Suzanne Doyle Guilloud
@sdoyleguilloud.bsky.social
đ€ 228
đ„ 294
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Policy Specialist
@validityfoundation.bsky.social
Neurodivergent Quaker She/her
There was no need for the study - glad to see it won't go ahead. Using an African nation for this is US imperialism at its finest. "The WHO said giving a proven life-saving intervention to some newborns but not others exposed them to "potentially irreversible harm"."
www.bbc.com/news/article...
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Guinea-Bissau: Planned US-funded baby vaccine trial blasted by WHO
Giving some newborns in Guinea-Bissau an established hepatitis B treatment but not others is "unethical", it says.
https://www.bbc.com/news/articles/c78j5k2gk02o
4 days ago
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Gillian Brockell
7 days ago
BREAKING: An ICE flight just refueled in Ireland again. A local activist pressed police to investigate for human trafficking; the plane took off 30 minutes ago. Plus, that MAGA billionaire's jet did another ICE flight, this time to Sierra Leone.
#speirghorm
gillianbrockell.ghost.io/ice-flight-r...
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ICE flight refuels in Ireland again; Irish activist pressed police to investigate
MAGA billionaireâs jet also did another ICE flight, to Sierra Leone.
https://gillianbrockell.ghost.io/ice-flight-refuels-in-ireland-again-irish-activist-pressed-police-to-investigate/
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Good to see the issue of disability & incarceration being examined here, but concluding that greater access to forensic detention or 'therapeutic bail' (diversion to psychiatric hospitals) is the answer is ignoring Ireland's human rights obligations under the
#CRPD
www.rte.ie/news/investi...
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Surge in actively psychotic patients held in prisons, RTĂ finds
A rapid rise in numbers of acutely psychotic people in prison is deepening a crisis in psychiatric care, RTĂ Investigates finds.
https://www.rte.ie/news/investigations-unit/2026/0209/1557379-psychotic-patients-held-in-prisons/
9 days ago
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Aucune référence à la Convention relative aux droits des personnes handicapées dans ce rapport, ni à la demande de son comité que la France abroge toutes les dispositions juridiques permettant le traitement involontaire dans les établissements ou les cadres communautaires au motif d'un handicap.
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20 days ago
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Suzanne Doyle Guilloud
Veronica Marxupilami đ€Ż
23 days ago
Voilà plus de 2 semaines que nous occupons une ancienne école, dans la parc Blandan à Lyon, pour mettre à l'abri 27 familles qui dormaient dans des écoles. L'objectif: créer un rapport de force avec la préfecture qui refuse de nous proposer des solutions.
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Zemel tov
26 days ago
La police française a raflĂ© un de mes Ă©lĂšves lâan dernier pour lâenfermer dans un CRA avant de lâenvoyer, avec sa sĆur en bas Ăąge & sa mĂšre isolĂ©e, dans une dictature du Caucase dont il ne parle mĂȘme pas la langue.
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Look, I'm as angry and opposed to what Trump is doing as anyone. But can we stop with the 'lunatic', 'crazy', 'moron' insults and the photos of him in a straitjacket please? Us disabled people are more likely to be subject to violence and discrimination than to inflict them. Cheers đ
29 days ago
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We do not need to be 'cured' ...
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about 1 month ago
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ENIL
about 1 month ago
Are EU funds really supporting
#deinstitutionalisation
? Join us on 14 Jan for the launch of âIâm here for lifeâ â a report on the misuse of EU funding in Bulgaria and why independent living still isnât delivered. đ 15:00 CET, Online đRegister:
enil.eu/event/webina...
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Webinar: Launch of the report "I'm here for life" - ENIL
Webinar: Launch of the report âIâm here for lifeâ â Study visit on the (mis)use of EU funding to advance deinstitutionalisation in Bulgaria When? ...
https://enil.eu/event/webinar-launch-of-the-report-im-here-for-life/
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Suzanne Doyle Guilloud
l-L_-p
about 1 month ago
Le groupe NestlĂ© rappelle des "lots de laits infantiles par mesure de prĂ©caution dans plusieurs pays en Europe" tandis qu'il dissimule du sucre ajoutĂ© dans ses produits destinĂ©s aux bĂ©bĂ©s [...] dans les pays pauvres et Ă faible revenus, notamment en AfriqueâŠđ€Ź
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Important info for families using SMA formula âŹïž Just as a reminder, Stage 2/3 so-called 'growing-up milks' are a marketing gimmick and unnecessary for babies/toddlers who don't have any nutritional/health issues. Also,
#boycottnestle
forever
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Nestle issues global recall of some baby formula products over toxin fears
The food giant discovered some batches of SMA infant and follow-on formula could lead to vomiting
https://www.bbc.com/news/articles/cx2yvx8gnnpo
about 1 month ago
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"We are called to heed the advice that, in living authentically, we must allow each of us to present our whole selves, sure that we are received in love."
