From the #CRAEwebinar archives Considering the impact of alexithymia alongside autism with Geoff Bird (2-May-2024)

I really enjoyed your talk. I’m always very curious about co-occurring connective tissue disorders but the anxiety angle hadn’t landed before. You’re doing such important work. We need to be so vigilant for diagnostic overshadowing and our own biases.

The ADHD & Women Summit! Our Chair Jane Green MBE, spoke on “Brain Body Burnout - Your Body Is Talking, But Can You Hear It?” Thank you Seed Talks for hosting such a fantastic event! @jgjanegreenmbe.bsky.social

@jgjanegreenmbe.bsky.social fabulous talk this morning. A really useful reframing of how the common signs of ‘anxiety’ when a child or young person is struggling with school can actually be signs of a connective tissue disorder and/or living with chronic pain

Just over 1 week to go until the @ehlersdanlos.bsky.social Society EDS ECHO Summit: Mental Health! With our chair @jgjanegreenmbe.bsky.social ⁠ 🎟️ Register now (or apply for a scholarship) at www.ehlers-danlos.com/eds-echo-sum... “

Last chance to get tickets! Seed Talks presents The ADHD & Women Summit - London With our chair Jane Greenmbe SedsConnective and many others on November 1st. Jane will be speaking on body brains burnout - Your Body is Talking But Can You Hear It? Grab yours here: ow.ly/MgLx50XaFkQ

I am delighted to be presenting in keynote panel on Education, neurodivergent children, school attendance, 'avoidance' and support 10th November as closing speakers. #SEND #EBSA #psychology @sedsconnective.org @bpsofficial.bsky.social

I will be talking about #ADHD: the body is talking but can you hear it ? All ages #hypermobility

“Who’s avoiding what”? BPS CYPF Annual Conference 2025 10th November London - Beyond the Label: Getting It Right for Neurodivergent Young People!

Language with our chair @jgjanegreenmbe.bsky.social ♾️🦓

That is me ‘off the cuff’ but let’s move on

Looking forward to the live #ADHD women summit hybrid event www.eventbrite.co.uk/e/the-adhd-w...

3 years ago! You can find the education paper here 👉 www.tandfonline.com/.../10.../13... @jgjanegreenmbe.bsky.social @bendybrain.bsky.social

“Why did that hurt so much?” Others might say you’re overreacting. But they don’t see the storm inside. www.sedsconnective.org/post/rejecti...

Two years ago today, I was honoured to receive my MBE for services to neurodivergent people and those with joint hypermobility conditions and Ehlers-Danlos syndromes. This moment was not just personal but a milestone for our community. Since then,

SEDSConnective We Are All This + OCTOBER is Awareness for month, Week, Day www.sedsconnective.org

I am!

Sadly, comments have been made by a highly influential person linking autism to paracetamol use in pregnancy.

Patrons United! @bendybrain.bsky.social 🙏

Follows on partly from earlier study on longcovid and j.hypermobility and those with CFS ME fibromyalgia are likely to have our connective tissue differences. Join us for the new path

SEDSConnective is delighted to be opening the nearly yearly long awareness events for carers with Chair @jgjanegreenmbe.bsky.social on neurodivergence/hypermobility education, neuroscience, employment, health, caring in Wales Credu you can book tickets below

NEWS! 📢 We are thrilled to announce our new patron Dr. Zachary Spiritos! Based in North Carolina Dr. Spiritos is a gastroenterologist with expertise in dysautononia, POTS, MCAS & mobility disorders such as EDS. Watch our Instagram live here 👉 youtu.be/HLfJK9E_rXE?... @jgjanegreenmbe.bsky.social

ADHD Your body is talking but can you hear it ? November 1st live and streamed

Vitamins, supplements and depression 'A magnesium deficiency will increase the breakdown of collagen, promote inflammation and increase the risk of injury in people with healthy collagen' by C Harris , Dietitian Read here: www.sedsconnective.org/post/vitamin... #Magnesium #Depression #Dietitian

Today on #WSPD we spotlight a hidden but urgent link between Ehlers-Danlos syndrome (EDS) neurodivergence & suicide risk. Changing the narrative on suicide requires systemic change. It's about shifting from silence & stigma to one of openness, understanding & support #WorldSuicidePreventionDay #EDS

📢Amazing opportunity to join and steer SEDSConnective Please apply to [email protected] or reachvolunteering.org.uk/opp/treasurer-… reachvolunteering.org.uk/opp/vice-chair�#charity##trustee#trustee

📢Exciting news coming soon! We'll be back with a big announcement over the next few days. Stay tuned! #Hypermobility #EDS #HSD

I wish I could send this to every doctor in the land. We have a family member profoundly affected. Joined-up care, NHS or private, seems to be as rare as hen's teeth in the UK. @sedsconnective.org www.sedsconnective.org/post/researc...

