Happy International Nurses Day! We'd like to say thank you to all the incredible nurses who help the brain tumour community live longer and better lives Jill, a Clinical Nurse Specialist (CNS), shares her thoughts on the importance of having access to a CNS. ⁣ ⁣

We're delighted NICE have approved Vorasidenib to treat people 12+ with IDH-mutated, low grade gliomas. The drug has shown to significantly slow tumour growth without negatively impacting quality of life. www.thebraintumourcharity.org/news/research-news/vorasidenib-approved-for-nhs-use-in-england/

The Scottish Medicines Consortium (SMC) has approved Vorasidenib for use by NHS Scotland to treat people aged 12 or older with IDH-mutated, low grade gliomas. Our CEO, Dr Micehele Afif, said "This is a moment of real celebration for the Scottish brain tumour community. Click below for more.

Here at Six Ways we made a difference in 2025 👇 Have a look in the comments at the amazing ways we have made a difference over the last 12mths. From launching our Translational and Quality of Life awards to a host of discoveries that have helped expand our understanding of brain tumours.

Are you aged between 18-25 and have been affected by a brain tumour diagnosis, whether that be your own or a loved one? Applications for our two-year, Young Ambassador programme are open until 9th of February! Apply here: www.thebraintumourcharity.org/about-us/who...

Are you aged between 18-25 and have been affected by a brain tumour diagnosis, whether that be your own or a loved one? Applications for our two-year, Young Ambassador programme are open until 9th of February! Apply here: www.thebraintumourcharity.org/about-us/who...

Free Lunchtime Webinar – Supporting Young Adults with Acquired Brain Injury - www.rcn.org.uk/news-and-eve... Date: Monday 9 February 2026 Time: 11:30-13:00 Location: Online Hear directly from project members and forum leads

Yesterday, we launched 'The Cost of a Brain Tumour: The Economic Case for Urgent Action' in Parliament, setting out the financial burden created by years of slow progress on brain tumours - and why this is not inevitable with the right national leadership. Click below for the full report:

Are you tapping into your Oncology Pharmacy service? Teams are saying they will sit in on their oncology clinic and the service is invaluable for explaining about the potential risks/side effects, administration and interactions of medications.

Excellent new report from @tessajowellbcm.bsky.social "Towards Excellence - Building a Better Future for Children With Brain Tumours" Please do download and have a read of the work being carried out by TJBCM www.tessajowellbraincancermission.org/wp-content/u...

A study published in the journal Clinical Oncology this week highlights significant geographical differences facing brain tumour patients accessing a type of precision radiotherapy in the UK. www.clinicaloncologyonline.net/article/S093...

Closing date is October 26th there is still time to come and join us You’ll support healthcare professionals in providing high quality patient care in the Young Adult/Paediatric Neuro-Oncology field which will make a real difference to patients lives careers.thebraintumourcharity.org/jobs/interna...

Imagine how rewarding it would be to use your experience in Neuro-Oncology/Oncology to drive real improvements to service and patient care for Young Adults/Paediatrics affected by a brain tumour We've an opportunity to do just that please see below careers.thebraintumourcharity.org/jobs/interna...

Please do share amongst your wider networks

On Friday, while we were visiting the Neuro-Oncology team in Oxford, we visited the team at the Maggie's centre. It's always a pleasure being in such a lovely space that can be a sanctuary for so many living with cancer when they visit their hospital. Find out more here: www.maggies.org/our-centres/

We have an exciting opportunity to join our Healthcare Engagement Team Are you currently working in TYA/Pediatrics & looking for a change? We have an exciting opportunity to join us working with all 49 Neuroscience centres across the UK Please share careers.thebraintumourcharity.org/jobs/6553839...

We know the devastating impact receiving a brain tumour diagnosis can have, whether that be your own or a loved ones. Our support covers a wide range of inclusive and accessible services for everyone affected by a brain tumour, whether it’s low or high grade, adult or child. bit.ly/4gqh4JG

There's a Patient and Carer edition of the BNOS 2025 conference 06/10/25 on Zoom 6.30 - 8.30pm Tickets on Eventbrite www.eventbrite.co.uk/e/bnos-2025-... Topics are on the Eventbrite link just scroll down to see. Please do sign up to attend and share with others who may find this useful.

Neuro-Oncology teams tell us that the number one thing they are asked about is finances and they're delighted to be able to signpost to our free benefits and money clinic: www.thebraintumourcharity.org/living-with-a-brain-tumour/get-support/benefits-clinic/

The UK Emergency Alerts system will be tested on 7 Sept 2025 at 3pm. It shares warnings during emergencies like floods, wildfires and storms. Domestic abuse survivors with concealed phones might need to turn off alerts. Here's how you can opt out ⤵️ www.gov.uk/alerts/optin...

Calling all recently joined nursing support worker members 📢 Find out more about optimising your continuing professional development (CPD) through your RCN membership with our free webinar next month. 🗓️ 17 September 🕕 6-7pm

We are delighted to announce that we have launched a brain metastases page on our website, co-produced with a Neuro-Oncology Clinical Nurse Specialist at Salford Royal NHS Foundation Trust www.thebraintumourcharity.org/brain-tumour...

Today is the last day to submit your application for the 2026 GSK IMPACT Awards. The deadline closes at 5pm today! buff.ly/dKyIXJQ

New Scottish guidelines aims to speed up brain tumour diagnosis. Read more here: www.thebraintumourcharity.org/news/policy-...

Our Counselling Service Turns Three! We’ve delivered an incredible 8,808 sessions to 1,414 individuals navigating a brain tumour diagnosis, whether their own or a loved ones. A huge thank you to our amazing team of staff and volunteers! Find out more: www.thebraintumourcharity.org/living-with-...

