Registration is now open for our 2025 Annual Meeting with MIT Research Scientist, Beth Pollack! massmecfs.org/events/annua... #massmecfs #MyalgicEncephalomyelitis #MECFS #fibromyalgia #chronicfatigue #longcovid #invisibleillness

Hey, #MedSky & #SciSky! New text from Elsevier out today, "The Scientific Basis of Fatigue", with multiple chapters on different diseases, including #MECFS, COVID, Parkinson's, stroke and MS. Proud to be the co-author of the #MECFS chapter with authors from Mayo and Bateman-Horne! More info:🧪

We are so happy to announce that we will have Beth Pollack as our guest speaker for our Annual Meeting! Details coming soon! MassMECFS.org

MassME is proud to sign on to this letter encouraging subgroup tracking and analysis in the NIH RECOVER TLC clinical trials for Long COVID. massmecfs.org/advocacy/nat... #massmecfs #MEAction #SolveMe #openmedicinefoundation #batemanhornecenter #renegaderesearch #redefiningmecfs #corecommunity

Latest news, MassME events, research studies and more... massmecfs.org/resources/ne... #massmecfs #MyalgicEncephalomyelitis #MECFS #fibromyalgia #longcovid #chronicfatigue #chronicillness #invisibledisablity

It's hot but we're not gonna stop! Check out the latest news: massme.monkeypod.io/mailcoach/we... #massmecfs #MECFS #fibromyalgia #longcovid #invisibleillness

The Boston Waterfront 5K fundraiser was a huge success! Enormous thanks to all participants: team members, those who came out to cheer, those who got the word out and cheered from home, and of course, all 200 generous donors. THANK YOU! Watch our video recap: www.youtube.com/watch?v=jHhT...

Our Spring Fundraiser culminates this Sunday at the Waterfront 5K Run/Walk/Roll. We need your help to reach our goal! If you haven't yet donated, please do so today. Thank you! donate.hakuapp.com/donations/ne... #massmecfs #mccourtfoundation #bostonwaterfront5k #chronicfatigue #mecfsawareness

Newsletter time! Check it out! 📰👀 massmecfs.org/resources/ne... #massmecfs #chronicfatigue #MyalgicEncephalomyelitis #fibromyalgia #longcovid #chronicillness

I'm running the Boston Waterfront 5K to raise money for #MassME an organization that supports those with #MEcfs #LongCovid #Fibromyalgia. No donation is too small. fundraisers.hakuapp.com/andrea-joliat

⏰ Time is running out! Only 48 hours left to support OMF’s May Momentum campaign! Your gift will help us expand our clinical trial network, allowing us to test more treatments and accelerate progress for people with #MECFS and #LongCOVID. 👉 Donate: www.omf.ngo?form=donatenow

Washington Post: 'Long covid patients are desperate for treatments. These trials may help.' 'Some trials are focusing on drugs that target the immune system, which is affected by different pathways to long covid.' www.washingtonpost.com/wellness/202...

And even more, I hope everyone will check out the Selin Lab website (link here: www.umassmed.edu/selinlab/) so they can learn more about our work, and then… yes, then DONATE! Your donations allow this dedicated team of researchers to continue with their important work. Let’s find some answers!

I hope everyone also watches the SolveME webinar of April 29, 2025, to hear more from Liisa Selin MD, PhD, Anna Gil PhD & Roshan Kumar PhD. You also hear from both me & Megan Fitzgerald, the 2 Patient Reps on this exciting research project. The webinar is here: www.youtube.com/watch?v=2DQZ...

Thx, @cortjohnson.bsky.social, for writing about the groundbreaking researchers Liisa Selin MD, PhD, Anna Gil PhD & Roshan Kumar PhD. I am lucky to get to work w/ them. “Finding the Key? Could Unraveling T-cell Exhaustion Solve ME/CFS and Long COVID” www.healthrising.org/blog/2025/05...

MassMe has again arranged for several bridges in MA to be illuminated in blue on May 12. Boston, Cambridge-> the Zakim & Longfellow Bridges. Worcester->the Burns Bridge, Quincy->the Fore River Bridge Be sure to tag us @massmecfs if you post a photograph! #WorldMEDay #MEcfs

Designed to improve diagnosis and care for post-infectious conditions, this chapter-based guide offers real-world insights from expert clinicians. Reserve your copy: bit.ly/4jScKFu #MECFS #LongCOVID #IACCs #MedicalEducation #AccessToCare

It’s newsletter time and we have it all: Events, Advocacy, News, and more! massme.monkeypod.io/mailcoach/we... #massmecfs #MECFS #chronicfatigue #fibromyalgia #longcovid #chronicillness

Register Now for Sunday Conversations: "Twisted Connections: The Dynamic Relationship of ME/CFS & Hypermobile Ehlers-Danlos Syndrome" 4/27 @ 4pm EST. Program is free and open to all. www.massmecfs.org/news-events/... #massmecfs #MECFS #chronicfatigue #ehlersdanlos #ehlersdanlossyndromeawareness

Between this and the doctor from Brown, I would say green card holders should not travel abroad now, and if they must, they need to avoid Logan. Both incidents happened there. They have at least one nazi employed. Also, folks should probably start protesting at that airport.

We are excited to share that we have 2 new groups for our Millennials & Gen Zers. Register for one or both, the only restriction is where you live. www.massmecfs.org/news-events/... #massmecfs #MyalgicEncephalomyelitis #chronicfatigue #longcovid #chronicillness #pots #chroniclyme #fibromyalgia

In Adelaide, brain scans of 56 POTS patients found 61% had reduced blood flow in key brain areas, tied to “brain fog” and lower quality of life. Researchers link this to cognitive and motor issues. www.nature.com/articles/s41...

This Sunday! Join in conversation with people who understand. All are welcome and the program is free. Sunday Conversations: “Going into the new year, what are your hopes and dreams?” A community conversation focusing on positive visions for the coming year. Jan 19, 2025, 4pm ET

Time to sit by the fire and check out our January Newsletter! massme.monkeypod.io/mailcoach/we... #massmecfs #MECFS #chronicfatigue #longcovid #invisibleillness

JAK inhibitor (Abrocitinib) trial at Beth Israel Deaconess Medical Center in Boston for Long COVID. The clinical trial is sponsored by Pfizer. TY @curelongcovid.bsky.social for bringing to our attention!