I loved that a social media study made it into the #ACR25 pediatric year in review There is so much untapped potential to understand how to reach out to people living with rheumatic disease and provide education and combat misinformation

Thank you <3

Invisible ≠ Imaginary. “You might not be able to see our pain — physical and mental — but we sure can feel it.” — @chroniceileen.bsky.social 👉 Read the full story: creakyjoints.org/living-with-... #InvisibleDisabilitiesWeek #InvisibleNoMore #ChronicIllness

💬 #Rheumatologists Who Create Content The information goes beyond our short appointments we wait months for. Following rheumatologists who make content is a great way to get more out of your rheumatology care and understanding. 👉 Read the full list on my blog - chroniceileen.com/2025/10/16/7...

You can’t see my pain — but I still feel it every day. 💔 Why living with an invisible illness is exhausting & misunderstood → creakyjoints.org/living-with-... @chroniceileen.bsky.social

There was also a plug for @arthritischeryl.bsky.social & @chroniceileen.bsky.social 's Rheumer Has It podcast arthritis.theenthusiasticlife.com/2025/08/21/r...

Dating with a chronic illness means protecting your heart and your spoons. 💙 Read @chroniceileen.bsky.social tips here: creakyjoints.org/about-arthri... #ChronicIllness #RheumatoidArthritis #DatingWithChronicIllness

“Some people might criticize u for taking #medication or accuse u of complaining about your #illness ..impt not to take those comments to heart — people who lash out like that are likely struggling w their own issues.”: buff.ly/UceEfGV via @creakyjoints.bsky.social / @chroniceileen.bsky.social #RA

“His understanding of #health, #kindness toward those with #disabilities, and willingness to lend a hand are qualities that many #children don’t develop unless they’ve experienced #chronicillness firsthand.": buff.ly/RLmoJbW from @creakyjoints.bsky.social / @chroniceileen.bsky.social

“ #JointPain can make it difficult to simply walk around or go up and down stairs, let alone do daily chores or exercise. #Arthritis is a leading cause of #disability, making many people..no longer able to #work.": buff.ly/4eckbnV via @creakyjoints.bsky.social / @chronicEileen.bsky.social #NEisVoid

“ #RA makes me feel envy of those who can hold down a #FullTimeJob. I never thought I would miss #working so much. RA makes me feel envy of those who have the #support they need because their #disease has empathy.": buff.ly/ZaA4U7r from @creakyjoints.bsky.social / @chronicEileen.bsky.social

“It wasn’t until I personally became #disabled that I truly grasped the concept of #ableism ..I found myself belonging to one of the largest groups frequently subjected to #prejudice.": buff.ly/LBERnjR from @creakyjoints.bsky.social / @chroniceileen.bsky.social #ChronicIllness #awareness

As always, I put my presentation into a blog post. #PatientAdvocate chroniceileen.com/2025/06/17/f...

"It might be my way of saying “Hey, don’t forget about me. I haven’t forgotten about you; I am just dealing with something at the moment.”": buff.ly/ChMNzBY via @creakyjoints.bsky.social / @chroniceileen.bsky.social #ChronicIllness #InvisibleIllness #DisabilitySky #ChronicPain #ChronicallyIll

Only returned from #EULAR2025 yesterday and today I have an early morning speech to give. The role of a #PatientAdvocate never ends, plus this is my passion, who cares about jetlag.

Who will I see at #EULAR2025 next week?

“I’ve learned that what works for 1 person may not work for another, which can be hard for those without a #ChronicIllness to #understand. They might think there’s a 1-size-fits-all solution.": buff.ly/a9AtWgc via @creakyjoints.bsky.social / @chroniceileen.bsky.social #RA #PainManagement #NEisvoid

Ever been told “you’re too young to have arthritis”? Or heard that cracking your knuckles causes it? 😑 Check out ep 2 of Rheumer Has it where @chroniceileen.bsky.social & I bust the biggest myths about inflammatory arthritis. arthritis.theenthusiasticlife.com/2025/05/29/r...

“Although living on #disability pay is tough, it’s taught him valuable #LifeLessons about money, hard work, and #compassion.": buff.ly/B2u2AEy from @creakyjoints.bsky.social / @chroniceileen.bsky.social #ChronicIllness #RheumatoidArthritis

The road to a #RheumatoidArthritis diagnosis is frustrating & isolating. It took years of self-advocacy to finally be heard. I recently shared my journey with Health.com, alongside 2 others, to highlight these challenges. 🔗 www.health.com/rheumatoid-a...

“Before my #diagnosis I had no idea what #MentalHealthcare could offer me & how much I needed that #compassion. Not all #healthcare providers who save you are patching up wounds or prescribing medication.": buff.ly/liWfUE5 via @creakyjoints.bsky.social + @chroniceileen.bsky.social #therapy

Check out our first episode! arthritis.theenthusiasticlife.com/2025/05/15/i...

Rheum-Mates unite! Chronic Eileen and @arthritischeryl.bsky.social have teamed up to bring you Rheumer Has It, a groundbreaking podcast that tackles myths, highlights the latest research, and delivers real hope for thriving with rheumatic disease. First episode out on the 15th

“it’s important to stop & understand that #arthritis is serious. Assuming “it #CouldBeWorse” may prevent people fr considering what it’s like to live with arthritis, or to learn about all the comorbidities": buff.ly/X4szvZU via @creakyjoints.bsky.social & @chronicEileen.bsky.social #ChronicPain

"The biggest similarity between RA and OA is that they’ve both taken parts of my life that I won’t get back — a job I loved, activities I enjoyed, and simple physical freedoms." - @chroniceileen.bsky.social creakyjoints.org/support/livi...

