❄️ Our Winter Newsletter has arrived! 📬 Dive into the latest research, publications, upcoming events, and highlights at the Centre. Read the latest issue here👇 us18.campaign-archive.com?e=[UNIQID]&u...

🚀 We’re excited to launch our new video on Explainable AI (XAI) which is part of the OBVIA-funded (@observatoireia.bsky.social) project "Explaining the Right to Explanation: Data Protection Legislation and Clinical Automated Decision-Making" (PI: Ma'n H. Zawati @mhzawati.bsky.social). Links below🧶

We are pleased to present an infographic featuring eight points to consider for responsible international genomic and health data sharing by health technologies industries (HTIs). Learn more and view the infographic:

🎉 Congratulations to Prof. Ma'n H. Zawati @mhzawati.bsky.social, Research Director at the CGP, on being inducted on Nov. 14 2025, as a member of the Royal Society of Canada! 🎥 Watch Prof. Zawati discuss his research and its impact on Canadian healthcare: www.youtube.com/watch?v=PHMc...

New in Cell! “Exploring Latin America one cell at a time” — we chart challenges & opportunities for single-cell & spatial genomics across LATAM. A call for equitable funding, collaboration & capacity building. 🔗 doi.org/10.1016/j.ce...

W/ swift pace of advancements, ethical responsibilities to reanalyze & reinterpret genetic results is more important for patient care. There must be shared responsibility btwn labs, clinicians & patients to shed light on inconsistencies. New article w/ Z Sentell: www.frontiersin.org/journals/gen...

Honoured to share that I have been elected to the College of New Scholars, Artists and Scientists of the Royal Society of Canada. Grateful to my mentors, colleagues & students whose support and collaboration made this possible, and I look forward to working with such an inspiring community.

Two new articles have been published from our team: “The evolution of health data ecosystems: An international survey” in AJHG: doi.org/10.1016/j.aj... & “Harnessing the promises of cell therapy, gene therapy, and regenerative medicine in Québec, Canada” in Front. Med.: doi.org/10.3389/fmed...

We are elated to host the 3rd Bartha Maria Knoppers Annual Lecture on Sept 5th! Our guest speaker Calvin Ho, Associate Professor (Faculty of Law, Monash University), will present on “Polygenic Risk Scores and the Human Right to Science.” RSVP by Aug 28: bit.ly/4kPaLBC

🗞️ It’s out! @mhzawati.bsky.social released a NEW article this week on #CellTherapy #GeneTherapy #RegenerativeMedicine in Québec, Canada! 🧬 Read now in @frontiersin.bsky.social in medicine: doi.org/10.3389/fmed...

🚨 Early Bird Registration ends June 1! Join us in Toronto (or virtually) for Cardiac Precision Medicine in the 21st Century Conference 🫀🧬 📅 Oct 29–31, 2025 🔬 Genomics, multiomics, AI, Digital Health & more 🎤Keynotes: Dr. Sharlene Day & Dr. @mhzawati.bsky.social 👉 cardiacprecisionmedicine.com

Grateful to count on the generous support of the Fonds de Recherche du Québec - Santé, who are funding my Junior 2 Career Award! #FRQS #FRQ #communautéFRQ

👨‍🔬👩‍🔬 Meet D2R researchers - new video series! Kicking off the series: @mhzawati.bsky.social ! His D2R-funded research explores the social, ethical, and legal considerations of using AI for genomic biomarker identification. @mcgill.ca @genomicsandpolicy.bsky.social youtu.be/gKRjA0Fvvt0

"Emerging & evolving values in the changing landscape of genomics" in Frontiers examines rapid advancements & ethical challenges, proposing 3 values: equity, collective responsibility & sustainability for fair access, shared accountability & responsible governance doi.org/10.3389/fgene.2025.1566291

✨Early Bird Registration is NOW OPEN!✨ Join us in Toronto this October for the International Cardiovascular Genomic Medicine & SickKids Cardiac Precision Medicine Conference. Don't miss out on the latest advancements in cardiac precision medicine! 🫀🧬 cardiacprecisionmedicine.com

Canada’s genomics community is rising to the challenge. ➡️ We’re sequencing 100K human genomes in 4 years to give researchers and innovators the data they need to transform health care. Learn how the diversity of the dataset we build will set Canada apart as a global leader in #PrecisionHealth.

Ever been offered genetic testing through work? 🧬 Most folks don’t know how their DNA might be used. 60% haven’t heard of GINA, the law that protects against genetic discrimination in jobs + health insurance. 🔗 onlinelibrary.wiley.com/doi/10.1002/... #WorkplaceWellness #Bioethics

📣 Announcing Patrick Tan as our first keynote speaker of #GA4GH13thPlenary! Patrick Tan is Executive Director at PRECISE, Senior Vice Dean (Research) at Duke-NUS Medical School, and Chief Scientific Officer at the Genome Institute of Singapore, A*STAR. broadinstitute.swoogo.com/ga4gh13plena...

That’s a wrap on the @ga4gh.org Connect Meeting at @broadinstitute.org! 🚀 🔬CGP chaired 3 key sessions on: 1. Improving REWS adoption across communities 2. Brainstorming #ClinicalDataSharing standards to guide institutional practices 3. REWS in Focus: Bridging regulatory & ethical gaps

A pan-Canadian precision oncology initiative www.sciencedirect.com/science/arti...

Since Covid-19, verbal consent is replacing paper consent forms in some types of research. Noë, Vaillancourt and I examined its pros & cons + the legal frameworks in a recent article. We urge policy & law-makers to formalize this shift to better guide researchers. buff.ly/OaAOCYv #verbalconsent

Visit our booth at the HGSS 2025 Conference hosted by @mcgill-hgss.bsky.social 🧬Join us as we explore the latest in #GenomicResearch and its real-world applications, network w/ experts, and discover #CGP opportunities! 🗓️ May 2 @ 8:30AM – 5PM | McGill Faculty Club, Montreal Stay tuned for more info!

