Day 5 of #ProjectLead2025 with @nbccstopbc.bsky.social The preso I’ve been waiting for! TY Sara Hurvitz from @fredhutch.bsky.social for laying out the good/bad/ugly of clinical trial design. Sh*tty Surrogate Endpoints, I’m coming for you! #metastaticbc #breastcancer

Brief bsky pause to tie up loose ends in life! Today, a new chapter. Starting this AM with cell bio review next to open air fire and awaiting g start of #ProjectLEAD with @nbccstopbc.bsky.social 5 days of INTENSE science edu & advocacy. My idea of a good time! #mbc #breastcancer #OOTD deets in 🧵

I’ll be there! Join me at People’s Town Hall 7th CD with special guest Sen. Elissa Slotkin midems.controlshift.app/events/7th-c...

NEW: Fresh off announcing his departure for the University of Florida, outgoing University of Michigan President Santa Ono has had his name removed from the American Assoc of Colleges and Universities academic freedom letter he signed barely two weeks ago. talkingpointsmemo.com/edblog/outgo...

We just learned that Congresswoman Kristen McDonald Rivet is a YES! On #HR2408 Metastatic Breast Cancer Access to Care Act. Thank you, Congresswoman McDonald Rivet, for caring about the lives of patients with MBC. #NBCCSummit #cansky #metastaticbc #breastcancer

@michigandems.bsky.social so proud to be represented by these powerful Congresswomen from Michigan. Thank you, @scholten.house.gov @reprashida.govpeeps.us @debbiedingell.house.gov @rephaleystevens.bsky.social for co-sponsoring #HR2408 #NBCCSummit

#OOTD hitting the Capitol to fight for passage of #HR2408 Metastatic Breast Cancer Access to Care Act, and preservation of Medicaid & cancer research $ with #NBCCSummit With research dollars evaporating with every Sharpie stroke, we’re fighting for our lives. #metastaticbc #breastcancer

Important #NBCCSummit session: With America at an inflection point, we’re discussing how advocates can push back on threats to science and healthcare. #NBCContheHill

Mitten Represent! A mighty team from across Michigan ready to rumble to end breast cancer #NBCCSummit

#OOTD at #NBCCSummit being interviewed by the amazing Rokia, who is the strategic brain behind @nbccstopbc.bsky.social. I LOVE that this org is spending resources gathering the voices and faces and lived experiences of BC patients, including me. Pantsuit: Trina Turk Scarf: vintage

Medicaid Warriors! Top tip from #NBCCSummit on responding to a Congressional reps who says: “I’ll not touch Medicaid” “Show me your math: how will you do it w/out decreasing enrollment, decreasing coverage, or decreasing reimbursement to Drs? How do YOU make the numbers work?” Then wait.

#NBCCSummit Amazing talk by Dr. Ian Tannock on asking critical questions about clinical trials. What jumps to me is the increase in using progression-free survival as a clinical outcome instead of overall survival. Tannock argues that PFS is very vulnerable to bias. Why? Follow🧵1/2)

AMAZING first day at #NBCCSummit. Deep dive on breast cancer mortality rates across 2 sessions drive home where research is heading—looking BOTH at genetic/biological factors as well as place-based factors to more effectively treat AND hopefully prevent BC. Thank you @nbccstopbc.bsky.social #OOTD

Dr. Melissa Davis's work on impact of ancestry at genetic level adds important level of complexity to the breast cancer disparity conversation between Black and White patients. Bottom line--its not ALL about SDH.Her team is looking at biological factors interacting with SD factors. #NBCCSummit 1/2🧵

Don't miss the next ECLC webinar by Christine Desmedt, PhD on Opportunities of post-mortem tissue donation programs to advance metastatic cancer research - May 19th, 2025 - USA: 11:00 AM EDT | Europe: 17:00 PM CEST | Australia: 01:00 AM AEST - Register here us02web.zoom.us/webinar/regi...