My Dad has Multiple Myeloma, blood cancer. We found out how advanced it is tomorrow. He's looking to come back to Canada to stay with me for treatment.

Dear self: ‘It's not going to be easy and there is no manual on how to do this but, you want to live — not just survive, right?’ creakyjoints.org/living-with-... @chroniceileen.bsky.social

NEVER say these to someone living with Rhreumatoid Arthritis! creakyjoints.org/about-arthri... @chroniceileen.bsky.social

“Living with a #ChronicIllness has also helped instill #healthy habits in my son. Because I focus on eating well, he’s learned a lot about balanced #nutrition ”: buff.ly/3BbDEXw via @creakyjoints.bsky.social and @chroniceileen.bsky.social #parenting #ChronicLife

“What Google failed to prepare me for was how my #RheumatoidArthritis would affect my #mood & #MentalHealth. I wish I was more prepared for this. I wish every newly diagnosed #RA patient could be more prepared for this": buff.ly/yLmND4i via @creakyjoints.bsky.social / @chroniceileen.bsky.social

How My Cats Provide Me Relief from Rheumatoid Arthritis: creakyjoints.org/about-arthri... @chroniceileen.bsky.social

My recent doctor's appointment reminded me how important it is to remain calm before, during and after. Here are my tips to ease the anxiety of appointments. chroniceileen.com/2025/04/02/c...

“Some people might criticize u for taking #medication or accuse you of complaining about your #illness ..Impt not to take those comments to heart — people who lash out like that are likely struggling w their own issues”: buff.ly/MtlBtAX via @creakyjoints.bsky.social and @chroniceileen.bsky.social

Wrote a little something - for those that need the reminder that you didn't fail your medications, the medications failed you. chroniceileen.com/2025/04/01/y...

“It wasn’t until I personally became #disabled that I truly grasped the concept of #ableism ..I found myself belonging to one of the largest groups frequently subjected to #prejudice ": buff.ly/2X1SmXo from @creakyjoints.bsky.social and @chroniceileen.bsky.social #ChronicIllness

When I truly understood the extent of ableism and the harm it can cause: creakyjoints.org/about-arthri... @chroniceileen.bsky.social

Between pain, fatigue, and cognitive dysfunction, travel with RA can be difficult. Here re a few ways to navigate these challenges: creakyjoints.org/about-arthri... @chroniceileen.bsky.social

Imagine my delight when I found two of my favorites here on bluesky today! @chroniceileen.bsky.social and @creakyjoints.bsky.social are the best!!!! RA isn't a walk in the park, it's so great to have community and advocacy online 🥰

“Hearing “it could be worse”-type #comparisons can make someone doubt how serious their condition is and even question whether or how to treat it.”: buff.ly/4eckbnV via @creakyjoints.bsky.social and @chronicEileen.bsky.social #ChronicIllness #stigma #ChronicPain #InvisibleIllness

Wondering if alcohol and RA go together? creakyjoints.org/living-with-... @chroniceileen.bsky.social

... & gotta love the "No spoons left; FORK OFF" shirt by @chroniceileen.bsky.social

Do I know any #Rheumatologist who would be willing to answer some written questions about vaccines and rheumatic diseases for National Immunization Awareness Week? I am working on an article on this topic. Thank you!

Well this is exciting, looks like I am going to EULAR in Barcelona, Spain this June :)

“"Any time u see somebody sitting on a bus or a SkyTrain & they're in a seat for #seniors or people with #disabilities, even if they're young, they may still be dealing with a #disability," she said": buff.ly/2Xpj0j8 via @chronicEileen.bsky.social #YoungAdults #InvisibleIllness

Hi All! My favorite conference of the year HealtheVoices is open for registration! Luckily I started my workshop proposal a week ago so I have a head start. I felt the announcement was coming soon and I was right. More info: fs24.formsite.com/VfyxEW/Healt...

This is really excited! Two of my session submissions were accepted for the 2025 American College of Rheumatology conference in Chicago this October! I am really excited to put together these sessions, last year was my first experience so this year I feel more prepared. #PatientPartner #ACR25

I gave a speech at the #CTSummit2025 on why it is important to train patients involved in #ClinicalTrialTraining. I’m grateful for the opportunity to be opening night speaker, especially on a topic I am so passionate about. I turned what I said into a blog post: chroniceileen.com/2025/02/25/t...

Thanks @chroniceileen.bsky.social for sharing your inspiring thoughts as a patient partner keynote speaker at the 2025 #ClinicalTrialsTrainning Summit @cantrain.bsky.social #CTSummit2025.

We are excited to announce the 2025 Clinical Trials Training Summit, advancing quality, innovation, and inclusivity in clinical trials. Feb 24-26, Vancouver, BC + virtual attendance free and open to the public. #ClinicalTrialTraining #CTSummit2025 clinicaltrailstrainingsummit2025.wecantrain.ca

“The whirlwind of #chronicillness will always exist & I can only #control so much. I must find #peace with some of it and ask for help and #support when I need it: from friends, family, or #healthcare professionals": https://buff.ly/4aPxg4Q from @creakyjoints.bsky.social @chroniceileen.bsky.social