✨ New HI Children & Young Adult Booklets! 🎅Co-created with children & families. 🎅Designed for ages 3–6, 7–12, &13+ 🎅Help children to understand Hyperinsulinism, build confidence & self-advocate. Free to download or request a printed copy. hyperinsulinism.co.uk/children-ya-resources

Congenital Hyperinsulinism (HI) is a rare condition causing dangerously low blood sugar levels (hypoglycaemia). It’s the leading cause of persistent severe #hypoglycaemia in babies under 3 months. In the UK, HI affects at least 1 in 28,000 births. #Hyperinsulinism #RareDisease

Today, we honor disability community!   Knowing how to support a person with a disability can be tricky. Our website has advice for, both mental and physical, because we know how unique people with disabilities are.  https://www.wellatschool.org/ #EduSky #EduSkyUK #Disability

Good morning from #London! Today is our #iHVLeadership2025 Conference ‘Leading #HealthVisiting: Creating the Future’ & we can’t wait for our delegates to join us for a day full of high profile & inspirational speakers, all focused on equipping us to lead change for the better.

Buddy the Bear is ready for Christmas with his CGM! 🐻🎅 Thank you to Type One Style for partnering with The Children’s Hyperinsulinism Charity to make these special toys possible. 🥰These toys help children with hyperinsulinism feel supported and represented.

🎅 This #GivingTuesday, Say HI to Santa is about festive fun and making a difference. Through our Dedicated Fundraising page, you choose where your support goes, from newly diagnosed packs to fun days and research projects. Every contribution counts 🥰 🎄hyperinsulinism.co.uk/dedicated-fundraising#GivingTuesday

Our campaign is Say HI to Santa 🎅 But this time, Santa is saying HI back! With a special message to say that he sees every brave blood sugar check, hospital visit, and hypo treated, making him so proud of CHI Superheroes and SuperSiblings! 💌 #SayHItoSanta #SantaSaysHI

Sam Freedman in The Observer: “The big challenge is that there’s no way to save money without changing the eligibility for EHCPs. This looks like being one of the big political battles of 2026.” observer.co.uk/news/opinion-... We disagree—and we have a plan: www.specialneedsjungle.com/s...

Almost 1 in 5 children and young people (aged 8–25) in England now have a probable mental health disorder – up from 1 in 8 in 2017. Read why this matters 👇 https://bit.ly/3KdqM8e

🎅Tomorrow is the start of #SayHItoSanta! ❄️ A festive month of new games, old favourites like Elf Sweepstake & Santa Bingo, plus new conference videos and a countdown to our 10th Anniversary. 🎄Follow our socials so you don’t miss a magical moment! linktr.ee/chcharityuk#SayHItoSanta

Reporting on successful use of SC-islets in drug development for #congenitalhyperinsulinism! We identified ghrelin analogues as novel candidate drugs, demonstrating reversal of hypoglycaemia in mice, which was caused by the hyperinsulinaemic human SC-islets #PancSky www.biorxiv.org/content/10.1...

November is #NationalFamilyCaregiversMonth, a time to honor and celebrate the incredible #caregivers who provide invaluable support to the #hyperinsulinism community. Hear more from caregivers here: bit.ly/46IK51G #Rezolute #congenitalHI #tumorhyperinsulinism #raredisease #MedSky #EndoSky #PedSky

🎅Say HI to Santa is back on 1st Dec! A festive month of fun, games & competitions, all while raising awareness of Hyperinsulinism. ❄️ We willl share new conference videos & celebrate as we count down to our 10th anniversary! 🎄 linktr.ee/chcharityuk #SayHItoSanta

Supporting HI families from the first day of school to university Navigating education with Hyperinsulinism can be challenging. Our resources help families & schools work together to meet medical needs & support inclusion, safety & well-being. www.hyperinsulinism.co.uk

🎅🎄 Get ready to Say HI to Santa! 🎄🎅 Join in! ✨ Competitions 🧝 Elf Sweepstake 🥰 Raising Awareness ⏰Starts 1st December #SayHItoSanta

Up to 48% of children with Hyperinsulinism are at risk of neurological harm, yet we don’t fully understand why. Katie, a young HI adult and volunteer, has created this visual highlighting CHC patient-led research, aiming to answer questions & establish a framework to assess, monitor & support

✨ Worried about a hospital stay? HI Mum, Leah shares how she helped her daughter Peggy through an 18‑hour safety fast with practical tips, play ideas 🎨, snack hacks 🍕 & charity resources🥰 📖 Read more: https://hyperinsulinism.co.uk/news-events/blog/ #ThinkHyperinsulinism

Children and young people in England are facing some of the worst health outcomes in Europe. This first explainer in our series brings together the latest evidence to show how the system is responding and where it is struggling. Read the full piece: https://bit.ly/4oRj5na

From worrying about blood sugars to wondering what their friends might think, there’s so much going on in CHI Superheroes' minds. That’s why it’s crucial that schools not only understand how #Hyperinsulinism impacts learning but also recognise the psychological effects.