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about 2 months ago
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Les Dévalideuses
3 months ago
Ce soir recommence la grand messe annuelle caritative du Téléthon. On en peut plus. On en veut plus.
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Céline Extenso
about 2 years ago
Rappel annuel que oui, je suis myopathe et contre le
#Telethon
. Quelques points âŹïž
#EndTheTelethon
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Céline Extenso
2 months ago
Mon Bingo Bullshit du Téléthon a 11 ans. Hélas il marche toujours aussi bien.
#StopTéléthon
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TSOUKOU
2 months ago
Les Dévalideuses dénoncent le Téléthon et son validisme, critiquant le misérabilisme et la charité. Elles réclament des droits, un financement public équitable de la recherche et proposent en 2025 ressources, Crip café, diffusion radio et affiches Stop Téléthon :
lesdevalideuses.org/stop-telethon/
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Stop Téléthon - Les Dévalideuses
Campagne Stop Téléthon Pendant 48h non-stop, le Téléthon offre une vision misérabiliste du handicap, mettant en avant des enfants ou jeunes adultes handicapés « frappés par la maladie ». Un vrai show ...
https://lesdevalideuses.org/stop-telethon/
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I mean if someone from *Fine Gael* can be on the right side of this issue ...
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3 months ago
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Laura Grace Weldon
3 months ago
From out there on the Moon, international politics look so petty. You want to grab a politician by the scruff of the neck and drag him a quarter of a million miles out and say, âLook at that, you son of a bitch.â â Edgar Mitchell, Apollo 14 astronaut
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Alliance for Choice
3 months ago
Advancing disability-inclusive reproductive health care Women with disabilities are often excluded in information on sexual and reproductive health, including safe abortion and contraception. đ°
www.ipas.org/our-work/adv...
#IDPWD
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Padre Pio
3 months ago
Comme quoi bizarrement lĂ on trouve l'argent magique qu'on n'a jamais pour ceux qui crĂšvent de faim ou qui dorment dans la rue. On a cramĂ© dix milliards pour le SNU, chiffre Cour des comptes. Ăa va coĂ»ter combien, sa version longue ?
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Disabled Women Ireland
3 months ago
The DPO Network, represented by Amy Hassett from DWI, and Mairead Forde and Joe McGrath from the The National Platform of Self-advocates will be appearing before the Joint Committees on Disability and Social Protection.
www.oireachtas.ie/en/oireachta...
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Oireachtas committee meeting live stream
Live stream of public Oireachtas committee meeting in committee room 1
https://www.oireachtas.ie/en/oireachtas-tv/cr1-live/
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Irish Penal Reform Trust
3 months ago
đą Weâre hiring! IPRT is recruiting a Communications, Content & Engagement Officer. Join Irelandâs leading NGO working for the rights of people in prison and evidence-based penal reform. Apply here:
bit.ly/4add7sk
Please share!
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Frank Wynne
3 months ago
In one of her first public actions as the newly elected UachtarĂĄn na hĂireann (president of Ireland) Catherine Connolly has written a public letter of solidarity on Trans Remembrance Day. It is a very promising start.
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Céline Extenso
3 months ago
"Il a 45 ans, il a assez vĂ©cu." L'homme tĂ©traplĂ©gique exprime le souhait de vivre, mais les mĂ©decins dĂ©crĂštent l'arrĂȘt des soins. Il faut dire qu'il est trisomique et s'appelle Abdenour. VoilĂ le pays raciste et validiste oĂč vous encouragez l'euthanasie !
www.bondyblog.fr/enquete/piti...
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PitiĂ©-SalpĂȘtriĂšre : une famille saisit la justice pour Abdenour, devenu tĂ©traplĂ©gique - Bondy Blog
MalgrĂ© une alerte signalant un risque vital, Abdenour Belhouli a Ă©tĂ© renvoyĂ© chez lui par les services de lâhĂŽpital de la PitiĂ©-SalpĂȘtriĂšre (Paris XIII). Il est aujourdâhui tĂ©traplĂ©gique. Sa famille c...
https://www.bondyblog.fr/enquete/pitie-salpetriere-une-famille-saisit-la-justice-pour-abdenour-devenu-tetraplegique/
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Frances Ryan
3 months ago
Worth remembering as this unfolds that it was disabled people and people from ethnic minority backgrounds who disproportionately died. Tens of thousands needlessly lost their lives, many who died alone or with just an iPad. Thousands more were left with life changing Long Covid. A true scandal.
