Word of the day is ‘huff-snuff’ (16th century): a hectoring bully or braggart.

The Covid Inquiry has revealed systemic failures that left Clinically Vulnerable families unprotected during the pandemic. Our latest update delves into these oversights and their lasting impact. Read more: www.clinicallyvulnerable.org/post/covid-i...

👤 Our first starter pack is a handy repository for all SSI Fellows on Bluesky. Connect with them at go.bsky.app/BaXzrAh and if we've missed missed anyone, please let us know!

I am #recruiting an #infrastructure #RSE to work on #OpenSource #DataSHIELD for #FederatedAnalysis of health data. Experience in one of e.g. Linux server admin, database usage, Docker, Kubernetes Salary: £39,105-£58,596 Duration: 1-2 yrs dependent on salary Details: bit.ly/4ht8cUs Closes 12 Feb.

Showing my age 😱. Not sure why we are holding onto these, but we are somewhat nostalgic about them. Does anyone else have these? What followed after this was subsequent 15 years of #Linux. #Vintage #Retro #Microsoft #Windows95 #Windows98 #WindowsNT #WindowsXP #Windows7

We are dismayed that the Health Secretary has utterly misinterpreted the evidence from the Inquiry. Although Ritchie restated her flawed beliefs, the evidence is overwhelming, and was presented to the Inquiry, that the primary mode of transmission of SarsCov2 is airborne.

A few months ago I tested the new @merseytravel.bsky.social level boarding trains for AccessAble & @lpoolcityregion.bsky.social . A very windy and rainy day, but the new trains are life-changing for #Wheelchair users. #Accessibility #Liverpool #Southport www.instagram.com/reel/DE7a2vA...

Full report here: www.bigissue.com/news/social-...

If only public health authorities gave the same level of emphasis to portable air filters as they do to handwashing… www.sciencedirect.com/science/arti...

In early 2020, a pandemic was spreading. The UK’s PM went on a 10 day half-term holiday during which he was uncontactable and the government went into panic mode, focusing, as Hancock related to the COVID enquiry, on buying enough body bags. 1/8

🧼 “You can’t hand wash your way out of this quad-demic because it is mainly spread by what you breathe in and what you breathe out." - Dr @evonnetcurran.bsky.social retired infection control nurse. inews.co.uk/news/health/...

Brilliant substack @independentsage.bsky.social . UK is a failure of #PublicHealth policy & messaging re #covid19 #Indoor #AirQuality and #mitigations. Not even consistent with historical practice. Real life example of the allegorical film Don't look Up. open.substack.com/pub/independ...

🚨 Clinically Vulnerable Families call for robust IPC measures in healthcare to reduce preventable infections and further lost lives. inews.co.uk/news/son-hos...

When your #PIP mandatory reconsideration fails and you now have to take it to #tribunal and wonder where the #Spoons will come from. I provided my #SocialCare needs assessment as evidence of the HUMAN assistance I require for daily living. #DWP can't read the evidence 🤷‍♀️. #Disabled #Welfare

Well things have not improved this week. Visible App Stability score Mon-Friday 2, 2, 1, 2, 1 😭😭😭. Fatigue is my normal levels, only my heart rate is stupidly high 🤷‍♀️. Going to deep rest for the next 2 weeks while Uni is closed. #CFS #TM #disability #ChronicIllness #DisabledInSTEM

I'm using the free Visible pacing app to manage #CFS like symptoms (primary & secondary #fatigue for #neuroinflammatory #disability). First time i've scored lowest value for stability. Prob should take the day off sick, but got 3 meetings today 😭🤷‍♀️ #ChronicIllness #DisabledInSTEM #DisabledAcademic

Who uses #DataSHIELD open source software for #FederatedAnalysis with #AutomatedSDC ? Over 180 data sites, across 5 continents, over 40 international research consortia. www.linkedin.com/posts/drbecc...

Living in the UK? Concerned about the lack of testing for COVID and spread of infections within hospitals? Then support and share this petition to 'direct the @UKHSA to monitor, and report on, numbers of COVID infections that occur in healthcare settings'. petition.parliament.uk/petitions/70...