#WorldChildrensDay, “My Day, My Rights.” At CHC Children with #Hyperinsulinism co-create HI resources, participate in patient-led projects, shape our advocacy, raise awareness and volunteer. Our HI Heroes scheme recognises their achievements & our fundays bring them together🥰

🥊✨ New HypoHugs episode! Ciara shares her journey from getting fit to her first-ever boxing match 💪🔥 Fundraising for Children's Hyperinsulinism Charity UK and Ireland and Zoe's Place. Hear Cillian’s story, her training, and why the charities mean so much. 🎧 Search “HypoHugs” to listen!

For boys with HI, life means navigating school, friendships & a rare condition. For men caring for a child, it can bring stress, hypervigilance & anxiety It’s okay to ask for help - We are here to support 📥 https://ow.ly/o6zR50XqZmX #InternationalMensDay #SupportingMenandBoys

“We spend so much time thinking about the medical challenges of #Hyperinsulinism, but it’s just as important to focus on the psychological impact on children, parents & siblings.” 🌟Charlotte, Clinical Psychologist, Alder Hey - Video is available to watch now! 🎥 https://youtu.be/WarE8V2HDQA#Hyperinsulinism

🥰Meet Cillian full of energy,joy who just can't resist a muddy puddle Behind the fun, he battles Hyperinsulinism, causing unpredictable & life threatening low blood sugar. 🥊Support his Mum Ciara, who is fighting to help more CHI Superheroes like him https://ow.ly/6qM650Xs6xn

🧬 Explore Genetics in Hyperinsulinism - Our YouTube videos: 1️⃣ Genetic Testing in HI Genetics guides treatment & how research uncovers answers. 2️⃣ HI Family Q&A Prof. Flanagan answers your questions and latest research updates 📹youtube.com/@childrenshyperinsulinismUK

Find out how to access free #genetic testing for personalised healthcare through the #NHS, what the process involves, and how your results can support diagnosis and treatment, in this new animation - part of our GRACE Project series... www.open.edu/openlearn/sc...

Our website has advice & tailored resources ✔ Hyperinsulinism ✔ Education & care systems ✔ Money, travel, & well-being ✔ Self-advocacy skills 💖 Family stories, videos, & more! 🌐 www.hyperinsulinism.co.uk YouTube @childrenshyperinsulinismUK #HyperinsulinismUK

On #WorldDiabetesDay, our visual explores the differences and common ground between Hyperinsulinism and Diabetes 💙🩸 #CongenitalHyperinsulinism #HyperinsulinismUK

On #WorldKindnessDay, we want to give a special shout-out to these kind and amazing people! Our fantastic Hyperinsulinism Community, friends and supporters, wonderful volunteers, and amazing fundraisers! Thank you 🥰 https://hyperinsulinism.co.uk/dedicated-fundraising/#WorldKindnessDay

There’s nothing better than seeing families living with Hyperinsulinism come together for connection, laughter, and fun. 🥰🎉 Our Family Conferences and Fun Days are some of the happiest moments of our year! #HappyHourDay #Hyperinsulinism

Medics are key in saving the lives of babies and children with Hyperinsulinism 🩺 What’s crucial? ✅ Recognising hypoglycaemia. ✅ Listening to families & taking a full history. ✅ Acting fast to stabilise blood glucose 🚨#ThinkHypoglycaemia #ThinkHyperinsulinism

On 22 Nov, our Trustee Ciara steps into the boxing ring 🥊, raising funds for The Children's Hyperinsulinism Charity and Zoe's Place Baby Hospice,Coventry 🥰Thank you, Birmingham Live, for sharing Ciara's story: https://ow.ly/mQ4U50Xq5NZ, 📢 https://ow.ly/q6ub50Xq5O0

🤸‍♀️ Huge congrats to Aryana for placing 5th in the British Disability Gymnastics Championships! Aryana and her sister Matilda also had a spooktacular time at Alton Towers Scare Fest. Thank you #MerlinsMagicWand for a magical day🎃🎢 #HyperinsulinismHeroes #DisabilityGymnastics

