Dating with a chronic illness means protecting your heart and your spoons. 💙 Read @chroniceileen.bsky.social tips here: creakyjoints.org/about-arthri... #ChronicIllness #RheumatoidArthritis #DatingWithChronicIllness

“Some people might criticize u for taking #medication or accuse u of complaining about your #illness ..impt not to take those comments to heart — people who lash out like that are likely struggling w their own issues.”: buff.ly/UceEfGV via @creakyjoints.bsky.social / @chroniceileen.bsky.social #RA

“His understanding of #health, #kindness toward those with #disabilities, and willingness to lend a hand are qualities that many #children don’t develop unless they’ve experienced #chronicillness firsthand.": buff.ly/RLmoJbW from @creakyjoints.bsky.social / @chroniceileen.bsky.social

“ #JointPain can make it difficult to simply walk around or go up and down stairs, let alone do daily chores or exercise. #Arthritis is a leading cause of #disability, making many people..no longer able to #work.": buff.ly/4eckbnV via @creakyjoints.bsky.social / @chronicEileen.bsky.social #NEisVoid

“ #RA makes me feel envy of those who can hold down a #FullTimeJob. I never thought I would miss #working so much. RA makes me feel envy of those who have the #support they need because their #disease has empathy.": buff.ly/ZaA4U7r from @creakyjoints.bsky.social / @chronicEileen.bsky.social

“It wasn’t until I personally became #disabled that I truly grasped the concept of #ableism ..I found myself belonging to one of the largest groups frequently subjected to #prejudice.": buff.ly/LBERnjR from @creakyjoints.bsky.social / @chroniceileen.bsky.social #ChronicIllness #awareness

As always, I put my presentation into a blog post. #PatientAdvocate chroniceileen.com/2025/06/17/f...

"It might be my way of saying “Hey, don’t forget about me. I haven’t forgotten about you; I am just dealing with something at the moment.”": buff.ly/ChMNzBY via @creakyjoints.bsky.social / @chroniceileen.bsky.social #ChronicIllness #InvisibleIllness #DisabilitySky #ChronicPain #ChronicallyIll

Only returned from #EULAR2025 yesterday and today I have an early morning speech to give. The role of a #PatientAdvocate never ends, plus this is my passion, who cares about jetlag.

Who will I see at #EULAR2025 next week?

“I’ve learned that what works for 1 person may not work for another, which can be hard for those without a #ChronicIllness to #understand. They might think there’s a 1-size-fits-all solution.": buff.ly/a9AtWgc via @creakyjoints.bsky.social / @chroniceileen.bsky.social #RA #PainManagement #NEisvoid

Ever been told “you’re too young to have arthritis”? Or heard that cracking your knuckles causes it? 😑 Check out ep 2 of Rheumer Has it where @chroniceileen.bsky.social & I bust the biggest myths about inflammatory arthritis. arthritis.theenthusiasticlife.com/2025/05/29/r...

“Although living on #disability pay is tough, it’s taught him valuable #LifeLessons about money, hard work, and #compassion.": buff.ly/B2u2AEy from @creakyjoints.bsky.social / @chroniceileen.bsky.social #ChronicIllness #RheumatoidArthritis

The road to a #RheumatoidArthritis diagnosis is frustrating & isolating. It took years of self-advocacy to finally be heard. I recently shared my journey with Health.com, alongside 2 others, to highlight these challenges. 🔗 www.health.com/rheumatoid-a...

“Before my #diagnosis I had no idea what #MentalHealthcare could offer me & how much I needed that #compassion. Not all #healthcare providers who save you are patching up wounds or prescribing medication.": buff.ly/liWfUE5 via @creakyjoints.bsky.social + @chroniceileen.bsky.social #therapy

Check out our first episode! arthritis.theenthusiasticlife.com/2025/05/15/i...

Rheum-Mates unite! Chronic Eileen and @arthritischeryl.bsky.social have teamed up to bring you Rheumer Has It, a groundbreaking podcast that tackles myths, highlights the latest research, and delivers real hope for thriving with rheumatic disease. First episode out on the 15th

“it’s important to stop & understand that #arthritis is serious. Assuming “it #CouldBeWorse” may prevent people fr considering what it’s like to live with arthritis, or to learn about all the comorbidities": buff.ly/X4szvZU via @creakyjoints.bsky.social & @chronicEileen.bsky.social #ChronicPain

"The biggest similarity between RA and OA is that they’ve both taken parts of my life that I won’t get back — a job I loved, activities I enjoyed, and simple physical freedoms." - @chroniceileen.bsky.social creakyjoints.org/support/livi...

My Dad has Multiple Myeloma, blood cancer. We found out how advanced it is tomorrow. He's looking to come back to Canada to stay with me for treatment.

Dear self: ‘It's not going to be easy and there is no manual on how to do this but, you want to live — not just survive, right?’ creakyjoints.org/living-with-... @chroniceileen.bsky.social

NEVER say these to someone living with Rhreumatoid Arthritis! creakyjoints.org/about-arthri... @chroniceileen.bsky.social

“Living with a #ChronicIllness has also helped instill #healthy habits in my son. Because I focus on eating well, he’s learned a lot about balanced #nutrition ”: buff.ly/3BbDEXw via @creakyjoints.bsky.social and @chroniceileen.bsky.social #parenting #ChronicLife

“What Google failed to prepare me for was how my #RheumatoidArthritis would affect my #mood & #MentalHealth. I wish I was more prepared for this. I wish every newly diagnosed #RA patient could be more prepared for this": buff.ly/yLmND4i via @creakyjoints.bsky.social / @chroniceileen.bsky.social

How My Cats Provide Me Relief from Rheumatoid Arthritis: creakyjoints.org/about-arthri... @chroniceileen.bsky.social

My recent doctor's appointment reminded me how important it is to remain calm before, during and after. Here are my tips to ease the anxiety of appointments. chroniceileen.com/2025/04/02/c...

