Happy World Mental Health Day! 🧠 The theme this year is ‘Access to Services - Mental Health in Catastrophes and Emergencies’.

📢New blog alert📢 @annacarnegie.bsky.social from @edcrn.bsky.social talks about the importance of trust in treatment, and how being treated as a unique individual with different interests and hopes for the future helped her recover from anorexia. www.dumpthescales.org/post/seven-p...

🔬 This week’s journal club is a paper authored by EDCRN’s co-principal investigator, Dr Karina Allen! The paper looks at the effect of early interventions on young people with eating disorders. To read the paper, see 👉 pubmed.ncbi.nlm.nih.gov/40878998/

🔬This week's journal club is a paper by James Downs, a member of our Lived Experience Steering Committee, and Clive Kelly, with some fascinating insights into Anorexia Nervosa in males. To see the full paper, see here 👉 www.magonlinelibrary.com/doi/full/10....

This week's journal club features a paper from our excellent colleague and PhD researcher, Saakshi Kakar, in which she conducted a large-scale analysis of under-recognised weight loss behaviours in individuals with eating disorders.

Currently, eating disorder services do not collect consistent routine data, which means we have limited knowledge of the effectiveness of care. Funded by us, a new study has identified a standardised dataset to be collected by a clinical research network in the UK, EDCRN (@edcrn.bsky.social). [1/3]

💙 Following the consensus building workshops, the EDCRN team identified four key themes. Read the thread below to find out these themes and how we implemented them into the EDCRN dataset. 🧵👇

🚨 Exciting news 🚨 Our paper on the development of the EDCRN dataset, created through consensus-building workshops, has now been published! 🎉The team held two workshops to agree on the information that should be collected in the dataset. Find out our consensus activities below🧵👇

📚 For our next EDCRN journal club, authored by a member of our Lived Experience Advisory Board, we read about the PEACE Pathway – an autism-informed approach to ED care.

🔔 Last chance! Our survey on what really matters in eating disorders early intervention closes this Friday 4th July. 🧠 Add your voice: qualtrics.kcl.ac.uk/jfe/form/SV_...

📣 We’ve now opened our second phase of recruitment and are inviting cisgender adults with a current or past eating disorder to share their experiences too. Please follow the link to find out more: tinyurl.com/LEADINGStudy1

🌱This month, we’re diving into the Full of Beans podcast hosted by Hannah Hickinbotham. Hannah is joined by Dr Jessica Murphy to explore long-term physical/mental effects of EDs in adulthood, and treatment changes needed to better support all ages.

A privilege to be back in Parliament this week for an event organised as part of the APPG on Eating Disorders with @hopevirgo.bsky.social and @werahobhouse.bsky.social. A wonderful opportunity to chat about EDCRN @edgiuk.bsky.social and the importance of continued investment in ED research.

I hosted eating disorder experts & campaigners in Parliament today. For too long, eating disorders have been misunderstood - it was therefore great to offer an opportunity to improve ED awareness. Thank you to @edgiuk.bsky.social, @dumpthescales.bsky.social & @edcrn.bsky.social joining us🤝

🎨This week’s EDCRN Journal Club features a great paper by our co-principal investigator, Dr Karina Allen! Karina is an investigator on an ambitious project called @edifyresearch.bsky.social , which aims to revolutionise how eating disorders are perceived, prevented and treated in young people. 🧵

🔬 This month's journal club comes from @jamesldowns.bsky.social , a member of our Lived Experience Steering Committee! James has published a brilliant paper on the diverse ways of knowing in mental health research. Read the thread to learn more! 🧵👇

➡️Please consider taking part in our survey! 📊We aim to include as diverse a range of views as possible. Your answers will inform an early intervention action plan shared with policy makers and practitioners! qualtrics.kcl.ac.uk/jfe/form/SV_... ⬅️

📚 Our new journal club kicks off with a paper on exploring intersectionality in help-seeking for eating disorders 🧵👇

📚 Our new journal club kicks off with a paper on personalising treatment for Feeding and Eating Disorders (FEDs). We have highlighted key sections that struck a particular chord with the team at EDCRN!

Do you or someone you know have experience of being a father of someone with an eating disorder? Please consider taking part in our study! UK-based only @kingsedresearch.bsky.social

📚 This month's journal club comes from a published paper exploring the epigenetics of eating disorders, written by EDCRN’s Co-principal Investigator, Gerome Breen and other researchers in the field of eating disorders!

You’re Not Alone photovoice exhibition with @edaceatingautism.bsky.social continues this week! Presenting the experiences and priorities of Autistic people with eating disorders through photographs, drawings and digital art. ⏰ 10am-5pm 📅 Until 8 Mar 2025 | Closed Tues/Thurs 🔗 edin.ac/42KbxdI

Interested in taking part in #eatingdisorders research? Browse the @maudsleynhs.bsky.social website for studies like @edgiuk.bsky.social which are currently recruiting, and search by condition. 👉 slam.nhs.uk/take-part-in... #EDAW #BePartofResearch @edifyresearch.bsky.social

We are recruiting UK based clinicians in eating disorder services to think about barriers & enablers for implementing autism affirming care, for example PEACE pathway. If you would be willing to be interviewed over TEAMS there is more information here! edinburgh.eu.qualtrics.com/jfe/form/SV_...

For day 3 of #EatingDisordersAwarenessWeek, we’re sharing work from EDIFY Workstream 2! This workstream uses large cohort data to explore the interplay of risk and protective factors for eating disorders, including unique and shared pathways in different groups.

