Registration is now open for my October Pace Yourself Workshop! Check out the feedback from the August participants! If you can’t make this date, a recording will be available on demand after this event. #Fatigue #Chroniclllness #ADHD #Autism #Neurodivergent #Burnout #SelfCare #LongCOVID #MECFS

The last 6 months (and beyond) have been a lot. Join me on August 10 for this workshop on pacing when things feel chaotic and heavy. Anyone is welcome who wants to be more intentional about recognizing their needs and limits. Please feel free to share! form.jotform.com/251997556628...

I had the pleasure of being on Dr. Serena Wadwa’s podcast where we talked about the tensions of the personal and professional as therapists, how chronic illness impacts these, and answered a listener’s question about a loved one with Long COVID. Give it a listen! www.youtube.com/watch?v=L0Je...

Excited to be part of this livestream tomorrow in honor of Mental Health Awareness and ME/CFS Awareness Months! facebook.com/radiopanipoori

My latest article is about misogyny & misogynoir. Black women are three times more likely to die in pregnancy. Black babies have the highest infant mortality. The government looking to cut Medicaid, food assistance & other critical support is forcing Adriana Smith to be an incubator for a fetus.

New post today breaking down the ethical and logistical problems with the vaccine changes and public health policy, as well as the inconsistencies between what we’re being told and the action is being taken.

It’s finally coming to light just how many people actually have Long COVID. If you’ve been spared so far, do whatever you can to avoid re/infections, because there are no approved treatments and much of the research we were counting on just got gutted. www.cidrap.umn.edu/covid-19/stu...

I’m looking to interview some folks who stopped masking/testing/mitigating and then started again. This is for a piece I’m writing - happy to give attribution or keep folks anonymous. Please submit a contact form & select “collaboration” for the inquiry type. misfitmentalhealth.com/contact

Required reading… open.substack.com/pub/theprogr...

There’s a thread that people keep missing that I had to pull on in this piece...

the thing I hate most about that rfk quote is that autistic lives have value and worth and beauty and dignity whether they are able to do the things other people do or not. no one is defined by ability or lack thereof and to frame divergence as lack is monster stuff, utterly godless

My new friends over at PHAN shared my latest piece in honor of Long COVID Awareness Day. Be sure to check it out and give them a follow!

It’s been heartening to get a little traction & finally have some eyes on my writing! I’ve never done social media “right” & can’t/refuse to boil down complex, nuanced things into neat & tidy infographics or 180 characters, so I’m glad to find my long-form folks! open.substack.com/pub/misfitme...

Here are 50 reasons someone might be masking in 2025. None of them have to do with anxiety or criminal behavior, and not all of them about COVID. Use them in your accommodations requests or when advocating to protect the right to wear masks/prevent mask bans. open.substack.com/pub/misfitme...

Call your State Senator and Assembly Member today to demand they oppose mask bans! We’ve updated our call tool with new talking points to help you make the strongest case possible. Every call makes a difference! bit.ly/no-mask-ban #NoNYMaskBan

If anyone is looking for something to watch instead of the propaga...I mean, Super Bowl. tubitv.com/movies/67801...

Are you an I ntersectional ally? Excellent! Then if you are able to wear a mask, please mask everywhere you believe medically vulnerable, disabled, chronically ill, and elderly folks have a right to be - even if you don’t see anyone who visibly appears to belong to these groups.

This is heartbreaking and that is the point. Create as much chaos and misery as possible while creating a huge purse of $ to try and plunder.

Happy Black History Month ✊🏾 To kick off this month of celebration, we hope you’ll spread the word about The TRiiBE, a Chicago-based newsroom operating in the tradition of the Black abolitionist press. 💻: thetriibe.com Newsletter: thetriibe.com/newsletters Follow our team ⬇️ go.bsky.app/PWbyhG9

When Trump paused federal funding to all grants and loans, it plunged scientific research into chaos. Though the freeze was rescinded for some sectors, it's still in largely place for universities and research institutions. The damage will be lasting.

