We are www.sedsconnective.org the pioneering grassroutes charity for hypermobility and neurodivergence. Can you help us 😊 #volunteers

Join us in making a difference! Taking part in any fundraising activities? Think of SEDSConnective, the first Hypermobility (EDS, Mcas, POTS) and Neurodivergence user led Charity. Help us to share our cause with your network 🙏

• 🎯 Aged 18–25 • 🏫 Attended secondary school at least a year • 🧠 Diagnosed Autistic and/or ADHD • 🩺 Told by health professional you are likely to have hEDS/GJH or have a formal diagnosis #neurodivergence 📩 Email or QR flyer [email protected] or go to our website SEDSConnective.org

USA Identify as Autistic Identify as a gender other than what was assigned at birth Live in the U.S.A only Able to complete an online survey in English Survey: Anonymous Takes ~10 minutes Multiple choice with one short answer IRB approved Link here : www.surveymonkey.com/r/6TWP78T

🇺🇸 Participants: 18+ Identify as Autistic Identify as a gender other than what was assigned at birth Live in the U.S. only Able to complete an online survey in English IRB approved Link here surveymonkey.com/r/6TWP78T

Join us in making a difference! Taking part in any fundraising activities? Think of SEDSConnective, the first Hypermobility (EDS, Mcas, POTS) and Neurodivergence user led Charity. Help us to share our cause with your network 🙏

Please watch @bendybrain.bsky.social chat with our chair @jgjanegreenmbe.bsky.social about pain, getting ill, being a ‘bad’ person, mother employee & how she crashed out & our charity was born as no one would talk about the connections bit.ly/4cx4qtF #Autism #ADHD #Dyspraxia #Dyslexia #Dyscalculia

Lovely photos from World Health Day event today at K2 Crawley 😊

Support the community User-led charity making health & science make sense for neurodivergent and hypermobility communities Together for Health Stand with Science Stand with SEDSConnective

Our next Mid-Sussex Support Meeting is tomorrow 7th April 2026 | 10am - 11:30am | The Brickworks, Burgess Hill, RH15 9LH | No diagnosis needed and no tickets needed! View event on our website here: https://www.sedsconnective.org/event-details/support-meeting-in-burgess-hill-2026-04-07-10-00

Happy Easter from all at SEDSConnective 💛

Join us in making a difference! Taking part in any fundraising activities? Think of SEDSConnective, the first Hypermobility (EDS, Mcas, POTS) and Neurodivergence user led Charity. Help us to share our cause with your network 🙏

#AutismAcceptanceDay April 2nd is about autism acceptance, except we also want awareness for the autism body health, including hypermobility. #Autism #Autistic

A Finnish study found no risk of psychosis for #ADHD children taking Methylphenidate jamanetwork.com/journals/jam...

Our newsletter is coming out soon! You can sign up here - www.sedsconnective.org 🙏

Probably not the only one ?

Our chair/founder @JGjanegreenmbe.bsky.social was invited by ADHD360 clinic & Jo Platt MP for the #ADHD event raising awareness, lived experiences with Dr Ahmed Under Parliamentary Minister for Health Innovation and Safety at the HouseofCommons March 26th #neurodivergence #hypermobility

Join us in making a difference! Taking part in any fundraising activities? Think of SEDSConnective, the first Hypermobility (EDS, Mcas, POTS) and Neurodivergence user led Charity. Help us to share our cause with your network 🙏

Join us in making a difference! Taking part in any fundraising activities? Think of SEDSConnective, the first Hypermobility (EDS, Mcas, POTS) and Neurodivergence user led Charity. Help us to share our cause with your network 🙏

• 🎯 Aged 18–25 • 🏫 Attended secondary school at least a year • 🧠 Diagnosed Autistic and/or ADHD • 🩺 Told by health professional you are likely to have hEDS/GJH or have a formal diagnosis #neurodivergence 📩 Email or QR flyer [email protected] or go to our website SEDSConnective.org

Neurodivergent and disabled staff in schools. Probably more than 6 adjustments needed but at least it was a start and this is still useful schoolsweek.co.uk/the-knowledg...

Please take a moment to watch Episode 3: Jane Green MBE – Founder of SEDSConnective on her Remarkable Journey. Our charity is mentioned in the episode and it’s a really inspiring conversation about Jane’s work and the growth of SEDSConnective. 👉 https://youtu.be/Pr2ZFJOYPYw?si=vrclZrZAcbi9A

Join us in making a difference! Taking part in any fundraising activities? Think of SEDSConnective, the first Hypermobility (EDS, Mcas, POTS) and Neurodivergence user led Charity. Help us to share our cause with your network 🙏

Please take a moment to watch Episode 3: Jane Green MBE – Founder of SEDSConnective on her Remarkable Journey. Our charity is mentioned in the episode and it’s a really inspiring conversation about Jane’s work and the growth of SEDSConnective. 👉 https://youtu.be/Pr2ZFJOYPYw?si=vrclZrZAcbi9A