We are delighted to announce that we have launched a brain metastases page on our website, co-produced with a Neuro-Oncology Clinical Nurse Specialist at Salford Royal NHS Foundation Trust www.thebraintumourcharity.org/brain-tumour...

Rare Cancers Bill in jeopardy Unfortunately, an MP has tabled an amendment to the Bill that means the Government will no longer be able to support its passage. If you can, please email your MP and ask them to attend. We have a letter and guide to do so. www.thebraintumourcharity.org/news/blog-po...

Did you know the @rcn.org.uk nursing forums cover all disciplines of nursing? We have a fantastic Neuroscience Forum whose committee members span across Neuro-Oncology, Multiple Sclerosis, Stroke & more We even have a Headache specialist nurse as our chair at @rcnneuro.bsky.social come & join us

Everyone deserves quality end of life care - no matter where they live. But in rural areas, it’s harder to get support. Our new report calls for action to make palliative care available to everyone, everywhere. Read more: www.hospiceuk.org/our-campaign...

Are you based in Scotland and interested in campaigning for change? If so, we are looking for new volunteers to join our Scottish Steering Committee (SSC). Find out more here: bit.ly/3Tzg4d9

Join us In Birmingham this Autumn for our sandpit event: ‘Living longer, living better: Supporting recovery for adults with low grade brain tumours’. There is funding available for the most promising projects. Learn more and apply today: www.thebraintumourcharity.org/funding-for-...

Did you know that according to data, brain tumour trials have the lowest recruitment levels of any cancer type? Today we have launched our latest policy report exploring barriers to research participation and how these challenges can be overcome: www.thebraintumourcharity.org/news/policy-...

Do you know a nurse or HCP who works with children with PANS PANDAS? The PANS Clinical Guideline Development Group and the Royal College of Paediatrics and Child Health, are due to carry out a multidisciplinary Delphi Study. If interested contact [email protected] for more info.

🚨14 centres were named last night as Tessa Jowell Centres of Excellence, recognising exceptional brain tumour treatment, care & research. Find out which hospitals received this prestigious status and what it means for patients: tessajowellbraincancermission.org/news/2025-coe/ #CentresOfExcellence

Sign up for a free webinar on MS run by the RCN Neuroscience Forum and the Neurology Academy For any nurses who work with people with MS in any setting. Covering best practice, symptom and relapse management & more Thursday 22nd May at 16.00. Register here: neurologyacademy.org/events/webin...

We know the devastating impact receiving a brain tumour diagnosis can have, whether that be your own or a loved ones. Our support covers a wide range of inclusive and accessible services for everyone affected by a brain tumour, whether it’s low or high grade, adult or child. bit.ly/4gqh4JG

We're calling for a National Brain Tumour Strategy. This remains the only comprehensive way to address the unmet needs of people affected by brain tumours across diagnosis, care, treatment and research. Your can read more here about our submission: www.thebraintumourcharity.org/news/uncateg...

Fabulous Blog by Mark Delabajan who is a stroke nurse here in the UK. This month is Stroke Awareness month in the U.K & Mark is sharing his thoughts and his call to action on making health equity a reality regardless of geography. www.rcn.org.uk/news-and-eve...

Have you heard about Jake? Jake helps children understand their, or their parents or siblings, brain tumour diagnosis. The animations cover topics including scans, steroids, radiotherapy, chemotherapy and neurosurgery. www.thebraintumourcharity.org/living-with-...

Do any of our contacts on #Bluesky have any links with young men in this age group? Please do share this in order to get as many opinions as possible. We co-create all our own resources & understand the importance of doing so to our Neuro-Oncology community.

👨 Are you a young man (>16yrs): ✅ diagnosed with cancer aged 11-25?   We would love to hear your views on a new resource, designed to help young males with #cancer with their #fertility & #FertilityPreservation. If you can help or want to learn more please get in touch 👇

As a team from April 2024-April 2025 we spoke at various events, conferences, NHS team days, NHS team meetings & reached an amazing 1002 indviduals We promoted the support our amazing Adults, Children & Families and Young Adults teams give on a daily basis & how we can support you the HCP

I had the pleasure of joining the King's Neuro-Onc team yesterday for #braintumourawarenessmonth. We had great conversations with professionals & the public walking by. The most asked question was: What are the signs and symptoms? You can find out here: bettersafethantumour.com?utm_source=g...

Brilliant blog post by Bristol CNS Rachel discussing some of the educational difficulties for paediatric brain tumour patients. www.rcn.org.uk/news-and-eve...

What an incredible afternoon at the Senedd hearing from members of our community about the unique challenges brain tumour patients are facing in Wales. I want to say an extra big thank you to the members of the South Wales Neuro-Oncology team that were able to join us today and share their insights!

NHSE have announced the new team who are coming in to help the transition into the Dept of Health & Social Care www.england.nhs.uk/2025/03/nhs-...

The fantastic cultural advocates from this team really stole the show at the National Perinatal Palliative Care Conference last week - amazing work!

Do brain tumour patients ever ask you what happens between having their planning scan and starting radiotherapy? Anna Bangiri, a RT Physicist at Nottingham has created a video with us to explain exactly what happens during this time to help ease patients anxiety: www.youtube.com/watch?v=yLNZ...

1 in 3 people affected by a brain tumour depend on benefits for most or all of their household income. However, many people aren't aware of the financial support they could be eligible for. That's why we're launching our new benefits checker tool: www.thebraintumourcharity.org/living-with-...

This weekend some of the Healthcare Engagement Team will be at 100% Optical at ExCel London. We exhibit here as it is important for optometrists to understand how those early signs & symptoms of brain tumour's present optically. You can read more here: www.thebraintumourcharity.org/brain-tumour...