Last week, CGP Director Prof. Yann Joly presented “From Data Sharing to Data Resilience: Governing Genomic Surveillance in Uncertain Times” at the Robert Koch Institute Colloquium 2026 in Berlin. 🎥 Watch the presentation here: www.youtube.com/watch?v=iR5E... More info below 🧵

Our #CGP Newsletter is here! 🗞️ Check out the latest issue below👇🏼 mailchi.mp/mcgill/cgp-n...

How do we ensure AI-driven medicine stays aligned with #ELSI values? 🧠 ⚖️ On May 7th, CGP’s Academic Associate Maelenn Corfmat will be presenting at the upcoming #HaploTalks seminar as she tackles the ELSI challenges of biomarker discovery. 🖇️ See more info on poster.

That’s a wrap on the @ga4gh.org Annual Connect 2026 meeting. 🧬 🌎 🧩 It was a dynamic week-long event that brought together the #GA4GH community to collaborate, advance technical work, and reflect on strategic priorities. 🧵More info below ⬇️

Thank you to all who attended the seminar “Health Law, Ethics, and AI in China,” presented by Dr. Li Du. He explored China’s evolving AI legal framework in healthcare, covering data protection, oversight, and ethical challenges. Hosted by CGP and McGill RGHL. #HealthLaw #Ethics #AI

Visit the CGP booth at the Human Genetics Students' Society (HGSS) 2026 conference! Where genomics meets ethics, law & policy. Connect with our mentors and explore #CGP research opportunities. 🗓️ April 27 @ 9AM – 6PM | 📍MUHC Register Here: bit.ly/4838I9E

🧬 💻 🧪Join us for a special seminar happening this Friday hosted by the Victor Phillip Dahdaleh Institute of Genomic Medicine & the Centre of Genomics and Policy. Dr. Minxian Wang (China National Center for Bioinformation) will present “Data Resources of the China National Center for Bioinformation.”

📢 New article! The BQC19 enabled rapid collection and sharing of samples and data to advance COVID-19 research. Our article highlights how its governance, flexible consent, and collaborative framework created a scalable model for future health crises. 🔗 bit.ly/40XAiRy

Upcoming HaploTalks seminar on Mar. 5, hosted by McGill's Victor Phillip Dahdaleh Institute of Genomic Medicine. CGP Research Assistants, Fatoumata Binta Diallo and Charles Selva-Rivero will delve on “Rethinking Risks: Genetic Discrimination and Children’s Right to Participate in Research.” 🧬⚖️🔬

❄️ Our Winter Newsletter has arrived! 📬 Dive into the latest research, publications, upcoming events, and highlights at the Centre. Read the latest issue here👇 us18.campaign-archive.com?e=[UNIQID]&u...

🚀 We’re excited to launch our new video on Explainable AI (XAI) which is part of the OBVIA-funded (@observatoireia.bsky.social) project "Explaining the Right to Explanation: Data Protection Legislation and Clinical Automated Decision-Making" (PI: Ma'n H. Zawati @mhzawati.bsky.social). Links below🧶

As the year comes to a close, the CGP team wishes you a happy holiday season! 💌

Just out in @natgenet.nature.com 🗞️ CGP published a new piece on the urgent need for a global #cybersecurity framework in #genomics. Fragmented #governance is increasing dual-use and data security risks. The field needs coordinated global standards. 🔗 Read the article: doi.org/10.1038/s415...

🎉 Congratulations to Prof. Ma'n H. Zawati @mhzawati.bsky.social, Research Director at the CGP, on being inducted on Nov. 14 2025, as a member of the Royal Society of Canada! 🎥 Watch Prof. Zawati discuss his research and its impact on Canadian healthcare: www.youtube.com/watch?v=PHMc...

Excited to share a new D2R-funded project led by Larry Lynd (UBC), co-led by Profs @YannJoly6 & @MHZawati (CGP, McGill): Early assessment of the value of novel #RNAtherapeutics in #genomicnewbornscreening initiatives: health, economic and ethical implications. 🧶

The upcoming Brocher Foundation meeting will delve on the latest health data news and the ethical challenges surrounding them. Tune in on Nov. 11th, 2025 at 2PM (Geneva time). 🔗 us06web.zoom.us/j/83487320128

Congratulations to Prof. Bartha Maria Knoppers, our Centre’s Founding Director and Distinguished James McGill Professor Emerita, on receiving the McGill Medal for Exceptional Academic Achievement! 👏🏼 reporter.mcgill.ca/bartha-knopp...

