European ME Alliance statements at the 75th session of the World Health Organisation Committee for Europe in Copenhagen www.europeanmealliance.org/emea-news-wh... #rc75cph #mecfs #EuropeanMEalliance

This week EMEA is participating in 𝟳𝟱𝘁𝗵 𝘀𝗲𝘀𝘀𝗶𝗼𝗻 𝗼𝗳 𝗪𝗛𝗢 𝗥𝗲𝗴𝗶𝗼𝗻𝗮𝗹 𝗖𝗼𝗺𝗺𝗶𝘁𝘁𝗲𝗲 𝗳𝗼𝗿 𝗘𝘂𝗿𝗼𝗽𝗲 in Copenhagen with ‘ official Non-State Actor accredited’ status Last year EMEA met with Dr Hans Kluge WHO Regional Director for Europe, to discuss ME and EMEA's plans and strategy euro-me.org/emea-news-wh... #mecfs

Postural Orthostatic Tachycardia Syndrome (PoTS) - Awareness Day 25th October and its frequent co-existence with Myalgic Encephalomyelitis #mecfs www.europeanmealliance.org/news-Q32025-... #PoTSAwarenessDay #research #EuropeanMEAlliance

As UN prepares its Political Declaration for 4th High-Level Meeting on NCDs has requested the inclusion of Myalgic Encephalomyelitis #mecfs in its implementation and for it to be recognised in global health strategies europeanmealliance.org/news-Q32025-... #UNHLM4 #DisabilityRights

Switzerland is putting in place one of Europe’s first national strategies specifically dedicated to improving care and research for ME/CFS and Long Covid www.europeanmealliance.org/news-Q32025-... #mecfs #Longcovid #EuropeanMEalliance

#WorldPatientSafetyDay EMEA highlights the need to see, hear, protect even the most invisible children-those with a disease still too often ignored - Myalgic Encephalomyelitis #mecfs www.europeanmealliance.org/news-Q32025-... 1/

#WorldPatientSafetyDay EMEA highlights the need to see, hear, protect even the most invisible children-those with a disease still too often ignored - Myalgic Encephalomyelitis #mecfs www.europeanmealliance.org/news-Q32025-... 1/

As UN prepares its Political Declaration for 4th High-Level Meeting on NCDs, Myalgic Encephalomyelitis (ME) remains invisible @Euromeall challenges this neglect - calling for ME to be recognised in global health strategies www.europeanmealliance.org/news-Q32025-... #MECFS #UNHLM4 #DisabilityRights

2/3 #youngEMERG consists of early career researchers from the UK, Austria, Norway, Spain and Germany 🌍 We are passionate about making a difference in the #MECFS community by working collaboratively to drive the ME/CFS research further and support young researchers in the field 🔬

👋 Meet young EMERG and get to know us! 1/3 #youngEMERG is part of European ME Research Group (EMERG), a network of researchers from across Europe focused on advancing knowledge and understanding in #MECFS. youngemerg.com/aboutus.shtml

Sensitive topic #WorldSuicidePreventionDay #MECFS - a serious neuro-immune disease. 69% cannot work, 25% are house- or bed-bound. Stigma, lack of treatments, isolation, societal neglect drive suicide risk well above population norms www.europeanmealliance.org/news-Q32025-... 1/3

ME is a too often ignored humanitarian crisis in many European countries Today is #WorldHumanitarianDay – EMEA has called for EU to: -Use proven EU mechanisms -Fund & formalise existing efforts -Treat ME/CFS as a legitimate public health challenge www.europeanmealliance.org/documents/eu... #mecfs

Switzerland Advances National Strategy on ME and Long Covid www.europeanmealliance.org/news-Q32025-... #mecfs #Longcovid

Urban mobility and development should be sustainable and inclusive! That's what our project #Act4Dys is about! We work to improve awareness, accessibility and sustainability, while empowering youth engagement and education. More info in our newsletter: act4dys.eu

EMEA Press Release Severe ME - European ME Alliance's practical and achievable proposal for taking action for this Human and Economic Crisis that Europe Can No Longer Ignore www.europeanmealliance.org/documents/eu... #mecfs #SevereME #research

August 8th- a moment to spotlight a disease that devastates lives and drains economies 𝗠𝘆𝗮𝗹𝗴𝗶𝗰 𝗘𝗻𝗰𝗲𝗽𝗵𝗮𝗹𝗼𝗺𝘆𝗲𝗹𝗶𝘁𝗶𝘀 (ME, also known as #MECFS) affects 2 million+ in Europe EMEA has practical, achievable proposals the EU can adopt now: #SevereMEDay Read on 1/4

In May the European ME Alliance was accepted as a full member of the European Patients' Forum (‪@eupatientsforum.bsky.social‬), the leading umbrella organisation representing patients across Europe www.europeanmealliance.org/news-Q22025-... #mecfs

EMEA are members of European Federation of Neurological Associations (@efna.net). In the latest episode of the EFNA #BrainHealthMatters podcast the invisible battles faced by people living with neurological conditions are explored - and EMEA contributed this - www.linkedin.com/posts/efna_b... #mecfs

EMEA Participated in the European Disabilities Forum Annual Meeting, Vilnius, June 2025 www.europeanmealliance.org/news-Q22025-... #mecfs

