Patient partners play a vital role in research but face systemic barriers to fair pay. Institutions must match their equity commitments with action—transparent, equitable compensation is long overdue.

Patient partners aren't study subjects. Patient partner research has a compensation crisis. We must do better to promote equity and ensure that patient partnerships are respected and compensated. Important article below: www.bmj.com/content/388/bmj.r381 #PPIE #PatientsIncluded #AMR

I've said it a few times this week. The new #UNGA political declaration mentions participatory approaches, including patients In the UK, we have the NIHR Involvement Guidance. This should be relevant in all countries Check out their resources: x.com/NIHRinvolvem... #PPIE #PatientsIncluded #AMR

Have you heard about the new #TrinityChallenge on #AMR? This time looking for innovative solutions to improve stock control and reduce substandard and falsified oral antibiotics. Apply by 24 April 2025 for a chance to win up to £1 million: solve.mit.edu/challenges/t... #AntibioticEmergency

Such a pleasure to join the Biocodex Foundation to share my story about surviving #AMR in November last year. Very interesting presentations around the microbiota and antibiotic resistance from fellow speakers #theAMRnarrative

Microbiotalk 1st edition on #AMR is online with talks by Vanessa Carter PhD. Elitsa Penkova Prof. Etienne Ruppé Prof. Søren J. Sørensen Edith Odeh Pharma D. Greatman A Owhor In this conference series, experts share insights on #microbiota and this major health challenge Watch👇 bit.ly/3QxLrU4

@bluesky is growing, but I'm worried we lose significant voices on other platforms like X when it comes to reaching patients and the public on matters around #AMR. X=700M users I know SM is a tough battleground, but having a diverse presence is important to patients who are seeking information

Thanks so much for joining us, Vanessa.

CARB-X thanks Letícia de Oliveira Batista and Pernilla Rönnholm for sharing their sepsis survivor stories at the CARB-X PD Conference in 2024. Sharing patient stories is key to understanding #AMR and its impact on lives. 🔗 Learn more: SepsisSurvivorWeek.org

Antimicrobial Resistance (AMR) is a global health security threat. 🗓️ The fourth dialogue in our AMR series will convene key stakeholders with a focus on actionable steps addressing the health, social, and economic impacts of AMR. 🔗 www.wiltonpark.org.uk/event/reinvi... #AMR #health

www.linkedin.com/posts/sue-ch... #amr

New publication in @naturecomms.bsky.social with fantastic co-authors from the Fleming Initiative, @bsacandjac.bsky.social and AMR Narrative Read the comment here: www.nature.com/articles/s41...

The WHO #AMR Survivor Task Force remind us: AMR infections don’t discriminate. Their stories are urgent calls for action: better diagnostics, smarter antibiotic use, global collaboration. @vanessacarteramr.bsky.social @theamrnarrative.bsky.social www.insideprecisionmedicine.com/topics/preci...

Which conferences or meetings do you think are worth attending this year for #AntimicrobialResistance? Let's keep up the momentum after the UNGA. I'm looking for recommendations as a patient survivor and advocate. #AMR

"Participatory Approaches" as highlighted in the 2024 UN Political Declaration for #AMR matter - that includes listening to patients, carers, and the public. Pleased to contribute to this article as an #AntimicrobialResistance survivor 👇 www.nature.com/articles/s41... #theAMRnarrative #PPIE

As this New Year begins, I'm pleased to feature in this Medscape CME resource as a patient with firsthand experience of #AntimicrobialResistance #AMR Read more: www.medscape.org/viewarticle/... #MedEd #PatientsIncluded #theAMRnarrative

#AMR in the environment - we need to know _a lot_ more theconversation.com/how-to-detec...

My 1st post! As a member of the @who.int taskforce of #AMR survivors I am pleased to bring the #AMR threat to life through patient stories & lived experiences, to raise awareness & drive action. Wishing you health through the festive period & many happy & healthy years to come, free of infection.

