I’m a sucker for a New England cemetery

Mohsen was just released by the federal judge in VT!!

Mission impossible: people watching the whole 11 second tiktok video before blowing up at the creator in the comments

a love letter to the mad

Forever wishing they had long sleeve shirts that come with extra long arms. I just want my sleeves to reach my wrist 😭 the struggles of having a wingspan taller than I am.

It’s finally warm enough to venture outside!! It was 45 degrees today!!

It’s really frustrating to see chronically ill folks complain about being labeled a drug seeker or a psych patient without recognizing and absorbing just how bad psych patients are treated ALL THE TIME.

My favorite registration admit at the hospital today told me I looked like Willow from Buffy so… it’s a good day

My wife to me this morning: okay stop I can’t listen to Madeline Pendleton drama right now I have to go get an oil change

Medical specialists trying to get anything done

Well, my video is under review before even getting posted on TikTok bc I used the words “social services”

ER doc to my wife and I: I think you’re the only ones in this whole place who don’t have flu or covid symptoms!! Us: the only people in the ER wearing masks.

Update now I’m making a whole sweater crocheted into the back loop only because I love it now!!! Ain’t that just the way.

Sheryl Crow’s soak up the sun has been one of my favorite songs for over 20 years and I think it still deserves that spot, it’s never fails to make me feel joyful.

The chronic illness struggle of — do I get the surgeries now before Medicaid is cut? Or would it be silly to go under the knife knowing how prone I am to complications with Medicaid on the chopping block? IDK MAN who tf knows.

can’t stop crying!!

Hospitals that can afford Super Bowl ads shouldn’t be sending their patients to collections

don’t fight Catholics on instagram don’t fight Catholics on instagram Lord please grant me the strength to not fight with Catholics on instagram

Why are interactions on Xiaohongshu so dang wholesome? I’m blown away.

Really tired of “neurodiversity affirming” clinicians who really just have their own strict rules and standards for how ppl should behave — and who alienate those who think differently than them. I’ll stick with my disability justice centered and Mad pals, thanks.

ACT UP, 1990

Holding space for my Jewish friends right now ♥️

my main gripe about all the handwringing over tiktok and trump is that ICE is doing raids in Chicago this week, which is a much clearer sign of things getting sharply worse than any of the tea leaf reading of app features that people are doing. the app can still be a big distraction from real life.

Have Kimya’s “Remember That I Love You” album on repeat today. open.spotify.com/album/7bc415...

A suggestion to avoid burnout. Identify the communities and movements where you can do good and make change and focus in the coming four years. You can't be at the center of every social change movement, and that's ok! Trust other folks to do the work elsewhere and lock in to your own.

Joy is not made to be a crumb.

For those who have woken up gripped with fear; I see you. To those who won’t make it to the end of this administration; I grieve for you. Much like the labor of birth, we must breathe before we push. Today I invite you to breathe. Then push. Our fight has just begun.

oh hey bsky… I kinda forgot about you but I’m back! I will not return to a Meta run tiktok I will not do it!! But I’m lucky enough to not rely on it for income bc I’m such a small account. Anyways, hullo ♥️

Masking up (as per usual) at the infusion center today. So many vulnerable folks frequent the day hospital. If you don’t mask for yourself, consider masking for those who need it most! #YallMasking

A very good tumblr post

adding ribbing to sweaters might just be the end of me!!! and the slower and more careful I go the better it looks… rude 🧶

Chapstick lesbian this, lipstick lesbian that. What about our bag balm lesbians?

There’s nothing quite like looking around at the beautiful people around your living room and realizing — this. This here is the queer chosen family that people talk about. The magic is right here in this room. I hope for all queer folks to have this experience.

I swear the day hospital’s waiting room might as well be the local social lounge for locals above 60. It’s oddly endearing.

hell hath no fury like a nonprofit board

my deep love and appreciation for winter and the magic of snow falling is always at odds with the reality that my disability is so much harder to deal with in the winter.

as the year ends, so many maskblocs become overwhelmed by local need. go to covidactionmap.org to find a bloc near you— contribute time, funds, product so others can make the choice for clean air too. the more who do, the better for us all.

Went to a craft fair today and it was so accessible for me as a wheelchair user. Here’s what they did right:

Ideally this is true, but the main hospital in the city I used to live in has more than one case of people dying in waiting rooms and hallways. It’s a good perspective to have, but people don’t have to feel grateful for inadequate care just because they haven’t been identified as on deaths door.

remember flappy bird?

A lot of people believe this but don’t wear masks in, at the very least, public indoor spaces despite the ongoing spread of a deadly & disabling airborne virus for which we have few solid treatments and no cures. Want to resist eugenics? Align your behavior with this reality. Mask up.

Had my first ice related fall of the winter and I always forget how scary ice is. As someone who easily falls on solid dry ground, this time of year feels like playing Russian roulette

#DailyMouse is soaking wet after romping around in the slush and the rain.

Something I didn’t expect about using a wheelchair in public is how excited strangers get to say hello to me. This is New England; hardly anyone said hello to me unprompted in my bipedal days. But now? I either have to avoid any eye contact or say hello to everyone I pass.

Happy winter, my fellow wheelchair users. Time to be covered in slush and mud until May/June. Wishing you dry pants and no falls on the ice this year. ♿️🫶🏻

Stole my wife’s shirt for a few selfies before they realized and made me give it back 😂

Rigid manual wheelchair users: is anyone else’s chair just very… creaky? I’m well within the weight limit for my chair, but it’s been creaky since I got it. I notice it most with tight turns. It’s a Ki Mobility Rogue ALX. I’m honestly a little disappointed in the quality of this chair overall.

Ahhh if all goes well I should have my new power assist wheels and backrest by mid January!! Hallelujah!

Some updated thoughts on “the adjuster.” The fact that he has been given a commonly used superhero alias shows me that we are not as close to revolution as we think we are. I don’t trust any revolution where we are forced to rely on white men to shoot a gun. That’s how we got into this mess.