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"The research is so flawed and inconclusive that ECT would have absolutely no chance of obtaining MHRA approval in the UK, or FDA approval in the USA, if it were introduced today." Users and survivors of psychiatry have been talking about their experiences of ECT for years. But we needed a study...
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Electroconvulsive therapy may have more adverse effects than thought
Study calls for depression treatment to be suspended for more research after reports of heart problems and emotional blunting
https://www.theguardian.com/science/2025/nov/20/depression-electroconvulsive-therapy-adverse-effects-study
3 months ago
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s. e. smith
3 months ago
It's so interesting to me when neurotypical people explain very obvious things and then expect me to naturally comprehend the most mysterious things about the way their brains work.
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The couple have been in a relationship for *two decades* but had to suffer this indignity. Glad the application was dismissed, but concerning to see the Court proposing a test that many of us would not be able to pass. Not sure I knew the âpotential consequencesâ of marriage when I headed into mine.
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Couple with intellectual disabilities allowed to marry
A couple with intellectual disabilities will be able to marry following a decision of a judge in the Circuit Civil Court.
https://www.rte.ie/news/courts/2025/1117/1544445-marriage-case-courts/
3 months ago
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BladeoftheSun
3 months ago
Samir Zitouni a Muslim Immigrant from Algeria left hospital today, 2 weeks after being the first person to try stop the attack in Huntingdon train attack. They won't want to talk about this immigrant.
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Nono le ronchon
3 months ago
Oui, la scolarité des enfants handicapéEs est conditionnée à la présence d'AESH. Et c'est un grave problÚme: - les enseignantEs se déchargent totalement sur les AESH. - les AESH sont précariséEs donc la scolarité des enfants handicapéEs l'est aussi. - pédagogie & accessibilité ne sont pas mobilisés.
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Jordan P. Mardelle
3 months ago
In memory of Alice Wong, the 10 Principles of Disability Justice. May she rest in power
sinsinvalid.org/10-principle...
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10 Principles of Disability Justice | Sins Invalid
https://sinsinvalid.org/10-principles-of-disability-justice/
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s. e. smith
3 months ago
âDeath remains my intimate shadow partner. It has been with me since birth, always hovering close by. I understand one day we will finally waltz together into the ether. I hope when that time comes, I die with the satisfaction of a life well-lived, unapologetic, joyful, & full of love.â âAlice Wong
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So very sad to read this. Another disability giant has left us. Holding her friends and family in the light.
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3 months ago
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Alliance for Choice
3 months ago
Women on Web have released a new five year strategy. WoW support abortion seekers to access care through telemedicine. They provide support globally to those unable to access care locally. Read about their work and their five year plan here:
www.womenonweb.org/en/our-strat...
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Peter Torres Fremlin
3 months ago
Mad Pride protests in France denounced violence in medical treatment. One of the protestors said: âAll my life, Iâve been told I was different. Today, Iâve come to fight against normality!â This and more in an update with disability news from 42 countries.
www.disabilitydebrief.org/debrief/figh...
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Fight against normality
Protests, sign languages, and curated disability news from 42 countries
https://www.disabilitydebrief.org/debrief/fight-against-normality/
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Fantastic, powerful intervention from Antonia Trikalioti from
@enil-eu.bsky.social
, speaking of her rage and frustration at EU and State inaction on the institutionalisation of persons with disabilities, and her determination to continue to hold power to account.
4 months ago
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Pleased to be in the European Parliament with
@stevenbp.bsky.social
today on behalf of
@validityfoundation.bsky.social
, raising awareness on the use of EU funds for institutionalisation and other violations of fundamental rights which has been uncovered by the FURI project (
tinyurl.com/469wm2pj
)
4 months ago
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Richard Chambers
4 months ago
Saw her twice - in the Park and Rialto. Thought I was hallucinating
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Bibi La Diva
4 months ago
Y'a des mÎmes qui dorment dans la rue en France hein. Y'a des mÎmes dans des cra. Alors, je pense que ça c'est bien plus dommageable pour le pays dit "des droits de l'homme" et des "LumiÚres" qu'un peut de verroterie disparue. Déso pas déso.