#Disability is about grieving & acceptance. Acceptance was quick for me: once neurologist said spinal cord damage was permanent unlikely to improve there was nothing I could do. Grieving: 11 yrs on I still mourn the life we will never have & how hard our life is now. #ableism #TM #WheelchairUser

Thread from #CovidEnquiry evidence from mid 1st pandemic year showed covid being airborne - but PPE e.g. FFP3 masking has never been adopted in healthcare settings and staff can work covid+ without precautions spreading it to patients and colleagues. #disabled #CV #ChronicallyIll are on their own.

CV, chronically ill & disabled people were not protected then, and are not protected now. Identical to self advocacy for disability (to get diagnosis, equipment, social care, adjustments, blue badge, PIP, Access to Work) you are alone unsupported and must arrange / pay for mitigations yourself!

Andrew Tate: I’M HERE Bluesky: No

I heard that Andrew Tate tried to come stretch his awkward wings here and got banned in just one day. Sorry, hate has no home here. Stay in the bad place, thanks.

🚨ANNOUNCEMENT: Our open letter, signed by leading scientists & HCPs, urges the JCVI & UK Gov to reverse the decision denying COVID vaccines to millions of Clinically Vulnerable people who still qualify for 'flu vaccines. A "willingness-to-pay" approach puts lives at risk. 1/

COVID VACCINE ELIGIBILITY 🇬🇧, a thread🧵 JCVI have just advised that, going forwards, eligibility for Covid vaccination will be even more tightly restricted. But the ‘bespoke cost-effectiveness assessment’ upon which this is based is heavily flawed… gov.uk/government/p...

Hello @bsky.app family!

With Bluesky user numbers rocketing, more official news accounts are arriving. Here is a starter pack of major media outlets. Feel free to repost, I’ll keep this updated as more arrive.

Got the #DisabledInSTEM Starter Pack up and running! Can't wait to see the list grow and meet new connections! 💜 go.bsky.app/SwJ4rFX

Until now I have only ever had a burgundy EU passport. Now I have the (pre-EU) navy blue, and am unlikely to be issued a burgundy EU one again in my lifetime. This burgundy one is also my traumatising log of post-disability travel. #EndOfAnEra #BluePassport #EU #Brexit #disability #WheelchairUser

#Disability #ChronicIllness #Care for #elderly and #disabled family impacting low and middle income families. "Britain’s 13 million low-to-middle income families are older and more likely to suffer from poor health or a disability than three decades ago." #HealthInequality #SocialInequality

Thanks for following us on Bluesky! We’re the official resistance team for the National Park Service.

If you keep forgetting alt text, this setting is for you. It's awesome!

Here's an @independentsage.bsky.social starter pack for people recently arriving over here and looking to find old friends. go.bsky.app/TbZdrEU

The financial burden of disability is already staggering - close the Disability Pay Gap! The max UK disability benefit covers ~half these costs. I once calculated that my household has incurred £200,000 of costs for the first 10 years of my disability. #UK #Disability #PayGap #DisabledInWork

The #trauma of #AccessToWork #DWP #ATW. Started my in-work support renewal in June 24, old award ran out Aug 24. Employer must front costs and claim back once sorted. Had to contest ATW decision once already. Maybe I will get approval for support by end of year 🤷‍♀️♿. #Disability #UK #DisabledAcademic

"fundamental reforms to the health and #disability benefits system" to cut #welfare bill to push more #disabled people into work, while #AccessToWork deem the disability #support needed as unjustified or too expensive (despite being < annual claim cap). Without this support many can't work. ♿🤦‍♀️ #UK

Not sure what happened this year but @tescoofficial.bsky.social #XmasDelivery slot reservation was super easy. Joined pre-queue from 5:40 > queue opened at 6am > check out slot at 06:02. Winning at #adulthood! I somewhat miss the traditional Tesco Xmas queue twitter banter though 😂 #Xmas #Tesco

It feels fitting that our first post on Bluesky is DR UK's statement condemning the role of X in the rise of far-right violence across the country. Read our full statement on our website: www.disabilityrightsuk.org/news/stateme...

Trying to wean myself of twitter. But where is the #UK #Disability #AcademicAbleism community now? The #disability hashtag here seems to be predominantly US focussed. X has destroyed my academic disability community... But where has everyone gone?