Yesterday marked the first event of the FOPH on the National Strategy for myalgic encephalomyelitis #MECFS and #LongCovid. The 4 patient organizations were able to contribute their experiences, concerns, and demands in the workshops. @sgme.bsky.social ME/CFS Schweiz @longcovidch.bsky.social PVS

We organised our 1st assembly, which was attended by 4/7 board members and 19/700 invited members. The assembly unanimously discharged the board and approved new articles and regulations governing integrity, transparency and conflicts of interest. long-covid-info.ch/news/erste-l...

Heute wollen wir darauf hinweisen, dass weltweit > 400 Mio. Menschen seit ihrer Covid-Infektion mit Long Covid leben (müssen). 5% der Bevölkerung sind betroffen. 6-7% der Erwachsenen und 1% der Kinder und Jugendlichen. Wir brauchen Versorgung, Forschung und soziale Sicherheit! #LongCovidAwareness

Silvia Bisculm Jörg überzeugt mit ihrem Votum den Grossen Rat im Kanton Graubünden für eine bessere Unterstützung von Betroffenen mit #LongCovid und #mecfs. Eine nationale Strategie mit Kompetenzzentren und Forschungsförderung. @kantonsspitalgr.bsky.social

Lorenz Hess hat eine Motion für eine Nationale Strategie zu #MECFS #LongCovid #PostVac eingereicht. Jetzt entscheidet der Bundesrat, ob er die Motion dem Parlament zur Annahme empfiehlt. BR Baume Schneider hat signalisiert, dass sie das Thema ernst nimmt. @sgme.bsky.social @swisslc-kids.bsky.social

Polybio is supporting several trials of potential #LongCovid treatments. Working with @putrinolab.bsky.social at the Sinai CoRE clinic, Polybio President Dr. Amy Proal is spearheading an investigation of repurposed HIV antivirals Truvada & Maraviroc for treatment of LC, targeting viral reservoirs.

Study about Spanish Flu in Zurich shows need to go beyond #mortality to quantify burden #morbidity, impact on hospitalisation, long-term sequelae & work absences. #longcovid #myalgicencephalomyelitis #mecfs encephalitis lethargica, SARS1, MERS. www.sciencedirect.com/science/arti...

#LongCovid risk associated w/ multiple SARS-COV-2 infections, severe #COVID, and being unvaccinated at 1st infection after adjusting for relevant demographic, lifestyle, clinical variables. Can we please focus on those now!? (Not BMI, anxiety, personality) www.sciencedirect.com/science/arti...

Article in German about the psychologisation of long covid and myalgic encephalomyelitis. We need research, education and adequate care. Thanks to all who contributed! @sgme.bsky.social www.republik.ch/2025/01/08/l...

We wish all our followers a happy new year! We have achieved a lot over the past year. Highlights were the 24h reading at Theater Neumarkt and a Round Table with our partner @sgme.bsky.social and all major stakeholders. We are looking forward to continuing our work this year. #StrongerTogether