“Some people might criticize u for taking #medication or accuse you of complaining about your #illness ..Impt not to take those comments to heart — people who lash out like that are likely struggling w their own issues”: buff.ly/MtlBtAX via @creakyjoints.bsky.social and @chroniceileen.bsky.social

Wrote a little something - for those that need the reminder that you didn't fail your medications, the medications failed you. chroniceileen.com/2025/04/01/y...

“It wasn’t until I personally became #disabled that I truly grasped the concept of #ableism ..I found myself belonging to one of the largest groups frequently subjected to #prejudice ": buff.ly/2X1SmXo from @creakyjoints.bsky.social and @chroniceileen.bsky.social #ChronicIllness

When I truly understood the extent of ableism and the harm it can cause: creakyjoints.org/about-arthri... @chroniceileen.bsky.social

Between pain, fatigue, and cognitive dysfunction, travel with RA can be difficult. Here re a few ways to navigate these challenges: creakyjoints.org/about-arthri... @chroniceileen.bsky.social

Imagine my delight when I found two of my favorites here on bluesky today! @chroniceileen.bsky.social and @creakyjoints.bsky.social are the best!!!! RA isn't a walk in the park, it's so great to have community and advocacy online 🥰

“Hearing “it could be worse”-type #comparisons can make someone doubt how serious their condition is and even question whether or how to treat it.”: buff.ly/4eckbnV via @creakyjoints.bsky.social and @chronicEileen.bsky.social #ChronicIllness #stigma #ChronicPain #InvisibleIllness

Wondering if alcohol and RA go together? creakyjoints.org/living-with-... @chroniceileen.bsky.social

... & gotta love the "No spoons left; FORK OFF" shirt by @chroniceileen.bsky.social

Do I know any #Rheumatologist who would be willing to answer some written questions about vaccines and rheumatic diseases for National Immunization Awareness Week? I am working on an article on this topic. Thank you!

Well this is exciting, looks like I am going to EULAR in Barcelona, Spain this June :)

“"Any time u see somebody sitting on a bus or a SkyTrain & they're in a seat for #seniors or people with #disabilities, even if they're young, they may still be dealing with a #disability," she said": buff.ly/2Xpj0j8 via @chronicEileen.bsky.social #YoungAdults #InvisibleIllness

Hi All! My favorite conference of the year HealtheVoices is open for registration! Luckily I started my workshop proposal a week ago so I have a head start. I felt the announcement was coming soon and I was right. More info: fs24.formsite.com/VfyxEW/Healt...

This is really excited! Two of my session submissions were accepted for the 2025 American College of Rheumatology conference in Chicago this October! I am really excited to put together these sessions, last year was my first experience so this year I feel more prepared. #PatientPartner #ACR25

I gave a speech at the #CTSummit2025 on why it is important to train patients involved in #ClinicalTrialTraining. I’m grateful for the opportunity to be opening night speaker, especially on a topic I am so passionate about. I turned what I said into a blog post: chroniceileen.com/2025/02/25/t...

Thanks @chroniceileen.bsky.social for sharing your inspiring thoughts as a patient partner keynote speaker at the 2025 #ClinicalTrialsTrainning Summit @cantrain.bsky.social #CTSummit2025.

We are excited to announce the 2025 Clinical Trials Training Summit, advancing quality, innovation, and inclusivity in clinical trials. Feb 24-26, Vancouver, BC + virtual attendance free and open to the public. #ClinicalTrialTraining #CTSummit2025 clinicaltrailstrainingsummit2025.wecantrain.ca

“The whirlwind of #chronicillness will always exist & I can only #control so much. I must find #peace with some of it and ask for help and #support when I need it: from friends, family, or #healthcare professionals": https://buff.ly/4aPxg4Q from @creakyjoints.bsky.social @chroniceileen.bsky.social

“I wasn’t oblivious to #arthritis, but I was not aware of the severity..I never imagined needing to worry abt the #diseases often mentioned in pharmaceutical commercials, w their daunting list of #sideeffects": https://buff.ly/43tEkA3 @creakyjoints.bsky.social @chroniceileen.bsky.social #RA #spoonie

“Sharing my story has brought me a sense of #community & #understanding. But I also want to acknowledge the darker side of #socialmedia. It’s a space where #misinformation and harmful advice can thrive": https://buff.ly/4ezd6yu via @creakyjoints.bsky.social @chroniceileen.bsky.social #ChronicIllness

Tips for exercising with Rheumatoid Arthritis: creakyjoints.org/about-arthri... @chroniceileen.bsky.social

“my world became smaller — I didn’t have the energy to maintain #friendships or #socialize much. Now, as my son finds his own path, I’m realizing just how #isolating #chronicillness can be”: https://buff.ly/3BbDEXw via @creakyjoints.bsky.social @chroniceileen.bsky.social #motherhood

Things you should never say to someone living with Arthritis: creakyjoints.org/about-arthri... @chroniceileen.bsky.social

How I Make Mornings Just a Little Easier with My Rheumatoid Arthritis: creakyjoints.org/about-arthri... @chroniceileen.bsky.social #MorningStiffness #RheumatoidArthritis