It is an issue but maybe due to more than they think! Learn about hypermobility (all systems) neurodivergence (autism ADHD +) and how it can cause changes after an injury or infection senmagazine.co.uk/autism/26058... #schools

Disability neurodivergence exhibition VA www.vam.ac.uk/whatson

📣 We are delighted to announce our next adviser is Professor I C Chikanza, Consultant Physician and Rheumatologist, #EDS internal medicine, autoimmune disease, arthritis, both adult and paediatric (children young people) SEDSConnective #hEDS #hypermobility #medical HSD

This is great but hope that the age range for research changes and actually at least (ideally coproduction) involves user led charities going forward at the intersection of neurodivergence and health (hypermobility) @sedsconnective.org www.theguardian.com/society/2025...

What is happening? A lot of neuroscience research and support from neurodivergent and allies. But,

My eldest is still looking for work. HR ai is not helping re CVs. Neurodivergent and LD

New PhD study email: [email protected]. Are you autistic?

Overly flexible tissue can also not only result in significant amounts of chronic pain, but may also produce dysautonomia (dysregulation of autonomic functions, such as maintaining appropriate blood pressure upon standing), proprioceptive issues, and anxiety”

📢Thrilled to announce our new advisor, Michael Dare, consultant physiotherapist in rheumatology and currently studying a 🦓 PhD in #hEDS (hypermobilityEhlers-Danlos Syndrome). We're excited to have him on board 🦓 #physiotherapy #rheumatology

Did you know that blood tests for inflammation can be consistently high yet still fall in the normal range? This study found that pattern in individuals with both ME/CFS & fibromyalgia and also hypermobility @bendybrain.bsky.social @jgjanegreenmbe.bsky.social 👉 www.youtube.com/watch?v=H9Mt...

Overly flexible tissue can also not only result in significant amounts of chronic pain, but may also produce dysautonomia (dysregulation of autonomic functions, such as maintaining appropriate blood pressure upon standing), proprioceptive issues, and anxiety”

www.mdpi.com/2077-0383/14... Here is the full paper 🦓♾️

📢 Validation Breaking news : Biggest Global survey in the world just published by Norris Lab on #hEDS #HSD symptoms/conditions + Neurodivergence! www.sedsconnective.org/post/researc...

How Covid-19 gave rise to symptoms echoing what many in our community have experienced for decades. But above all, it was about community, collaboration and wanting to make a real difference powered by evidence, passion, incredible efforts of clinicians, educators volunteers (not all in photos)

August is #Gastroparesis awareness month! #GP Gastro means stomach, Paresis means weakened muscle. Do you know about this or have these symptoms? www.sedsconnective.org/post/august-...

So important to remember the gastric symptoms of connective tissue disorders, common in autistic people.

Honoured to be at my MBE investiture (2023) for services to neurodivergent people & those with joint hypermobility & Ehlers-Danlos syndromes. Grateful this voluntary work & recognition for issues historically & still dismissed was recognised. #EDS #JH #neurodivergence #MBE @sedsconnective.org

To read more about it www.sedsconnective.org/post/what-is...

It suggests it’s part of a bigger illness PAIS. It states many ME/CFS also have Ehlers-Danlos Syndromes (EDS), Joint Hypermobility (JH), ADHD, ADD, migraines, POTS MCAS (Dysautonomia) maybe shared causes like problems with the immune or nervous system! www.pnas.org/doi/10.1073/...

Our Chair @jgjanegreenmbe.bsky.social was invited to talk by @efna.net at the recent @ean.org congress in Helsinki (EAN TV) an important and truly inclusive event hosted by the EAN. Watch the full video ‘EFNA: Health Literacy for Ethical Clinical Outcomes’on our YouTube youtu.be/FpGbEjkArp8?...

Our cat is missed RIP Timo x

'People with EDS were over 7 x more likely to be dx Autistic &5 x more likely ADHD, Cerdolof et al(2016). This is why it is so important to keep the diagnosis pathway for #EDS #HSD #Autism #ADHD ➡️https://www.sedsconnective.org/post/ehlers-danlos-syndromes-links-to-autism-and-adhd