In our first year as the @who.int Task Force of AMR Survivors, we extend our heartfelt gratitude to everyone who has recognised the importance of participatory approaches, by including the voices of patients, carers, and survivors, in addressing #AntimicrobialResistance #AMR #AMRsurvivors

Endearing obit honoring Dr. Thomas O'Brien, who cofounded the #@WHO Collaborating Centre for Surveillance of Antimicrobial Resistance, among many other accomplishments. Also, father of Conan. www.bostonglobe.com/2024/12/12/m... #AMR @vanessacarteramr.bsky.social

I met @vanessacarteramr.bsky.social at HIMSS about 10 years ago. I greatly admire how she has developed from a "helpless, uninformed patient" to a fierce and effective advocate for other patients via her #AntimicrobialResistance advocacy work. #epatients #AMR

Not realising what the term #AntibioticResistance meant, I was a helpless, uninformed patient who couldn't play an equal role This #WAAW I was grateful to share my story as Chair of the @who.int Task Force of #AMR Survivors youtu.be/GUw6fRhwt3Y?... #AntimicrobialResistance

Always, friend, always

@pfanderson.bsky.social Thank you for the follow 🙏 😊 💗

What is #AntimicrobialResistance or #AMR? Watch our video which explains the basics below! youtu.be/S_0XQ5LhA6o?... #theAMRnarrative #GlobalHealth #Healthcare #OneHealth

And PLEASE, generous people who are asked to $pon$or health conferences... ask if patients are included before getting out your checkbook. You hold a huge amount of power in getting meeting leaders to see the importance of #patientsincluded !

Is Patient & Public Involvement on your agenda for #AMR? Useful docs! 👉 #PatientsIncluded Charter: patientsincluded.org @who.int Task Force of AMR Survivors Meaningful Engagement: www.who.int/publications... @nihrarcs.bsky.social INVOLVE: www.nihr.ac.uk/ppi-patient-... #AntimicrobialResistance

Patients helping patients! Thanks to my colleague Joel Nelson, founder of the Psoriatic Disease UK charity, for a lovely interview to share my experience around #AntimicrobialResistance #AMR youtu.be/CGhFOcX-HU8?... ##theAMRnarrative #PatientAdvocacy

When I was 25y, I was a victim of a car accident in #SouthAfrica 🇿🇦 I survived many injuries but the most complex were to my face which resulted in a multidrug-resistant infection Watch my patient story here c/o @stanforduniversity.bsky.social youtu.be/1KyYQfKHLkI?... #AMR #MRSA

Antimicrobial Resistance #AMR is a term most people have never heard of before yet it's a global health crisis Our charity, #theAMRnarrative has created a 90-second explainer video to help you grasp the basics youtu.be/S_0XQ5LhA6o?... #AntibioticResistance #AntimicrobialResistance #GlobalHealth

#AMR study a reminder of how little we understand the microbial world. "The study is evidence of an entirely new survival strategy. "E. coli is altering its molecular structures with remarkable precision and in real time. It's a stealthy and subtle way of dodging drugs" phys.org/news/2024-11...

Introducing myself here - I'm the author of Change Everything with crowdfunding publisher Unbound. If you're in the UK, purchase here supports independent bookshops. Now on second printing www.hive.co.uk/Product/Nata...

I started on Twitter in 2013, and feel like I'm in a time warp right now on @bsky.app Can anyone share insights around how I link a second account? #BlueSky

Some good news for patient and caregiver partners! #PatientEngagement

As if one microblogging platform wasn't enough. Our work never ends as advocates. In my opinion, if we are going to educate patients and the public about #AntimicrobialResistance, we have to be on both. Although this one was crashing earlier today. #AMR #PatientEngagement #PatientAdvocate

@who.int invited us to host a side meeting on AMR at its first global oral health meeting. @vanessacarteramr.bsky.social shared her AMR infection survivor story WHO's Richard Brown Dr Suchit from the Dental Council of Thailand and the Norwegian chief dental officer Dr Stenhagen were inspiring!

Grateful to have @vanessacarteramr.bsky.social speaking at #ESPAUR report webinar. Vanessa highlighted that surveillance reports e.g ESPAUR important for advocates/#AMRSurvivors in discussions w/policy makers. Thank you Vanessa & Fran 4 co-producing the lay summary w/ us: www.gov.uk/government/p...