Our newsletter is coming out soon! You can sign up here - www.sedsconnective.org 🙏

Join us in making a difference! Taking part in any fundraising activities? Think of SEDSConnective, the first Hypermobility (EDS, Mcas, POTS) and Neurodivergence user led Charity. Help us to share our cause with your network 🙏

We are very excited for our members to take part in some very long awaited research. Join us today if you want to know more www.sedsconnective.org #autism #adhd #hypermobility #education

Our newsletter is coming out soon! You can sign up here - www.sedsconnective.org 🙏

Last year we published a month worth of reflections on Ramadan including 2 webinars discussing Autistic experiences during the holy month. This year we decided to collate these into an e-book, the first of its kind but not the last! You can access the book here: heyzine.com/flip-book/29... 🧵👇

Classical EDS is the most common genetically confirmed type (~1 in 20,000–40,000). Many other types are ultra-rare with fewer than 20 confirmed cases worldwide!

Join us in making a difference! Taking part in any fundraising activities? Think of SEDSConnective, the first Hypermobility (EDS, Mcas, POTS) and Neurodivergence user led Charity. Help us to share our cause with your network 🙏

This is an important issue about disability right and autonomy. One of our members Lucinda in the @BBC news today. 👉 Read here: www.bbc.com/news/article...

New East Grinstead support Meeting! This Fri 27th Feb | 1:30pm - 3pm | The Old Dunning's Mill, E Grinstead, RH19 4AT See details here: https://www.sedsconnective.org/event-details/east-grinstead-support-meeting

Invitation to Participate in Doctoral Research with Elaine McGoldrick • Are you an Autistic parent of an 8-14 year old Autistic student enrolled in an Irish school? - Do you teach 8-14 year old Autistic students in an Irish school? Find out more: [email protected]

Delighted our Chair @jgjanegreenmbe.bsky.social is quoted in this article which was published ahead of the white paper Every child Achieving and Thriving 🙏 #SEND #Education www.learningdisabilitytoday.co.uk/news/send-sc...

They said: “There’s nothing medically wrong.” We said: “Then why are so many neurodivergent children presenting with the same pattern particularly those with symptomatic hypermobility and co-occurring associated conditions?” #SEND #Education #schools #EBSA

BendyBrain Episode 5 by our patron Dr Jessica Eccles @bendybrain.bsky.social is now out on Youtube! 👉 Go watch now: www.youtube.com/watch?v=x3SC...

Join us in making a difference! Taking part in any fundraising activities? Think of SEDSConnective, the first Hypermobility (EDS, Mcas, POTS) and Neurodivergence user led Charity. Help us to share our cause with your network 🙏

Autism ADHD AuDHD, professional, parent /carer? This online summit is for you! 21-22 February 2026 With ADHD Clinics in collaboration with SEDSConnective Tickets: summit.adhd-clinics.co.uk and at www.sedsconnective.org

Ramadan Mubarak From SEDSConnective and Trustee Areeba

ADHD menopause study but looking only for those dx ADHD in childhood or adolescence now 45-55 , menopause transition, AFAB and in UK tinyurl.com/adhd-menopause

Happy Pancake Day! 🥞 Gluten-free pancake recipe: • 125g gluten-free plain flour • 1 egg • 250ml milk* • Butter* for frying • Lots of yummy toppings Enjoy! * Dairy‑free alternatives can also be used. * A little melted butter can also be added to the mix.

Happy Saturday to all who don’t celebrate Valentine's Happy Weekend to all who don’t celebrate Saturdays Happy half term break to all those not celebrating weekends Happy something else to all who don’t celebrate either of those! love www.SEDSConnective.org ❤️💛💙

For everyone 🌍 A sleep, exercise and sensory sensitivities in autistic adults. They need BOTH autistic and on autistic people to be involved. QR code on flyer and Ethics approved No. 878 https://universityofsussex.eu.qualtrics.com/jfe/form/SV_0JMVG3ZmkNxD7My

For everyone 🌍 A sleep, exercise and sensory sensitivities in autistic adults. They need BOTH autistic and on autistic people to be involved. QR code on flyer and Ethics approved No. 878 #Autism

For everyone 🌍 A sleep, exercise and sensory sensitivities in autistic adults. They need BOTH autistic and on autistic people to be involved. QR code on flyer and Ethics approved No. 878 https://universityofsussex.eu.qualtrics.com/jfe/form/SV_0JMVG3ZmkNxD7My

" I'm volunteering at SEDSConnective to make a difference and put my skills to use....." We’re so grateful for your continued support of SEDSConnective 💙 #hypermobility #neurodivergence #volunteers

Have you heard of MCAS? Mast cell activation disorder ? Watch more about symptomatic hypermobility neurodivergence here at @bendybrain.bsky.social you tube channel youtu.be/Pr2ZFJOYPYw?...

Free online talk for members on Wednesday on orthotics with Josh Oguntade, Senior Orthotist and adviser at SEDSConnective. www.sedsconnective.org