A short essay/memory about the strange morality of the medical horror stories one hears when chronically ill and the roaring void of chaos hiding underneath them. #T1D #diabetes #chronicillness

In 2012 my GP told me I only needed to test my blood sugar once per day. It's high on the list of worst diabetes advice I've ever received from a doctor (or anyone else). What terrible diabetes advice have you gotten? #t1d #diabetes #chronicillness

Rosie helping me work on my #diabetes memoir. #dog #t1d

This short post features a very rough memory about having diabetes in 3rd grade art class. I wrote it sometime last year and then lost it on my hard drive. One simple rule to live by as an adult: don't take the piss out of a kid. #t1d #diabetes #teaching

New post up on the quotidian nightmare of obtaining insulin. It's a rant. #t1diabetes #diabetes substack.com/home/post/p-...

The idea that we live in a simulation is just tech bros creating God in their own image.

So often when you calibrate the Dexcom, the next reading is a full 30% higher than the number you entered. It's like you work for the Dexcom algorithm and not vice versa. #diabetes #t1d

A very quick explanation of what I haven't accomplished on my #T1D memoir project over the past 5 months. Features memory of the best job I ever had, a map of Gates, NY, and some exciting research success. #diabetes #chronicillness #type1diabetes

Note to coffee shops: do not play Christmas mixes. You make me lose. #whamageddon

Morning. #t1d #diabetes

This came in the box with my new insulin pump. For the record, no one holding an insulin pump is ever as happy as that lady. Or her dog. #t1d #diabetes

Late to the party, but just watched The Human Trial (2022) by @lisahepner.bsky.social - moving documentary about stage 2 study of the ViaCyte insulin-producing cells. Available free on Hoopla - thanks, local library! Real science is slow. Easy solutions are grifts. #t1d #diabetes

If you're not familiar with the podcast ologies.bsky.social, it's always great. This episode in particular, while not about #diabetes per se, speaks to #chronicillness generally as they discuss MS specifically. (There's also an excellent two-parter on diabetes).

A nice weekend at Allerton Park in Monticello, IL for my wife's birthday. A nice place for post-meal sugar-control walks! #t1d #diabetes #allerton

This is exactly it: to do everything right and still have it go wrong. #t1d #diabetes #chronicillness

Fire Village

"Diabetes device distress" is both alliterative and incessant in all the ways named in this article! #T1D #type1diabetes

In my latest post, I think out loud about diabetic “control,” its necessity, and the profound alienation it creates. Features a comic drawing and a story about spilling blood in a baseball stadium. #t1d #diabetes #chronicillness

How are Americans with #type1diabetes doing? Results are mixed. www.medscape.com/viewarticle/...

The 1940 version of Elliott Joslin's "Diabetic Creed." There were lots of versions, varying with each new edition of the textbook _Diabetes Mellitus_. Mostly advice to doctors on diagnosis and treatment, some moral judgments and eugenics appear, too! #diabetes #t1d #history

tv algorithm: we've noticed you've never once, since we've known you, ever watched a horror movie me: correct tv algorithm: so we figure that's because you've never heard of them, here's a different upsetting visual every time you turn us on, hope you love it!!

Further cautious hope for islet cell transplantation. #T1D #diabetes

It’s true in main, and it’s helpful to remind diabetics to take care. But given that we diabetics often grow up with this stark moral opposition, it’s no wonder we’re exhausted and slightly neurotic. #t1d #diabetes #chronicillness From Chris Feudtner, Bittersweet (2003)

Why I don't use closed-loop: Exhibit 1. #T1D #diabetes #insulinpump

My grandma used to give us wrapped boxes of Lucky Charms for Christmas. At Christmas 1987 (5 months after diagnosis), my brother unwrapped his box as normal. I unwrapped mine excitedly. It was Cheerios. Welcome to diabetes, you little bastard. #T1D #diabetes #type1diabetes #chronicillness

New research from BBDC member Dr. Farid Mahmud looks at combination therapy for teens with #T1D. www.utoronto.ca/news/combina...

In this post, I explain the basic principles of using an insulin pump, and then talk a little bit about why it’s hard to use. This one’s a bit longer (~2700 words), but I think it’s pretty easy to read. #T1D #diabetes #type1diabetes #chronicillness

Today is my 38th diaversary, so I’m posting a short essay from last month responding to phase II of the Vertex VX-880 study, which offers some hope for implantation of insulin-producing cells. In it, I explain lipohypertrophy and reflect on the long wait for “a cure.” #t1d #diabetes #chronicillness

On this day in 1921, researchers at the University of Toronto proved that the hormone insulin regulates blood sugar. This was key to a diabetes treatment that has saved countless lives. #SciSky #History #OTD

I'm working on a researched medical memoir about having diabetes for 40 years, and I've made a Substack to document my research and writing process. This is the short inaugural post. Feel free to subscribe. #T1D #type1diabetes #chronicillness #diabetes

Can β-cell replacement therapies for type 1 diabetes move beyond being a last resort? In this new Diabetes article, we explore what’s possible, what’s needed, and what questions remain. 📄 doi.org/10.2337/dbi2... #T1D #BetaCell #DiabetesResearch

Here's some #healthtech to get excited about! This tiny implant could save diabetics from silent, deadly crashes www.sciencedaily.com/releases/202... #T1D #type1diabetes #medicaltechnology #health #healthcare #DiabetesResearch #technology #tech #ScientificResearch #MIT

Representation matters. I vaguely remember a few YA novels with type 1 characters when I was a kid, but that was about it. Do you all remember books, tv shows, movies, etc. with #T1D characters? #diabetes #disability

New article in print! Exciting! #SF #sciencefiction #queerfuturity #beckychambers #postsecularism

Maris Kreizman Finds Hope in Radicalization electricliterature.com/maris-kreizm... #booksky #t1D

We've been treating diabetes more or less the same way for a century: take insulin, eat steadily, exercise, monitor glucose and symptoms, minimize risk. Vertex VX-880 phase 2 results offer (some) hope for a genuine change in treatment. I'm (very cautiously) optimistic. #t1d #type1diabetes #diabetes

Tentative title for my #diabetes memoir: 40 Years of Pricks.

‘Official’ results from the Vertex VX-880 trial using stem cell-derived islets for people with type 1 diabetes #T1D 10 out of 12 people with reduced or eliminated need for insulin 🎉 But note the need for immunosuppression and limited eligibility… this is not (YET) the ‘cure for everyone’

"In a study published in the New England Journal of Medicine, researchers report that of the 12 patients who received a single dose of the stem cells, it eliminated the need for insulin in 10 for at least a year."

I'm working on a research/personal project about diabetes self-management technologies. If you're willing, I'd like to hear about your experiences (good, bad, and neutral) with insulin pump and cgm use. Tell me your pump and sensor stories! #diabetes #T1D #type1diabetes

New article on Becky Chambers, queer futurity, and secularism - out this week in Modern Fiction Studies. Free to read for the moment! #SF #sciencefiction #queerfuturity #beckychambers #postsecularism