Lots of exploration of language, the problems in how it others us - "unpaid carer" is an example and Marie spoke eloquantly as to how it doesn't capture the myriad of roles she has in the lives of her family.

It felt very resonate for our solidarity work to see a range of experiences - disability advocates ( @neilmcrowther.bsky.social ) unpaid care advocates ( @rohati.bsky.social ) & childcare advocates ( @sarahronan.bsky.social ) along with @abbyabhaya.bsky.social and those with lived experience.

Before I run off to eat lunch a few reflections on the @claremontcomms.bsky.social event today exploring how we create a society that values care. It's positive to see focus on the need to shift how we talk about care - in all it's forms to one that is universal. 🧵

I don't watch the news anymore, but if I relied on just social media, god I'd believe these fake videos, over reporting of crazy rhetoric & promises made that would never become legal The hardest, the loss of so many lives without intervention You can't raise your voice without accusation smears🤷

🧠 Memory Matters Weekly - Issue 2 is out. What’s inside: • Dementia drug use exceeding guidelines • Delays in diagnosis across the UK • Shingles vaccines and dementia risk Read now: buff.ly/pQ5QO2T #Dementia #Caregiving #Alzheimers #MemoryMatters

Really insightful #blog commenting on the recent report #dementia #worldalzheimersday

It’s World Alzheimer’s Day 2025! 💡Rehabilitation should be part of #dementia care just as much as it is for other health conditions. 💯 #medsky @dementiawho.bsky.social @dementiacommunity.bsky.social @alzassociation.bsky.social @alzheimerssoc.bsky.social @alzheimerssupport.bsky.social

"If World Alzheimer’s Day is to mean anything at all to us, it cannot simply be a triumphant parade of logos, fonts, vapid slogans, and hashtags. It has to be something braver: a reckoning with how we value life, and how we value care."

Blogpost: World Alzheimer’s Day 2025. Stop selling false hope – and start valuing care? #WorldAlzheimersDay open.substack.com/pub/shibley/...

Today World Alzheimer’s Day 2025 is about #askboutdementia, so I wanted to share my thoughts on the new World Alzheimer Report 2025 about Rehabilitation. Why it matters for caregivers & the questions we should be asking. #dementia #caregivers

This study highlights how antipsychotic prescribing in dementia is discordant with current NICE guidelines on both duration and dose. More than half of those who discontinued their treatment then restarted treatment. @thelancetpsych.bsky.social www.thelancet.com/journals/lan...

Did you know that Alzheimer’s uniquely affects the Hispanic American community? They are 1.5 times more likely than white Americans to have dementia. Read more at www.alz.org/help-support... #HispanicHeritageMonth #WorldAlzheimersMonth

I’ve launched a newsletter - Memory Matters Weekly!!! Short bites breaking down the latest Alzheimer’s and dementia news First issue is out now on Blood tests, FAST tools, & air pollution. Read it below ⬇️ buff.ly/ahUFV02 #dementia #alzheimers #caregivers #memorymatters

If you’re starting to think ahead for October, here are some Halloween crafts for seniors that are simple, dementia-friendly, and easy to set up. They use familiar autumn themes and bring a gentle festive feel without the stress.

Admiral Nurses bring bespoke dementia training to Surrey care homes They're delivering bespoke training directly to care home staff, helping them build confidence and expertise. @DementiaUK buff.ly/xPXc4w3

Welsh residents urged to have their say on care services You can have your say now through an online survey available on Llais’ website, llaiswales.org/wewant. www.walesonline.co.uk/special-feat...

'I'd bet my house' on treatment for Alzheimer's, says Nobel prize winner www.bbc.co.uk/news/article...

Dementia patients being forced to wait up to two years for a diagnosis, study reveals Prof Martin Green "This report is a call to redesign that system from the ground up..& a commitment to treating dementia care as a priority, not an afterthought" www.independent.co.uk/news/health/...

HUGE gap in identifying unpaid carers in England! New analysis by @nuffieldtrust.org.uk reveals nearly ONE MILLION carers are missing from GP records. This is a major issue impacting access to vital support. #UnpaidCarers #GPrecords #CarerSupport www.nuffieldtrust.org.uk/news-item/ho...

That's a wrap! Two successful events, co-producing higher-level findings for our systematic review - with people living with dementia, family members & care partners @shabanaroscoe.bsky.social @drdeborahe.bsky.social @giam-uwl.bsky.social @cardiffuni.bsky.social @wcebc.bsky.social

Five key lessons from UK’s top dementia donor, Laurence S Geller CBE No.3 -“Don’t wait for Downing Street or Westminster, they won’t act without local pressure. www.carehomeprofessional.com/5-lessons-fr...

