We have arrived in Birmingham. All ready to meet everyone and talk about The Victoria & Stuart Project at the The Gold Standards Framework Annual Conference & Awards Ceremony tomorrow 💫 @victstuproject.bsky.social @gsfcentre.bsky.social

Looking forward to kicking off our new webinar series tomorrow! We’ll show you how to use our toolkit for end of life care planning - and how to get your own free resources! You can still register: shorturl.at/LgOPC

Abstract submission for the EAPC 2026 Congress in Prague is open! Submit your abstract now. Submission Terms & Conditions: eapcnet.eu/congress/202. Abstract submission platform: eapc2026.exordo.com/ Deadline: 31 October 2025. As previous year, there will be no extension to this deadline.

Earlier this year I was lucky to be invited to talk about The Victoria & Stuart Project at the International Better Conversations Conference 2025💫 Lovely to see so many SLTs interested in the toolkit and asking such good questions. Thanks for a great conference and for having me! #BetterConv2025

“It’s very important that people read this report”. Find it here: www.kcl.ac.uk/research/leder

Order printed copies of the toolkit resources to your door 📬 Order on the Marie Curie UK website here: www.mariecurie.org.uk/help/support...

Why I do what I do: met a former palliative care nurse & was describing how devout Muslims can hold up a single finger to represent the Shahadah if they're unable to speak. She'd never heard of this. "I wonder how many times nurses see this, think someone is agitated, and drug them."

So proud to have been involved in The Victoria & Stuart Project! @victstuproject.bsky.social

@tuffrey-wijne.com on stage receiving the award for @victstuproject.bsky.social 🏆

The ASDS Public Engagement Award has gone to the Victoria and Stuart Project @asdsdeath.bsky.social @ddd17-2025.bsky.social #DDD17 . Congratulations!

Check out our new paper! 📰 We learned a lot about how the end-of-life care planning toolkit works in practice - and a lot about how to evaluate things in the future (talking to peole and short and straightforward surveys!). The toolkit is still available on: www.victoriaandstuart.com

Sign up for our launch webinar now!

Redefining Best Practice: Integrating Learning Disability Expertise into Palliative Care

Our wonderful @uclpals.bsky.social MSc student, Phineas Winterbottom, worked on rule-breaking in hospice MDT meetings in his final project. After his SLT studies, he turned his dissertation into a paper, now published in Discourse Studies. Check it out!

📄 New paper alert! 📄 Our protocol paper for DAPPLE has been published 🎉 You can read it below. It’s open access and sets out what we’re doing and how we’ll do it. bmjopen.bmj.com/content/15/7...

It has been a pleasure being involved in this review on systemic medications and dementia risk. Check out our new paper! www.nature.com/articles/s41...

📣 Are you a UK-based professional working in palliative or end of life care? 💥 Help shape priorities for the new Impact Centre for Palliative and End-of-Life Care. We’re inviting health & care professionals & commissioners to complete our Stakeholder Survey 👉 qualtrics.kcl.ac.uk/jfe/form/SV_...

So excited about this! We hope the print and deliver service will help staff with getting hold of and using The Victoria & Stuart Project resources with people they support. It's a pleasure leading a project when you're working with such a brilliant (and fun) team!

Last year I was so lucky to be awarded one of the Kingston University First Grants Schemes🌠My project is a small-scale Conversation Analysis pilot study where I'm video-recording conversations between patients with a learning disability and hospice staff. Read all about it in our new protocol paper!

Looking forward to our event tomorrow - Caught between the dream and realities: considering ‘advance care planning’

Calling all Scottish #palliative & #healthcare colleagues 🏴󠁧󠁢󠁳󠁣󠁴󠁿 We’ve been approached to deliver No Barriers Here Facilitator Training in Scotland later this year (likely November) & inviting expressions of interest Please email: [email protected] to be added to the mailing list

Did a little DAPPLE blog about the European Association for Palliative Care (@eapcvzw.bsky.social) 2025 conference. Check it out! ✍🏼

Excited to continue working on The Victoria & Stuart Project! I am leading a new "Print & Deliver" study funded by the Marie Curie Research Impact Scheme. We are busy setting up the study together with Marie Curie, and soon we'll be able to send out copies of the toolkit to you 🕊️ Watch this space!

📣 Workshop announcement “Conversation Analysis & Healthcare Interactions” Led by Marco Pino, Saul Albert, Charles Antaki, Katie Jordin @darg-sessions.bsky.social Loughborough University 📆11-12 Sep ‘25 📍 online darg.lboro.ac.uk/event/online... #emca @lborocrcc.bsky.social

We are advertising an Online Workshop in Conversation Analysis and Healthcare Interactions (Loughborough University). Details: darg.lboro.ac.uk/news/new-wor...

I still can’t believe I have won the 2025 European Association for Palliative Care Early Researcher Award! 🍀 Thank you to the @eapcvzw.bsky.social for the award, and thank you for all the kind and encouraging words I’ve received over the last days. I really really appreciate it!