Rolling Stone: 'RFK Jr. Made Promising Statements on Long Covid. Too Bad the Rest of His Plans Undercut Them' '...the nominee for HHS secretary said he'd focus on chronic conditions like Long Covid — but if confirmed, would he really follow through?' www.rollingstone.com/culture/cult...

The next four years (and whatever comes after it) will undoubtedly be terrible in many ways for many of us. Remember your anger is a tool; let it sharpen you and spurn you to action. Try to resist the allure of hopelessness and helplessness, it’s what those in power are counting on.

I used to work for an elected official as the person who answered their emails. I can tell you from personal experience, if even twenty or thirty people all call an official in a day, they start panicking. This stuff does help.

Maybe I should know better, but I’m surprised at the number of folks who haven’t learned that you need to take someone’s actions into account just as much, if not more, than what they say. Some people will say anything to gain authority and power. Past behavior usually predicts future behavior.*

Understand something: One of the reasons I'm offering this is because Trump's funding freeze is illegal. Do not obey in advance. He's counting on people self evicting. Don't.

Since I’m already getting messages about this…CHICAGO: if you or your org have been affected by today’s freeze pls hit me up at [email protected].

Look at us go #Chicago !!

For every executive order, bill or funding cut that targets marginalized people, let’s counter with an act of kindness. Cut SNAP funding? Give to a community fridge Cut PrEP funding? Give to AIDS organizations. Mask bans? Wear a mask! Attacks on trans rights? Amplify trans creators.

Well, I can hardly believe it, but you can find my latest interview over in @time.com and I hope to write more on this over on Substack soon!

Please repost! We’re trying hard to sort out rumors from truth + would like to hear from anyone affected by the new federal orders + NIH pause. Patients, scientists, health equity researchers: please contact us below. We won’t share anything without your permission. www.statnews.com/2025/01/25/t...

Aside from the fact that “merit-based hiring” is ableist and problematic in the context of it being in opposition to DEI and EEO protections…are we really supposed to believe “merit” is the new measuring stick when this administration is hiring a cabinet full of the most unqualified people possible?

I cackled. 😆

Wow, big surprise. It turns out that getting sick more often does *not* make you stronger, but actually weakens you and makes you more prone to illness. The idea that 'kids just need to be exposed to bugs' needs to die. jamanetwork.com/journals/jam...

New Substack just dropped! open.substack.com/pub/misfitme...

I’m worried that the exodus from Meta and Twitter is what they want. To isolate us from each other. Isolation is a big part of autocracy. It makes people easier to lie to and abuse. I don’t have a global answer, but I am working on building a social media space for our podcast listeners.

I’ve been trying to write an article on emergency preparedness when disabled. It’s so hard I would need 10 “go bags” to account for my complex medical needs. I can’t evacuate without assistance. Many places aren’t safe for me Disabled people need to be included in emergency plans

Just a reminder that most disabled people aren’t thought of in natural disaster situations. If you know of a disabled person who is in need of help during evacuations, please check in on them. Many of us are left to fend for ourselves and we’re often the most in need of support.

🚨 VERY IMPORTANT MESSAGE YESTERDAY FROM @who.int Pls share

Unless Congress acts in the next three weeks, Medicare will stop covering telehealth. For patients like me, too sick to leave home for months at a time, that would mean losing all access to healthcare. Please sign this petition prodding your representatives to act: actionnetwork.org/letters/pres...

I wrote about this type of coverage of the online reaction to the UnitedHealth CEO's death and how the media will always center those in power. www.usermag.co/p/yes-we-wan...

Side note: there are no bad emotions. That’s a toxic positivity narrative that persists to keep people numb and inactive. Learning to tap into and feel all your feelings is far more healthy than being happy all the time.

I don't know who needs to know this, but Pro Publica has an online thing that will format a letter to your US health insurance company to demand the records behind a claim denial. (which the insurance is then legally required to provide in most cases) projects.propublica.org/claimfile/

REALLY tired of headlines getting this wrong. Vulnerable people aren't "feeling unprotected". They "are unprotected". Another way to say this is they are "being actively endangered". Take the emotional reasoning out of this or apply it correctly: to everyone else who is "feeling threatened by masks"