An insightful & moving talk from @stephharmanmd.bsky.social at the Big Ideas conference, culminating in her important point that palliative care physicians don’t have a monopoly on helping people decide what matters most to them. Here are some questions to consider for anyone facing serious illness.

Hey it’s me!

Come join our awesome team! Stanford Division of Pediatric Nephrology is hiring! Find out more about our job: facultypositions.stanford.edu/cw/en-us/job... #Careers #Hiring #PediatricNephrology #Dialysis #KidneyTransplant

This EO criminalizing homelessness & mental illness ignores decades of research & lived experience. This EO has many devastating aspects, especially its targeting of Housing First policies. Housing First reduces homelessness, emergency room visits, and contact with the criminal punishment system.

More bad news (sorry). ⁠ ⁠ Many folks may have never heard of the USPSTF before, but it's an important group of experts that reviews research and gives guidance to healthcare providers. Playing politics with this panel will have implications for healthcare delivery in the U.S.

The answer is: Hell yes, trans kids should be able to participate in sports according to how they identify. The emotional damage done by rejecting a kid’s identity is the real concern here. Not the bigotry of a busybody parent trying to bully that one kid.

I’m not sitting back while this administrations destroys my career and the careers of my colleagues and mentees. #LGBTQI+

It's not just Northwestern and Harvard, I have gotten credible (confidential) reports from several other schools (including state schools) that the NIH is defaulting on federal commitments there too. Seems like there may be a big story here for an investigative reporter willing to take it on

🚨 A new rule would let career scientists like NSF/NIH program officers be replaced by political appointees Already 14,000+ public comments, deadline is Friday 📣 Comments can be short. Courts consider them—and scientists with NSF/NIH experience are especially impactful Speak up! shorturl.at/WKuBj

Just over a week until I’ll be biking 545+ miles from SF to LA! Got to check out our team’s support vehicle for AIDS/Lifecycle and meet some more of our team members I hadn’t met yet! I guess I’m the de facto team physician? There’s still time to donate: bit.ly/ALC-Ken

Outstanding mentoring session by former ASN president Dr. @drdeidracrews.bsky.social at the ASN AKI B2B conference. @4kidney.bsky.social

🧒🌍 Ending AIDS for Africa's children? PEPFAR has already saved 26 million lives – and could end childhood AIDS by 2030. But without continued support, 1M children may be infected by HIV in the next 5 years. 🔗 www.thelancet.com/journals/lan... #SciComm #HIV 🧪 #PEPFAR

NEW: After cancelling nearly all projects on trans health, the Trump admin has now directed the NIH to study the negative consequences of transitioning. This will create “a distorted research ecosystem where only politically favorable findings are permitted to exist”, researcher Harry Barbee says.

In what's being described as a “bloodbath,” DHHS has dramatically reduced personnel at CDC, NIH, FDA & other health agencies. The cuts are expected to affect 10,000 people; some learned of them only when their badges no longer allowed access to their offices. www.ebar.com/story/153865/

"US Senator Cassidy calls on Kennedy to appear before Senate panel over health agency cuts" But you are literally the reason he was confirmed...what changed? www.reuters.com/business/hea...

The latest NIH grant chaos: NIH apparently sent stop-work orders to all *97* MARC and U-RISE programs in the country. These programs support underrepresented undergrads interested in health research careers. MARC dates to 1977. Over 48 years, the programs have supported thousands of students.

New this evening (3/28): Major update in NIH grant termination numbers. ❌ 695 NIH grants now terminated (up from 429) ❌ 232 on HIV/AIDS ❌ 44 on cancer ❌ 28 on Alzheimer's ❌ 123 on Covid* *And this doesn't count cancelled non-NIH Covid grants. HUGE THANKS to @noamross.net for pushing the updates!

Your gift to the ASPN Foundation helps to support travel grants for trainees to help recruit and retain pediatric nephrologists! Your gift will be matched by ASPN Foundation Board Member Sharon Lagas up to a total of $2500 during National Kidney Month. aspneph.app.neoncrm.com/forms/alport...

This ain't it

The entire staff of the federal government's Office of Infectious Disease and HIV/AIDS Policy is expected to be laid off. www.cbsnews.com/news/rfk-jr-...

I’ve long supported the great advocacy and education work by AAKP, but RJK Jr. and his leadership of HHS will absolutely have serious negative consequences for kidney and transplant patients.

As a longtime fan of AAKP, I can't help but feel disappointed that they’re putting a positive spin on what is an unmitigated disaster for transplant recipients.

This is a really disappointing decision by the NIH to cancel the longstanding Pediatric Scientist Development Program (PSDP-K12) grant that has funded the early career development of numerous pediatric physician-scientists who have become the pediatric leaders in the US and the world.