Wheels up for #NBCCSummit and just discovered that another advocate, Sabrina, is directly behind me! Ready to learn, be inspired, and raise a little good trouble. Michigan is ARRIVING 🥰

Who else is too excited to sleep?! 15 hrs til @nbccstopbc.bsky.social Leadership Summit begins! 12 hr days of science, advocacy and activism—aka, what I live for! (Really). 👠👠 Unite to End BC Rally on 5/6. See you there 😘 MANY #OOTD pics coming bcz #cancersochic #cancersky #metastaticbc #mbc

@blackforager.bsky.social just finished a BRILLIANT talk that wove together racism, colonialism, the death of inherited knowledge re: the natural world, landscape snacks, and the inherent destructiveness of the #MAHA agenda in 90 min. AMAZING! Also, her #OOTD with the crop hoodie? 👌🏻 #artinbloom #CAM

The shoe for the job! Heading to DC in 10 days to join @nbccstopbc.bsky.social for the Unite to End BC Rally & lobbying. Bringing voices of #metastaticbc to Congress. Join me! Can’t come? What do you want me to tell our reps? #cansky #mbc #breastcancer #cancersochic #metavivor @fluevog.bsky.social

I mourn every dedicated public scientist who is forced make this career- and life-altering decision. And ready to fight like hell to keep as many people off the brick wall as possible.

Stand up for breast cancer priorities! On our #LobbyDay, join NBCC advocates, members of Congress, and others to support science, research, health care, and policies to end breast cancer at the US Capitol Grounds on May 6, at 9am! nbcc.info/BreastCancer...

Chemo chair thoughts about cuts to the FDA @altfda.altgov.info @altcdc.altgov.info @altnih4science.bsky.social @um-ihpi.bsky.social @metavivor.bsky.social @nbccstopbc.bsky.social @cansky.bsky.social #breastcancer #metastaticbc 1/2 🧵

Chemo chair thoughts about cuts to the FDA @altfda.altgov.info @altcdc.altgov.info @altnih4science.bsky.social @um-ihpi.bsky.social @metavivor.bsky.social @nbccstopbc.bsky.social @cansky.bsky.social #breastcancer #metastaticbc 1/2 🧵

🫶🏳️‍🌈🏳️‍⚧️🤝 Underrepresented folks are often called upon to: 1) serve in positions to improve DEI 2) pursue DEI-related fellowships/awards These folks could have chosen not to heed our call. @umich.edu- How will we ensure that they remain employed and supported at UM? That their service is honored? 💙💛💔

Chemo #OOTD. Major progress in bones so back on infusion Tx.2 things I’m calling/emailing while hooked up:1. MBCAC Act. Introduced 3/17 shorturl.at/d1xOR 2. Hands off SSDI/Medicare @nbccstopbc.bsky.social @metavivor.bsky.social #MBC #cancersochic #metastaticBC #cansky #stage4BC Deets in alt id.

Yesterday, @debbiedingell.house.gov & Gov. Whitmer convened a roundtable of experts on #Medicaid at the Univ. of Michigan's C.S. Mott Children's Hospital. Some of what they all said: www.mlive.com/politics/202... (Gift link to @mlive.com story)

My #OOTD for a #groundswell2025 virtual meeting on behalf of @metavivor.bsky.social with @slotkin.senate.gov health legislative team. Thank you, Andrew and Savannah for investing time in the #metastaticbc community. The agenda: preserve fed research $; increase QoL for MBC folx. deets in alt text

Heya #breastcancer peeps--Let’s be bold and cause some good trouble together! Join me & other advocates uniting to end breast cancer at NBCC’s 2025 Advocate Leadership Summit and Lobby Day! Already planning my #OOTD looks for the halls of power 👠 nbcc.info/LeadershipSu... @nbccstopbc.bsky.social

James Baldwin's words ring in my ears: "“There is never time in the future in which we will work out our salvation. The challenge is in the moment. The time is always now.” Thank you, @sifill.bsky.social Last week: New scans, progression. Today: New treatment, meeting with @slotkin.senate.gov

Thanks to the good folk @ascocancer.bsky.social, I just sent letters to my reps urging them to pass bills for funding federal cancer research. It was so easy! I spent 3 minutes to customize their drafted letters and then I just hit send! asco.quorum.us/action_center/ @nbccstopbc.bsky.social

A vote affecting the fate of the DOD Breast Cancer Research Program is planned for today. Keep the momentum going and keep taking action! www.stopbreastcancer.org/urgent-actio...

