🐝 Brave like Carter Today’s #BeeYourself entry comes from HI mum Emma, who’s written the most beautiful poem for her son Carter. Which is absolutely buzzing with love🥰 💓Carter, we are so proud of you, and we think you are amazing .🐝

“Life with HI is more than people see.” Behind every HI diagnosis is a whole life, a whole family, and a journey most people never fully see. That’s why Bee Yourself matters: your stories, your moments, your everyday courage. Because support doesn’t stop at the diagnosis. 🐝 #WhatsTheBuzz

🐝 Ansar lives with Hyperinsulinism and multiple food group allergies… and loves to help out at BUGingham Palace 👑🐝✨ Ansar, we think BUGingham Palace is fantastic! This half term, we’re celebrating the amazing personalities, stories, creativity, and everyday magic within our HI community. 💛

🐝 HALF-TERM CHALLENGE This week we’d LOVE to see your Bee Creative ideas! 💛 Bee costumes 🖤 Yellow & black outfits 💛 Bee drawings 🖤 Honeycomb creations 💛 Bee selfies 🖤 “Bee Yourself” posters 🐝 If it’s bee‑related, it’s perfect. Tag @CHCharityUK or message us! #WhatsTheBuzz

Eid Mubarak! Wishing Hyperinsulinism families and friends who are celebrating a joyful, peaceful, and blessed Eid al-Adha filled with lots of love and happiness. #EidAlAdha

🥰Hyperinsulinism is only one part of who HI Heroes, siblings & families are. We are celebrating everything that makes our community unique. 💛 Love football 💛 Obsessed with dinosaurs 💛 Starting school 💛 Navigating another condition alongside HI 💡We’d love to hear: “I have HI and…” 🐝#WhatsTheBuzz

🐝 SHOW US YOUR BUZZ! We are celebrating the amazing stories & personalities in our HI Community. 💛 BEE YOURSELF Share what you love, what you get up to, or what you’re planning next. 🖤 BEE CREATIVE Wear yellow & black, draw a bee, surprise us! If it's bee‑related, it's perfect. #WhatsTheBuzz

Siblings are incredible, helping their families and dealing with the disruption to plans and home life that Hyperinsulinism brings. We also know they are the absolute best at supporting our HI Heroes, and today we are celebrating brothers 💖 #BrothersDay

📣 Huge thanks to our volunteer Katie for creating this fantastic visual on the everyday ways to support someone with Hyperinsulinism, from practical help to emotional reassurance. The smallest gestures can make the biggest difference. #HIFamilies4HIFamilies

🌟 Hyperinsulinism affects every part of daily life, though most people never see it. Behind every “healthy‑looking” child is round‑the‑clock checks, medication, planning, and worry. HI families work tirelessly to keep their children safe from dangerous lows. ▶️ https://linktr.ee/chcharityuk

In this video, Jane Houghton and Professor Sarah Flanagan explain how genetic testing works, what it can tell us, and how it can guide treatment for children with HI. 📽️ https://youtu.be/I_jISTUDMoQ #HyperinsulinismUK

🎉 Not even halfway through 2026 and our fundraisers have already been amazing! Thank you to everyone who supports, donates and champions our Charity, your support makes everything we do possible 👏🥰 #HIFamilies4HIFamilies

⭐ Let’s start the week by raising awareness of Hyperinsulinism. Share this post to help more people understand this rare and serious condition — and to remind every HI family that they’re not alone. #ThinkHyperinsulinism #HIFamilies4HIFamilies

We are celebrating World Baking Day by looking back at some delicious bakes HI Heroes and Super Siblings have made for our Say HI competitions & challenges! #WorldBakingDay # HIFamilies4HIfamilies #Hyperinsulinism

🎥 Have you subscribed to our YouTube channel yet? 💡 Understanding Hyperinsulinism 🍽️ Feeding Issues & Glycemic Index 🧬 Genetics 📚 Education 🏥 Paediatric to adult care 👩‍👩‍👧‍👧 Development ⚖️ Legal rights, money matters 💓Psychology and support with care. 👉www.youtube.com/@childrenshyperinsulinismUK

The words in this heart reflect what families tell us matters most: support, understanding, kindness, advocacy, and togetherness. As we begin planning our newly diagnosed project, we’re working to build the support families need from the very start. #MentalHealthAwarenessWeek #TakeAction

💜 In this video, HI Heroes share what they want you to know about Hyperinsulinism and how it affects them. When young people are included in awareness and resources, they feel heard, understood, and confident. 🥰Please take a moment to watch and share. #MentalHealthAwarenessWeek #TakeAction

💜 This Mental Health Awareness Week, we’re taking action by highlighting the real mental health impact of Hyperinsulinism on children, young people, and families. This 1‑minute video shares some of the most moving feedback we’ve ever received. #MentalHealthAwarenessWeek #TakeAction

Too many disabled young people are being let down by a broken education system. Only 28% say they get the right support. That means missing out on learning, friendships, and inclusion. This must change. Have your say in the SEND reform consultation: https://ow.ly/9png50YXCWv

This #MentalHealthAwarenessWeek, we’re taking action as we begin planning our newly diagnosed project. Diagnosis is a vulnerable time for HI families, with many feeling overwhelmed, anxious, shocked & confused. We’re working on support, psychological input, and resources to help families.

