I've never hit the add to cart button so hard or fast before 🏳️‍⚧️

A carpenter for Pratt & Whitney (maternal) A factory worker (paternal, died age 47)

One of the misinformation talking points from centrists on Covid is that Covid activists and anti-vaxxers are the same. I want you to think of any other rights movement where the centrist position has been “ugh, these people on the far ends are both so noisy, they’re the same.” Is it all of them?

Conversations in my head: Fine, Nervous and Digestive systems, I'll make tulsi ashwagandha tea instead of more caffeine... 😠 hope you're happy

If someone tells me that they'd crawl over broken glass or whatever to vote for someone who openly states they will further erode my rights (which is exactly what the "I'll vote for anyone with a D next to their name!" shit is), then they are my enemy.

Medieval Times is Hooters for Women and Book Gays. Also quite possibly Academia Enbys who do a sport. I won’t be taking questions at this time.

This knit up even faster than I expected. Even with a major mix up on my part when it came to decreasing for the crown, being out of practice reading patterns. Really needed the satisfaction of a finished object, been a rough week #fibrofiberartist #chronicpain #queerknitter #knitsky

Enjoyed a little false spring sunshine with the pupper and my annual take-a-chance-on-knitting-without-overly-flaring-up- #chronicpain in-hands/wrists project. It's a pretty quick knit pattern, I've done before. But that can be worse, if I don't pace myself. The hyperfocus is the fun #neurospicy

Thank goodness for doggos

What do we say my beautiful punks? #fuckice

If you need a break from the doom scrolling. Consider these crocus. #NEISvoid

Hey! Where did #quiltsky go? Is some server down somewhere? I want my feed of pretty quilts in dark times

Blessed Imbolc. 🕯🌱🥖 Spring is on its way. The wheel never stops turning. Funny how I didn't used to mark this festival much. But now I have so many anniversaries (both happy and sad) associated with it and the few days surrounding it...

Fuck. And now Catherine O'Hara is dead?! Fuck!!!

Been feeling too overwhelmed to post about anything lately, tho I'm on here scrolling daily. Between the big picture horrors, and the pain of not knowing how to save a close friend from themself, all while struggling thru winter in this super faulty meatsuit, I just don't know what to say anymore.

Did anybody else used to shadow your friends, who went to different schools, on days you had off but their school was open, as an excuse to have a sleepover on a school night? Was that just an 80s 90s thing? Or rural thing, cuz we lived in diff small towns and thus diff school district calendars?

(in Gir voice) Doomy doom doom doom doom

Erin just updated this list w/ 100 more kiddos to support. This is maybe the first time I've actually bought GS cookies as an adult... but I figure if we're gonna buy cookies from Trader Joe's anyway, might as well support some trans kids

Channeling my rage into art. Little by little putting the pieces together. Strictly reigning in the hyperfocal impulse to dive in for hours and get it done, in hopes of avoiding yet another pain flare #NEISvoid #fibrofiberartist #queerquilter #hEDS #neurospicy #rainbowquilt #quiltsky #chronicpain

Something I realized while testing for #POTS the other day. Healthy people use dizzy, light headed, foggy & woozy as synonyms. For the chronically ill they are distinctly, if subtly different. I wouldn't use dizzy unless the room was spinning & I was about to faint. It implies a feeling of motion.

For those of you playing along at home, I "aced" my 2nd standing test, so you can now add #POTS to my official list of dxs. 🥂🧂

Moreover, I didn't even attend a single drag show. Because leaving the house is exhausting. In truth, 2025 felt more socially isolated for me than 2020. Even that year I made digital drag, and friends dropped by for outdoor distanced conversations/to get cloth masks on the regular

It feels weird that I didn't do drag a single time this year. I didn't mean to take the whole year off. I spent 6 weeks preparing for a show that the snowstorm and my fibro took away from me in Feb. And then I didn't book anything, cuz I needed all spoons for a large garden project, and sewing

Very disappointed in Jon Stewart

I could watch this for hours

Enzo is the best snuggler ever. That is all. #DogSky

Chronic illness flares can be wildly unpredictable. We plan as much as we can. We have contingencies. We conserve our energy. Progress can still be wiped out in a heartbeat. My latest is about baselines, fear & how to let go of guilt: www.disabledginger.com/p/what-if-th...