#OOTD from March 2023; w/ #cancersochic chemo hook-up.Today calling to save DoD Breast Cancer Research program (BCRP);it will shut down without funding bill passing @nbccstopbc.bsky.social naming it “dire threat” www.stopbreastcancer.org/urgent-actio... #cancersky #breastcancer #metastaticBC 1/2

#StandUpForScience2025 Lansing was a welcome morale boost to many, to me and p’raps especially the many scientists in the crowd. TY! AND: 1. organizers must f/u with specific action steps for speaking to elected reps, friends & fam. Speeches were powerful but lacked a specific CTA with guidance 1/3🧵

What is the appropriate dress for today’s #StandUpForScience rally? Methinks the vintage magenta coat with vintage cowl neck tomato sweater dress. As loud as my outrage. See everyone in #Lansing at noon!!

@michigandems.bsky.social are y’all coming to the #StandUpForScience2025 rally 3/07? It’s at your house! Capitol bldg., 12-4pm. As someone with #Stage4BC continuing medical research is a life or death issue. I’ll be there. Who else in #Lansing will be there? 🧵1/2

Thank you @dananessel.bsky.social 👏 Our fearless AG is working to stop Trump's federal funding "freeze" and restore vital funding for pre-K, senior programs, shelters for victims of domestic violence and much more.

🗣️WATCH: “Pull your head up. We got this. We are in this together.” @tequilamjohnson.bsky.social gets a standing ovation in rural Tennessee as she points to the resilience of Black folks throughout history to say Trump is not a hurdle that 🇺🇸 can’t overcome.

“It took literally centuries to build these institutions and the capacity to engage in this life-saving research... If we don’t fight, our government will take this all away from...the patients and families who benefit from these life saving treatments.”

Been a minute since I posted an #OOTD. On a roadtrip with my sis in #BHAM AL paying homage to the courage of civil rights activists & heeding their example. All items gifted or thrifted: Sweater: Marni Jeans: Madewell Sneaks: Cariuma Necklace: inherited from grandma Sunglasses: see #cancersochic

Just saw Nickel Boys and as someone who read and loved Whitehead’s novel, this was a revelation of a film. The POV camera never lets you look away. The plot is loosely strung which means you can’t escape into the storyline. Whoa. #filmsky #nickelboys

"Universities gain a competitive edge through inclusive hiring practices. That’s because diverse groups...are better at thinking through problems, seeing them from multiple angles and arriving at novel solutions."

Earnest post, but: a thing I like here is it’s okay to have moments of happiness in public without being broadly scolded, and I believe that sustaining this kind of humanity will be very important as we resist fascism. We have to sustain each other. Making joy isn’t denial, it’s how we will survive

Thanks for amazing day of fashion, food and art, @miamidesign.bsky.social Day to night #ootd Thrifted Jumpsuit: Swan Studio Blouse: DVF Shoe:Miz Mooz Necklace: KW market Self-created Problem: eating so much my jumpsuit is now too tight to unzip #cancersochic #MetastaticBC #Stage4BC #resistance

@michigandems.bsky.social I am beyond grateful that we are represented in the Senate by two strong Democrats and that a strong governor, AG and SoS still steer our governance. In dark days, knowing you can trust state leaders is absolutely essential

#KeyWest Hank’s Hair of the Dog saloon backdrop for #OOTD pics! #cancersochic #breastcancer #metastaticBC #stage4BC Today’s theme: #queerjoy is #resistance 🧵for deets

#OOTD @uofmichigan.bsky.social Cancer Center. Awaiting my Zometa infusion. I always dress for visits to the “clubhouse”. Outfit deets in 🧵#cancersochic #cancersky #breastcancer #mbc #metastaticBC

#OOTD for self-care Wednesday! Therapy, pedicure and Pilates. Love a statement belt but, real talk, it kinda impedes diaphragmatic breathing and I am noticing a possible path rib fracture more than usual. Yet so snuggly, so 🤷🏻‍♀️. All thrifted or gifted 🧵for the deets #cancersochic #MBC #breastcancer

www.nytimes.com/badges/games... Toccata!!

Promised a long time ago to do an #OOTD feed. This is the year? All thrifted or gifted -Irish wool sweater hand me up from Claire -Jcrew flannel button-up -Eileen Fisher funnel neck base -Everlane cropped wide leg denim -snow boot cuz Michigan #thriftfashion #cancersochic