Comments on the 10-Year Health Plan from Hospice UK, Dementia UK and Marie Curie buff.ly/FmVUxFK

New Dementia Support Service Launches in Newcastle Families & individuals in Newcastle who are caring for or living with dementia can now access multi-tiered dementia specialist support. Dementia Connections Service is supported by the Admiral Nurse service buff.ly/M8RAT51

What a wonderful innovative project It sounds like this care home is leading the way to support their residents in thriving #dementia #dementiacare

Dementia-friendly art class 'full of love and fun' buff.ly/nec7EWs

Really interesting to read this, how women are disproportionately affected specifically for Alzheimer's disease where more women than men get the disease, but not only that but in social differences like dementia care & lack of female driven research. Do have a read ⬇️

Please consider using EasyFundraising when you shop online, with Dementia Publishing Community Benefit Society as your chosen organisation to fundraise for. Participating shops include John Lewis & Partners, Expedia, Argos, Just Eat and many more. Find out more and sign up here: buff.ly/42AR7vo

Blog – The Impact of Dementia on Women www.dementiaresearcher.nihr.ac.uk/blog-the-imp...

Dementia takes 3.5 years to diagnose after symptoms begin, with even longer waits for early-onset case buff.ly/ZjrBX61

People living with Alzheimer's ‒ and their caregivers ‒ need more than hope | Opinion buff.ly/scRjF3g

5 Alzheimer’s Readouts To Watch Studying potential of semaglutide to reduce cognitive decline & impairment in Alzheimer’s "In October 2024, for instance, a real-world study in patients with type 2 diabetes linked semaglutide to a 40% to 70% drop in being diagnosed with Alzheimer’s buff.ly/6Qp8nM9

Well worth a read, and great tips on how you maintain that feeling of " safety, nurturance and acceptance felt within a [massage] treatment" for those living with dementia.

The reason dementia is underfunded despite it being the number one cause of death in the UK is political It's also intermeshed with the USA's history & politics of dementia funding Jason Karlawish's book The Problem of Alzheimer's sums it all up very well

Dementia UK advice ahead of Dunfermline pop-up clinic Sessions in Nationwide's Dunfermline branch on August 12 www.dunfermlinepress.com/news/2534243...

Dementia is still all too often seen as an old person's disease "Frizell claimed little has advanced with Alzheimer's since it was first diagnosed in 1912. There is certainly no prioritisation of the disease, even as it claims more and more victims." www.guardian-series.co.uk/news/2532174...

Is the air you breathe silently fueling dementia? A 29-million-person study says yes buff.ly/lSbvHgt

From Young Carer to Changemaker: Neath Graduate’s Journey of Strength and Self-Discovery Karen’s caregiving journey began when she was just nine, stepping in to support siblings while her parents faced ongoing mental health challenges #youngcarers wp.me/pcyZ3q-pBM

Sounding out: How a Surrey care home is redefining dementia care through outdoor music This is the first time outdoor instruments have been introduced into a care ...“We know music helps. We know nature helps. But what happens when the two come together?” www.farnhamherald.com/news/soundin...

These common daily behaviors can impact your cognitive health – and take a toll on your overall health, too. buff.ly/kZLtDwO

At 36 I became a carer for my elderly mother following a stroke and assumed care for my disabled brother when my mum was no longer able to do it. I also had a 5 and 2 year old, was married and worked full time.

However care manifests whether being an ongoing advocate fighting a defensive system that values profit over humanity or whether you're in the thick of care daily without respite, more people are expected to take on this role in a an unsupportive system It's part of the plan #dementia #dementiacare

Well I would prefer to start with a national qualification of care for older adults as we don’t have one & NMC doesn’t include it in core curriculum !!

I lived what the AARP caregiving report 2025 describes the unpaid hours, the complex care, the burnout no one saw. 63 million of us are doing this work. Most without pay, training or rest. Here’s what the report got right from someone who’s been there. dementiawho.com/aarp-caregiv...

Who Are Family Caregivers Of Seniors And People With Disabilities? The typical family caregiver is a 50-something woman who spends 27 hours a week caring for an aging parent who has two or more serious medical conditions, and is doing so with little outside assistance www.forbes.com/sites/howard...

Exclusive: AARP-NAC Report Finds 45% Increase in Americans Providing Care Study reveals 63 million Americans are now family caregivers, facing rising stress, health risks and financial strain www.aarp.org/caregiving/b...

Nationwide and Dementia UK team up to offer free dementia support clinics in Ayrshire the clinics are visitng Ayr, Irvine and Kilmarnock next month www.dailyrecord.co.uk/ayrshire/nat...

OPINION: ‘Time for a national qualification in complex #dementia care’ A qualification of this kind would validate the specialist nature of the role, improve outcomes, and help retain the passionate, capable workforce we so urgently need. www.homecareinsight.co.uk/national-qua...

Sir Alex Ferguson has signed on as official ambassador to the dementia charity Playlist for Life

Caregiver burnout reaches alarming new levels Nearly half of family caregivers report increased stress as aging population strains traditional support systems

How to Let Go of Trying to Be the Perfect Caregiver I truly believed that if I wasn’t doing it all myself, I wasn’t a good caregiver,” says Yates. “I thrived on being told I was a great caregiver. There was no in-between. I was either perfect or I was failing her.” www.aarp.org/caregiving/b...