𝐈𝐧𝐭𝐞𝐫𝐧𝐚𝐭𝐢𝐨𝐧𝐚𝐥 𝐌𝐄 𝐀𝐰𝐚𝐫𝐞𝐧𝐞𝐬𝐬 𝐃𝐚𝐲 On #InternationalMEawarenessDay EMEA urges the #EU to work with EMEA and initiate a pan-European effort to resolve decades of issues with research and treatment of ME europeanmealliance.org/emea-meaware... #mecfs #InternationalMEawarenessDay #MedEd

𝗜𝗻𝘁𝗲𝗿𝗻𝗮𝘁𝗶𝗼𝗻𝗮𝗹 𝗠𝗘 𝗔𝘄𝗮𝗿𝗲𝗻𝗲𝘀𝘀 𝗗𝗮𝘆 There is a solution for ME: 𝗟𝗮𝘂𝗻𝗰𝗵 𝗻𝗮𝘁𝗶𝗼𝗻𝗮𝗹/𝗘𝘂𝗿𝗼𝗽𝗲𝗮𝗻 𝘀𝘁𝗿𝗮𝘁𝗲𝗴𝗶𝗲𝘀 𝗼𝗳 𝗯𝗶𝗼𝗺𝗲𝗱𝗶𝗰𝗮𝗹 𝗿𝗲𝘀𝗲𝗮𝗿𝗰𝗵 𝘁𝗼 𝗶𝗺𝗽𝗿𝗼𝘃𝗲 𝗽𝗮𝘁𝗶𝗲𝗻𝘁 𝗼𝘂𝘁𝗰𝗼𝗺𝗲𝘀/𝗱𝗲𝘃𝗲𝗹𝗼𝗽 𝘁𝗿𝗲𝗮𝘁𝗺𝗲𝗻𝘁𝘀 Listen to the voices of patients Share the video #mecfs #InternationalMEawarenessDay #MedEd #MEAwareness youtube.com/shorts/Mb_n2...

It is 𝗜𝗻𝘁𝗲𝗿𝗻𝗮𝘁𝗶𝗼𝗻𝗮𝗹 𝗠𝗘 𝗔𝘄𝗮𝗿𝗲𝗻𝗲𝘀𝘀 𝗗𝗮𝘆 𝗗𝗼 𝗻𝗼𝘁 𝗱𝗶𝘀𝗺𝗶𝘀𝘀 𝗺𝘆𝗮𝗹𝗴𝗶𝗰 𝗲𝗻𝗰𝗲𝗽𝗵𝗮𝗹𝗼𝗺𝘆𝗲𝗹𝗶𝘁𝗶𝘀 (𝗠𝗘) The science does not! Listen to the voices of patients Share the video #mecfs #InternationalMEawarenessDay #MedEd #MEAwareness #EndME youtube.com/shorts/16vBt...

A paper resulting from the work of Invest in ME Research-funded research at the #CofEforME in Norwich Research Park Cognitive Dysfunction in #MECFS — Aetiology and Potential Treatments investinme.org/iimer-newsle... #research

For #InternationalDayOfPersonswithDisabilities EMEA joins over 100 organisations to urge EU Commissioner Lahbib to “keep the momentum” on disability rights @myedf.bsky.social statement - europeanmealliance.org/news-Q42024-... #MEawareness #DisabilityRights #mecfs

On #InternationalDayOfPersonsWithDisabilities we honour the resilience of those living with #MyalgicEncephalomyelitis and their carers-who continue to fight for recognition, treatment and the urgency this disease deserves europeanmealliance.org/news-Q42024-... #MEawareness #DisabilityRights #mecfs

Very sad news of our EMEA board member, colleague and friend Sture Eriksson europeanmealliance.org/stureeriksso... #mecfs

EMEA Presents at European Parliament Meeting European Parliament Meeting of the MEP Interest Group on Brain Health and Neurological Conditions November 2024 europeanmealliance.org/news-Q42024-... #mecfs #EuropeanUnion

A new milestone: Young EMERG/EMEA joined the Youth4Health initiative Reflections from @YoungEmerg emergecr.org/ye-news2411-... #mecfs #research @europeanmealliance.bsky.social

For @euromeall read @europeanmealliance.bsky.social

Our colleagues @euromeall Serbia have shared the YouTube link for 2nd International Symposium Post-covid Syndrome and ME 22 Nov which will be streamed youtube.com/@udruzenjesh... @udruzenjeshuks #mecfs #research #medsky #COVID #PatientExperience #publichealth #LongCOVID

European ME Research Group (EMERG) members will be organising and presenting at 2nd International Symposium Post-covid Syndrome Methodological aspect of diagnostics and treatment in Belgrade #Serbia 22 November 2024 emerg.eu/emergnews240... #research #mecfs #LongCovid @EUROMEALL

Great to see our @europeanmealliance.bsky.social colleagues in Serbia working with EMERG member Prof. Dr. Branislav Milovanović for the 2nd International Symposium in Serbia on Friday shuks-udruzenje.rs/2024/11/06/d... #mecfs #research

Invest in ME Research initiated Young EMERG - the European ME Research Group early career researchers 2 international workshops already & #YEMERG25 arranged in May Johanna(Med. Univ. of Vienna) of Young EMERG is European ME Alliance's rep @ Youth4Health europeanmealliance.org/emea-news-wh... #mecfs

Invest in ME Research are a founder member, and past chair for 15 years, of the European ME Alliance (EMEA). EMEA recently participated in the WHO Europe Regional Congress An overview of the Alliance's activities @ #RCP74CPH in Copenhagen europeanmealliance.org/emea-news-wh... #mecfs #research