some neurological and cognitive issues. 📰