www.medrxiv.org/content/10.1... Finally we are getting some recognition from scientists - vaccines can cause ME. Now we need to learn how to talk about this productively.

Leisk is not a doctor, nor as I understand it does he have any relevant qualifications as a scientific researcher. Why is he now dressing up as one?

Truly ground breaking research here from the NIH, just five years into the pandemic 💀

Despite being severely unwell @katiamek.bsky.social spent her precious energy to speak out about this negligent treatment she’s been through in an effort to stop others experiencing the same. time.com/7206080/long...

📢 Today @karenlhargrave.bsky.social and @binitakane.bsky.social will be representing #ThereForME on the Task & Finish group for the new delivery plan for ME. Today's #ThereForME blog outlines six things they'll be looking out for as the delivery plan is finalised. www.thereforme.uk/p/a-delivery...

Amatica Health in London are undertaking groundbreaking, patient-led research into ME blood (across a spectrum from mild to very severe), testing a huge range of 31 markers, in order to understand what drives different disease subtypes in ME and Long Covid.

As a person with ME I’m sick of the notion that I should just accept progress is slow. We need radical and dynamic leadership from our charities and supporters. We need allies to fight for us relentlessly and work collaboratively to change the reality we live every day.

In PEM from advocacy last few weeks but just coming on to share this follow up letter and petition to ME Association calling for accountability and action. www.change.org/p/me-associa...

Next Monday, @tessapinto.bsky.social’s friends are watching Unrest to understand more about ME/CFS and raise awareness of the condition that’s left our friend unable to move, stand, or live without extreme pain for over a year. Please feel free to (virtually) join us - Unrest is free on YouTube

Dec 1: It's Dr William Weir, who has worked with and supported patients with ME for decades. His message: “Best wishes for Christmas to everyone with ME or Long Covid. You all deserve excellent and appropriate treatment, with a full understanding of its causes. William Weir”

Proud to be an ambassador for #ThereforME. This campaign was launched earlier in the year on BBC Breakfast. It brings together 14 main Long Covid and ME charities. The team are lobbying hard for change. Please support and follow; youtu.be/7u40KIuz8Y4?...

This story is one of the most disturbing I've ever covered. It's about how the views of a deeply weird ideological sect affected science, medicine and the media, with devastating impacts on patients. Please read and pass on. This horror has to stop. www.theguardian.com/commentisfre...

Please share for those able to contribute. (But If you are sick yourself please save your $ for your own needs!) 🙏💙 Thank you to Mum @rgleadow.bsky.social and my sister Lucinda Hartley for helping me organise & manage www.gofundme.com/f/help-eliza... 2/2

Deeply conflicted on the assisted dying bill being voted on today.

Fantastic that this photography project by Jeremy Jeffs about ME is on display @wellcomecollection.bsky.social Hope lots of people see it. (Was meant to take part but wasn't well enough to have anyone here, and have been shielding also.) #pwME #MEcfs wellcomecollection.org/stories/livi...

Today’s @yougov.co.uk survey into why the public back assisted dying (or don’t) is a stark insight into how prejudice against disabled people lurks. The belief that needing care is inherently undignified and that ill people are a costly burden on the state are not red flags to ignore.

Make sure you’re following #ThereForME on our new social media accounts! You can find links here: linktr.ee/ThereForME#ThereForME #ComingSoon