Last week, some of our team left their inboxes behind and took part in an academic writing retreat! In this week’s blog, Becky Anderson-Kittow shares what happened when we swapped our desks for the countryside… Read Becky's blog here www.dappleproject.com/post/32-a-da...

In this week’s DAPPLE blog, Richard Keagan-Bull explains how the Better Care Before Death co-production group chose their name, and what inspired him to design the group’s logo Read Richard’s blog here 👉 www.dappleproject.com/post/31-bett...

🎉 NEW BLOG POST 🎉 On 1 September 2025, the DAPPLE Project turned 1! In today’s blog post, @tuffrey-wijne.com and Becky Anderson-Kittow look back on the past year and reflect on the progress, challenges, and highlights of the project’s journey so far. www.dappleproject.com/post/blog-29...

🤗NEW BLOG POST🤗 In this week’s powerful blog, @tuffrey-wijne.com reflects on her early research career. She explores the privilege of witnessing people’s lives and stories and why saying YES to research can be meaningful for everyone involved. www.dappleproject.com/post/28-i-m-...

📃NEW BLOG POST!📃 In this week's blog, Fred shares our published protocol - this is our plan for DAPPLE. There are also some links to other ways you can find out more about what we are doing on the DAPPLE Project. www.dappleproject.com/post/27-the-...

📄 New paper alert! 📄 Our protocol paper for DAPPLE has been published 🎉 You can read it below. It’s open access and sets out what we’re doing and how we’ll do it. bmjopen.bmj.com/content/15/7...

👀 NEW BLOG POST 👀 This week, Francesca Horne shares a video about the Sawubona 'I see you' Forum she attended in May which was all about equity and compassion in end-of-life care. Check it out here... www.dappleproject.com/post/25-sawu...

🛳️“It was like being on a cruise!” 🛳️ Mo usually doesn’t enjoy conferences. He feels they are often not inclusive for people with a learning disability. In this week's blog, Mo shares how the PCPLD Network Conference was different. 👉 Read Mo’s blog here: www.dappleproject.com/post/24-conf...

💬 NEW BLOG POST 💬 This week our project manager Christina talks about the challenge of jargon when trying to set up a research project. Using long words and acronyms leaves people out, even though it might seem quicker or easier if you're an expert. www.dappleproject.com/post/24-gett...

📢 New Blog! What can we learn from conversations 'in the wild'? Introducing a new pilot study, Andrea Bruun delves into the potential of Conversation Analysis to explore conversations involving people with learning disabilities in palliative care settings. www.dappleproject.com/post/23-vide...

🔢 NEW BLOG POST! 🔢 This week's post is from Dr Freya Tyrer who is crunching the numbers for DAPPLE. Freya introduces herself and her work here... www.dappleproject.com/post/21-all-...

Look, a conference about dying, death & learning disability can be joyous and inclusive! Yesterday, we listened, shed tears and danced. Thank you everyone who helped make this happen! #PCPLD2025 @kingstonuniversity.bsky.social @dappleproject.bsky.social

This #LearningDisabilityWeek we’re highlighting how important it is that every person with a learning disability is seen, heard, and valued at the end of their life. Irene Tuffrey-Wijne asks what changes YOU would like to see to help make this happen. www.dappleproject.com/post/getting...

📢 New Blog! 📢 This week’s DAPPLE Blog comes from Andrea Bruun, who recently gave 4️⃣ presentations at the European Association for Palliative Care World Congress (EAPC) 2025! You can read Andrea's blog here: www.dappleproject.com/post/19-dapp...

🎉 Celebrating the Cuppa Tea With Richard podcast at The Shard! 🎙️✨ Read the latest DAPPLE blog, where Sunny and Richard share their experience of Afternoon Tea from the 33rd floor... www.dappleproject.com/post/richard...

🗨️ NEW BLOG POST! 🗨️ DAPPLE Research Assistant Richard is often interviewing people for his Podcast. This time, he was in the hot seat! In this week’s blog, Richard shares his recent appearance on The Sui-Ling Show. www.dappleproject.com/post/17-rich...

Richard sits down with the brilliant & hilarious Mel Giedroyc for a heart-warming, witty conversation that covers everything from Eurovision to writing books & dream dinner party guests. Their instant connection and infectious humour are guaranteed to lift your spirits soundcloud.com/cuppa-tea-wi...

🎧 NEW BLOG POST 🎧 Did you know that our research assistant, Richard, hosts an award-winning podcast? This week, he reflects on recording an episode with special guest Mel Giedroyc. www.dappleproject.com/post/16-i-fe...

📚 NEW BLOG POST! 📚 In this week’s blog post, Liz Tilley reflects on the role that stories might play in helping to improve care for people with learning disabilities at the end of life. www.dappleproject.com/post/15-the-...