The NIH grant that has supported 38 years of training the best pediatrician-scientists in the country (I’m a proud former recipient) was cancelled. It was just approved for a 5 year renewal. The PSDP has supported the careers of many NIH-funded pediatrician-scientists and thought leaders

NIH cuts halt 24-year program to prevent HIV/AIDS in adolescents and young adults www.statnews.com/2025/03/25/n... via @statnews.com @aniloza.bsky.social

I know there's a lot happening but this week several grenades were thrown to decimate domestic HIV treatment and prevention research. I know more colleagues with canceled grants than not. Our patients will die or get worse care as a direct result. www.theatlantic.com/health/archi...

🚨 ALL my remaining NIH grants were just terminated Without philanthropic gifts, this is the end of 1️⃣ my career (as I know it) 2️⃣ @lgbtqhealthexce.bsky.social 3️⃣ our LGBTQ health equity work Yet, reading about LGBTQ families in my kid's class reminded me: love knows no bounds 🌈 You with us?

It’s been a devastating 24 hours with 3 NIH grants terminated…all focused on the health and wellbeing of trans or intersex youth. If folks have any ideas of foundations that may be interested in supporting the completion of these projects so years of work aren’t wasted, please let me know. 🙏

Today I lost an NIH grant training clinicians to do research about intimate partner violence with perinatal women. More women are murdered in the perinatal period than die of obstetric complications. I didn't just lose a grant. We lost an entire cohort of people building careers to prevent that.

The crush of new grant cancellations hasn't let up. If your grant was terminated (or your app was pulled) please use this Google Form👇 to submit details for tracking purposes. Multiple advocacy efforts are moving forward, but we must must must know more about what grants were cancelled and why.

Circulate this widely! We need to know which NIH grants have been terminated. It goes beyond the list that HHS has released. Send to every scientist you know. @scott-delaney.bsky.social @noamross.net

Exclusive from me and Jon Cohen @science.org: NIH is terminating nearly 1000 grants in a series of batches. One, which conducts HIV and TB clinical trials in South Africa, was labelled as a "DEI" study that "harms the health of Americans." www.science.org/content/arti...

These are the items they want to withdraw. 😥

incidentally, yesterday was the 4th anniversary of me receiving the best bad news: they found testicular cancer in my chest I’ve been stable since I started treatment, I use a walker and take immunosuppressants read all about it: ja.ma/seth

RIP academic conferences in America

This is a fantastic conference on everything to do with disabilities in medicine. I learn so much every year. It’s virtual, so hopefully that decreases barriers to participation. While you’re at it, give @stanfordsmadie.bsky.social a follow!

"The attack on Columbia is a radical threat to scholarly excellence and to America’s leadership in research. Universities and their leaders should speak up and litigate forcefully to protect their rights."

Register today! lp.constantcontactpages.com/ev/reg/pyhcp... #docswithdisabilities

We’re thrilled to welcome Dr. Lisa Meeks from the University of Illinois Chicago, as the speaker for the second session of our conference on April 26th, 2025! Register at radiologyweb.a2hosted.com/SMADIE-conf #DisabilityAdvocacy #InclusiveSpaces #CreatingChange #DocsWithDisabilities

They pulled almost $200M in DoD and HHS funding from Penn for the “offense” of allowing a trans woman athlete to compete. This administration is willing to sacrifice innovation and research to serve their obsession with people’s genitalia. Not a single Democrat should be indulging this bigotry.

Erasing science doesn’t make ‘undesirable’ problems go away—it makes them worse. The #NIH is terminating grants. LGBTQ+ health research is a clear target. LGBTQ+ people face stigma & violence. This research saves lives. Let’s not stay silent. Terminated grants 👇🏻 taggs.hhs.gov/Content/Data...

There are days in life that shake you. I’m shattered 💔 to share that I just found out that the US Government terminated my 2024 NIH Director’s Early Independence Award (~$2 million), threatening my long-promised assistant professor job at Columbia University & academic career... 1/🧵

Let me just say that no one mobilizes like the HIV community, both advocates & clinicians. #HIVSky #IDSky @hivma.bsky.social @idsainfo.bsky.social www.hivma.org/news_and_pub...

According to DisabilityJustice.org, 83% of disabled women will be sexually abused in their lifetime. You must include disabled women in your conversations about choice and reproductive rights. I’m included in that percentage. Please think about us.

Just me, still working, still doing the job that apparently I’m not qualified for according to the military trans bans.

Ugh Dr Jayme Locke (you may know from the XenoTransplant story) hired from UAB to fix the transplant system (that is abysmally awful if you have followed @sumitmohan.bsky.social ) But she was ‘probabtionary’ so DOGE fired her 🤦🏽‍♂️ @wsj.com story on 🍎 News $wall apple.news/Ans49CVgKQy-... #NephSky

The @nytimes.com with @danagoldstein.bsky.social cover the story of Dr Rasha Alawieh being deported despite the Judge’s order (gift link) (She’s a nephrologist, not a surgeon, but that doesn’t matter here) www.nytimes.com/2025/03/16/u...

I talked to NIH officials, current and former, about what's been happening inside the agency since the Trump administration shut down their grantmaking pipeline in January. Their stories showed just how willing our new leaders are to break the law: www.theatlantic.com/health/archi...