#Rezolute is proud to support Neuroendocrine Cancer Awareness Day! Neuroendocrine tumors (NETs) can have a profound impact on patients’ lives, so join us in raising awareness and supporting those affected by NET cancers. #LetsTalkAboutNETs #NETCancerDay #tumorhyperinsulinism #OncSky #EndoSky #MedSky

🎥 Have you subscribed to our YouTube channel? Hear from experts & HI families on: 💡Understanding Hyperinsulinism 🍽️ Feeding & Glycemic Index 📚 School transitions 🏥 Moving to adult care ⚖️ Legal rights & more ** New videos soon! 👉 youtube.com/@childrenshyperinsulinismUK

#WorldNETCancerDay #LetsTalkAboutNETs #LetsTalkAboutINSULINOMAs #NeuroendocrineTumours

Read Debbie’s Insulinoma Experience insulinoma.co.uk/our-stories/... #netcancerday #NETCancerDay #netcancerday2025 #insulinoma #NeuroendocrineCancer #Insulinomaawareness #InsulinomaCharity #Hypoglycaemia

Had a great time at @camrare.bsky.social Rare Summit 2025, with @chcharityuk.bsky.social !

A little reminder of how much we appreciate our CHI Superheroes and Super Siblings 💕 Thank you for joining our fun days, taking part in our projects, volunteering, raising awareness and sharing your ideas. You really are shaping your Charity’s future 🥰 #HyperinsulinismHeroes

🌟Thank you to Merlin’s Magic Wand Charity for giving Hyperinsulinism families magical days out! HI Mum, Sasha shared: “The boys had a lovely time at Legoland 🥰thank you to Merlin’s Magic Wand for helping families make such magical memories.” 🎢✨ #MerlinsMagicWand #HyperinsulinismHeroes

We were honoured to showcase our patient-led neurodevelopmental project, highlighting the need for tailored assessments and addressing families’ questions. Thank you, Cambridge Rare Disease Network & everyone who visited our stand. Your interest, ideas, & encouragement make this project possible.

Shaking. Sweating. Mood changes. Confusion. These are not just symptoms, they are warning signals that a child’s brain may not be getting the glucose it needs. 🔑Easy access to blood glucose testing, an understanding of an individual's symptoms, and an action plan to raise levels safely are key.

🎉We are at RARESummit, presenting the patient voice for HI families seeking answers & action on the neurological impact of Hyperinsulinism. Coming along today? Visit us at our stand! https://ow.ly/OjyI50Xi0HM #RAREsummit25 Thank you Cambridge Rare Disease Network#RAREsummit25for this amazing opportunity

Hyperinsulinism can disrupt sleep, cause anxiety, and add constant worry. 👨‍👩‍👧‍👦 Our support group, guides & resources help families feel informed and less alone. 📲 Scan the QR code for practical advice & emotional support. ❤️ You’re not alone. #HyperinsulinismUK #StressAwarenessDay

📣 Our new volunteer, Katie, has created a visual showing how friends and family can support those with Hyperinsulinism. As a HI young adult, she draws on her own experience to highlight how small gestures make a big difference 💫 #ThinkHyperinsulinism

🏫 Hypoglycaemia caused by HI can be unpredictable & life-threatening. That’s why every HI child at school needs a care plan, trained staff, hypo kits & emotional support. Our website has guidance, resources & videos https://hyperinsulinism.co.uk/support-for-families/education/

We are proud partners of @MedicAlertUK * CHI children under 10 apply for 'Early Start Programme' for free Medic Alert membership & ID. * CHI older children & adults receive 20% off 1st-year membership & MedicAlertID https://ow.ly/GABW50Xi24s #MedicAlertSupport #MedicalertPartner

🎃 Before we announce our #SayHItoHalloween winners later today, we have one last magical entry to share! Elsie and her sister Betsy were out trick-or-treating last night, Elsie dressed as Harry Potter and Betsy as Matilda. Well done girls, we hope you had a wizardly wonderful night! 🍬✨

🎉🎃 Georgia’s pumpkin is extra special this Halloween as she is celebrating her 5th birthday too! Oh wow! Georgia, what a magical day to have a Birthday! We hope you are having the best time. We absolutely love your fabulous Halloween and Birthday pumpkin! featuring a very special Percy Pig! 🐷💖

🧙‍♀️💚Daisy is looking wickedly wonderful as a spooktacular green witch! Daisy what an amazing costume! Have a magical Halloween 🪄 👻Fancy joining in the Halloween fun? Share your pumpkin carvings or Halloween costumes by midnight: 🥇 £25 e-voucher 🥈 £15 e-voucher 🥉 £10 e-voucher #SayHItoHalloween