Really stinkin proud of how this #DerpyTiger #appliqué turned out. But my hands are gonna be so mad at me. #FibroFiberArtist #chronicpain #DisabledArtist #RecycledFabric

Went to Goodwill the other day to buy a couple jackets or whatever I could put a quick appliqué onto for a friend's kid, cuz I didn't have spoons to make an outfit from scratch. Well now I'm 2 days in to a detailed Derpy Tiger back-patch that'll hopefully only take 1 more day. Oopsy Gonna be rad tho

I'm less "let's make a spreadsheet autistic" and more "ooo find me some graph paper auDHD" #neurospicy

Fucking hell Nervous system can't handle 1 1/2 days of workers replacing the furnace and ducts. Every damn thing flared up #NEISvoid #fibromyalgia #hEDS #auDHD #neurospicy #mcas

Very well articulated and relatable

I missed out on Krampus Lauf last night in Portland, again, because I'm disabled and tired. But here, enjoy this Krampus drag look I did exactly 6 years ago for a show for Tammy Brown's Holiday Sparkle tour in Hood River. It's the look my pfp drawing is based on. #nonbinarydrag #queerartist

I assume it's a neurospicy focus thing, but there are times I tear thru books, & times like this year where I've started 4 & not finished 1 yet. But this week my book devouring switch flipped on for the latter 2/3 of Morgan Llewellyn's Irish rebellion novel, 1916. 📚💙

Ever since I learned the correct pronunciation of axolotl, I've found puns based on the anglicized pronunciation to be insufferable

I don't feel like I've ever masked my neurodivergence half as hard as I've masked my chronic illness and pain

Don't u love when u go to the Dr for #hEDS pain & list most of your joints as being a problem. And they ask what about your ankles and feet, & you say Yeah but not as bad. Then for the next few weeks your ankles & feet start hurting like mad as if to say oh you think we aren't a problem? #NEISvoid

Blah. Only 3 days into Dec & I'm already super fucking tired of winter. I love the PNW with all my heart, but my chronically ill meat suit struggles more and more with the extremes of winter and summer weather that climate change has brought. Not that we can afford to move to more moderate climes

Quit burning shit

Ah, so we've reached the time of the season when I start contemplating keeping a kn95 in my jacket pocket for morning dog walks in case the neighbors' chimneys are spewing wood smoke. Cuz I'm sensitive like that. #airpollution #chronicillness #neighborhoodairpollution #airquality #quitburningshit

You just died. The 6th picture in your gallery is what killed you. Death by cute. Predictable.

Update: my pcp agrees that all signs still point to POTS, between my history, and the fact my heart rate was still rising after 10 minutes of standing. So, I get to do it again, but next time she's gonna ask the nurse to monitor hr and BP the whole time instead of checking them at intervals. Yay

Got my referrals in the mail. Phew Now to find out if any of the chiropractors have experience with #hEDS and #fibromyalgia patients and also offer massage. And hope the old executive dysfunction doesn't get in the way of making all these various appts that continue to spring forth from each appt

Me (noticing my breathing had gotten slow and deep the longer the standing test went on): oh that's a sure sign my heart rate's going up, gonna ace this POTS test Nurse: your HR only increased 16 bmp, 20 is the minimum. You don't have POTS #chronicillness #NEISvoid (1/2)

Had a phone appt w Kaiser's Spine Program yest, gatekeeper for acupuncture & chiropractic referrals, it was mostly pain scale questions as expected. A nightmare of arbitrary interpretation for any chronic pain patient. Gonna spend all day 2nd guessing my answers, worried they were too low... #hEDS

Final 2 blocks of my rainbow crumb quilt! 9 months of incremental progress. I can't wait to play with layout next, and I wish I had a blank wall to pin them to. #rainbowcrumbquilt #queerquilter #fibrofiberartist

Well, after all these years of struggle, medical trauma & gas lighting, it turned out to be incredibly easy to get a positive assessment for EDS. I love that the treatment plan printed out for me suggests therapy for medical trauma and neurodivergence #chronicpain #ehlersdanlos #hypermobility

Finished my last green crumb quilt block last night. Only 2 blocks left to go, then I can decide how I want to arrange them all, and get to assembling this rainbow lap quilt!

According to my Dr, my brain waking me up at 6 or 7 am consistently and not being able to fall back asleep, does not count as insomnia and I am just old now