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Les Dévalideuses
4 months ago
Ne ratez pas notre live Twitch sur l'handiparentalité avec
@sushinalagouje.bsky.social
le lundi 20 octobre Ă 19h đ Ăa se passera ici :
www.twitch.tv/lesdevalideu...
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France Culture
4 months ago
La âMad Prideâ est une marche revendicative contre les violences psychiatriques et institutionnelles, qui appelle Ă repenser en profondeur notre rapport Ă la souffrance psychique. Son mot dâordre rĂ©sume toute une lutte : âSi câest contraint, ce nâest pas du soin.ââĄïž
https://l.franceculture.fr/0Vq
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AliĂšnor Bertrand
5 months ago
Fermeture des petites maternités, destruction des PMI, etc. Dix départements français n'ont PAS de maternité. 75 % des maternités ont disparu en France en 50 ans. Et pas non plus d'augmentation conséquente de moyens dans les grandes maternités. Pas de mots.
www.sciencesetavenir.fr/sante/maladi...
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La mortalité des nouveau-nés augmente en France, mais uniquement chez les moins favorisés
La mortalité néonatale augmente en France, et ce sont les moins favorisés qui en portent le poids. Les 20% aux mÚres les plus défavorisées ont +70% de risque de décéder dans leur premier mois de vie q...
https://www.sciencesetavenir.fr/sante/maladie-enfant/la-mortalite-des-nouveau-nes-augmente-en-france-mais-uniquement-chez-les-moins-favorises_188235
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National Survivor User Network
4 months ago
On
#WorldMentalHealthDay
, we once again ask whether sanitised awareness days are truly the solution to decades of chronic underfunding of statutory services, and the social and material conditions that continue to drive distress.
www.nsun.org.uk/when-world-m...
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When World Mental Health Day is over, we will still be Mad
Each year, NSUN and its members witness the fleeting spark of attention which awareness days attract quickly fizzle back into inaction.
https://www.nsun.org.uk/when-world-mental-health-day-is-over-we-will-still-be-mad/
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Well that's my weekend sorted ...
5 months ago
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đą The UN Committee on the Rights of Persons with Disabilities (CRPD) is seeking inputs for its survey on disability-based violence for Guidelines it will produce on the issue. Deadline: 30 November 2025
ohchr.org/en/calls-for-input/2025/survey-disability-based-violence
#DisabilityRights
#CRPD
5 months ago
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Join us (in person or online) for this event! Our aim is to ensure that people with disabilities and their allies can monitor & challenge the misuse of EU funds, making sure that States comply with their human rights obligations rather than using them for segregation & exclusion.
#disability
#CRPD
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FURI Workshop on Disability in EU Funding - Validity.ngo
Date: 30 October 2025Time: 9:30â13:00Place: Rue de lâIndustrie 10, 1000 Brussels Captioning in English will be provided! The FURI (European Funds for Fundamental Rights) project works to strengthen th...
https://validity.ngo/furi-workshop-on-disability-in-eu-funding/
5 months ago
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Suzanne Doyle Guilloud
Les Dévalideuses
5 months ago
Le sous-financement et manque de soutien aux MDPH, encore â Outre l'impact financier direct sur les usagerEs, partout en France, les MDPH sont en sous-effectifs, les employĂ©Es sont maltraitĂ©Es, et ces violences se rĂ©percutent sur les handiEs
www.humanite.fr/societe/cons...
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Honteux : ValĂ©rie PĂ©cresse et sa majoritĂ© suppriment discrĂštement les subventions aux MDPH d'Ăle-de-France - L'HumanitĂ©
ValĂ©rie PĂ©cresse et sa majoritĂ© suppriment les subventions allouĂ©es aux Maisons dĂ©partementales des personnes handicapĂ©es (MDPH) dâĂle-de-France, en toute discrĂ©tion. Une dĂ©cisio...
https://www.humanite.fr/societe/conseil-regional-dile-de-france/valerie-pecresse-et-sa-majorite-suppriment-discretement-les-subventions-aux-mdph-dile-de-france
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Stimpunks Foundation
5 months ago
Stimpunks community members were heavily involved in many aspects of the production of these two educational animation videos about Autistic experiences. Discovering You're Autistic
youtu.be/-eDv2omDMko?...
Lightbulb Moments: Being Autistic
youtu.be/3O6hy-usIug?...
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Discovering You're Autistic
Discovering You're Autistic is a short animated film that explores what it means to be Autistic through a neuro-affirming lens underpinned by the social model of disability. Created by anâŠ
https://youtu.be/-eDv2omDMko?si=tlqIIWNSaYbqUAWF
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