So proud to be part of this project!

@sorensorensen.bsky.social, Christina Emborg, and I have been swearing a lot - but for research purposes! 🔍 We explored the Danish swear word expression 'hva fanden' ('what the devil'). New paper just published in Discourse and Conversation Analysis: www.gespraechsforschung-online.de/en/2025.html

👀 NEW BLOG POST 👀 by @andreabruun.bsky.social We share our first two DAPPLE posters. One is about employing researchers with a learning disability as researchers, and the second introduces the DAPPLE project. BOTH posters won prizes! Go team 🏆 www.dappleproject.com/post/11-the-...

FINALLY got to do the CARM training with @lizstokoe.bsky.social 🎙️ Now I'm filled with ideas for future projects around how to create impact by implementing, "using", and training people in communication based on real-life Conversation Analysis findings. Thank you, Liz!

The Victoria & Stuart Project has won the Marie Curie Tammy Prescott PPI 2025 Award🏆We are SO proud to have won this award. Thank you to the panel and the kind words. A big thank you to everyone involved for making this (and the toolkit) happen; we could not have done it without you! #MCResearch2025

At the @mariecurieuk.bsky.social Research Into Practice Conference these days? 💡 #MCResearch2025 Then check out our @dappleproject.bsky.social poster booth! 🔍 It's called: Developing effective service models for Adult Palliative and end-of-life care for People with a LEarning disability: DAPPLE

✨Our overview paper of The Victoria & Stuart Project has been published in JARID✨ One paper to capture everything we did to create our end-of-life care planning toolkit for people with learning disabilities. Link to paper: onlinelibrary.wiley.com/doi/epdf/10....

Please share: new funded PhD opportunity! Navigating the Mental Capacity Act to support Sexual Decision-Making for People with Learning Disabilities To find out more please follow the link below: #AcademicSky #FindAPhD #PhD #LearningDisabilitiesResearch

Our project has a PhD position available investigating understanding problems in Norwegian police interviews with a focus on L2 speakers - ideally someone with experience with conversation analysis (note: requires knowledge of a Scandinavian language) - DL March 16🐦🐦 www.jobbnorge.no/ledige-still...

Fully funded 4-year PhD with me at VU Amsterdam #emca workingat.vu.nl/vacancies/ph...

Welcome @strathcarron.bsky.social delighted to see you here. We are pleased to partner with you to deliver our course on using Talking mats to enable advanced or future care planning in March www.talkingmats.com/talking-mats... #hospice #EofLcare #palliative #endoflife

Fully funded #PhD see www.jobs.ac.uk/job/DLN059/p... Deadline 28 Feb. Please share.

Please see exciting opportunity to join our amazing international team of Associate Editors for the Journal of Applied Research in Intellectual Disabilities. Please share with anyone who may be interested in applying.

Only a few days left to apply for our PhD studentship! 💥 The PhD is full-time, starting in March 2025, and part of @dappleproject.bsky.social. You will be supervised by @tuffrey-wijne.com, Prof Jayne Price, and myself. The deadline to apply is 20 January, so it’s time to submit!

We are very proud to release 360mash - a light weight and completely free software for doing anonymisation.

Another paper published from The Victoria & Stuart Project today! 📢 It has been such a privilege to do this piece of work together with @vodgmembership.bsky.social. Thank you so much to everyone involved for getting us here. Hopefully we will get people to not assume but ask in the future!

Hear more about The Victoria & Stuart Project and how to include people with PMLD in end-of-life care planning at the "Exploring factors impacting end of life care and decision making for people with PMLD" webinar on Tuesday 11 February at 13.30-15.30 💡: www.events.england.nhs.uk/events/explo...

Only one week left to apply for our PhD studentship. Get those applications ready! ✉️

📣CALLING ALL #SLTs 📣 ❗️Do you think ‘#EasyRead’ information should be easier to read? ❗️Can you tell us what the criteria for ‘Easy Read’ should be? ❗️Do you want to be involved in shaping best practice? Please fill out our surveys: herts.eu.qualtrics.com/jfe/form/SV_...

Apply to do a full-time PhD with us💡It will be all about palliative care and learning disability, and we’re very friendly and supportive - and fun! @dappleproject.bsky.social @kingstonuniversity.bsky.social

In November, I presented at an inclusive research workshop held by the South West Learning Disabilities Collaborative (SWLDC). It was a pleasure to talk about The Victoria & Stuart Project and share ways of involving and including people learning disabilities in research - and learning from others!

Here's our poster about the DAPPLE project. We just won Best Poster 3rd Prize at #SeattleClub2024 conference!

Hurray, we won Best Poster 1st Prize with this poster on being researchers with a learning disability employed at a university #SeattleClub2024 Some excellent talks on inclusive research today - we've come far but still have a looooong way to go