NEW BLOG POST! What will comfort you at the end of your life? In this week's blog, Fred Inglis shares how this question inspired our creative workshops, engaging people with a learning disability in Yorkshire. www.dappleproject.com/post/14-what...

Brilliant day at work today! A delight to listen to the chat between Richard and Mel Giedroyc for his podcast soundcloud.com/cuppa-tea-wi... Watch this space...!

NEW BLOG! 👒 In this blog, Jo Giles thinks about how the 'hat game' (that the team are often known for), can stop people seeing the in-depth work the co-production team does. Read on to get a peek behind the scenes. www.dappleproject.com/post/14-we-a...

📢 NEW BLOG POST 📢 "People with a learning disability can be lights that shine in a research team”. Sunny Sokhal reflects on why he became a researcher and the difference people with a learning disability can make to projects. www.dappleproject.com/post/12-i-ha...

What will comfort you at the end of your life? Magical week of workshops in Yorkshire! 😍 Thank you St Anne’s Community Services @dappleproject.bsky.social

👀 NEW BLOG POST 👀 by @andreabruun.bsky.social We share our first two DAPPLE posters. One is about employing researchers with a learning disability as researchers, and the second introduces the DAPPLE project. BOTH posters won prizes! Go team 🏆 www.dappleproject.com/post/11-the-...

This week we hear from Amanda who has a learning disability and has worked as a researcher at Kingston with @tuffrey-wijne.com for 15 years. Amanda talks about her love for conferences after presenting at the Palliative Care Congress in Belfast last week 🍀 www.dappleproject.com/post/i-love-...

We’re told (unexpectedly) it’s WEAR PINK ON WEDNESDAYS at St Anne’s Community Services in Yorkshire, where we’re spending a few days with the team. I had to fashion emergency earrings. My colleagues were better equipped! @dappleproject.bsky.social

New blog post! 'Let's be more Rebecca!' by Jo Giles www.dappleproject.com/post/9-let-s...

“Before I die…” The first of our DAPPLE workshops. We enjoyed getting to know people in Milton Keynes @meetmacintyre.bsky.social @dappleproject.bsky.social

For this week's blog, Sunny wrote a rap about how it feels to be judged as a person with a learning disability - listen here... "So next time you judge, remember my face I'm breakin' barriers, leavin' my trace" www.dappleproject.com/post/8-judge...

NEW BLOG 📢 On the DAPPLE project, we will be spending time with people with a learning disability who are at the end of their life. In this week's blog, Professor Erica Borgstrom reflects on training in this research method (ethnography) completed by members of the team going out to do this work.

📣 NEW BLOG! 📣 Have you ever had a long wait for a bus? In this week’s DAPPLE blog, Fred Inglis shares how a chance encounter at a bus stop changed how he thinks about death. Read the blog here www.dappleproject.com/post/6-a-con...

Do you like working alongside people with a learning disability? Join us! We need a support research assistant to work alongside Richard at Kingston University for 3 Tuesdays/month. No research experience needed. Apply jobs.kingston.ac.uk/vacancy/rese... Closing date 23 March youtu.be/cdpwLyM55wc

NEW BLOG POST! 📢 @ericaborgstrom.bsky.social discusses the refresh of the James Lind Alliance Priority Setting Partnership on palliative and end of life care research, launched by @mariecurieuk.bsky.social last week, and how this fits with the DAPPLE project. www.dappleproject.com/post/4-the-d...

Our latest blog post is here! @tuffrey-wijne.com Remember to subscribe to get our updates to your inbox. www.dappleproject.com/post/4-champ...

At the @mariecurieuk.bsky.social Research Into Practice Conference these days? 💡 #MCResearch2025 Then check out our @dappleproject.bsky.social poster booth! 🔍 It's called: Developing effective service models for Adult Palliative and end-of-life care for People with a LEarning disability: DAPPLE

Check out this week's blog post from our Research Assistant, Richard Keagan-Bull. Richard tells us the inspirational story of his friend Terry's 'GOING TO DIE' party. www.dappleproject.com/post/3-terry...

The DAPPLE research team trying to work out who its stakeholders are… who might (or should) be interested? Whose problems are we hoping to help solve? The facilitator said no other team has needed this many post-its! @dappleproject.bsky.social

Jean Willson's funeral (with a bright orange coffin) was yesterday. In this blog (incl a 3 min video), @tuffrey-wijne.com reflects on her huge legacy. Jean & her daughter Victoria were at the foundations of the DAPPLE project and the Victoria & Stuart project www.dappleproject.com/post/2-remem...

Here's our poster about the DAPPLE project. We just won Best Poster 3rd Prize at #SeattleClub2024 conference!