Unvetted medical info can cause anxiety to users & risk misdiagnosis + personal data can be shared unsafely. I discuss these issues with Shawn Apel on CBC's radio noon Quebec. Listen: buff.ly/5nqMaCE #mHealth #dataprivacy

📣 Now Hiring: Academic Associate We are looking for an Academic Associate to join our dynamic team at the Centre of Genomics and Policy! Contribute to shaping the future of healthcare through legal, social, and ethical research in genomics 🧬 Apply now: mcgill.wd3.myworkdayjobs.com/McGill_Caree...

Big news for the Human Cell Atlas! The Data Governance Resource project receives a funding boost from the Helmsley Charitable Trust. Led by @mhzawati.bsky.social, the DGR will shape the future of data governance in #genomics. mrm.research.mcgill.ca/2025/02/huma...

🤖 #AI is revolutionizing diagnoses & treatments, but it also raises critical ethical questions. CGP Research Director Ma'n H. Zawati examines these challenges in his McGill D2R-funded research. 🧬 🔗 Learn more: mcgill.ca/dna-to-rna/a... @mhzawati.bsky.social @d2rmcgill.bsky.social

The plenary talks will address global efforts to establish multiple reference genomes and the ethical implications, while the panel will address African genomic diversity in Africa and unique issues in the African diaspora. See you all in Durban! Register Now: hugo-hgm2025.org/registration/

🤖 AI can improve diagnoses & treatments, but it raises ethical challenges: ❓ Will AI worsen inequities in genomic biomarker access? ❓ Will biased AI models deepen discrimination in genomic data? @mhzawati.bsky.social explores this in his D2R-funded research 🔗 mcgill.ca/dna-to-rna/a...

GA4GH welcomes new Co-Leads for four Work Streams - happy to join as new Co-Lead of REWS www.ga4gh.org/news_item/ga...

Meet our symposium speakers! We are pleased to announce the distinguished speakers for HGM2025. See you all in Durban! Register Now: hugo-hgm2025.org/registration/ Submit Abstract: hugo-hgm2025.org/abstract-sub... View Program: hugo-hgm2025.org/programme-at... For more information: hugo-hgm2025.org

Considering genetic tests for family connections or allergens? Key privacy Qs: Who accesses your DNA, where & how long it's stored & for what uses? How is it processed and protected? Which lab processes your sample, & can data be withdrawn? See Radio Noon Quebec w/Shawn Apel 

I answered Qs on data privacy for at-home #DNAtests on CBC's Ontario Today with Amanda Pfeffer. If you're interested in the risks of at-home DNA tests, listen to the podcast. It's a crucial discussion on privacy, technology, and personal data. Tune in🎧 at https://buff.ly/4g1vdNY #DataPrivacy #CBC

Last week, I had the privilege of attending #UBC's ceremony honouring my mentor Prof. Bartha M. Knoppers w/ an honorary doctorate. Her distinguished career in #genomics, ethics & #law is truly inspiring. See buff.ly/4ifGjR9 for more on her influential legacy. Congratulations, Prof. Knoppers!

Avec 350k+ applis de santé avec IA, beaucoup ont des biais menant à des erreurs de diagnostic. Mes solutions à La Presse: 1.Utiliser des données diverses & impliquer les communautés 2.Assurer la transparence dans le développement des modèles d'IA 3. Améliorer l'accessibilité https://buff.ly/4fMRSxp

With 350k+ AI-powered mHealth apps, many face bias leading to misdiagnoses. Solutions from my La Presse interview: 1.Use diverse data & engage communities in app design 2.Ensure transparency in AI model development 3.Improve accessibility w/ clear language & reduced barriers 

Delighted to have joined the #CSPC2024 & taken part in the "Future-Proofing Health Innovations" panel on enhancing policy for Advanced Therapeutics w/ Cate Murray, Amanda Allard, Dr. Kate Harback, Luka Stevanovic, & Omar Tounekti. Explored patient care, regulatory shifts & partnerships #HealthPolicy

Stanislav Birko and I co-authored "Pediatric and Fetal Gene Therapies" in "Ethical Challenges for the Future of Neurosurgery." We explore ethical issues in gene therapy for children, critiquing individualistic frameworks and promoting a relational approach. #Bioethics

Excited to share that our journal article, "Data sharing ethics toolkit: The Human Cell Atlas," has been published in @NatureComms today! 🎉. Curious about the challenges and solutions we've proposed? Read more here: www.nature.com/articles/s41... #DataEthics #HumanCellAtlas #ResearchInnovation

📣 📣 JOB POSTING ALERT 📣 📣 Happy New Year! The CGP is looking to fill several Academic Associate positions. If you know anyone interested in researching the legal aspects of genomics and modern medicine, please share this link with them: lnkd.in/eKrcvrVg Please share widely!

Dear Colleagues, the Centre of Genomics and Policy is looking to fill four Academic Associate positions. If you know anyone interested in researching the legal aspects of genomics and modern medicine, please share this link with them: tinyurl.com/ytmh2z7v Please share widely!

Our new paper on crowdsourcing smartphone data for biomedical research is out! t.co/pArfYH6OeW

Very happy to announce this! The Department of Human Genetics has created the Bartha Maria Knoppers Lecture series. Our Inaugural Speaker will be none other than the wonderful Dr. Eric Meslin! The CGP hopes to see you there! Register Now: docs.google.com/forms/d/e/1F...

First post on Bluesky! Hope to interact with colleagues interested in the humanities and science of genomics and modern medicine.