Dr. Zohar Lederman (Emergency Medicine, University of Hong Kong) spoke about the Marburg outbreak in Rwanda 🦠🌍 While widely praised as a One Health & public health success, he highlighted key data gaps, limited attention to animal and environmental health and conflicting economic development goals.

New in Cell! “Exploring Latin America one cell at a time” — we chart challenges & opportunities for single-cell & spatial genomics across LATAM. A call for equitable funding, collaboration & capacity building. 🔗 doi.org/10.1016/j.ce...

In honour of Breast Cancer Awareness Month 💗, CGP Director Yann Joly will be paneling at @d2rmcgill.bsky.social’s upcoming event on Breast Cancer & RNA Therapeutics on Oct. 22, 2025. 🔗 Register: bit.ly/3J4DbuB 🗓️ Oct. 22, 2025 @ 5 - 8:30PM 📍 Atrium, Bellini Building, McGill University

🗞️ Our newsletter is fresh off the press! Catch up on the recent research, publications, and highlights at the CGP in our Summer-Fall Issue: mailchi.mp/mcgill/cgp-n...

The CGP and @phgfoundation.bsky.social co-hosted an international think tank at Ayer’s Cliff, Canada, bringing together leading scholars, professionals and practitioners to reimagine the future of #genomics, #medicine, and global population #health in a data-driven world now through 2050.

Prof. Calvin W.L. Ho’s talk, “Polygenic Risk Scores and the Human Right to Science,” from the Annual Bartha Maria Knoppers Lecture, is now available for viewing! 🎤 Watch the recording on our YouTube channel:
youtu.be/BRbpegQDF5A?...

🎤 That’s a wrap on the 3rd Annual Bartha Maria Knoppers Lecture! Honoured to host Prof. Calvin W.L. Ho (@monashuniversity.bsky.social) for his talk, "Polygenic Risk Scores and the Human Right to Science," celebrating Knoppers' legacy in genomics and health law. Thanks to all who attended!

Is it time to rethink ELSI? 💭 Last week at @mcgill.ca, our guest speaker Eric M. Meslin, global leader in bioethics and science policy and member of the CGP Advisory Committee member, sparked a vital convo on ELSI’s future in research & genomics—its roots, impact, and two diverging paths ahead.

Honoured to share that I have been elected to the College of New Scholars, Artists and Scientists of the Royal Society of Canada. Grateful to my mentors, colleagues & students whose support and collaboration made this possible, and I look forward to working with such an inspiring community.

At the H2R conference at @ox.ac.uk, Terese Knoppers spoke about the barriers and bridges towards making healthcare data more accessible for childhood cancer survivors and families. The talk drew on ACCESS & CGP’s research project: Pan-Canadian Approaches to Data Sharing & Access. 🔗 bit.ly/47kscHi

📣 Upcoming conference on AI & biotech happening this week-end in Montreal! CGP Academic Associate Maelenn Corfmat will be speaking on the “Bioethics in Action” panel at On the Verge, McGill iGEM’s annual biotech conference! 🔗 For more info & to register: igemontheverge.wixsite.com/home

Our summer intern Olivia Maracle-Hill shares her experience working on a @d2rmcgill.bsky.social project as part of @mcgill.ca's IMPRESS program. 💻✨ 🔗 bit.ly/4oIVjds #CGPInternship #IndigenousHealthResearch #ELSI #RNAResearch

⏰ Just over 2 weeks away until the 3rd Bartha Maria Knoppers Annual Lecture on Sept 5th! We are grateful to have Prof. Calvin Ho as this year’s speaker. Join us for an insightful talk on Polygenic Risk Scores & the Human Right to Science. 🧵More details: bit.ly/472cW1z

🩺 The Guide for Healthcare Providers on Affirmative Intersex Health Communication—now available in English & French. A Canadian-first resource to support inclusive, affirming care. Link to guides below 🧵

🚨Two NEW papers from our team! Ecological Genome Project 🔗 doi.org/10.1111/bioe... A bold vision for ecogenomics + One Health to guide ethical, interdisciplinary genomics. Data Sharing in Genomics 🔗 doi.org/10.1186/s402... New GA4GH lexicon to improve cross-border collaboration & data governance.

📢 New publication with @universitypress.cambridge.org! "Psychedelic Treatment with Psilocybin" explores malpractice risks & regulatory gaps that may deter physicians—despite psilocybin’s therapeutic promise. 🔗 Read more: doi.org/10.1017/jme.... #Psilocybin #Psychedelics #HealthPolicy #MedicalLaw

Two new articles have been published from our team: “The evolution of health data ecosystems: An international survey” in AJHG: doi.org/10.1016/j.aj... & “Harnessing the promises of cell therapy, gene therapy, and regenerative medicine in Québec, Canada” in Front. Med.: doi.org/10.3389/fmed...