This #MentalHealthAwarenessWeek, we’re taking action. HI parents describe Hyperinsulinism as overwhelming, with hypervigilance, broken sleep, anxiety & exhaustion affecting mental health. Our visuals also show how HI impacts children, young adults & siblings & why action matters.

To all the incredible mums in our Hyperinsulinism community celebrating today 💐✨ Thank you for everything you do for your families and for our community. We’re wishing you a very special Mother’s Day, filled with love and happiness 🥰

💡Hyperinsulinism is the most likely cause of persistent and severe Hypolycaemia in babies aged 0-3 months. What is Hyperinsulinism? Find out more at https://ow.ly/Ejxp50YPIKv Watch our YouTube video: https://ow.ly/8fV250YPIKu #ThinkHyperinsulinism #Hyperinsulinism #AimHIforHyperinsulinism

Hyperinsulinism is the most likely cause of persistent and severe Hypolycaemia in babies aged 0-3 months. What is Hyperinsulinism? Find out more at www.hyperinsulinism.co.uk #ThinkHyperinsulinism #Hyperinsulinism #AimHIforHyperinsulinism

In #CongenitalHyperinsulinism, the body doesn’t produce ketones when blood glucose is low (Hypoglycaemia). The circulating blood glucose level is therefore relied upon to keep the brain safe, so maintaining blood glucose levels above 3.5 mmol/L is crucial #ThinkHyperinsulinism

🥳CHC Trustee Amanda: Williams amazing Endocrine team at Alder Hey won the Children's Hyperinsulinism Charity award for compassionate care towards William !!! Forever grateful to these amazing individuals who also go above and beyond for William and our family!🥰 https://ow.ly/wPvX50YVtOK

“We spend so much time thinking about the medical challenges of #Hyperinsulinism, but it’s just as important to focus on the psychological impact on children, parents & siblings.” 🌟Charlotte, Clinical Psychologist, Alder Hey - Video is available to watch now! 🎥 https://youtu.be/WarE8V2HDQA#Hyperinsulinism

Life with hyperinsulinism: Blood glucose checks, medications, and hospital stays. Dealing with unexpected and severe Hypoglycaemia. 🥰CHI superheroes are strong and determined, but they also feel anxious and fragile. 💡 We provide resources, fun days, meetups, research and projects led by them!

🎉 A huge thank you and congratulations to Martine and Kate, who completed the Belfast City Marathon yesterday for The Children’s Hyperinsulinism Charity, and in honour of HI Hero Aodhán. Your support means so much to our charity and to HI families 💓 https://gofund.me/1ca3127d9

In Hyperinsulinism, the overproduction of insulin causes severe hypoglycaemia The aim is to keep blood sugars at a safe level above 3.5 mmol/L to avoid neurological harm. This #StarWarsDay: May the Four's be with you! 💫

Missed our latest DigiTalks? 🎥 Catch up now and watch our inspiring session featuring mylife Diabetescare! Don’t miss out. Watch the playback today! 👇 https://ow.ly/NBIw50YT6MK #type1diabetes #mylifediabetescare #T1D #DigiTalks #DigiBete

News article added to the hub today - Martha’s rule may have saved more than 500 lives in England since 2024. www.pslhub.org/blogs/entry/... (via @theguardian.com)

On SNJ Today: Tickets are now available for nasen LIVE 2026: Inspiring SEND Innovation Through Times of Change. Here's a sneak peak at this year's event, with a special offer for parents (sponsored) www.specialneedsjungle.com/nasen-live-2...