For Eating Disorders Awareness Week, we’re highlighting the power of peer support.💙 Peer support workers—those with lived experience of eating disorders—bring hope, connection and representation to treatment. #PeerSupport #FREEDfromED #EatingDisordersAwarenessWeek #EDAW25

Brilliant animation from the @edifyresearch.bsky.social team on their work into food insecurity among people with eating disorders.

💙 It's Eating Disorder Awareness Week! 💙Learn more about how the EDCRN is helping those affected by eating disorders. 🧵👇

💬 Want to make a difference in eating disorder research? Join the EDCRN Youth Advisory Board (delivered by the wonderful team at @beatedsupport.bsky.social !) and use your lived experience to improve treatments, shape care, and help others on their recovery journey. 🌟

New publication on help-seeking in eating disorders, with consideration of intersecting marginalised characteristics. Brilliant first PhD publication from Jessica Wilkins! @freedfromed.bsky.social @edifyresearch.bsky.social @kingsedresearch.bsky.social jeatdisord.biomedcentral.com/articles/10....

EDAC is proud to host an exhibition of photographs, drawings and digital art on the experience and research priorities of autistic people with eating disorders . inspace.ed.ac.uk/youre-not-al.... 1st to 8th march (closed Sunday Tuesday and Thursday, free drop in 10-5 quiet hour on sat.

Our next EDCRN Journal Club entry is in audio form! 🎧 In this The Life of Bryony episode, Bryony Gordon is joined by eating disorder expert Jess Griffiths to dive into Binge Eating Disorder (BED), a common but often overlooked condition. They share their lived experiences. 🧵👇

A reminder that any person in any body can have any eating disorder. Thin people can have Binge Eating Disorder, and people in larger bodies can have anorexia or bulimia. Just as you can't tell if someone has an ED by their body size, you also can't tell WHICH ED they have.

Two recommendations from today's APPG for Eating Disorders Report of particular relevance to EDCRN: 📣Additional funding for child and adult eating disorders services 📣Increased funding for research which aims to improve outcomes for those affected by eating disorders.

📢Call for participants 📢 We want to improve access to #eatingdisorder care! If you identify as an underrepresented group in ED research, we would really like to hear about your experience of ED help seeking! Contact [email protected] to find out more and take part.

💙 How can your eating disorder service join the EDCRN? For those who missed our launch event yesterday (never fear, recording forthcoming!) here’s a quick recap 🧵👇

Thanks to everyone who joined our online launch earlier! Great to see so many people in attendance and sharing such insightful thoughts and questions. Feeling even more energised for the next steps!✨️ A recording and FAQ from the event will be available soon😊

🌟Join the EDCRN Youth Advisory Board! 🌟 Help shape our network, improve ED care, & deepen understanding of ED treatment & outcomes. Share your experiences to ensure all voices are heard. ⭐ For ages 12–17 in recovery 📅 3 online 2-hour meetings 💷 £25/hour Link in our Bio!

New publication by EDACs amazing post doc Michelle Sader on the Co-occurrence of autism and avoidant restrictive food intake disorder-meta analysis of prevalence rates ... onlinelibrary.wiley.com/doi/full/10.... @karri-g-smith.bsky.social @drhelensharpe.bsky.social @fionaduffy.bsky.social

📣Next week!! Still time to register: forms.office.com/e/ZuHS2fbFGm

The EDCRN team are switching off for the festive period.🎄 Wishing everyone a peaceful holiday season. See you in 2025! 💫

🚨 We’re Hiring! 🚨 Join the EDCRN as a Research Assistant (Data) at King’s College London! 📊 ✅ Postgrad in genetics/data science/psychology or undergrad + experience ✅ Experience with R/similar tools ✅ Clinical data management knowledge 📆 Start: April 2025 | 📍 London 🔗 Apply: Link in Bio

I am excited to be presenting at @edcrn.bsky.social's Launch Event webinar on Jan 13th! Join me live/recorded to explore the future of data-driven eating disorder services, featuring insights from lived experiences and caregivers. Register free via the link below! forms.office.com/e/ZuHS2fbFGm

📢 Join us for the EDCRN launch webinar! 🗓 13th Jan 2025 ⏰ 12:00–14:00 GMT 💻 Online via Teams 💡 Key Topics: ✨ EDCRN vision & motivations ✨ Insights from caregivers & lived experience ✨ How services can get involved ✨ Q&A session 📩 Register now: forms.office.com/e/ZuHS2fbFGm

We’ve created a Starter Pack for UK-based eating disorders research to connect & support those in the field! 🧠📊✨ Follow the pack to stay updated & get involved: go.bsky.app/9Qgb1HZ If you would like to be included, send us a DM! 💌

📣5 DAYS LEFT TO APPLY! If you've got a passion for stats and the potential of standardised data to help address the eating disorders research field's unanswered questions🔍....then join us! More info and link to apply below👇

Hi BlueSky! We're EDGI UK, an online research study exploring the genetic and environmental influences of all eating disorders Our study is open to anyone ⭐16+ ⭐residing in England ⭐Has ever experienced an eating (diagnosis not required) Join today: edgiuk.org

Please apply for this postdoc analyst position in the UK's Eating Disorders Clinical Research Network. #eatingdisorders #treatment #epidemiology #genetics - DM if any questions www.jobs.ac.uk/job/DKR331/r...

2 weeks left to apply! Join the EDCRN team and help develop the data analysis pipelines for the project: www.kcl.ac.uk/jobs/098308-...

Researchers are looking to test a new scale to measure siblings' experiences of having a brother or sister with an eating disorder. If you’re 11+ in 🇬🇧 or 🇮🇪 and want to take part visit qualtrics.kcl.ac.uk/jfe/form/SV_... Please share to increase reach!