We are elated to host the 3rd Bartha Maria Knoppers Annual Lecture on Sept 5th! Our guest speaker Calvin Ho, Associate Professor (Faculty of Law, Monash University), will present on “Polygenic Risk Scores and the Human Right to Science.” RSVP by Aug 28: bit.ly/4kPaLBC

While #GenerativeAI helps make #GenomicResearch more productive and accessible, Academic Associate Maelenn Corfmat explores two key concerns in her HaploTalks presentation at the @mcgill.ca Victor Phillip Dahdaleh Institute of Genomic Medicine: #Privacy and #HumanAgency 🧬🤖💬

Academic Associate Terese Knoppers shared the Centre’s latest research on improving intersex health communication with intersex adults in Canada at the Intersex Insights conference in Dublin, Ireland. 🔗 To learn more about the research: www.frontiersin.org/journals/pub...

This week concludes the Global Health Law summer course led by CGP Director Yann Joly and Academic Associate Diya Uberoi, offered as part of the @mcgill.ca Summer Institute in Global Health Program. 🌎 🩺 ⚖️ Thank you to all who participated!

🗞️ It’s out! @mhzawati.bsky.social released a NEW article this week on #CellTherapy #GeneTherapy #RegenerativeMedicine in Québec, Canada! 🧬 Read now in @frontiersin.bsky.social in medicine: doi.org/10.3389/fmed...

We are elated to have CGP Academic Associate Diya Uberoi host this year’s summer course on Global Health Law at the McGill Summer Institutes in Global Health. 🌎 ⚖️ 🔗 Register now while spots last! www.mcgill.ca/summerinstit... #GlobalHealthLaw

Grateful to count on the generous support of the Fonds de Recherche du Québec - Santé, who are funding my Junior 2 Career Award! #FRQS #FRQ #communautéFRQ

👨‍🔬👩‍🔬 Meet D2R researchers - new video series! Kicking off the series: @mhzawati.bsky.social ! His D2R-funded research explores the social, ethical, and legal considerations of using AI for genomic biomarker identification. @mcgill.ca @genomicsandpolicy.bsky.social youtu.be/gKRjA0Fvvt0

A pan-Canadian precision oncology initiative www.sciencedirect.com/science/arti...

"Emerging & evolving values in the changing landscape of genomics" in Frontiers examines rapid advancements & ethical challenges, proposing 3 values: equity, collective responsibility & sustainability for fair access, shared accountability & responsible governance doi.org/10.3389/fgene.2025.1566291

Yann Joly will take part in the @d2rmcgill.bsky.social & AReNA symposium at the 92nd @acfas.ca congress! He will be joining a panel of experts to discuss ethics & equity in RNA-based therapies. 🧬🔬 📅 May 5, 2025 ⏰ 12:45 pm - 7:00 pm 💡Learn more: www.mcgill.ca/dna-to-rna/c... #ACFAS8 #RNA

That’s a wrap on the @ga4gh.org Connect Meeting at @broadinstitute.org! 🚀 🔬CGP chaired 3 key sessions on: 1. Improving REWS adoption across communities 2. Brainstorming #ClinicalDataSharing standards to guide institutional practices 3. REWS in Focus: Bridging regulatory & ethical gaps

🎤 Productive session at GA4GH (@ga4gh.org) Connect on #datavisiting in #genomics research! Experts explored new models and discussed key challenges with Paul Esselaar, Yann Joly, Donrich Thaldar, & Robin Roehm. Thanks for a great discussion! 👏

🚨 Last Chance to Apply! 🚨 There are only a few days left to apply for the Academic Associate (Law) position! Don’t miss out on this opportunity to join the CGP team. 👉 Apply Now: mcgill.wd3.myworkdayjobs.com/McGill_Caree...

Join us on April 10th for Prof. Donrich Thaldar's talk on "Technology, Reproductive Autonomy, and Its Limits: The South African Experience," hosted by the CGP and McGill RGHL. Register by April 8th: forms.gle/bTFLSnHJDTv9... Please view the flyer for more information.

Since Covid-19, verbal consent is replacing paper consent forms in some types of research. Noë, Vaillancourt and I examined its pros & cons + the legal frameworks in a recent article. We urge policy & law-makers to formalize this shift to better guide researchers. buff.ly/OaAOCYv #verbalconsent