🏃‍♀️🏃‍♀️ Tomorrow, Martine and Kathleen take on the Belfast City Marathon in honour of HI Hero Aodhán, raising funds for The Children’s Hyperinsulinism Charity. We are wishing them lots of luck as they get ready for an incredible day. Please donate: https://gofund.me/1ca3127d9 #BelfastCityMarathon

🌞Hyperinsulinism families, getting ready for the summer holidays? Check out our 'Travelling with HI' section for tips, advice, & resources. 🌻Plus, don't miss our bespoke Sunflower Lanyards! https://hyperinsulinism.co.uk/support-for-families/travelling-with-hi/

Too often, the realities of living with Hyperinsulinism (HI) go unseen.​ Rezolute’s VOICE study is here to change that by listening, documenting & honouring your experience.​ 🧡 Your story matters 🔗 https://sheconsulting.qualtrics.com/jfe/form/SV_9HVr5FoWE9t6dRc Rezolute Medical Affairs #RZLTVoice

Did you know that hypoglycaemia can cause a huge impact on learning: 🔹 Concentration, memory & processing suffer 🔹 Easy tasks become impossible 🔹Emotions & Mood are affected Our school packs, YouTube, and resources help schools to understand HI pupils' needs: https://linktr.ee/chcharityuk

Why is this important to share? These are the top 6 symptoms that our Hyperinsulinism families reported before hypoglycaemia was confirmed in their babies. If you see these signs seek urgent medical advice & ask them to #ThinkHypoglycaemia #ThinkHyperinsulinism

🏃‍♀️🏃‍♀️On 3 May, Martine and Kathleen will take on the Belfast City Marathon, running for someone incredibly special HI Hero Aodhán and raising funds for The Children’s Hyperinsulinism Charity. To donate: https://gofund.me/1ca3127d9 #BelfastCityMarathon #HyperinsulinismUK

Living with Hyperinsulinism can make exams even more challenging. Stress, anxiety, and concentration can affect blood glucose levels, and hypoglycaemia impacts focus, memory, and performance. To all our CHI Superheroes sitting exams, we are incredibly proud of you. You’ve got this 💛💙

⭐Alan has completed the London Marathon 👏👏 We can't thank him enough for doing this for our Charity, for HI Families, and for his fantastic family and daughter Amelia 🥰 We hope you get some rest now!! You are amazing!! To donate: https://2026tcslondonmarathon.enthuse.com/pf/alan-clough

🏃Wishing HI Dad Alan, lots of luck as he prepares to run in the London Marathon tomorrow. Our trailer is a reminder of just how brave HI Heroes are and why we value your kindness so much, as you help us to improve their lives and futures 🥰 Please donate if you can: https://ow.ly/JF9z50YLweI

Infant seizes post-breastfeeding, BG 44 mg/dL. Critical sample: elevated insulin, positive glucagon test, elevated ammonia. Dx: HI/HA Syndrome, de novo GLUD1 variant. Responds to diazoxide + low protein diet! 🎨 Dr. Renad Al-Mefleh, MD #PedsEndo #Hypoglycemia #RareDiseases #GLUD1 #Hyperinsulinism

🦢Today, we are showing our support for #UndiagnosedChildrensDay SWAN UK is the only dedicated support network in the UK for families affected by a Syndrome Without A Name, a genetic condition so rare it often remains undiagnosed. 💖https://ow.ly/KlIT50YLw4u#UndiagnosedChildrensDay

Great to see this paper out! #congenitalhyperinsulinism is a life threatening condition with high risk of neurodevelopmental delay, much more research is needed in this area to help improve patient outcomes @chcharityuk.bsky.social

🐰 Chloe the Rabbit Has Hyperinsulinism "Very well written & beautifully illustrated. The look on his face while reading it was priceless: 'Mummy, Chloe is just like me!'" Our storybook helps young CHI Superheroes explain their condition https://amzn.eu/d/fZS6GS8 #WorldBookDay

Caring for a baby or child with Hyperinsulinism can feel isolating, frightening, exhausting, and overwhelming. We are here to support families, helping them connect with others, build a strong network, and form lifelong friendships. 👉Support Group: https://www.facebook.com/groups/CHCharityUK

🏃‍♂️We’re incredibly proud of HI Dad Alan as he takes on the London Marathon to help our Charity support families, bring them together, and fund advocacy and research. ⭐Please donate: https://2026tcslondonmarathon.enthuse.com/pf/alan-clough @londonmarathon #LondonMarathon

Too often, the realities of living with Hyperinsulinism (HI) go unseen.​ Rezolute’s VOICE study is here to change that by listening, documenting & honouring your experience.​ 🧡 Your story matters 🔗 https://sheconsulting.qualtrics.com/jfe/form/SV_9HVr5FoWE9t6dRc Rezolute Medical Affairs #RZLTVoice

Resources for children and adults with Hyperinsulinism to keep safe and alert others: 🧑‍⚕️Medic Alert 🌻Sunflower lanyards 🚨Alert Cards 📑CamRARE patient Passport Find out more:https://hyperinsulinism.co.uk/alert-cards-and-lanyards/ [email protected]